IN THIS VIDEO:
SEPTEMBER 28 - 30, 2023
DURING THIS TIME, WE WERE DEALING WITH THE DIFFICULT TASK OF TRYING TO CLEAR OUT AND CLEAN OUT MY IN LAWS HOUSE. THIS ULTIMATELY WAS REALLY REALLY DIFFICULT IN SO MANY WAYS.
DANIEL WAS HAVING MORE SEIZURES. I WAS BEGINNING TO REALIZE THAT WE NEEDED OVERNIGHT NURSING FOR THE CPAP USAGE.
AND DESPITE ALL OF THE CHALLENGES AND PROJECTS, STAYING ENGAGED WITH DANIEL AND IN THE MOMENT, REMAINS MY FOCUS AS MUCH AS POSSIBLE. ART WORK, PLAYING GAMES, EXERCISING, USING THE COMPUTER, AND OVERALL JUST FILLING HIS DAYS WITH ACTIVITY. HE GETS REALLY EXHAUSTED PRETTY FAST, SO ITS PRETTY ALARMING TO WATCH THE BLOOD WORK RESULTS ALSO GET WORSE AND WORSE!!
Welcome to my channel...
Adapting. Thriving. Changing. Growing. Facing the unknown every waking day. This is my story, and I hope that you find encouragement, community, friendship here. A journey of life with a child who was born with severe disabilities, and how we are making our way through the ups and downs.
Daniel was born with a rare condition called Polymicrogyria. It was caused by the virus, CMV (cytomegalovirus). Daniel has extensive medical problems and disabilities, but we have created a loving support structure for him, and the 5 of us, and our pets, find lots of joy and love. A very unique family dynamic for sure!
The Adapted Life Podcast, by Julie Hasselberger. listen !
theadaptedlife.buzzsprout.com
Music licensed by Epidemic sound and Premium Beat
filmed with Canon G7X Mark II
#caregiver #specialneedsmom #medicalcare #inspire #juliehasselberger
#cerebralpalsy#disabledchild