I was just diagnosed with c diff. My symptoms began almost 20 years ago. I was 24 and was given antibiotics for a bad case of bronchitis, symptoms began within a week or so. I was diagnosed with irritable bowel syndrome. My symptoms weren’t as bad as this woman’s, I could still function, but I’m a little frustrated at doctors attitudes that I’m just being a hypochondriac, or I just need to eat better. If it weren’t for their ignorance I would have been spared almost 20 years of suffering

@maryhawker5003

Жыл бұрын

Were you also tested for SIBO? Apparently over 60% of IBS patients actually have SIBO instead.

@danpeters6874

Жыл бұрын

@@maryhawker5003 They might have. I’m not sure. They did a bunch of tests back in November and that was when I got the c diff diagnosis. After a month of taking vancomycin, I still had symptoms, they did more testing and I was diagnosed with some sort of E. coli infection. After a week or so of amoxicillin, I still have symptoms. Haven’t been back to the doctor yet but I’ll probably go soon. I had some hope at first but now I’m very skeptical of both diagnoses.

@maryhawker5003

Жыл бұрын

@@danpeters6874 amoxicillin?!? I’ve never heard of amoxicillin to treat this severe of an infection, c. Diff or not. But your story sounds identical (minus the amoxicillin) to so many people on KZread who say in the comment section they now have SIBO after c. Diff treatment & their doctors gaslight them into believing it’s all in their head, just to get rid of patients they don’t know how to treat. Also, Doctors aren’t familiar with SIBO on a widespread scale yet, so I would highly recommend seeing a different GI doctor who can order the SIBO breath test that measures both hydrogen AND methane.

@bolivar4537

Жыл бұрын

The carnivore diet has helped keep the symptoms "manageable".

Thank you for your story! I am 26 and unfortunately contracted cdiff from taking antibiotics for a uti and wisdom tooth extraction! 2 rounds of flagyl made me extremely ill with the side effects. Currently on vancomycin and feeling much better! I am hoping it takes care of it for good. Please don't get discouraged if u contracted this! Be patient- persistent- and you will beat it! Thinking and praying for those currently suffering with it... Xoxo

@rqjgaming

5 жыл бұрын

How long were you on vancomycin for

@rqjgaming

5 жыл бұрын

How long were you on vancomycin 4

@rqjgaming

5 жыл бұрын

It's a shame people suffer with this for 8+ months before getting on treatment because nobody knows what cdiff is until you have symptoms. Theres no signs on the hospital saying be aware of cdiff theres no warning signs of cdiff of antibiotics. Like honestly fuck America. Like I've been suffering for 8 months and they wont even give me vancomycin yet

@hajnalrozaliaotten1958

2 жыл бұрын

Im very sad I have cdiff and first time I take metronidazole 500mg 10 days then vancomycin 40 tablets now again recurrent cdiff what I do ...I don't wanna die😢😢

@Liz-vs9og

2 жыл бұрын

Hi! I made the original post (can’t believe it’s been 7 years!!) - just have a different UN. I’m so so sorry you’re dealing with this and had a recurrent infection after all the treatment you’ve done… I know that is so discouraging.. especially with the side effects of the meds. Hang in there. You will make it out the other side. I can’t give medical advice of course, but just know that you have to remain mentally strong and positive. I couldn’t see my life without c diff when I was in the thick of it, but it’s been years and I’ve made it to the other side without another infection! I will pray for you tonight - a prayer for peace, guidance for your doctors, and for physical well being. I totally know what you’re going through and how discouraging c diff truly is… God bless you 💖

This woman did an amazing job of describing what it's like to have it. It affects not only your physical health but your emotional well-being.

I’m on day 10 of straight diarrhea from c diff and she is right. No nausea for me. I started vancomycin today. Nervous but hopeful. Slightly Feel like my intestines and lady bits and butt are going to fall down/out. Went back to urgicare and they said the swelling and pressure in those areas is the inflammation. Good Rx saved me 200$ on medicine btw. Broke down and cried tonight for first time. It does take a toll and it’s kind of scary to feel the inflammation/swelling. But I am eating everything I can with probiotics and electrolyte and whatnot. I hope anyone that goes thru this gets well soon. Don’t wait 10 days like me!

Thank you Anne, for your eloquent story. I have it now, month 9. I had 2 neg tests after 3 courses of Flagil and now it's back. Here in the U.S., any other medication is prohibitively expensive. A vegan diet and 100billion probiotics helped tremendously when I wasn't on the med. Flagil actually causes nausea, diarrhea and loss of energy, so it's as bad as the disease. It was developed for the original strain and I have the newer, stronger strain.I will try fecal transplant next. I will beat it.

Thank you for this information. I am just coming out of a bad spell with C Diff. The multiple hospitalizations in isolation and being all alone when I have been home has been awful. I’m trying to get past the fear of having it come roaring back or infecting someone is all consuming. I spent my birthday in the hospital and away from my family on Thanksgiving and am hoping to be with family at Christmas. I had never even heard of C Diff

@chthehelpmate3694

2 жыл бұрын

Hello. I understand how you feel. Allow me to suggest something for you. It's call Fecal Matter Transplant. I also recommend you look up a book called The Other Dark Matter explaining the great medical benefits of Fecal Matter Transplant. I wish you the best of luck.

Very well said. Thank you for explaining so well the mental and physical toll it takes on the patient.

Thanks for this video I was really worried about my mom because she sooo sleepy but you put my heart at ease and I understand that that is a part of this.

I got C-diff after taking antibiotics and had my large colon remove.i had an ileostomy for 7 months but i had a great doctor who reconnected my small intestines to my rectum.Its been 7 months since that surgery and every day I'm getting better..

thank you for this video. i have had c diff since june. at least i know i am not alone. failed vacco tappers. it sucks

@rqjgaming

5 жыл бұрын

How did you get rid of cdiff

Thank you.

Thank you so much for telling your story. I am 10 weeks into an aggressive C Diff infection that I got in the hospital. Never heard about it. Just finished antibiotics cure nr.2 (10 days on Vancomycin and before that 10 days on Flagyl) and nothing helps. I am completely exhausted, lost lots of weight and generally in bad shape. Seeing my Doctor tomorrow and I expect a hospitalization. Don’t know what is worse. Isolation there or at home🤣. I fear further reoccurances no matter the treatment.

@maryhawker5003

Жыл бұрын

Is fidaxomicin not an option? It shows better outcomes for c. Diff than vanco or flagyl but it depends on insurance

@bimmerella

Жыл бұрын

Dificid cured me. After having a reaction on vancomycin in the middle of my pulse dose phase. It cured me but in a way it's after that's the hardest for me. I also have IBD Crohn's. Lost 50 pounds still not eating solid food. Live on Boost (protein drink frozen the only way I can tolerate it). K8dnet stones from the chronic dehydration & even eyesight damage. This is not a joke. Now I have envirocleen in every qtr to sterilize.

@Dwightinho56

Жыл бұрын

@@bimmerella I feel for you. This bacteria is doing great damage. I wanted Dificid, but they didn’t want to give it to me. Since last I have done a FMT transplant and I got rid of C diff. that way but there are still a lot of symptoms. I’m in my 3rd week after the transplant and I hope my system will settle eventually. Very careful with what I eat.

My husband just went through c-diff and it almost killed him. He’s on the mend now

@dianabekele5777

3 жыл бұрын

How did you deal with c. diff?

Thank you. i am going through it now and was supposed to return to work tomorrow after 10 day course of vancomycin but i am in no shape to return to work. I think I may have IBS now or something else but i am not back to normal at all GI/GU wise. . .

@annberlin5811

Жыл бұрын

Take a probiotic during last day of an antibiotic for a week

@Catfcy

2 ай бұрын

My vanco is a taper for 6 weeks 4,3.2,1 . 1 every other day and then one every 3 days. I wonder if that makes a difference.

Hello! I had cdiff and take a probiotic during last day of taking antibiotics for a week

I know some one with this, in hosiptail with bloted stomach. They kept giving antibiotics for other things.

Have you tried Dificid? Yes, it's very expensive but the drug company "paid" for it. I had C-Diff six times last year. It was horrible. When the doc FINALLY agreed to start me on the Dificid,3 days after starting it, I was a new person!

@tamiscott8352

7 жыл бұрын

SissyD61 did the difcid cure you? i am 4th month dealing with it. awaiting fmt.

@rqjgaming

5 жыл бұрын

Did dificid cure u

@madhatter909

4 жыл бұрын

@@rqjgaming No, I thought it would two weeks later and I've still got it

@Catfcy

2 ай бұрын

I took Dificid thought it was done and it came back 3 weeks later

@SissyD61

2 ай бұрын

@@tamiscott8352 No..I'm so sorry I haven't replied. I didn't even see these comments until today. I had a fecal transplant. It was my best friend's stool. In order for insurance to pay, we had to mix it up in a blender (yes threw it away into a hazardous waste container, but I'd rather had mailed it to my ex husband, jerk head). Anyway, we got it ready and doc inserted it during colonoscopy. I was the 13th patient to have it done. I've had it 3x since then. So for a total of 15x, I had C-Diff. But it hasn't bothered me in about 5 years. I have Crohn's Disease too. I hope you are well now. Again, I'm so sorry it took me so long. My mother died in my arms, then my sister died in 2021. Now, my daughter was found in her apartment dead on March 2nd. Police are still investigating. Autopsy and toxicology reports haven't come back yet. Detective believes possible homicide. I'm a wreck. Not looking for pity. I despise pity. But best friend is no longer best friend. In fact, no friends really. Plus my baby girl (age 40) is gone.

My mums in hospital atm with cedith 😢

Clindamycin causes c-diff

@rqjgaming

5 жыл бұрын

How u get rid of cdiff

@melissalevine8364

4 жыл бұрын

Yea that is what gave it to me

@whitama2

4 жыл бұрын

@@rqjgaming Fecal transplant

@ms843

Жыл бұрын

Yep this is my reason

@maryhawker5003

Жыл бұрын

Clindamycin caused my c. Diff as well.

I never vomited, don't recall nausia. Your case was really bad! I remember the stench of rotten eggs and peeing out the wrong hole-not diarrhea-smelly yellow water. I had an accident in my sleep-that weakness, high fever, yeah. Went away on its own.

@Roselynne1016

2 жыл бұрын

It went away on its own...how?

@brooke3081

2 жыл бұрын

Probably wasnt cdiff

@brooke3081

2 жыл бұрын

Sounds like vaginosis

@annberlin5811

Жыл бұрын

@@Roselynne1016 it will not go away on its own

@Roselynne1016

Жыл бұрын

@@annberlin5811 of course it won't. That's why I questioned the OP.