My main tip for a good day is to make the most of any better hrs, mins or moments! I was still bedbound for 22hrs/day this day, but managed more than I had in yrs & was so grateful! ☺️🎉

Sometimes I complain to my parents about having POTS because none of my teachers understand that I have to have crackers and water with me at all times. I recently started taking med classes at school and I was worried about telling the teacher about my condition and her complaining about it, but she was so nice and told me that she's seen patients like me and she completely understands. She let's me leave class to take meds and have crackers and water ON THE DESK She's so sweet and only asked to have a doctor's note so she could have it on file for future teachers to see. :)

@GeorginasJourney

5 жыл бұрын

Abby Herring I was undiagnosed at school and used to have the exact same problem! But I’m glad that teacher was nice and understanding, you deserve everyone to treat you that way! :)

@abbygirlaeh

5 жыл бұрын

@@GeorginasJourney you're so sweet! Thanks for helping spread awareness of POTS :)

@GeorginasJourney

5 жыл бұрын

Abby Herring thanks! And you’re welcome :)

@jennifermcmillan9518

3 ай бұрын

You need to get a 504 in place. If you have it, they cannot give you grief about and medical needs. It is part of ADA compliance. I have one for both of my kids.

I forgot to say, I only put my feet on the dashboard when parked! If you need your feet up while moving, it’s safest to have your feet on the back seats! A common question I’ve seen is ‘why do people with POTS often feel better at night?’ & it’s simply because our heart rate naturally lowers in the evening/night 😊

@aelinluna3434

5 жыл бұрын

Omg I was wondering why I feel much better at night!! Thanks for this!

@GeorginasJourney

5 жыл бұрын

Rinna you’re welcome! 😊

@abbigailcarr2725

2 жыл бұрын

My entire life makes much more sense now

I have recently been diagnosed and my friend just told me about your channel. This was extremely helpful as nobody really takes this seriously. They act like its nothing and it really is so much more. Thank you for being such an inspiration to me!

@GeorginasJourney

5 жыл бұрын

Thank you so much! And I completely relate to that and agree with you that this condition has a much bigger impact on your life than people realise! I also want you to know that it can get a little bit better and it definitely gets easier, keep hanging in there :)

It saddens me a bit that people don’t understand that although POTS can be as bad as your case and other cases on KZread but also that people have it with less worse symptoms. I feel bad for you obvs and so happy you are getting better but I also have POTs but less extreme and people don’t seem to understand that it’s difficult no matter how bad your POTs is.

@GeorginasJourney

6 жыл бұрын

Dance Moms Amazing that’s true, I wish people knew how much variation there is with it! And that it’s difficult for everyone who has it and that everyone is validated :) Have you seen any other Day In The Life With Pots videos on KZread? All of the ones I watched showed life to be really hard and pretty negative so I just wanted to show people that life can still be good :) When I first got ill, everything I found on here made it seem like my life was going to be hard and horrible now so I wanted to give people a little bit of hope :) Although maybe it doesn’t come across that way for people who have less severe cases?

@sophie-irisprest9612

6 жыл бұрын

Georgina's Journey no it does come across as you trying to help however I don’t have a very severe case so (not you) when people in my class go and search up what I have and they see videos that are really negative they either think people like me are “faking” or our life is so much worse than it is. Well done on the videos and keep up the good work 😊

@GeorginasJourney

5 жыл бұрын

Ah I see what you mean, I experienced that in the beginning (when I wasn't affected as badly) too. I think the only way around it is to be your own advocate and when you can, tell the person that it affects everyone differently and if you want to, tell them what it's like for you :) One of my conditions is a hypermobility spectrum disorder and I have a very mild case of it, so people often think that I don't really have it or that it's worse than it is which so I completely understand how frustrating it can be :/ Thank you so much :)

I love your positive attitude. Also, you are so lucky to have such a sweet best friend!

@GeorginasJourney

5 жыл бұрын

Branjiebelle thank you so much! :) And I agree, I’m so lucky to have her & my other best friends! I’m thinking of doing a video with two of them soon so you guys can get to know me a bit better and we can see how well they really know me! :)

Note for everyone on wheelchairs: I know it can be super strange to use a wheelchair at first, but I want to remind everyone that it is NOT a last resort! It is just another tool to help you stay safe, and you dont need to be completely unable to walk in order to use it

@GeorginasJourney

3 жыл бұрын

So true!! And yes! I made a video about power assist wheels & also some other power assist options, which you can watch here... kzread.info/dash/bejne/gZegqrKwqtq5k7A.html

@cinnabonbon

3 жыл бұрын

@@GeorginasJourney Ty!! Going to watch it now 🍿

Thanks for the advice! I’m 13 years old and been recently diagnosed with pots

@GeorginasJourney

5 жыл бұрын

Livigirl28 you’re welcome! I know it’s tough atm but it gets easier :) Always here if you have any questions:)

Any ideas as to why we feel better at night?? I used to want to get everything done in the morning and I miss that. I have to sit around for a couple hours before I can get up. Anyways thanks for the video.

@GeorginasJourney

6 жыл бұрын

Blockhead VIP your heart rate tends to be lower at night at so that’s why :) And I miss that too, in total I have to stay in bed for about an hour before getting up to, although that time doesn’t have to be wasted! :)

Its so important to mention that if you are going to consider putting your feet on the dashboard you MUST turn the airbag off. If you have an accident with it on it will snap you in half literally, hip fractures, conpund leg fractures, open fractures, risk of spinal injury etc are all huge. It is obviously also a risk turning off an airbag but if you absolutely have to put your feet up it is a must. Where possible it is much safer to travel in the back with your legs up on the seats.

@GeorginasJourney

6 жыл бұрын

Chloe Print-Lambert Sorry, I should have clarified! I meant you can put your legs on the dashboard when you’re parked between going places (which you can see in the video, even though I didn’t specifically say it!) & use that as recovery time! & of course the back seats are an even better option if you don’t have people or a wheelchair taking up that space! I’ll pin a comment explaining that, thanks for telling me as it does sound like I’m giving potentially dangerous advice, even though it isn’t what I meant! x

You're entirely beautiful :) glad you've found a way of enjoying the day despite the POTS!

@GeorginasJourney

6 жыл бұрын

poo2wee2browner thank you! :)

What a lovely video, thank you for sharing!

@GeorginasJourney

6 жыл бұрын

JellyFable glad you enjoyed it, thanks for watching! :) And I hope you’re doing well today

So my mom was on tiktok and she saw a video about POTS - I know, random. I haven't felt good in years, I'm always dizzy and tired, my heart skips beats and I faint, lots of different things. We never knew what was wrong and I kinda had to learn to deal with it, but, thanks to tiktok *Never thought I'd say that* I am now diagnosed with something, finally. :) We also realized that it does run in my family, because, some of my family (We don't talk too much) definitely has it. So! It's all making sense!

@GeorginasJourney

4 жыл бұрын

TheWeirdos44 that’s great that TikTok helped you find what was wrong! & that a doctor was able to diagnose you with it! Sadly a lot of people who have it struggle to find a doctor who knows of the condition and is willing to refer them for the official testing! Things like KZread and TikTok have actually been great for raising awareness of it though, so the situation is slowly getting better :)

Loved watching this, thanks for the fab video lovely x

@GeorginasJourney

6 жыл бұрын

Harriet Shearsmith so glad you enjoyed it, thanks for watching :) x

thank you for this video! i recently got diagnosed with POTS last month after dealing with symptoms for two years. i don't have it as severe as you do, but it definitely impairs my life in a lot of ways so it's really helpful to see your tips about it! i'm excited to watching the rest of your channel ^_^

@GeorginasJourney

3 жыл бұрын

tick hope you’re doing okay, it gets easier with time! And thank you!

I also use a large carabiner to attach bags to my wheelchair when I do like mall shopping

@GeorginasJourney

3 ай бұрын

Great idea!

So glad you were able to get the wheelchair!! That looks like it has been so helpful to you so far. And the bike? You go girl!! That’s awesome! 💛

@GeorginasJourney

6 жыл бұрын

Kaitlin's Story that’s my old wheelchair haha, I can only push myself for about 10 meters (and you can’t attach a smart drive to it) and it’s painful to sit in for long periods of time, but it’s still a lot better than nothing until I get a more suitable one! And thank you so much! 😊

@quirkhouse9818

6 жыл бұрын

Oooh gotcha. Well then I hope you'll be able to get the other one soon!!

@GeorginasJourney

6 жыл бұрын

Kaitlin's Story Thank you! Me too :)

I didn't know you had this channel as well and I love the content! I hope this is helpful for people.

@GeorginasJourney

5 жыл бұрын

Beautifully Bookish Bethany thank you Bethany! I was a bit embarrassed about it for a while but I’m not anymore :) I really hope it’s helpful too, from what people have told me, I think it is :)

i definitely feel better in the evening! i always thought i just “wasn’t a morning person” but now i highly suspect it’s because of my pots

@GeorginasJourney

4 жыл бұрын

it definitely could be! Feeling better usually impacts a person's mood and things like that as well, so it would make sense :)

I had this vlog ready to watch but had it paused so I could go grab my cell phone. My dog must have been impatient to watch your vlog, lol..... Jumped on the table and somehow while standing on my laptop keyboard, he pressed play. *facepalm* lol I''ve a little chihuahua cross.

@GeorginasJourney

5 жыл бұрын

Dis B Life that’s so funny aha, I think he wants to watch it with you :)

Your such an inspiration to me. Thanks

@GeorginasJourney

2 жыл бұрын

Thanks so much! And you’re welcome!

Thank You for telling Your about your journey with POTS 🙏🏼💜

@GeorginasJourney

2 жыл бұрын

You’re welcome! Thanks for watching!

I have pots too! It can be quite hard! I love your attitude towards it!

@GeorginasJourney

4 жыл бұрын

Thank you Grace! Hope you're doing okay!

God bless you precious girl!

@GeorginasJourney

Жыл бұрын

Thanks, Susan!

I loved this video! 😊 4.4km is amazing! A huge achievement xxx

@GeorginasJourney

6 жыл бұрын

My Chronic Life thank you so much! 😊 It feels huge to me too although I know there are people with pots who are out hiking and running etc so I was a bit hesitant to say how big of an achievement it was for me xxx

Thanks for sharing all this! Did you ever think of sharing what books you're reading? It looks like you have an epic bookshelf

@GeorginasJourney

2 жыл бұрын

Funny you should ask…I used to have a KZread channel all about books! I shared a couple of book videos on this channel, but I lost subscribers for it sadly, so I don’t talk about it on here too often anymore 😌 I recommend the Scythe series if you’re looking for something new to read though, it’s great 😊

Sometimes when I go to museums I'll ask the front desk for a wheelchair...helps me so much with my joint pain from my EDS. Which university do you go to? I spent last semester at University of Edinburgh (even though I'm American ahahah)

@GeorginasJourney

6 жыл бұрын

Izzy Kornblau that’s a great idea! & some shops have them as well 😊 I didn’t mention my joint pain from subluxations & dislocations in this video but I agree that wheelchairs help with that too! I didn’t explain it well, but I actually just accepted my offer & so was buying stuff for when I move in this September! And that’s so cool, you should be really proud of yourself for going to university at all, let alone doing a semester abroad! What are you studying? :)

@IzzyKDNA

6 жыл бұрын

I'm studying environmental earth science! Now that I've been having these medical issues and learning so much about them, it makes me really want to go into the medical field, though!! So I might try to be pre-med, but might still do environmental science. What are you studying??

@GeorginasJourney

6 жыл бұрын

Izzy Kornblau that sounds so interesting! I applied for English language & linguistics last November so that’s what I’ll be studying, although like you, I’ve since had second thoughts since getting more unwell & it’s made me want to do into the medical field. Your plan sounds great, btw! I’d love to be a doctor although I really don’t think I could handle the hours, but something like an occupational therapist or a therapist who specialises in mental health issues related to chronic illnesses appeals to me atm so who know what I’ll actually end up doing ahaha, who knows what I’ll actually end up doing! 🤷🏽‍♀️ :’)

@GeorginasJourney

6 жыл бұрын

Izzy Kornblau just realised you have a KZread channel too! I love finding new channels to watch so have just subscribed and am looking forward to catching up on your videos! :)

@IzzyKDNA

6 жыл бұрын

Yeah, I just started making videos! It's honestly really fun and all I want to do is spread the word about EDS/HSD and treatment options!

Physical therapy has been the biggest game-changer in managing my POTS. On good days I can even go to the gym or light hiking. That seemed like an impossible dream before Dx/PT.

@GeorginasJourney

4 жыл бұрын

Shaye Eller that’s amazing! So happy for you that you got the help you needed and had such great results!

@shazthorndike6566

4 жыл бұрын

Hi Shaye. Can I ask what sort of things your physical therapist does for you for the POTS?

@shayelea

4 жыл бұрын

Shaz Thorndike it’s quite varied. We started out using the Muldowney Protocol (I have EDS) and then from there (once it became clear I wasn’t THAT deconditioned) moved into testing my tolerance for inversions, endurance for cardio and strength exercises, and balance. We have a three-pronged approach: stability, mobility and strength. Basically it comes down to trying to stress out my system and seeing how long it takes to recover. It’s a long process - I’ve been going off and on for a year and a half. But this was very much tailored to my specific needs. My PT has EDS and POTS herself so she has a solid understanding of its unique challenges. If you don’t have access to PT and need somewhere to start, look into Muldowney or the CHOP POTS protocol (www.dysautonomiainternational.org/pdf/CHOP_Modified_Dallas_POTS_Exercise_Program.pdf). I’ve also heard of the Levine protocol but never looked into it. Muldowney and CHOP are very similar in that they both start out in a supine position (ie, on your back) and stay that way for a long time before you move on to upright exercises. I was more interested in improving my functional capabilities as soon as possible; for instance, I just got done painting my dining room, which would have been impossible before. The right course of action depends a lot on how your POTS manifests and what other treatments you’re using. Good luck!

Thank you for the staying in bed tip. I tried it this morning and then as usual took my morning BP and heart rate. My heart rate was not extremely high like normal. I used to just get out of bed right away and my heart rate would be very high and blood pressure very low. Thanks for the tip let’s do it again tomorrow!

@GeorginasJourney

2 жыл бұрын

I’m so glad it helped you! Fingers crossed it goes well tomorrow as well! I find that it helps me most days 😊

Awesome video! I have POTS, its not easy!

@GeorginasJourney

4 жыл бұрын

Teresa Love thank you! Hope you’re doing okay today!

I love the positivity of this video. It really gives me hope to see someone living a happy day with an illness. How did you get a wheelchair? I'm not diagnosed so I guess I would need to buy it myself?

@GeorginasJourney

3 жыл бұрын

Thanks! And I bought it myself even with a diagnosis!

@specialagentA

3 жыл бұрын

@@GeorginasJourney Great, good to know!

what I hate the most is the stingy waves of pain in my left arm, like I was having a heart attack 10 times a day. It's pure hell

@GeorginasJourney

3 жыл бұрын

sapitron you should get that checked out to be sure it’s not anything more serious!

post with your uni flatmates they sound great!

@GeorginasJourney

5 жыл бұрын

Lydia Hawkins that’s a good idea, thanks! I’ll ask them ☺️ They absolutely hateeeee my intro though so may have to figure out a way to cross that hurdle! 🙈😂 Thanks for the suggestion though 😊

This vlog is next level! Really liked it👍 Do smoothies also help you? Are they sweet?

@GeorginasJourney

6 жыл бұрын

Commentah thank you! And yeah, sometimes! Yes, they’re really sweet 😊

@GeorginasJourney

6 жыл бұрын

Commentah how have you been doing? :)

@commentah222

6 жыл бұрын

Georgina's Journey Recently i had EGD under sedation. It was my first sedation and first general anesthesia ever. Anyway, it went fairly well and I shouldn’t have worried at all. After that i was given new meds for my stomach so I’m gonna try it soon. Futhermore I’m testing new ways of pots treatment and have some more ideas to be tested but i need to ask a doctor first. Thanks for asking!😊 How is your pool going? Do you feel any improvements?

@GeorginasJourney

6 жыл бұрын

Commentah I’m glad it was better than you expected! And hopefully the new medication helps and makes it worthwhile :) That sounds good, you’ll, have to let me know how you get on! I haven’t noticed any improvements yet and it’s quite difficult, but I’m enjoying it :)

@commentah222

6 жыл бұрын

Georgina's Journey be sure, I’ll let you know if it really works!

I just took a tilt table test to test for pots, but there was no diagnosis as of yet because the room I was tested in was extremely cold to where I was freezing and each position was for 5 minutes. Although they did tell me my blood pressure did go down when I stood up but not enough to where they were concerned it was pots. With me I notice I'm more prone to dizziness, fainting or vomiting if I'm standing up and Its a little warm in the room or outside, but if I'm cold I barely have a reaction at all. I definitely think I also have a heat intolerance and even though I wasn't diagnosed with Pots this time, I still believe I have it. And at this point I don't care if they diagnosis me with or not because I have all the symptoms so I believe I have it. Lastly I have the autoimmune disease Sjogren's Syndrome which is linked highly to Pots, my rheumatologist even said so. But anyway I just thought I'd share my recent experience.

@GeorginasJourney

6 ай бұрын

Hope you get some help with it if that’s what you’re looking for, regardless of diagnosis 🤞🏽

@PrettyEyesz

6 ай бұрын

@@GeorginasJourney thank you!! 😊

I got diagnosed with POTS and my mom won't stop babying me what do I do😢😢😢

@GeorginasJourney

5 жыл бұрын

Anime Lover I’ve never had that problem so I don’t really know but I’m sure it’ll get better in time! Maybe tell her that you know it’s because she cares about you but that you’re still the same as you were before the diagnosis, you just have to do things differently or more slowly now 😌

I used to hate going in wheelchairs, it put the spotlight on me.

@GeorginasJourney

4 жыл бұрын

ocean qrage I understand that, but I wouldn’t be able to go out at all without mine so I’m very thankful for it!

@hwangara

4 жыл бұрын

Georgina's Journey Totally! I personally don’t want it, and it would so help. But I’m a stubborn person. Lol

@GeorginasJourney

4 жыл бұрын

I put it off for about 3 years and it actually made me cry when it got delivered to the house (as I felt sad that I needed it, but getting one was the best decision I ever made now :)

Wonderful tips, I never thought of doing my makeup in bed!

@GeorginasJourney

Жыл бұрын

Make up in bed is a game changer haha, hope it helps ☺️

I’m better in the morning. I have NCS. I am unable to do Cardio most days.

@GeorginasJourney

5 жыл бұрын

We're pretty similar in that sense then, I can't do much cardio either except working my way up to a few minutes on the exercise bike when I had access to one

You have amazing friends

@GeorginasJourney

4 жыл бұрын

Gaby Carbonero thanks 😊 That’s my best friend in the video and I’m so lucky to have her! And I think she feels the same way about me 😊

Liking those badass shades, Georgie. 😎 Your roads seem very narrow. Is it hard for pedestrians to walk around your town?

@GeorginasJourney

6 жыл бұрын

Jim Jurkowski thanks 😎 We’re in a heatwave atm here, 31 degrees Celsius is SO hot for us, it literally only happens for a couple weeks of the year 😂 What’s it like where you are? In most towns there are paths for pedestrians :) My town (which I didn’t show) & the town we went shopping in are both great for people on foot. There is A LOT of countryside though (like where the physiotherapy place was) & in those areas you would be pretty much stranded without a car 😅 Our roads and especially our cars are also a lot smaller than those in America! Ps, 2 or 3 episodes of Lost left! I’m so close to finishing it!

@jahimjauh-hey5653

6 жыл бұрын

Yeah its pretty hot here too but my city has such crazy ranges in regards to weather that I'm somewhat used to it. I actually hate the cold(Fall is nice though) and prefer when its warm outside. We have very wide roads that give a lot of room for people to bike on that leads straight to the heart of downtown. It was my favorite summer activity until my bike got destroyed by a crazy driver so I'm currently without a bike now and a little bit put off by the notion of riding again. Where would you like to live one day? Country or city? Also how is your family liking Lost? I'm excited to hear about your reaction.

@GeorginasJourney

6 жыл бұрын

Jim Jurkowski I don’t like the cold either, spring and autumn are my favourite because it’s somewhere in the middle :) That sounds so nice! I’m sorry to hear about your bike and hope you’re ok! I know it’ll be difficult to start with but I say go for it! Like you said, it was a crazy driver, not your fault and I’d imagine it’s not likely to happen again :) Or do you have any bike lanes, that might make you feel more comfortable :) They’re all really enjoying it! Especially now that the weird season (season 4 I think it was) is over and we’ve all become hooked on it again...which is a bit sad as it’s nearly over :’) I also really like how the characters have mostly been whittled down to the original gang, it’s just Jack, Kate, Sawyer and Hugo on the beach at the moment, bad Lock (Jacob’s twin) and Claire are coming for them though...

@jahimjauh-hey5653

6 жыл бұрын

Georgina's Journey yeah I know I’ll be at it again. I think I’m just embarrassed that people are worried I’m going to get hit again haha ughhh. I’m happy you guys are enjoying it and your two favorites are in the final four. :) Do you think you’ll do a video review for Lost?(no pressure) I liked your review on Stranger Things you did a while back.

@GeorginasJourney

6 жыл бұрын

Jim Jurkowski that’s understandable, my friend felt the same way after she had a minor car crash (it was the friend in this video actually) but I think you just have to bite the bullet and go for it, no one will be thinking about it at all before long :) Yes! I’m so happy about that! I hadn’t thought about that, do you think anyone would watch it? I’m only 10 years late haha :) Although technically I watched it at the time, I was just too young to remember a huge storyline like this back then! Omg have we talked about Alex’s death?? That was probably the saddest moment for me, I love seeing Ben with her in the alternate reality it’s showing atm. What was your saddest moment? (You can say anything that’s not in the last, double episode). Was it Sun & Jin? That was the only thing I remembered from watching it the first time so it obviously had a big impact on me back then, not quite so much when I knew it was coming 😅

Does pots happen all day when you change your position mine is only when I walk up for two hours it’s like this my heart is at 70 and shoots up to 130 it doesn’t go away for two hours and I take beta blockers is it considered pots

@GeorginasJourney

Жыл бұрын

It’s normal for pots to be worse in the morning, but its not as typical for it to go away after 2 hours, so you’d have to talk to a doctor about that & have them investigate your whole case. It will also depend on whether the hr change decreases even without the beta blockers

@Alexafghan480

Жыл бұрын

@@GeorginasJourney no my heart rate wouldn’t decrease without taking beta blockers and even with taking beta blockers it’s in 90’s and 100’s is it normal to have that heart rate even I don’t work or just in my home it rarely goes to 60’s

@GeorginasJourney

Жыл бұрын

@@Alexafghan480 90-100 does fall within the normal range, yes. BUT, if it’s always 70 when you lie down, it could be pots as that’s a pretty big jump, so I’d say it’s worth getting it checked out if you have symptoms!

What do they do for you at physio?

@GeorginasJourney

3 жыл бұрын

I also have EDS, so it’s mainly focused on strengthening my joints that dislocate, but my physiotherapist also created a plan for me to be to be able to do the exercise bike with POTS

Beautiful 😍😘

@GeorginasJourney

6 жыл бұрын

Bawanie Broadcast thank you!

I think healthy/able bodied people seriously need to watch videos like these. They seriously don't understand and get confused at how we can't even stand up on some days and function on some days like we're completely healthy but in this you explain it through so I think it would be helpful to understand. If someone who has the privilege of health doesn't see the explanation they would be so confused as to why you had to use the wheelchair while going out and then at night you were using a treadmill. They would probably assume your faking it because healthy people are literally obsessed with telling us chronically ill and disabled people that we're faking all our problems. They have no empathy and just love assuming things.

@GeorginasJourney

10 ай бұрын

Thank you! I think it’s also important to note that, that was an exercise bike which was reclined as I’m sadly never able to walk or run on a treadmill, but I was able to do some time on a reclined exercise bike in the evening back then ☺️ I’ve sadly not been able to do it for a few years, but it was great when I could 😊😊

@allygamer0183

10 ай бұрын

Didn't think you would actually see this. Sorry I didn't realize it was an exercise bike. Sad that you can't use it anymore. Honestly I can't exercise either but unfortunately I have no accomodations made for me and I have to constantly exert myself beyond my limits and have limited time to rest since I live in a very ableist household. Even though I torture and push my body beyond it's limits literally all the time people still call me lazy. It's just hell honestly thus the anger towards able bodied people.

What meds are you on?

@GeorginasJourney

3 жыл бұрын

I talk about what meds I’m on in this video... kzread.info/dash/bejne/n5uYzcyKpaTdoZc.html

I have POTS too, EDS and tardive dystonias. And I have been bedbound for 12 years now, 95% of the time. I was not able to study and I am not able to work. Most of the time I am lying on my bed, I cant even sit, and I have strong pain all over my body for hours everyday and in the same time I feel that I am close to faint, even lying. It's been more than a decade and this is not a life at all. I certainly have other conditions but I dont know what and the doctors arent helping.

@GeorginasJourney

Жыл бұрын

I understand, I’m bedbound 95% of the time too. You might find my recent ‘2 months in the life’ video comforting to not feel so alone in your symptoms. I deal with daily vomiting, migraines, fainting, my bladder is so weak I have to use catheters as it’s paralysed and I can’t control things like my heart rate, blood pressure or temperature. Back when this video was filmed, I was probably bedbound 90% of the time instead of 95%, but it was still horrendous. This video was just about seizing the better moments, I only had around 3 ‘better’ hours on the day this was filmed (which is a lot for me) & I really had to push through to achieve everything that I did that day

I have locked myself in my house for 8 to 9 months because I just get dizzy when getting outside and no doctors can help me its been like this for nearly 3 years

@GeorginasJourney

3 жыл бұрын

Are you diagnosed? Either way, even a GP can prescribe a beta blocker so it could be worth asking if you can get prescribed one! And also buying a wheelchair like I did would be helpful

@michellebaker8513

3 жыл бұрын

Sounds like me! I've searching for answers for 3 years and house bound for 6 months now. 100% get a wheelchair. It was a life saver for me. I highly highly recommend seeing a cardiologist for beta blockers too! Beta blockers did wonders for me in being able to move more. Still symptomatic but getting the HR under control helps with a lot.

I’ve just got diagnosed as having POTS, I’m a Senior Citizen and I’m where just walking to the bathroom not very many steps my HR would go up into the 170’s that’s when I’d Black out, I have to carry my phone with me everytime I’m not laying down, taking a Shower is like climbing a mountain, I did get a Shower chair & also a Transfer Chair, not a wheelchair “ that’s what I’m dreading, also got a chairlift for the stairs because it was getting where my husband had to literally be behind me & practically carrying me up the chairs But good news, My Dr. Started me on Beta Blockers & it’s really helping, I was up for probably 20 minutes before I had to get my husband help me to lay down & then my HR goes down fast & that brings on terrible headaches but I’m being positive, if I can just get to where I have my independence back it would be Great, but I’m extremely Blessed to have the support system that I have especially My Husband & Daughter & grandchildren ❤️🙏🏼 I’m glad I found your Channel

@GeorginasJourney

2 жыл бұрын

Glad you have answers now and that the beta blockers are helping! You just might want to keep an eye on your blood pressure, since they lower your blood pressure. ( I take midodrine to counteract this problem, although not everyone needs it). Medication hasn’t given me my independence back, but I do feel a lot better from it ☺️ I still can’t really walk, but I can sit up for a few hours a day now 😊

@muchancie

2 жыл бұрын

@@GeorginasJourney Bless Your Heart, I Just Pray that You can get your independence back & be able to enjoy every day, 🙏🏼❤️

@muchancie

2 жыл бұрын

@@GeorginasJourney I’ve been on Beta Blockers for a few weeks & like you said you can sit up for awhile now same here and I can walk though around a little bit but I get so dizzy that I have to have help getting back to bed or sit down fast & I get terrible headaches when my heart rate goes down because it goes down really fast! 😪

@GeorginasJourney

2 жыл бұрын

@@muchancie sounds like we have similar experiences with it, I’m sorry you’re going through that x

@muchancie

2 жыл бұрын

@@GeorginasJourney 🙏🏼❤️

Did u always need tge wheelchair, or did the illness became worse with time?

@GeorginasJourney

4 жыл бұрын

on my own I actually became bedbound by pots and my other conditions and could only start to use the wheelchair after about 2 years, when I started to get better

@onmyown2241

4 жыл бұрын

@@GeorginasJourney oh, and how are u now? Better?

@GeorginasJourney

4 жыл бұрын

on my own not bedbound anymore, but I’m at around the same level of functioning as in this video. I have vlogs o my channel which are good at showing how I’m doing now and how I’m affected by my conditions

At the evnening(9pm) my heart rate whrn I stand up is 112...

@GeorginasJourney

5 жыл бұрын

Nina Majher what is it like in the morning? Sorry, I’m not sure what your point is!

@Kwisoyyyy

5 жыл бұрын

@@GeorginasJourney I use the app you showed in one of your videos because I don't have a heart rate monitor. In the morning my heart rate is about 130.

@GeorginasJourney

5 жыл бұрын

Nina Majher Sounds like it could be POTS, so it might be worth seeing your doctor and seeing if you can get tested properly :)

@Kwisoyyyy

5 жыл бұрын

@@GeorginasJourney thank you!

@GeorginasJourney

5 жыл бұрын

Nina Majher you’re welcome!

Georgina- does your physical therapy seem to help?

@GeorginasJourney

3 жыл бұрын

It helped with my subluxations and dislocations, but unfortunately it did not help with my POTS symptoms

hello po

@GeorginasJourney

4 жыл бұрын

po?

I’ve been having a hard time psychologically with the idea of using the motorised cart at Costco, so I just shop with delivery, which is fine. The thing is, I wouldn’t judge you in the least, but for me it’s another story. Ugh

@GeorginasJourney

2 жыл бұрын

I understand. I get groceries delivered too, as I’d also be too worried about using the motorised cart because of what people would think. Using a wheelchair with a friend is easier though

So I decided to get a walker with a seat to try before a wheelchair because I'm very insecure about wheelchairs. Please pray for me everyone 🙏🙏 PS. I'm so sorry if that's insensitive to everyone 😥. I meant to ask for prayers of confidence 🙏. Again I'm so sorry if that sounded insensitive

@GeorginasJourney

4 жыл бұрын

Faith Alley I did that too, although it didn’t work out for me. Everybody’s insecure about wheelchairs but if you need one, you need one. Idk what you’re asking people to pray for as a lot of my viewers use wheelchairs like me, so asking us to pray that you don’t need one cos you’re insecure and would feel embarrassed by it seems insensitive to me when a lot of us have no choice

@nyxlulu840

4 жыл бұрын

I didn't mean for it too seem insensitive 😥 I was asking for people to pray for confidence.

i have a question, with pots syndrome, are you able to get a job like anybody else? like a doctor, or anything else

@GeorginasJourney

4 жыл бұрын

duckb0at it all depends on the person & how severely they’re affected. Some people can, some people can’t

@duckb0at575

4 жыл бұрын

@@GeorginasJourney thank you

DO NOT PUT YOUR FEET ON THE DASHBOARD while driving. That is SOOO dangerous. If the person driving has to do nan emergency break or crashes you can break your hips, even if otherwise you would just maybe have some bruises. I have pots too I get how much putting feet up can help but do it while standing and then take them off while you drive

@GeorginasJourney

3 жыл бұрын

Bella Daylight in my pinned comment, I clarified that I meant to only do it when parked & to sit in the back if you really need to put your feet up

@GeorginasJourney

3 жыл бұрын

Bella Daylight can you not see my pinned comment? Genuinely wondering, as I thought I made this clear 2 years ago when I uploaded the video & pinned the comment, but if it’s not, I’ll need to look into another way to make that clear as I agree that this is so important x

@belladaylight2132

3 жыл бұрын

@@GeorginasJourney I just realized the pinned comment, I am sorry, I really didn't see that one. I'm glad you know not to do that in any case.