Thankyou for this video. You've described my attacks to a T. I've never heard of anybody else who has it. Finally diagnosed in 2018. Being young with 4 children I refused the surgery due to risks and not knowing anything about CES. And here I am, 38 yrs old, a Nanna to my beautiful 2yo grandson, awaiting my 1st of many operations tomorrow morning. Hindsight is a wonderful thing x

Watching this makes me remember what I went through.. The pain having to roll off the couch to my knees to pull myself to my feet to not be able to take the pain and fall back on the couch.. I had my surgery within 18 hours I have permanent damage but I live a normal life.. Feb 26 2018..3 days and it's 5 years.. Thanks for making this video

This had me in tears. I ended up with CES 3yrs ago luckily had been told the symptoms and to go straight to a&e. Within less than 24hrs I was in surgery

@grancanyon2878

2 жыл бұрын

Me too Fiona, and like most, never heard of it, never knew how serious it could be. We're both very lucky. The consequences of delayed surgery I'm sure you're more than aware of now. I walked 3 miles to the A and E the day my gp told me to "get to hospital". I was in Agony by the time I got there, but I still had no clue what was going on. So important for medical staff to be much more aware of this terrible bloody syndrome. Even more so for people who suffer with chronic back issues.

I also live in the USA and have had ces for 18 years. I called for an ambulance and because I had no insurance, was given demoral and released without an MRI.

@PinkSparklerToontown

Ай бұрын

Americans voted for no universal healthcare unfortunately 😢

Well done video

God bless you. I also have CES and delayed operation. Your video was awesome. Did you have a back operation?

Wont share on Facebook

I have my sister in law suffering of this CES but they don°t mention any surgery.What will happened if the surgery would not done?

@EWQWEQQD

Жыл бұрын

Tough one to be fair. Guidelines suggest that it is treated surgically ASAP, although there have been few case studies of disc resorption and the disc material getting absorbed. However, bear in mind that If nerves are depleted of oxygen and nutrient for too long, then they are never restored to previous functionality. Therefore, we suggest all patient to have an emergent operation. Hope your sister in law does well.

I Am suffering cauda equina syndromes from 2month

@Preeti-lw9jc

8 ай бұрын

Did you had surgery?? How are you now??

You forgot to add the countless visits to the doctors before hand being fobbed off with medication over and over again, the emergency department not taking the call because you are in agony but you haven’t wet yourself so can’t be that bad. Then day later yep wet myself, emergency surgery oh the damage is to bad you will have life changing disability.

@j.alvare.z8902

Жыл бұрын

Got paralyzed this September and couldnt use the bathroom until i got my surgery, couldn't walk for 2 months until just 3 weeks ago legs still feel numb but everythings coming back since ive been practicing on moving and getting my sensation back alot