A Teenager with Dementia and his Loving Family

Michael is diagnosed with a form of childhood dementia known as Hunter syndrome. He is progressively losing the ability to communicate as his health declines. His family is working to find new ways to connect with him, like through singing and dancing. Michael has already surpassed the life expectancy for Hunter syndrome, so he and his family are focused on enjoying every day they get together.
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/ miracle4michaelinc

Пікірлер: 627

  • @SpecialBooksbySpecialKids
    @SpecialBooksbySpecialKids3 ай бұрын

    This interview was filmed the day after Michael's 17th birthday. We even had cake to celebrate! Thank you Michael, Monique, MaKayla, and LaQuanda for having me!

  • @Vusa42

    @Vusa42

    3 ай бұрын

    happy birthday michael

  • @granolitayyo

    @granolitayyo

    3 ай бұрын

    Happy Birthday, Michael! May God bless and protect you and your loved ones as well. 🙏🏼💕🙌🏼💕💞💞🎉🎂🥳🥳🎁🎊🌹🌹🌹🎈

  • @terridye1588

    @terridye1588

    3 ай бұрын

    Happy birthday, Michael! 🥳

  • @SCUUBDO

    @SCUUBDO

    3 ай бұрын

    Happy Birthday, Michael!!

  • @Andyjoseph8

    @Andyjoseph8

    3 ай бұрын

    Happy birthday Michael 😊!!

  • @lovingmayberry307
    @lovingmayberry3073 ай бұрын

    Michael just lives in a house full of LOVE! Everyone surrounding him is so joyful and happy to be with him, it just fills my heart! ❤ Hey Michael! 👋

  • @julievanderleest

    @julievanderleest

    3 ай бұрын

    Right?! They are amazing. Wish I could give your comment 1,000 likes.❤

  • @fatimapavon7787

    @fatimapavon7787

    3 ай бұрын

  • @VioletJoy

    @VioletJoy

    3 ай бұрын

    That's exactly what I was going to say. Such loving support. 💜

  • @daltonlovescake2227
    @daltonlovescake22273 ай бұрын

    His mom just radiates love, she literally looks like the best mother this young man could have 😊

  • @user-ow5xk6eh8b

    @user-ow5xk6eh8b

    3 ай бұрын

    ❤❤

  • @kayt7059
    @kayt70593 ай бұрын

    The mother is truly invested and knowledgeable of her sons condition. The love of a mother❤

  • @angeebb3080

    @angeebb3080

    3 ай бұрын

    I am telling you! Mother's deserve every bit of their flowers.

  • @magicsamart2343
    @magicsamart23433 ай бұрын

    I think Micheal’s mom and strong family are the biggest reason why he’s alive and full of vibrant energy. Hearing about how his mom makes sure he does his breathing treatments four times a day when he has pneumonia is amazing. If only all parents could love their children like how Micheal is loved.

  • @Delta68700
    @Delta687003 ай бұрын

    It brings me joy to see these people are well looked after, as they should be.

  • @lemondedetr

    @lemondedetr

    3 ай бұрын

    And so many times they are not. I am also really happy to see the people that support and take care of him!

  • @jeffdennis7394
    @jeffdennis73943 ай бұрын

    Michael is the embodiment of the saying on your wall…He LIVES, he LAUGHS, and he LOVES. He’s such a bundle of joy and sunshine. And the dude has some MOVES! Get it, Michael! Go ahead on! You have a beautiful family. Many blessings to you all! Thanks for putting a smile on my face today, Michael! ❤️

  • @segafox
    @segafox3 ай бұрын

    There's something about music that seems to stick with us even when other memories and abilities are failing. Before we lost him a couple of years ago, my dad's cognitive faculties were declining from dementia and he was at the point where he'd lost much of his ability to speak and couldn't even recognize my mum. My mum found his old cassette tapes of Colombian Cumbia music that he used to dance to around the house when I was little, and she copied them onto a CD to play for him at the nursing home. Not only did he recognize it immediately, he remembered all the words. Music transcended his dementia and connected to something deeper. I could see the same magic when Michael was dancing to the music and when he'd finish the lines of songs with his mum. He had more words, more physical control, and such a huge smile whenever there was music. It made my heart happy to see it. This was a lovely video of a beautiful family. I wish them all the absolute best.

  • @missa4530

    @missa4530

    Ай бұрын

    It’s apart of our souls man

  • @thetacticalpuertorican
    @thetacticalpuertorican3 ай бұрын

    My daughter Desirae passed from Neimann-Pick type C. Its a form of child dementia shortly before her 3rd birthday in November. These stories always made me think of her. It reminds me of the love she gave us and how much she meant to us. Thank you for this. I love you Desirae Kyla.

  • @HamEggsButteredToast

    @HamEggsButteredToast

    3 ай бұрын

    I'm so incredibly sorry for your loss. 💕 What a beautiful name you gave your daughter!

  • @thetacticalpuertorican

    @thetacticalpuertorican

    3 ай бұрын

    @@HamEggsButteredToast thank you 🙏

  • @blackclouds909

    @blackclouds909

    3 ай бұрын

    💜💜💜

  • @dustyll69

    @dustyll69

    3 ай бұрын

  • @randi.blue.cherai511

    @randi.blue.cherai511

    3 ай бұрын

    God Bless your soul!! My condolences!! I have UTTER admiration of you & how you, inspite of the pain/hurt of a soul of a beautiful little girl, YOUR DAUGHTER; you take this positively. No disrespect or dismissal to the people who are used to that/grew up in that. God Bless them also. Be safe, prosperous, & healthy!! Love you!! ❤️‍🔥❤️‍🔥

  • @31446963048
    @314469630483 ай бұрын

    He's beautiful. And she's so beautiful it's making me cry.

  • @ellekreiner3199
    @ellekreiner31993 ай бұрын

    I think the dance intermission gave me all the joy I need today ❤

  • @ely_wannadie2551

    @ely_wannadie2551

    3 ай бұрын

    I was looking for a comment about that- simply perfect haha, brought me so much joy

  • @natscat4752
    @natscat47523 ай бұрын

    That dance intermission is pure joy and I won’t forget that or the love in this extended family 😊❤

  • @andresgirardo8481

    @andresgirardo8481

    3 ай бұрын

    That was incredible!!

  • @Mrkeller6
    @Mrkeller63 ай бұрын

    Makes me tear up. My brother had San Fillippo which is another dementia like mucopolysaccharidosis. Such similarities at that age. But the love that exists in this family is much like the love in ours. Something very special about these children. You're amazing Michael!

  • @madz659

    @madz659

    3 ай бұрын

    Prayers for you Mrkeller. San Fillipo is atrocious; I’m so very sorry. Thank you for sharing.

  • @YochevedDesigns
    @YochevedDesigns3 ай бұрын

    The whole family is so fun, warm, and loving. Mr. Tony is a whole nother level. You can tell how protective he is of Mike, and how proud he is of him. He is a great role model, and we should all do our best to emulate his attitude. The world would be a much better place.

  • @ciaralee9760

    @ciaralee9760

    3 ай бұрын

    Yeh ii was thinking the same thing what a good comment

  • @sunnya8

    @sunnya8

    3 ай бұрын

    This. ♥️

  • @ataylor702
    @ataylor7023 ай бұрын

    Whenever I feel discouraged by the atrocities of the world, I come to your channel. No other creator has such tender-hearted followers. The comment section is always filled with positivity, kindness and empathy. This is truly your mission. Nice to meet Michael! Kudos to his strong and sweet mama!

  • @ilanaclemon2366
    @ilanaclemon23663 ай бұрын

    I don’t think you can watch this video and not feel and see all the love every person in this family has. This is such a beautiful family! They are lucky to have Michael and Michael is lucky to have them. Sending lots of love to this incredible family ❤

  • @FelinePoetry
    @FelinePoetry3 ай бұрын

    Michael was born into the perfect family for him. The love and positivity in this video is infectious. I constantly found myself smiling.

  • @ChassityNOubre_88

    @ChassityNOubre_88

    2 ай бұрын

    Yes, I could not stop smiling while watching this. Especially, when he threw that toy down like a football for a touchdown, while saying touchdown 😁

  • @cindysemblante4411
    @cindysemblante44113 ай бұрын

    Michael had such joy while dancing with his momma and teasing his Auntie. To Michael’s mother I would just like to say you’re doing a great job! Keep up the hard work momma

  • @LynnBerardelli96
    @LynnBerardelli963 ай бұрын

    Michael has an infectious smile! ☺️ He seems like such a happy, fun soul. I loved watching the 3 of you have a blast dancing and playing! Thank you to Chris, Mike and also his loving family for sharing their story to all of us. ❤

  • @elsiebee2888
    @elsiebee28883 ай бұрын

    His grin in the dance break 😍

  • @DeftilSteve
    @DeftilSteve3 ай бұрын

    What a nice bunch of people. I wish I was more like them.

  • @melq9437
    @melq94373 ай бұрын

    Momma saving the last words for Michael to sing is awesome. What a great way to encourage speaking! What an inspiring group of people in this family. Love the dancing. Happy Birthday to Michael!

  • @trollsneedhugs
    @trollsneedhugs3 ай бұрын

    I like seeing Chris interacting with his new friends. I like it when Chris edits a bit of that right at the beginning, when Chris says hello to them. It's a good way to introduce the audience to the host a guest, without being too formal.

  • @Brycesaggiebabe
    @Brycesaggiebabe3 ай бұрын

    Micheal is surrounded by some wonderful people. Micheal is thriving due to all of them. Many blessings their way.

  • @irmastevens3277
    @irmastevens32773 ай бұрын

    Such a sweet kid! I love his relationship with his Aunt! You can tell even though he might have lost the ability to verbalize the sarcasm and joking relationship is still there which is a sign of high intelligence and comprehension! Bravo to a wonderful family doing a great job with this sweet guy!

  • @tatianaflores1926
    @tatianaflores19263 ай бұрын

    He is beyond precious and his family is simply golden! ❤

  • @IWantToBeAbleTO
    @IWantToBeAbleTO3 ай бұрын

    So much love and positive energy. Lot's of respect for the whole family.

  • @middsummer
    @middsummer3 ай бұрын

    The whole family has so much chemistry together! Couldn't help but smile along with them ✨ mama is doing great

  • @shelleysmith6342
    @shelleysmith63423 ай бұрын

    As I was a special needs teacher for 19 years a while back I am in my late 50s now I look at Michal and smile with such joy I wish I could spend time with him and just play with him and see that sweet boy in person spreading. His god giving joy .hey Michael sending love and hugs to you and you keep on being just who you are your beautiful.❤❤❤❤

  • @Derail07
    @Derail073 ай бұрын

    Such a loving and positive Mother. Gerat job!

  • @jordanezell5132
    @jordanezell51323 ай бұрын

    Such a sweet family!

  • @mamaksstorytime
    @mamaksstorytime3 ай бұрын

    When you realize you have smiled through an entire video. 😇🌟✌🏼

  • @rebecaestevez3530
    @rebecaestevez35303 ай бұрын

    Michael:Hey!!! Me : *excited and interacting with him as if he where in front of me* : Heyyyyyyy! ❤😊 He is so precious seeing the way his mom interacts with him and is so loving with him.

  • @wildflower1397

    @wildflower1397

    3 ай бұрын

    Me too, lol! My cat wondering why I am grinning and every few minutes give a loud "Heyyyy!" 😂

  • @rebecaestevez3530

    @rebecaestevez3530

    3 ай бұрын

    @wildflower1397 omg love that !!

  • @wildflower1397

    @wildflower1397

    3 ай бұрын

    I have a friend who had a verbal tic for about a year, where he would make little sounds. He randomly beeped, booped, thrilled, and chirped whenever he was in a good mood, and it was delightful. Sometimes I could find him in a store by following the cheerful little sounds, lol. People assumed he was like a child mentally, but he was just a regular guy with a joyful soundtrack. 😂

  • @jenniferleyden6557
    @jenniferleyden65573 ай бұрын

    I'm here for that super sweet dance break! Michael's got some moves!!! ❤

  • @yms4355
    @yms43553 ай бұрын

    Michael's enthusiasm for football made me smile. It was so contagious. : D

  • @melanatedroyalty3877
    @melanatedroyalty38773 ай бұрын

    When Michael belched after you asked Kayla what it's like to hear him make different sounds, I got a good chuckle 😂 This family is absolutely beautiful inside and out, every single one of them!!! Thanks for sharing Michael's story. ❤

  • @pamelacrawford4105
    @pamelacrawford41053 ай бұрын

    Michael has the most beautiful smile 😊😊😊 You could see how much he loves his Auntie. His face was just lit up. His Momma is so great with him. And his God Father just adores him as well. What a wonderful family 🤗🤗🤗

  • @BNHAalltheway
    @BNHAalltheway3 ай бұрын

    Micheal is a great person who is very loved he has a eonderful family

  • @marjanf56
    @marjanf563 ай бұрын

    such a phenomenal mom!

  • @nancyzilinsky4219
    @nancyzilinsky42193 ай бұрын

    The smile on Michael's face when he was dancing shows he really enjoys it. He seems so sweet ❤😊

  • @prashant381
    @prashant3813 ай бұрын

    He wouldn't live past 5. Hey yeah ! Need that spirit

  • @rebeccapeters816
    @rebeccapeters8163 ай бұрын

    That young man is SO LOVED for exactly who he is. That's ❤️ beautiful

  • @simonebittencourt8251
    @simonebittencourt82513 ай бұрын

    What an outstanding family Michael has! The quality and quantity of love by square foot at his house is out of charts. Bless you all throughout your lives. You are all gifted human beings. Thank you for sharing this heart-warming story!

  • @balaam_7087
    @balaam_70873 ай бұрын

    Hi Michael! I loved your video so much! I’m glad you’re all smiles, it makes me happy too🤗 Your mom seems so nice, I bet you’re so thankful to have such a warm, devoted and loving mother. And I wish my cousins visited more often, it looks like you guys get along great 😁

  • @kerilaurene248
    @kerilaurene2483 ай бұрын

    The joy from Michael and his family radiates! ❤

  • @t-tokyo9107
    @t-tokyo91073 ай бұрын

    This really warmed my heart ❤️❤️❤️. AND I absolutely love the T-shirts he and his mom were wearing, "Don't stare at me, play with me". Those shirts should be mass produced.

  • @justahippiekid
    @justahippiekid3 ай бұрын

    It warms my heart to see Michael and his amazing support system! Thank you as always for sharing these people and stories that remind me of the good in the world.

  • @Short_Rachel.
    @Short_Rachel.3 ай бұрын

    Love the purple couch 👍🏻♥️ Sweet young man 👍🏻

  • @allaboutroofing2
    @allaboutroofing23 ай бұрын

    What a good mama.

  • @granolitayyo
    @granolitayyo3 ай бұрын

    Hello dear friends, thank you so much for sharing your wonderful video and great interview with us! ♥️🙏🏼🥰. Like 145 👍🏻♥️💕💞📖💞🌹🤗

  • @Justbrain1Eva

    @Justbrain1Eva

    3 ай бұрын

    Thanks a lot for sharing @granolitayyo.

  • @Doors067
    @Doors0672 ай бұрын

    His smiles infectious!! ((:

  • @TH1101
    @TH11012 ай бұрын

    Respect and hugs to Michael, his Mom and family. Such a beautiful, loving family. They are truly blessed in ways many of us are not.

  • @pamhearen8986
    @pamhearen89863 ай бұрын

    I found myself smiling the whole time. What a wonderful family.

  • @beckyjo8745
    @beckyjo87453 ай бұрын

    Hes such a happy child, i love these videos and very grateful to the families that share their stories with us. It really helps people like me who knows nothing about many of the conditions to learn about them and how to interact with them should a meeting ever arise. So from the bottom of my heart thank you chris and all the families. ❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤

  • @Djirologija
    @Djirologija3 ай бұрын

    I love the questions that you ask, and the way you try to understand these families. Wonderful to see Michael surrounded by so much love and support. Keep up the amazing work, always a pleasure to watch SBSK.

  • @prasanagurung426
    @prasanagurung4263 ай бұрын

    He reminds me of my little cousin ! Adorable!

  • @FloTauber
    @FloTauber3 ай бұрын

    Hopefully Tyler Perry sees this and will make a visit. It would be really fantastic

  • @erin5109
    @erin51093 ай бұрын

    Michael and his aunt have me in tears!! 🥹🩷 the absolute joy from both of them. You are such an awesome family!

  • @bbkeita57
    @bbkeita573 ай бұрын

    he seems sweet I would love to be his friend and meet his mom

  • @SSmurfa
    @SSmurfa3 ай бұрын

    Happy late birthday, Michael! 🎉🎉🎉

  • @monkey3906
    @monkey39063 ай бұрын

    Such a sweet family

  • @lulumoon6942
    @lulumoon69423 ай бұрын

    *SUCH LOVE ALL AROUND!* *HAPPY BIRTHDAY MICHAEL!* 🎂😍🙏🕊️

  • @Picklesmom2
    @Picklesmom23 ай бұрын

    The love in that home is incredible ❤

  • @kurumar_
    @kurumar_3 ай бұрын

    Their dance is so nice!

  • @barbaracarpenter706
    @barbaracarpenter7063 ай бұрын

    He's probably one of the happiest babies with 1 of the most physical and mental altering diseases that some people would just be debilitated, but this baby is smiling and dancing and acting like every day is a party and mama. You did a great job and the host of this channel. Sir, for you to interact with these babies, you just make it all the more beautiful God bless you all.

  • @user-kp8qw1jr2x
    @user-kp8qw1jr2x3 ай бұрын

    What a wonderful group of people around Michael. He is a lovely person and those who love him so much are a real blessing in this world. Thank you for this uplifting video. ❤

  • @jeremywood7250
    @jeremywood72503 ай бұрын

    I love this family. I can tell they have a light. I wish them the Best of the world. They deserve it 💛

  • @terrracie
    @terrracie3 ай бұрын

    What a wonderful family ❤️

  • @lindaalvarez8855
    @lindaalvarez88553 ай бұрын

    I enjoyed watching Michael dance! He's so cool!

  • @elizabethcarrington5819
    @elizabethcarrington58192 ай бұрын

    Mike is awesome and so is his family and godfather. ❤️

  • @wildflower1397
    @wildflower13973 ай бұрын

    He gives so much joy to those around him, which is more than a some people ever contribute to the world. His bright smile is everything. ❤

  • @katherineashley5712
    @katherineashley57123 ай бұрын

    What a happy young man. Good job family. Your love and care shows in leaps and bounds. Bless you all.

  • @jenniferadams4791
    @jenniferadams47913 ай бұрын

    Happy Birthday Michael!!! I love your dancing and that gorgeous smile!!!! You all are so blessed to have each other !!! You can tell how much love and respect you have for eachother!!!! God bless you all! Thank you for sharing your life! Love from Lawrence Kansas!!!

  • @daniwastaken
    @daniwastaken3 ай бұрын

    Who else dancing along? Awesome dance break

  • @duebraccia

    @duebraccia

    3 ай бұрын

    I dance too, dear

  • @staceyritchie7100
    @staceyritchie71003 ай бұрын

    What an awesome family! ❤❤❤

  • @lizadiana7406
    @lizadiana74063 ай бұрын

    OK not even 2 minutes in and I am so, so impressed with mom!!!

  • @briannamorales6722
    @briannamorales67223 ай бұрын

    He's got so much love surrounding him and that's why I believe he's so happy especially.😊

  • @sophie1564
    @sophie15642 ай бұрын

    Michael seems so happy and well-loved. I'm glad he has such a warm and caring family. I was smiling the whole way through!

  • @AngelaVEdwards
    @AngelaVEdwards3 ай бұрын

    He is precious. Looks like he brings sunshine wherever he goes, too. What a phenomenal family. 🥰

  • @rileywalstrom3037
    @rileywalstrom30373 ай бұрын

    I love it. He's such a goofball, full of joy. His family is amazing too. They know each other so well. He gives me hope.

  • @carolblackwood5752
    @carolblackwood57523 ай бұрын

    What beautiful humans! I had to dance with you, Michael and Mom. Your dancing is contagious. Thanks for sharing a view into such amazing love.

  • @nooneinparticular1685
    @nooneinparticular16853 ай бұрын

    Michael had me smiling and laughing so much, what a bright young man and how lucky this family is to have each other!

  • @annaandre9131
    @annaandre91313 ай бұрын

    That was so uplifting! The dance intermission was the cutest thing! Michael's family is so loving and nice, he is a lucky guy ❤

  • @mtnewt1
    @mtnewt13 ай бұрын

    I adore his mom and the village! Love his spunk with his Auntie, you can tell they're crazy about him 🥰🥳

  • @CM_Solnero
    @CM_Solnero3 ай бұрын

    Michael is truly blessed to live his life surrounded by people who love and care for him 24/7. It's truly a different and simple world than we all live in. One filled with happiness, laughing, and family. It must be an amazingly beautiful world to be surrounded by so much love. May he have this love for the rest of his life. God blessed this family with Michael.

  • @magdalenaorzol
    @magdalenaorzol3 ай бұрын

    The dancing was the best part, so great to see Micheal enjoying the dnace, and great moves too!

  • @debrabolton9372
    @debrabolton93723 ай бұрын

    Michael has such a loving family. The fact that he tries so hard to communicate and has the energy that he does is a testament to their love.❤

  • @hannakinn
    @hannakinn3 ай бұрын

    What a great mom. I can tell she loves her son and is proud of him. I'm glad he has so many people around him to love him unconditionally and be so supportive. 😂

  • @lexiohdancer4199
    @lexiohdancer41993 ай бұрын

    I truly believe that Michael was sent to the perfect family. They are so caring, fun-loving, and united. Beautiful ❤️

  • @missfittkid4729
    @missfittkid47293 ай бұрын

    All love ❤❤❤❤❤

  • @JillABaker970
    @JillABaker9703 ай бұрын

    “Leave me alone” that’s just great what a beautiful young man.

  • @Toketree
    @Toketree3 ай бұрын

    His mom is really something special. She’s an amazing person.

  • @ieva5948
    @ieva59483 ай бұрын

    They're all so charismatic, I was smiling the whole time. Love them!

  • @quiethills1999
    @quiethills19993 ай бұрын

    He's so loved! These are the lovliest people who love their silly boy 🥰🥰

  • @dogmom371
    @dogmom3713 ай бұрын

    Heeeeyyy Michael! 🥰❤He is so sweet! I love how his family loves him so much! They all seem so fun 🥰🥰

  • @BitsandBiteswithBets
    @BitsandBiteswithBets3 ай бұрын

    I love your channel! Michael has some awesome dance skills!! ❤❤ I am so glad you are able to bring awareness to so many rare diseases for both young and older people. I have a rare autoimmune disease (Wegener’s Granumaltosis) that affects approximately 3 in every 100,000 people. Awareness for those of with rare diseases is so important.

  • @tamisloading

    @tamisloading

    3 ай бұрын

    Thank you for sharing! I’d never heard of Michael’s condition or yours, and just knowing they exist can mean the world to some. Wishing you peace! ❤

  • @tomswife29
    @tomswife293 ай бұрын

    What a great family! Michael has the greatest smile, and he just seems so joyful and happy to be around his family. ❤

  • @beverlydavidson6749
    @beverlydavidson67493 ай бұрын

    Michael has so much love and such a great support system . God bless this child . He is blessed ❤

  • @SurfyFN
    @SurfyFN6 күн бұрын

    I went to school with Monique in our small southern town and everything she said in this video is 100% genuine! I haven’t seen her in years but I’ve followed Michael’s journey for at least 15 years and it has been inspiring to watch!! I truly believe God hand picked her to be Michael’s momma!! She’s the real deal!! Love you Monique!! ❤ KGW

  • @amandasaunders3493
    @amandasaunders34933 ай бұрын

    Just thank you.