ABORTION IS NOT OK for Boys With Klinefelter Syndrome

Jen was faced with a horrifying decision her doctor placed on her when she found out her NIPT test returned positive for Klinefelter syndrome. Over 70% of boys diagnosed in utero with Klinefelter syndrome are terminated.
Klinefelter syndrome is males' most common chromosome condition, yet rarely diagnosed. Misinformation is killing these boys, and we need your help to update this information. livingwithxxy.org/

Пікірлер: 136

  • @jasonf70
    @jasonf70 Жыл бұрын

    I have Klinefelter. I may not have kids of my own. I raised my step kids to become good adults. Hearing this is ridiculous. I'm a US Army Veteran. I have to take testosterone the rest of my life. My life has been amazing.

  • @LivingwithXXY

    @LivingwithXXY

    Жыл бұрын

    Jason this is Ryan, I would love to hear more about your life and share your story if you are interested. Email me Info@livingwithxxy.org

  • @retiredsmlltwncop3985

    @retiredsmlltwncop3985

    Жыл бұрын

    Thank you for your Service to Our Country! God bless you and your Family!

  • @chrsd2536

    @chrsd2536

    Жыл бұрын

    Jason F, I was told that my son who is 21, could not join the army because he had to have testosterone shots regularly. Is this not true? He would love to serve.

  • @LivingwithXXY

    @LivingwithXXY

    Жыл бұрын

    @@chrsd2536 Klinefelter syndrome is listed in the massive list of things you cant have if you want to join the military in the USA. Some guys served and got diagnosed later on or are already in the military. The best way to find out is to go to a recruiter and ask.

  • @chrsd2536

    @chrsd2536

    Жыл бұрын

    @@LivingwithXXY That's the answer. If you're diagnosed while you're already enlisted, that's different. Thanks a million for your reply.

  • @mrskaylaatkinson
    @mrskaylaatkinson Жыл бұрын

    My husband has KS It started when we started dating, I noticed he had male breast (gynecomastia) We went to a doctor and they did a physical/ blood test and found out he has an extra xxy chromosome. We learned that if he had been taking testosterone before puberty he probably would have been able to have kids and live a some what normal life. But since he was diagnosed so late we’d probably never be able to have kids but adopted or ivf was an option. He even had to have surgery to remove the gynecomastia because he was at risk for breast cancer since cancer runs through his family. He is such a caring person, I can’t imagine my life without him. He works hard every day and has goals in life and has accomplished so much. He’s currently working on getting his masters in business and plans to become a store manager at Walmart in the near future. His goal is to run his own store. I’m beyond proud of him. I can’t believe someone would abort a perfect baby. I’m sorry someone told you that. I believe your son is a wonderful kid. Having a baby with KS is not a reason to abort a baby, anybody with KS who can’t have kids would probably love to adopt these wonderful babies. I know we would.

  • @LivingwithXXY

    @LivingwithXXY

    Жыл бұрын

    Men with XXY cant have kids regardless of age. Most if not all of us cant. Some have had kids but very few from Micro-Tese.

  • @zahid368

    @zahid368

    Жыл бұрын

    Nice story mam...

  • @mrskaylaatkinson

    @mrskaylaatkinson

    Жыл бұрын

    @@LivingwithXXY Thank you for the information 🙏🏻😊

  • @Notify57

    @Notify57

    Жыл бұрын

    @@LivingwithXXY I’m am 16 and just discovered I have this …. If I start taking testosterone therapy now does it give me better chance of having kids of my own?

  • @emmajones8590

    @emmajones8590

    Жыл бұрын

    @@LivingwithXXY Isn't it possible to have XXY / XY mosaicism, which means that the person is less affected by any problems? This seems to be the case with Down Syndrome and a lot of other conditions.

  • @kreedg2474
    @kreedg24747 ай бұрын

    My syndrome was kept secret from me from my parents till I was 16. I never did my own research till now due to learning complications showing up now I’m 21. I get so frustrated with myself not being able to learn basic easy tasks

  • @retiredsmlltwncop3985
    @retiredsmlltwncop3985 Жыл бұрын

    Thank you! I am XXY and though my physical life is different than non-xxy males I would like to thank you for keeping your little guy. Hug him every day, he will need you the older he gets. You are an amazing woman, thank you for your courageous voice! Dyslexia, check. Gynecomastia, check Extremely low testosterone, check Sterile, check (though I did father my Son, our only child after 10 years of trying), check 17 year career as a Police Officer, check Bachelors of Science in social services with emphasis in law enforcement, check. Two Masters Degrees, check. Happily married, check. Genius Son, check.

  • @LivingwithXXY

    @LivingwithXXY

    Жыл бұрын

    This is Awesome! Send us an email, we would love to share your story. Info@livingwithxxy.org

  • @retiredsmlltwncop3985

    @retiredsmlltwncop3985

    Жыл бұрын

    @@LivingwithXXY sent

  • @edwardsparanormal
    @edwardsparanormal4 ай бұрын

    I am shocked that 72% of us are terminated. Wow I have a story. I am now 67. My mom was a school teacher also a registered nurse. She stopped nursing when I and my sisters started elementary school, and became a teacher. She tried everything she could to help me not knowing I was XXY. All through elementary, middle and high school I struggled. On my high school graduation document was written "Not recommended for college". I was diagnosed at the Mayo Clinic in Rochester, MN in 1987 during a physical prior to hip surgery. When I hit 30 I was laid off. My company provided education funds. I used it to go to college. From the junior college entrance exam, they required remedial courses of math and English - along with a "How to Study" course. The How To Study course was freaking amazing! Had I this course in high school, I would have shined. Knowing I had great difficulty with Math, I saved those classes form last. When I started my first math class I was at a 4.0 GPA. While in college during a biology course, I was the only male in this class. The rest were female nursing students. I sat in the front row. In one class my teacher described what an XXY male was like. "They have pear shaped bodies, have female breasts and are mentally retarded". Wow! On the day of my final exam, I waited until all students walked out, and when I handed my test to the teacher, I said "do you remember when you described XXY males to our class? I want you to know not all XXY males have pear shaped bodies with female breasts and are mentally retarded". I told her that I am XXY!" She was shocked! I graduated with a 3.5 GPA with honors. I retired from IBM in 2016.

  • @natscat4752

    @natscat4752

    3 ай бұрын

    Nice one! Well done and you write well too. Thanks for telling your story.

  • @tesswall3143
    @tesswall3143 Жыл бұрын

    I’m with you, thank you for speaking up. My 47Xxy son is now going to be 15yo. He is compassionate, kind & very talented.

  • @LivingwithXXY

    @LivingwithXXY

    Жыл бұрын

    Thank you for sharing!

  • @mnschu
    @mnschu Жыл бұрын

    Thank you for posting this video and bringing awareness. This is exactly what my wife and I went through when our son was diagnosed in utero. A lot of archaic and misinformation given to use by a Genetics doctor. We knew nothing about XXY, only what he told us. The setting and the presentation was done in such a way to encourage termination. They seemed to want to schedule it right then at the meeting. I am so glad we did some of our own research and discovered what he said was a lie. We did not terminate and our son is such a treasure to our family. It is shameful that this still continues in this modern age. Anyone reading this please note that XXY boys are just as normal as any other human. Aborting based on XXY condition is like aborting based on sex or race. Anyone that received in utero diagnosis please realize that in your life you have met, worked with, went to school with, may have even been friends with someone with XXY and did not even know it. Anywhere from 1 in 500 to 1 in 1000 of males are XXY.

  • @busyrascal2895
    @busyrascal2895 Жыл бұрын

    My son is almost 4 and was diagnosed with klinefelter syndrome just under a year ago. He had undergone genetic testing to determine the cause of his speech and learning delays. He is the most loving, affectionate, funny, sweet, kind, determined beautiful little boy in the universe. I don't know what his future holds but I know that I love him more than anything and that as long as he is happy and healthy that's all that matters

  • @LivingwithXXY

    @LivingwithXXY

    Жыл бұрын

    Thank you for sharing!

  • @karimako1983

    @karimako1983

    Жыл бұрын

    Hi ,I just wanted to ask,do you think that klinefelter kids must go to special schools or it’s not necessary..

  • @busyrascal2895

    @busyrascal2895

    Жыл бұрын

    @@karimako1983 Hi, I would say that it varies from individual to individual. My son is 4 with a developmental age of 2.5 and a speech age of 12-18 months currently, he is likely to be places in a special setting, although here in the UK (not sure where you are) some mainstream schools are able to cater for and take on special needs children who have an EHCP, I haven't really answered your question unfortunately as klinefelter is not one size fits all from what I can deduce

  • @karimako1983

    @karimako1983

    Жыл бұрын

    @@busyrascal2895 I see there is a big variation from case to case,thank you for your quick respond ,I try to find comfort,but it’s not easy with our present social standards,sorry for my bad English,nevertheless I wich only joy and happiness for your family,have a nice evening

  • @busyrascal2895

    @busyrascal2895

    Жыл бұрын

    @@karimako1983 Please try not to worry, the only thing that matters for our children is their health and happiness, its okay if your child needs to go to special school, it's okay if your child struggles, I know things may be harder in your country and if they are then I'm so sorry, but klinefelter is not the end of the world, just love your baby. I wish you and your family health happiness and many blessings

  • @TheBWF187
    @TheBWF187 Жыл бұрын

    My son has KS, and he's just like ANY other little 5 year old. Also a very charming little man! Thanks for sharing!

  • @LivingwithXXY

    @LivingwithXXY

    Жыл бұрын

    That is awesome! Thank you for sharing :)

  • @lisafoodie8443

    @lisafoodie8443

    Жыл бұрын

    my son has a very kind heart...hes cheeky but hes kind...love him to bits...

  • @ironsword7
    @ironsword711 ай бұрын

    Sadness for every soul that's been terminated. Potential that was never given a chance.

  • @Gondryn
    @Gondryn Жыл бұрын

    I have KS, is life always easy no, then again when is life ever easy. KS or non KS we all struggle with something, some more than other and that goes either way too. KS made me who I am, and I am happy to be the man that I am! BTW to many KS men who are told that you don’t have what it takes to graduate from college. I was told that, but here I sit with my Masters in Education, never give up. We work twice as hard to succeed, but it makes us that feel much more proud when we reach our goal.

  • @LivingwithXXY

    @LivingwithXXY

    Жыл бұрын

    Robert! Thank you so much for sharing!

  • @Taries58
    @Taries58 Жыл бұрын

    My 42 year old son was finally diagnosed at age 19 with XXY....as he has gotten older he still struggles with the weekly "teenage girl PMS side effects" prior to his Testosterone injection. Also diagnosed with ADHD at age 6. At age 36 he was diagnosed with Asperger's & a non-verbal Learning Disorder. He is my room mate & my best friend. He amazes me with how smart, emotional, kindhearted, and a mess he is! I love him with all of my heart and soul! My Dad was his role model, & my Mom too. I an 64 & diagnosed with Asperger's when I was 60. What a pair we are! 😜🤪💝

  • @LivingwithXXY

    @LivingwithXXY

    Жыл бұрын

    Thank you for sharing!

  • @AbshirFuaad

    @AbshirFuaad

    Жыл бұрын

    You are a great parent.

  • @somethingsomething404

    @somethingsomething404

    11 ай бұрын

    He may benefit from a testosterone cream to bridge him to his next injection. worth checking into!

  • @heavyhorrornyc
    @heavyhorrornyc2 ай бұрын

    Im crying with you girl, my son is 4yrs old, feeling every word u say

  • @tomemberton1546
    @tomemberton15468 ай бұрын

    You are AWESOME SAUCE!!!!!! BLESS YOUR FAMILY!!!!

  • @LivingwithXXY

    @LivingwithXXY

    8 ай бұрын

    I appreciate that

  • @brigitteluis5326
    @brigitteluis53268 ай бұрын

    Thank you!! My son has KS he’s 3 moths the happiest little baby loves to smile and laugh he’s so perfect 🥰

  • @jagannathsahoo9586
    @jagannathsahoo95862 ай бұрын

    I am studying bio and when i came across chromosomal disorders i realised i have listened to XXy before so i searched it.

  • @Chroneosk
    @Chroneosk Жыл бұрын

    I had no clue that there was a 70% termination rate for pregnancy with Klinefelters. My youngest has it, and I can't believe that people are getting told all this about them. I can't speak for others with it, but so far my son is absolutely normal, slightly behind technically but there are plenty of people who don't have anything and are slightly behind its completely normal. He's completely normal, even with an extra chromosome. It's crazy that people are thinking it's a death sentence and that its better not to bring them into the world because of this syndrome. I have to say from my experience so far that that's not true. So not true. Just found your page and I have to say I'm so grateful. Will definitely be keeping an eye out on your stuff from now on, thank you!

  • @Jimmyallenbedgoid
    @Jimmyallenbedgoid5 ай бұрын

    I have Klinefelters. My parents were advised to terminate. Thank you for this video.

  • @LivingwithXXY

    @LivingwithXXY

    5 ай бұрын

    You're welcome

  • @spirofarmaku6772
    @spirofarmaku6772 Жыл бұрын

    Child is lucky to have her as a mother ,my mom on other hand said if she knew about my disease she would terminate me,probably i would want same thing,not big deal losing this kind of life

  • @LivingwithXXY

    @LivingwithXXY

    11 ай бұрын

    Well you are here, and you can share your story to make a difference.

  • @benwagner2000
    @benwagner20005 ай бұрын

    It makes me wince that pyromania and other bizarre spectrum disorders used to be so closely linked to Klinefelters. Parents would see that and end up ending what could have been a beautiful, healthy pregnancy. It's very troubling, and I'd like to think this is changing.

  • @iaingrice2703
    @iaingrice2703 Жыл бұрын

    We're unique,I'm an adult with KS,hate it can't except it.Such a lonely life.😢

  • @AbshirFuaad

    @AbshirFuaad

    Жыл бұрын

    Same.

  • @elizagonzalez3797

    @elizagonzalez3797

    11 ай бұрын

    My son has KS. You might feel lonely. But you are not alone. KS is a big heavy cross. If you can't pick it up, it will crush you. My son lifts his cross with the help of Jesus Christ. If you find it in your heart to make room for him, you will never feel lonely, and your burden will become his. God bless you both.

  • @mrs.e996

    @mrs.e996

    11 ай бұрын

    I recently found out my son has KS . It explains a very difficult childhood and he struggles as an adult . I pray for all men who have this syndrome that they can find purpose and peace with this diagnosis. I am struggling as a mother as well . I had no idea about this syndrome until we got the diagnosis.

  • @natscat4752

    @natscat4752

    3 ай бұрын

    Thinking of you. I hope you can come to accept it, we all have our strengths and weaknesses but this is our chance at life. If you are lonely try to join some clubs or a course where you can meet good folk. If you can talk through your feelings with someone that would be good, reach out to Living with xxy to be connected to someone.

  • @Waterboy2434
    @Waterboy2434 Жыл бұрын

    Fuck no we should not be aborted thanks for speaking up

  • @tina2chap
    @tina2chap Жыл бұрын

    Yes Jen, it is NOT a reason!!!

  • @frogtherapist9772
    @frogtherapist97723 ай бұрын

    cant imagine what wouldve happened if my parents found out i had it before having me

  • @HerbChao14xs
    @HerbChao14xs5 ай бұрын

    I'm struggling because one of my friends (and the best Magic player I've ever met in person) has it and being friends with him can be a roller coaster at times (not as bad as my first gf who had bipolar disorder, and whom I still love and will to my dying day). I struggle because deep down I know he is a good kid, and he has done some great things for me. But then he will have these borderline autistic like meltdowns/rants, will be emotional, and then the next day will apologize and feel bad (and then you feel bad for not being sure whether to be angry). I am due to talk to him again this week (on a number of things. Doing my best to have empathy (which he struggles with too)> He so desperately wants to have a g/f but has been struggling with getting a girl to commit to him since he broke up with his last gf.

  • @LivingwithXXY

    @LivingwithXXY

    5 ай бұрын

    Keep being a good friend. I think I know who you are talking about and have met him before. Everyone needs love!

  • @Bethoflife
    @Bethoflife Жыл бұрын

    The more things are demystifed, the more we realize how God works. These kids are extremely intelligent.

  • @scoobydoo4985
    @scoobydoo4985 Жыл бұрын

    THANK YOU. I'm a Klinefelter adult now and think I am pretty cool. I never knew that doctors would give that option to people. Feel free to ask me anything.

  • @LivingwithXXY

    @LivingwithXXY

    Жыл бұрын

    Awesome! We love the support!

  • @karimako1983

    @karimako1983

    Жыл бұрын

    Scooby do ,yes you re cool,I wanted to ask you ,do you think that klinefelter kids should go to special schools or it’s not necessary..

  • @2100christopher

    @2100christopher

    Жыл бұрын

    @@karimako1983 I'm really christopher lol. I did have a learning disability but I coped with it. I don't think kfs kids should all be in special classes. I met a KFS guy that was actually a hospital administrator. That should give you some peace of mind that we all are different and some of us have talents greater than others even in the "normal" spectrum. I don't buy into a lot of the medical thinking. Doctors "Practice" medicine and dont have all the answers to everything. They only go by their case studies. As I think about it, who joins studies? Generally, lower income folks do for that free medical treatment. They have the time for the freebies but don't make time for educating themselves nor expecting their kids to expand. My Mom came from educated people and was well off. She was one of 2. My Dad came from a family of 7 and they were poor and he made it through High School but was pretty intelligent. Kids inherit their intelligence from their folks even if they are born with a disability so don't fall into pigeon holeing him into the worse case scenario that you googled about KFS. I would also share to not use KFS as a crutch and don't let him. Just explain that we all get a body and some come with exceptional talents and some come with some challenges but we all come with the ability to overcome. Have you noticed that deaf people are enhanced in other senses, as are blind people? Same with us. I have lot to share but am limited. Treat him the best as if he was perfect. Expose him to all the sports until he finds one he likes. Expose him to musical instruments or choir. Expose him to camping, fishing, all your family traditions. Expose him to all these things so he can learn and develop and find what he likes. Jason F, one of the respondents, is an army vet. That is exceptional. It's true that the testosterone therapy sucks. As a girl goes through the emotional ups and downs from being on a period, so do we guys that have to take these dang shots. So have some compassion around shot time. LOL. KFS guys get emotional like girls do. I always say, Girls cry and Boys cry, and Men Yell. You will notice as my kids do, I get a lot done straight after a shot. I'm focused and direct. Before the shot, I am wishy washy, and super sensitive. I can cry watching re runs of the Waltons, or Little House on the Prairie. LOL This is why it is so important for boys and young men to get involved in sports because it is a physical outlet. As the army vet, Jason would probably agree, physical activity is a must. When I was a teen starting out on testosterone, we had lots of farm work, wood cutting, etc to keep us physically active. Our punishments for sassing our mom was chopping wood and serious yard work. Our Dad made us choose one form of music and stick out thru the year and one sport and stick it out even though we hated it. KFS kids and teens need structure, so get him involved in all you can. Music gives us inner rythm, teaches us to work with a teacher and fellow peers and teaches us great breathing skills and gives us a sense of accomplishment. (go to all his performances - don't miss anything even if you hate it) Sports teaches discipline, helps them channel and bridle their passions and control their rages from hormone fluxations and teaches them respect and commradery for one another. Everyone knows that physical exercise makes you feel good. All this will elevate his self esteem and self worth is key. I see I was rather verbose. This is funny cause I didn't talk much in my youth due to my initial speech delays but now, you can't shut me up. LOL I hope this helps a little.

  • @karimako1983

    @karimako1983

    Жыл бұрын

    @@2100christopher actually it helps a lot !I see clearly what you mean,bigger obstacles,means just bigger effort,and with bigger effort comes most of the time good results ,for me is just essential that his feeling more or less ok with his situation,I don’t want him to be depressed,I ll try my best to make him happy,I m collecting information,as from your personal experience,so that was really helpful!i m sorry for my bad English it’s not my native language.I m more than grateful for all this data,have a nice evening mr Peter Parker 😉

  • @2100christopher

    @2100christopher

    Жыл бұрын

    @@karimako1983 WOW! I read the rest of the responders and it is truly exciting to read that there are some that have educated through a Masters program. Isn't that so awesome? Your doctor was a bonehead to offer termination. Maybe, just maybe, the kfs guys are exceptionally more talented than the normal guys? I've got a buddy in Orem Utah that has a computer business and most of his programmers have asbergers syndrome and he prefers that because it is the best fit for the work. I have a room mate that has asbergers and he is super smart, but sometimes challenging to socialize with but life is about learning how to work together and I love a challenge. I don't have asbergers but some of us do and that is why I mention it. Asbergers is on the autism spectrum to which I am on that spectrum but high functioning. I think we KFS guys are always learning. You are a smart mom and I am so proud of you for learning all you can to make your boy's life a successful one. Good on you and your sweetheart who are parenting together. Your kids are going to have ups and downs as we all did. This that we have can be a stumbling block or a stepping stone. He is so fortunate to have involved parents gathering from others to make his "adventure" a good one. I wanted to share, not to boast but to share some of my accomplishments to give you some idea what some of us can do. I had major learning disabilities so I had to take summer school through all the school years just to pass through. I just didn't get it until later in life. I did the 2 year Mormon Mission which I learned a lot and had fellow peers teach me how to study. One thing we had to do was memorize holy scriptures. This was taught to me in a sing song way and I was able to memorize a lot. After the 2 year mission, at 21, the little college I did take, I was able to memorize text books and get straight As. I couldn't afford to finish and had challenges working for others, so I started a landscape business. I worked in a prominent city in Oregon where I was from and was able to work for prominent people and famous actors and even our local basket ball team. Doing so, enabled me to get good exposure to other opportunities. I went on to attain a massage license and bought a building on the west side and practice massage for years. I married a beautiful woman and we had 2 daughters together but they were manufactured by some other guy while I was at work LOL I also had a son given to me by his mother. I took custody of my kids when the youngest 2 were 3 and 4. It is a rare occasion when the father of 2 female kids and one male gets custody. They don't usually give the male parent the kids unless the mother is abusive or neglectful and she wasn't. I was just in their lives and could give them a better life due to excellent income and being debt free. I've kept their home and they love that I still have the home they grew up in. The youngest is still with me until college is over. I am debt free and comfortable. I continue to learn new things and stay active running a business and do my interests. I'm also a kid at heart still. A massage client and judge once told me, "Get all the toys, video games, big tv screen, pools, trampolines in your yard and orchestrate all the outings, camp trips, trips to the beach and amusement parks, rivers and lakes for your kids because, you will always know where your kids are and who they are with, which is with you. I still have everything and I play their games, I join all the social media platforms they are on and I do things with them, so I know where they are, who they are with and they will know I am over their shoulder with them. Family is pretty important to all humans especially KFS kids. Love your boys. Dads need to hug their boys and face to face tell them out loud they love them. This will help the boy's self esteem because sometimes, the boy may not feel like a real man having to take hormone shots and know he is different. I tell my kids who did not have my syndrome, "remember who you are, always know that I love you and will always no matter what you discover about yourself and what you want to do with your life and with whoever you team up with." they always say "I know Dad!" 2 are str8 and one is gay and all are well educated, smart and confident. They know that Dad loves them. I get the mother's day and father's day cards. LOL

  • @M.-fy8gj
    @M.-fy8gj4 ай бұрын

    Just learned about this because I recently adopted an XXY kitty. I learned that he has KS because of his unique color pattern (calico/torbie males almost always have KS) and decided to read a bit about how it affects humans. This is heartbreaking. I'm shocked to learn that the majority of boys with his condition end up being aborted. 💔

  • @peakyboinders4847
    @peakyboinders4847 Жыл бұрын

    I'm from Bangladesh, a KS 26yo adult. I'm too much frustrated now. I have wide hips, less chest hair & low beard. I'm devastated after finding out the symptoms

  • @amarendramijhar8936

    @amarendramijhar8936

    Жыл бұрын

    Bro i am from India originally a Nepali and have these symptoms too....i feel u but don't be devastated...just work out...klinefelter syndrome..so what??? Who cares....we are still men and men analyze the situation and make the best move possible and i want u to go to gym and kill it bro

  • @AbshirFuaad

    @AbshirFuaad

    Жыл бұрын

    ​@@amarendramijhar8936you are a positive man. Between I'm KS too.

  • @SAMEERKHAN-tf5xs

    @SAMEERKHAN-tf5xs

    7 ай бұрын

    @@AbshirFuaad Hello dear , I want to ask some thing from you ,bro

  • @georgechelseasmith5576
    @georgechelseasmith5576 Жыл бұрын

    Thank you for posting this❤

  • @LivingwithXXY

    @LivingwithXXY

    11 ай бұрын

    You're so welcome!

  • @angeninetytwo
    @angeninetytwo Жыл бұрын

    Why would someone suggest termination for a baby with Klinefelter syndrome as if it was a death sentence? Bizarre , glad you didn’t listen to that doctor .

  • @LivingwithXXY

    @LivingwithXXY

    11 ай бұрын

    Most of our community has experienced this.

  • @kennethmcrae1387
    @kennethmcrae1387 Жыл бұрын

    I’ve had life long problems from Klinefelter. The subject is complicated.

  • @Polaskavikindi
    @Polaskavikindi25 күн бұрын

    I'm 17 and I have XXY. I still don't tell my parents but maybe they already know.

  • @mugiwara7393
    @mugiwara7393 Жыл бұрын

    My search for enlarged breasts lead me to KS, comparing my symptoms they completely match. I'm 20 and have not told anyone, not even my parents (I think my dad had it too, he got me through artificial reproductive techniques I guess). Right now I only want my Gynecomastia removed but I know I need hormal therapy maybe it's too late for that too, but I don't know how to tell my parents about it. I'm soon gonna join med college and sometimes I'm afraid if I'll be able to graduate because it's so tough what if my condition gets in the way.

  • @dcijams
    @dcijams5 ай бұрын

    i found out when I was 27 years old. while body building, breasts starting developing vary fast. it's when I went to see a doctor. and was tested. then learning about all the side affects ( the light bulb went on). Now, I know why, I had all the issues while growing up. ( everyone thought I was just lazy. ( never likes sports)

  • @somethingsomething404
    @somethingsomething40411 ай бұрын

    It’s not a reason to terminate FOR YOU. Other people could have different risk tolerances. that’s FINE.

  • @somethingsomething404

    @somethingsomething404

    11 ай бұрын

    It doesn’t seem like that big of an issue, I would have a hard time deciding. some people are very risk averse and have good fertility so would prefer a child with no “red flags” before a clump of cells grows into a person

  • @LivingwithXXY

    @LivingwithXXY

    11 ай бұрын

    Some stats for you, over 70% in USA for XXY are terminated. The information is outdated and not correct, much of it saying we are more likely to end up in jail, be rapists, murders, etc. Over 85% in Canada and close to 100% in other countries. That is a huge deal when 75% of us never get a diagnosis and lead normal lives.

  • @tanashiver65
    @tanashiver65 Жыл бұрын

    Well said !! Very relatable♥️

  • @LivingwithXXY

    @LivingwithXXY

    Жыл бұрын

    Thank you!

  • @jamesvogel7356
    @jamesvogel73568 ай бұрын

    I found I had it at the age of 60. Wish I had known when I had been a teenager. Finding out filled that void , the whole in the donut. I had no idea women killed their babies because of it.

  • @orvos1459
    @orvos14596 ай бұрын

    How much does the test cost?

  • @brit4294
    @brit42942 ай бұрын

    I'm shocked that there's such a high rate of abortion for Klinefelter syndrome.. they are really completely normal and capable men and it most of the time goes unnoticed until they try to have kids. So that is insane that it really is something that is an option and considered at all.. clearly due to a lot of misinformation. I feel like abortion should not be a consideration what so ever

  • @nikolinavorkapic936
    @nikolinavorkapic936 Жыл бұрын

    Thank you so much💜💜

  • @LivingwithXXY

    @LivingwithXXY

    Жыл бұрын

    You're welcome 😊

  • @aliciapuebla6596
    @aliciapuebla6596 Жыл бұрын

    Hallo i understand your situation because i have a boy with that syndrome, you must be very happy because they are not special they can do every think now my beautiful son is studying to become a che and you know i am very proud to have him he gave me happiness and he is independent boy you need to help your kind because they can do all they are normal go to the doctor and he will help you 🙏be strong 💪 and he will give you to much happiness 🤗🤗belive me 🙏

  • @LivingwithXXY

    @LivingwithXXY

    Жыл бұрын

    Yes, thank you

  • @aliciapuebla6596

    @aliciapuebla6596

    Жыл бұрын

    Thanks i just want to said my son wants to become a CHEF I WISH YOU THE BEST FOR THE PARENTS HAST KIDS LIKE MY KID THEY ARE SO WONDERFUL 😘😘🙏

  • @little_tinker
    @little_tinker Жыл бұрын

    Thank you

  • @LivingwithXXY

    @LivingwithXXY

    Жыл бұрын

    You're welcome

  • @Tbbb685
    @Tbbb6854 ай бұрын

    Seems to be some cognitive dissonance here. She keeps saying she’s pro abortion then getting upset at the thought of these children being aborted. Confusing

  • @mercyguyo2663
    @mercyguyo2663 Жыл бұрын

    Well said ♥️♥️♥️♥️.....l was born with MRKH syndrome l will adopt one day cz l can't carry pregnant cz l don't have womb

  • @jacintpalfi1677
    @jacintpalfi1677 Жыл бұрын

    Thank You!!!🙏🙏🙏🙏😥😥😥

  • @LivingwithXXY

    @LivingwithXXY

    Жыл бұрын

    You are so welcome

  • @jacintpalfi1677

    @jacintpalfi1677

    Жыл бұрын

    @@LivingwithXXY Ryan! Most of all, I can thank you for my Son!🙏🙏🙏🙏🙏

  • @937monsterfishkeeper7
    @937monsterfishkeeper710 ай бұрын

    I have Klinefelter syndrome I got diagnosed back in my 30s when my wife and I were trying to have children. I was lucky enough to have a child from a previous girl. The doctors told me it was one out of 1 million chance so I call him my miracle baby definitely struggled through school and gotten made fun of. But I live life to the greatest. I have an amazing wife that except me for who I am god is great.

  • @joshuamadison4947
    @joshuamadison4947 Жыл бұрын

    not a reason to terminiate at all!! but we do have our issues

  • @LivingwithXXY

    @LivingwithXXY

    11 ай бұрын

    Everyone has issues. EVERYONE!

  • @ryanorr4861
    @ryanorr4861 Жыл бұрын

    I’m XXY and have had a miserable life. I’m 48 and found out when I was 30. I shot myself with a 16 gauge at 27 and was unsuccessful. I could not handle being so different. Abortion would have been a better option for me.

  • @LivingwithXXY

    @LivingwithXXY

    Жыл бұрын

    Being different is one of the most amazing gifts! Join our facebook community to find support! facebook.com/groups/livingwithxxynonprofit

  • @nondescript4311

    @nondescript4311

    Жыл бұрын

    Man, I'm sorry for what you've went through. I don't know what it feels like to be genetically different, but I feel for you.

  • @amarendramijhar8936

    @amarendramijhar8936

    Жыл бұрын

    Bro i have same condition....being different only bothers us when we are concerned about what others think...if we grow bigger than that by being in best shape possible making most money possible and having the courage that no one has klinefelter or not YOU ARE THE MAN 🔥🔥🔥

  • @AbshirFuaad

    @AbshirFuaad

    Жыл бұрын

    I'm XXY too and had a horrible life Alxamdulilah. But Abortion is murder brother. We don't have to get whatever we want in this life. Some people die at young age, some are midgets, some have disability. Allah controls these things we don't. We have to accept it. And this life is only a test. I hope things become better for you even more than me.

  • @emmajones8590

    @emmajones8590

    Жыл бұрын

    @@LivingwithXXY Not always.

  • @beverleymclean2131
    @beverleymclean2131 Жыл бұрын

    Totally agree.Well said, and I'm pro choice too.

  • @annmarie2964
    @annmarie296411 ай бұрын

    Abortion is cruel.

  • @royceyork6943
    @royceyork6943Ай бұрын

    With all due respect, your pro-choice position contradicts and undermines your own argument. If it's morally permissible to abort a fetus for any reason, including convenience, it doesn't magically become immoral when the fetus is aborted because it has KS. Either life is precious and worthy of protection or it isn't.

  • @gregorydixon277
    @gregorydixon277 Жыл бұрын

    I agree with you. Sad thing is extreme feminist are in control right now. A large percentage believe all males of all ages are obsolete and should be destroyed. Hope we can win this.

  • @annoula4
    @annoula4 Жыл бұрын

    What you said applies to all the souls that get aborted for convenience.. you should rethink why you are ok with the death of unborn babies. Just saying… pro abortion is pro murder and we should all be as angry about this as you are with your doctor even suggesting you end the life of your baby ❤

  • @lucysnaza2106
    @lucysnaza2106 Жыл бұрын

    You’re clearly not pro-choice if you judge someone’s choice to abort. That’s just not pro-choice

  • @LivingwithXXY

    @LivingwithXXY

    Жыл бұрын

    Jen is talking about the misinformation our community faces and how doctors and genetic counselors tell newly diagnosed parents to terminate. The information is outdated and based on low study numbers of extreme cases that do not represent our entire community. She's putting her life out there to make a stand and make a difference. Let's not focus on pro-choice, getting these boys born into this world, and arming the parents with the information they need to make the right choices for their kids.

  • @eloisem7458

    @eloisem7458

    Жыл бұрын

    ​@@LivingwithXXY oh no I didn't realize the doctors held a gun to her head and told her to get an abortion or else. You mean they provided medical information and told her what many parents choose to do in her situation, and then allowed her to make a decision for herself? How monstrous.

  • @haydenmammen6079

    @haydenmammen6079

    Жыл бұрын

    Pro-choice people are less than low-life scum. There's criminals, and then pro-choice cock roaches. They are essentially just as bad as pedophiles.

  • @Masatisan

    @Masatisan

    Жыл бұрын

    If you abort a previously wanted baby solely because they aren't "perfect" or something like that then that crosses a line that is altogether separate from being pro choice. That line is something called eugenics and it is widely regarded as a morally and ethically bereft ideology that was followed by the likes of nazis, white supremacists and people who believe that disabilities or differences make certain people inferior.

  • @NecroMorrius

    @NecroMorrius

    Жыл бұрын

    @@eloisem7458can you not see the obvious logical fallacy there? Most cases (more than 70%) of XXY are never discovered and the men live typically normal lives. NIPT tests have just started reporting XXY to expectant parents who are being advised to terminate on the basis of what, exactly? That others were told the same thing? 1 in 500-600 men are born XXY.

  • @dropzone3415
    @dropzone34159 ай бұрын

    I wish I would've been terminated. Never having to deal with the extreme depression, embarrassment and ridicule my entire life would've been well worth it. KS has literally ruin my life, many times I've thought of just ending it. It's easy for this lady to see the wrong in this, but she's not the one that'll have to live KS. Selfish.

  • @LivingwithXXY

    @LivingwithXXY

    9 ай бұрын

    If you want to talk please reach out. There are 100s of guys who are happy to talk to you.

  • @julie3058

    @julie3058

    4 ай бұрын

    I read your post and it reminds me so much of my son. I lost him six months ago at the age of 28 years old. He had an undiagnosed heart condition and passed away very suddenly. He was very afflicted with the Klinefelter's disorder and there were many difficulties. Nevertheless, he was the most wonderful person that I've ever known. He was the love of my life and I miss him desperately. I know of the challenges he faced, and your words seem very familiar. Please, please don't give up. Please talk with others and medical professionals, go for counseling, do anything you can, but don't give up. I was there every step of the way with my son, and I know the challenges can be overwhelming, but please keep trying.