🏥 A VISIT TO RADIOLOGY | IS MY PORT WORKING RIGHT?! 🏥 (10.27.17)
Mary has a port line study done in radiology & meets with endocrinology to start her dexcom trial!
Visit our Online Store → thefreylife.com/store
Yesterday's Vlog → • ULTIMATE DIY DOG COSTU...
1 Year Ago → • 🍣 HOMEMADE SUSHI! 🍣 (1...
2 Years Ago → • CF CLINIC & DELAYING I...
3 Years Ago → • PUMPKIN CARVING FALL S...
↓↓↓Watch more from The Frey Life↓↓↓
What is Cystic Fibrosis → • WHAT IS CYSTIC FIBROSIS?
New Here Playlist → goo.gl/EZgra7
Draw My Life → • DRAW MY LIFE - CYSTIC ...
Service Dog Q&A → • SERVICE DOG Q&A
Cystic Fibrosis Q&A → • Cystic Fibrosis Q&A!
Are We Having Kids? → • Q&A - ARE WE HAVING KI...
Peter's Channel → / livingwithhopepodcast
Subscribe to our channel → goo.gl/LvdRdF
→ We post new vlogs everyday showing daily life with Cystic Fibrosis!
Help us make these videos more accessible by contributing closed captions! → kzread.info_cs_p...
OUR CAMERAS
Canon G9X → amzn.to/1WhMLbn
Canon 70D → amzn.to/1VHJmEf
Mavic Pro Drone → amzn.to/2ixXL4W
Intro Music: "Better Together" by Praytell
→ Watch Music Video: • Praytell | Better Toge...
→ Download Better Together: smarturl.it/praytellbtstore
FOLLOW US!
Mary's Instagram → / freyliving
Peter's Instagram → / peterfreylife
Twitter → / thefreylife
Google+ → google.com/+thefreylife
Facebook → / thefreylife
Пікірлер: 187
We had kind of a crazy day yesterday, but all is well! I’m glad to have those appointments finished and moving on. Today’s question is...have you ever tried Bubble tea? If so, did you love it or hate it? I wish so badly I was filming that time I gave my sister a taste test of bubble tea- it was priceless! What’s your guess- did she love it or hate it? Hahaha I’ll tell you the answer later :)
@victoriam3125
6 жыл бұрын
I have! And I'm not really sure, to be honest. Its definitely different from most things😅
@charlotteokeeffe213
6 жыл бұрын
I love you guys!
@ninamayer9254
6 жыл бұрын
Have never tried bubble tea, bc I guess I wouldn't tolerate it (probably bc I can't digest lol). And I guess your sister did NOT like it-just a guess...
@learningtofly7780
6 жыл бұрын
Nothing is worse than being in the hospital and having your hippa violations broken.....you never recover...it's awful...I cry often over it. ( the gossip was wild and incorrect)..I understand how Mary feels different things from hospital tests or stays...affect our lives.
@robinharris0562
6 жыл бұрын
The Frey Life tried it. Got one of the bubbles and the slimy texture. Well it tried to come back up lol. So I can’t stand it
That little peaceful room is called a vestibule 😀. I’m so glad your hospital visit went well, Mary.
I love it when Ollie talks to The People. LOL
@michelleschafer5417
6 жыл бұрын
Evie Fieseler me too
You make my day! Few things: 1. "No low-grade fever or headache"- your cheeks aren't as flushed as they've been. 2. I'll have to find a recipe for the tea. I'm curious. 3. I too prefer landmarks over directions but sometimes... I'll never forget my Mom's best friend's "turn right before the covered bridge without a top" (it DID look like it!) And the lady (when we'd moved here about 3 wks - "Now you turn L at where the old Lowe's used to be." "Does it still have the sign?" "Oh no, Honey. They built & moved to the new one about 7 yrs ago now." I LOVE it!
Someday Ollie should have a whole vlog where he 'talks to the people" about his day.
I went to Singapore 6 yrs. ago to visit my son and family. Bubble tea was everywhere........YUK!
You two deserve a date in Boston! (Without the "People"😊)❤
Peter's face when you said we are ending it here, was so hillarious! Like a young man on his first date. You guys are adorable. Hugs.
I love who u have good attitude when your going through the worst things
I love how Ollie is so chill all the time.
i love the fact that marry doesnt give up shes so strong shes a inspiration :)
My daughter and I love bubble tea...the best bubble tea I have ever had was this summer when we visited my oldest daughter and son in law in Greenville,SC...it was sooo yummy...have a great day Peter and Mary
Mary crying at the beginning made me cry, love you guys
IM SICK AS A DOG THE LAST WEEK WITH A LUPUS FLARE UP! BUT WATCHING YOU GIVES ME HOPE
I wanted to share that we are wrapping up respiratory care week :) It ends today! I know you have probably ran into a few respiratory therapists over the years! Love your blogs and thank you for sharing your story.
You are not a "medical nerd". It's important to know what is wrong with your body so that you can understand everything, ask questions and to be an advocate for yourself. I see you as a wealth of information. I have medical issues currently including not walking at all and I also agree that familial support is amazing. God bless you both.
Oh my goodness, been watching you for years but this is the first time I have been so early. I have nothing of interest to say but I just had to leave my mark. Big hugs.
Glad everything went well for you. That's always a big relief.
@Iinuska1
6 жыл бұрын
I absolutely agree with You !
Out of all the things Mary gets a reaction from (health wise) your smiles are just what contaminates me.. makes me feel good to watch you guy :)
I remember doing the clinic thing at Hopkins for Spina Bifida when I was a kid (they only had a peds SB clinic). Chilling in a room for hours and wonder who is coming in next and when, LOL. Mary, I totally suck with directions too! Do you give directions by street names or landmarks? Haha!
9:18 - 9:32 Ollie's look of either "oh crap, the camera's on me" or "what is wrong with you people" is priceless... ROFL
Tapioca is the starch extracted from the Cassava roots... used for a thickening agent in foods, among other things~ and for starching our clothes! LOL
I have a rare condition, and so my doctors always have to do peer-to-peer with my insurance company to get things approved. Such a pain, but it usually gets sorted out. Being patient can suck though!
I’m glad I’m not the only one that’s already started listening to Christmas music lol.
@dancersiss
6 жыл бұрын
Skylar Hale I love Christmas music
Mary I'm a medical nerd too and love reading the drs medical guides/ journals ect lol glad I'm not the only one!! 😀 Glad you had a much better experience in radiology this time! It does make a huge difference when u get kind ppl! I knw it's rough doing a bunch of appts in one day but I knw it's often better all at once, that's how me n my chronically ill hubby do it too! :)
❤️❤️❤️😂😂😂I love how Peter’s voice for Ollie sounds like the Norwall in the movie elf ‘ I hope you find your dad buddy’ LOL 😂
My Dexcom is also on the same arm 😀 However I am a type 1 diabetic so insurance doesn’t fight with us about it. I am so glad you are raising awareness for the many uses of Continuous Glucose Monitors
@laurenelizabeth3541
6 жыл бұрын
Katie Maldonado I am also a type 1 diabetic!
@kimhecker4693
6 жыл бұрын
Katie Maldonado I’m also a Type 1 Diabetic, I wear a pump and have recently got a Dexcom! The Dexcom is amazing , but most insurance companies in Canada don’t cover CGM’s! 👎 But the blood sugar control I’ve achieved while wearing the Dexcom far outweighs the price!
Haha! Lol! You both crack me up and get through struggles with no problem like myself. By the way, I can totally understand getting emotional with music. I was severely sick in February in a coma and Christian music that my Mom and I thoroughly enjoy was played the several weeks that I was hospitalized. The music helped get me through so much and still do to this day. I do still get emotional when particular songs play, but of course it is for good reasoning. Glad that there weren't any issues with your port. Keep up the good work Butter Cup! Love and hugs to you all!
In the summer of 2013 I spent a lot of time in the hospital. Like you said- not miserable stays, but still no fun being sick. I played Candy Crush constantly. Now, whenever I hear the music to it, my mind goes right back. I still mess with the game sometimes, but i can’t play it with the music on any more.
Mary and Peter n ollie, I just wanted to say thank you for these vlogs and being so inspiring! My health has really been declining lately and it's been incredibly difficult to stay positive and get through each day with such bad pain and lots of health issues but your videos always encourage me and inspire me so I just wanted to say thank you!! 💜❤ You three are always in my prayers! ❤💙🐕
honey dew bubble tea is my favorite drink! tapioca is a starch.
@IcelynOdette
6 жыл бұрын
thepainistooreal Ooo Honey dew is so good. We have been wanting to try bubble tea!! Nice to meet you. We have a channel too. It would mean a lot to us if you please had a moment to check it out & help us grow.
@solanab
6 жыл бұрын
okay I will
@IcelynOdette
6 жыл бұрын
thepainistooreal Thank you so much!!
Hey Mary, Peter and Ollie! Love you guys! I don't think it will be long until you're at 200k subs! ❤️
Prayers to y’all love how you can look fear and troubles in the face and say Jesus is my strength
Love boba! Especially in smoothies! Love you guys! Best of luck!
Hi Frey family! I'm new to ur channel. I have Lupus ,a port and used to have a j tube. My dad is a retired Nazarene pastor in Mi. I am now going to research on caring for my own port at home especially with my nursing background. I never was offered this option to home flush. I drive 45 min. To go to a place where they know how to access my port. Thank u for sharing ur story, faith and knowledge. P. S. Great sermon on Psalms Sunday 😄
I'm a type 1 diabetic and I have my Dexcom on my arm right now as well!!
OK, I'm right in the middle of watching the vid and Mary, I have to say, I LOVE the way you're sporting the mask as it dangles from your ear. So funny. You probably say something about it later but I had to stop the vid to just giggle. Love you guys! :0D
I’ve been listening to Christmas music too! 🎄
Don't feel bad Mary! I can't remember directions either. I go by landmarks. I'll remember something like the house with the weird tree or something but directions are difficult!
@IcelynOdette
6 жыл бұрын
Andrea Sterling This can happen to me too!! Nice to meet you. We have a channel too. It would mean a lot to us if you please had a moment to check it out & help us grow.
I like that you guys are always so positive! At my house I already have snow. I’m not ready for this winter weather!
Just a thought as a medical worker myself.... doesn’t it concern you that Ollie is on a hospital floor laying on his side? I know you are careful about others petting him and spreading their germs to you. I don’t wear my lab shoes home, myself. Just a thought... God bless you, both!
Yay, date night! I hope you guys had fun around the city! I love no plan wandering around the city with my boyfriend as well✌💕
What a tease! I wanted to see the rest of your time in Boston. :)
I’m so happy to hear that your headaches have improved. That’s a huge step! Now I understand too about the sugars.. shoulda watched this one first haha.
Love u Mary and Peter
I ABSOLUTELY LOVE BOBA. There's a Chatime right by where my violin lessons are, and so we stop by before we go home, my favourite flavour is definitely the Chatime milk tea with pearls 👅
Flavored bubble tea is pretty American. ;) Bubble tea originates from Taiwan and typically isn't flavored. We have milk tea (black tea with milk), black tea, green milk tea, and green tea. We can also choose how much ice and sugar we want. My favorite is no ice, no sugar green bubble tea. The sweetness of the boba flavors the whole tea. Yum! Give it a try next time!
I went to New York (I live in the UK) and one of the important things when I was there was to experience bubble tea. It was actually delicious but you couldn’t drink too much of it. I have now found that they do sell it in the UK as well but not very many places.
I'm very blessed to have a Dexcom that is paid by my insurance. Many of my Diabetic friends are not so lucky having to pay out of pocket for the CGM. I often deal with guilt... I really hope it helps you :)
I heard you talking about bubble tea before, so last month when I was on the east coast visiting my brother, I had to try it! It was so good. I probably never would have tried it if I hadn't seen it in your videos.
Mary you are such a warrior 💪🏼😎
I love u guys. U guys are a perfect match for each other. I love the mark that Peter does. He's sooo artistic. A very loooong day at the hospital. Get some rest
Congrats on 171k viewers!!
Woot woot!
I’m sure they have suggested this, but you may need to use a longer access needle. Often, just a little more length gets it into the port more firmly (even when you’ve been using the same size needle for awhile). A tiny bit of scar tissue or weight gain can changes things as well.
Can't believe a hospital has valet! In Australia we don't have that and would be soooooooo handy !
@rozjones4097
6 жыл бұрын
Maria Solano same here in the uk. Only ours charge extortionate prices for the privilege of parking on hospital ground too.
@verashular7378
6 жыл бұрын
We have valet service in Knoxville Tennessee at all of our hospitals here.
@dancersiss
6 жыл бұрын
They have valet at st Joseph’s hospital where I go to go get eeg and go to dr zand’s
I didn't know dexcom did one week trials like that. I really hope you get to keep it.
Питер просто святой, дай Бог ему здоровья! Мэри конечно тоже!!!
You guys are so adorable!
Mary Im so glad your port is ok put unfortunately my port quit working they couldn't access it in Interventional Radiology so now I need a new on
I had a panic attack while they had a guiding X-ray over me doing an injection into my hip. They were so sweet; they were like we can move it down some! And I'm just laying there wailing and saying no no no I want the doctor to have room to work with the needle! It was painful and traumatizing 😂 I'm extremely claustrophobic.
I love bubble tea so much. Tapioca pearls are the best! I hate the bursting boba so much, tapioca are chewy and magnificent
Never mind. You just explained. Ty!
Hay looking back at all the memories of CF is hard
Hope Dexcom works for you, it has helped me so much
Nice early episode!
Mary, I’m that way with directions too!!
I remember last year, a month is a long time to be in the hospital, but you are a trooper and have the great support of Peter and Oliver. I am thinking your sister did not like the Bubble tea. I love bubble tea, have to find a place here in Indiana.Hey, have you and Peter tried the Zombie Frap at Starbucks? I tried today and it was okay like the green apple flavor and it wasn't too sweet.
I tried bubble tea a few weeks ago after seeing you guys drink it so much. The tea itself tasted pretty good, but I couldn't really handle the texture of the boba.
@IcelynOdette
6 жыл бұрын
Lisa Andrews Awe!! I know, they have me wanting to try it. You are so lucky you have tried it. Nice to meet you. We have a channel too. It would mean a lot to us if you please had a moment to check it out & help us grow.
@kathygirlygirl4109
6 жыл бұрын
I make it all the time and just received in the mail, 10 lbs. of boba! I will package it in smaller portions in vacuum packaging but I store my cooked boba in honey with brown sugar and it absorbs the flavor. So good! Then I take the amount I will use the next day and put it in a glass measuring cup with water and cook for 2 min. and it softens up, I drain it and pour into my iced sweet tea. Probably waaaaay more info than you ever wanted. :0D
I'm with you girl on being terrible with directions! I call myself directionally challenged :) hahaha
A lot of insurance companies don't cover Type 2 for CGM...I'm happy to see some will.
I love coconut bubble tea!
Cutest Couple Ever
Thank goodness your port is working.ok.! And yay I'm so glad you got the dexcom. Don't.insurance companies know of c.f.r.d ?
the tapioca pearls bother my trypophobia so i’ve always been too afraid to try it 😂💕
QOTD: I LOVE Bubble Tea! Well, technically, what iv had is fresh mango smoothly with the "bubbles" on the bottom. Yum!!!
I have to get yearly MRIs of my brain and full spine w/ and w/o contrast. It’s like a 3 hour MRI so I’m always begging for general anesthesia.
I love bubble tea. Tapioca balls is what I thought was on bottom. Soo good. We only have one or maybe two places here that have it. I like honeydew or mango.
Just love just love to you❤️
“Hi Mary, Peter & Ollie boy from Australia 🇦🇺 Question for Mary; How do you go with using valet and maintaining germ control? Love your channel and merch by the way.
I definitely need a CGM, but insurance covers next to nothing for me. It's a pain for sure!
Love bubble tea .The thai tea
Hi Mary! This might be tmi and don’t feel like you have to answer this but I was wondering how you handle your period with your chronic illnesses? Or if there’s anything different that you do or if when you’re on your period of it affects your illnesses or makes them worse? ❤️
I have a power port (for chemo), but mine gave me trouble too. It turns out they had to use a longer 1" needle. Could it be something like that?
I've had bubble tea before but mine was like a Juice with the bobas in it
Vestibules... or the entrance before the entrance as I like to call it!!
Mary when yall are out like at the hospital or doctors. Restaurants do yall reword oli with a treat for doing his job or being a good boy??
Mary I do the same thing I have a VP shut to drain fluid from my brain to my stomachs but now it flushing slow and they want to wait for it to stop working so they can re do it
Hey Peter and Mary! Question for Mary.. Mary how do you not lose your voice often? My doctor said i've been coughing so much over the past few days with bronchitis that it caused my voice to go.
I wonder if some other brand makes an in between length needle that would be better for your port?
That’s so funny I go to the same places endocrine and radiology for some things too
💛💛💛
oil at 9:44 😂😂😂
Out of curiosity, how far away from the hospital do you live? It seems like you guys dive there a lot
okay Peter what kind of tapioca do you buy that is brown I bought tapioca before for putting sand it wasn't Brown so it doesn't different type if you could let me know I would appreciate it thank you have a good day bye
Does Mary go to the GI department in the children’s hospital in Boston (I’m pretty sure you said that she goes there) because my GI is sending me there and I’ve never been to that hospital in Boston I went to the other one I’m nervous about how like nice they are or caring I should say. Anyways KEEP FIGHTING 💕
I always get chocolate bubble tea :)
I don't know if we have bubble tea in the UK 😖😖 we don't have drive thru places other than for McDonald's, KFC! Also I've had my Christmas music playing in my car for a month already 😜
@AmandaJohnson
6 жыл бұрын
We do, you can get it if you go to bubbleology
@traceyking3583
6 жыл бұрын
1chamio where are they? I'd love to try it 😁😁
@AmandaJohnson
6 жыл бұрын
+Tracey King Not sure where you live but, there are 9 in London, 1 in Bluewater, 1 in Leeds, 1 in Sheffield 😊
@traceyking3583
6 жыл бұрын
1chamio I'm in Kent, next time I go to London I'll find one. Thank you so much 😊😊💖
Love from India.
What's with the wellies Mary lol? X