My wife was diagnosed in October, and she has three rounds of chemotherapy. She has Flt3 mutation aml, the hospitals told us they can't treat her anymore to chemotherapy sessions, we have been together for 14 years, and we dont have any more options.
@mmenuarora11 сағат бұрын
My mother is suffering from cyclic neotrophenia is it curable
@beijingbrandon62204 күн бұрын
So basically Kyedae is faking it.
@sagarjawaress21 күн бұрын
My father had exact 20 percent blasts so diagnosed as AML. After 2 yrs he has relapse from azacitadine and venetoclax. He is 61 and now shifted to Citarabin and Veneto. Planning for BMT. Fingures crossed.😢
@mahbubrumel570322 күн бұрын
More Research is Essential for Treatment invention.
@bankimpaul54027 күн бұрын
My sister have AML with monosomy in chromosome 7 and trisomy at chromosome 8, can you please tell me how much possibility of curable by chemotherapy?
@CrimsonBlack31329 күн бұрын
My girlfriend was diagnosed with aml last year in October. She is going through it right now with the radiation. She had three to 4 chemotherapies before the chemo. I just want her to be better, that's all😢😢😢. It hurts me to see her in this state.
@funwithnoorandkabeer5605Ай бұрын
Hey my blast count is 9 percnt. What should i do now?
@polyrhythmiaАй бұрын
Did six rounds of R-Pola-CHP, in remission so far as I know. 64 years old.
@shaiksajid9049Ай бұрын
Hello sir my sis in law is suffering from this dreadful disease chemotherapy has started two days back this disease can be cured or not sir plsss reply sir😥
@elynam450Ай бұрын
My son is diagnosed with AML 3 mths before, is under treatment
@VijayA-zx7mfАй бұрын
I lost my lovely daughter at her age 16 due to this . The doctor said that she was flt3 positive and need to undergo stemcell transplant . She underwent but had lot of complications thereafter. I now regret having gone for transplantation as she was in complete remission post induction
@cretureviper8288Ай бұрын
Are blast cell normal ,if normal . How many count of blast cell are dangerous ? Please answer the question ??
@cretureviper8288Ай бұрын
I am Thallaseemia and in cbc machine my report detect (blast?) in wbc message WBC were 2000 normal range is 4000 i am very scared ? Please REPLY if possible
@_944audiophileАй бұрын
Terrific explanation
@YourDoorАй бұрын
I lost my mother last year on 15th November 2023. This disease is not curable we tried our best but she did not survive long. I lost my whole world. When it relapsed it is more deadly. She was caught by infestion and till her last breath her infection was not cured. And then my beloved mother left us. I wish and I will pray that in future no one should die from this deadleast disease I wish there should be permenant cure for this lethal disease.
@LeoGarciaTech2 ай бұрын
Wow awesome info 😊
@LeoGarciaTech2 ай бұрын
Love this video ❤
@LeoGarciaTech2 ай бұрын
Wow very helpful!
@HTUforBloodCancers2 ай бұрын
Thank you so much! Feel free to go and check out our online course for more videos like this at healthtree.org/
@__Jensen_Walker__2 ай бұрын
This answered the exact question that I had! Thank you!
@HTUforBloodCancers2 ай бұрын
We are happy to help! If you have any more questions about lymphomas go and check out our website @ healthtree.org/
@MitchBalhorn-nr5et2 ай бұрын
Great stuff! I'm so much better informed after watching your videos!! :)
@HTUforBloodCancers2 ай бұрын
Great to hear! Glad you enjoyed it!
@samahlstrom35672 ай бұрын
Thank you! Very succinct explanation!
@HTUforBloodCancers2 ай бұрын
No problem! We are happy to make content for you!
@SAGYCIVIL2 ай бұрын
My father diagnosed with AML 64 age the low chemo of Amacitidine and venetoclox is giving by doctor today they stable but how many days survival ..for long term servival what is process stem cell or bone marroe
@dillydalie112 ай бұрын
I am not going to do a stem cell transplant in the FIRST PLACE.
@chrisweld29032 ай бұрын
41 yr old wife was diagnosed 5 years ago with CML ,no treatment has worked,bone marrow transplant,cant find a match. She has been in the blast phase for roughly two years now. October of 2023 was sent to hospice, no longer in hospice, however isnt doing much better.
@rebecca786122 ай бұрын
My husband just got the news he has AML today. He is 55 and has health issues. Praying for miracles and struggling to remain positive and strong
@reshavdas244725 күн бұрын
God bless him
@saraswathy82072 күн бұрын
Stay strong...
@user-hw6es6rq2y2 ай бұрын
My son is 2 years and 10 months old. He could not put his leg on the ground 4 months ago and was taken to Ledrichwe Hospital. It is up to you how successful this course will be. Because his aml status was first bonemerro 50% second 5% less now I don't know what was done yet can I know details about this
@kimdavis10912 ай бұрын
Great video, mine are both low… what are my next steps ?
@royjackson83682 ай бұрын
Fruits n protein
@VAsh-om6xgАй бұрын
Low white blood count is good ,it protects you against certain types of cancer ,mine are law as well.
@yaohan912 ай бұрын
My mum just turned AML from CML after a year. She is 68 this year. Transplant is out of the picture given her age so what doctor suggest is low intensity chemo. Im scared what can i do....
@dushi213 ай бұрын
wow
@jbk28533 ай бұрын
5+2 will be given for which patient?
@nitinsinghania0074 ай бұрын
My mother (53) diagnose AML at 3 feb 2024 and passed away at 28 feb 2024 due to slip in hospital toilet. Due to slip She had a stroke in brain and she can't survive even 3 days after she slip. I lost my mother in only less then a month which is unbelievable for me.
@HTUforBloodCancers3 ай бұрын
That is heartbreaking, I'm so sorry to hear that. We hope you and your family the best during this difficult time.
@SAGYCIVIL2 ай бұрын
Due to low platelet my father is also diagnosed in platelets are only 5000 but they can survival and the chemo is continuously
@elijahangel24734 ай бұрын
Benzene is the cause no?
@elijahangel24734 ай бұрын
Benzene can cause AML
@hawwaeve44214 ай бұрын
I was diagnosed with AML in august 2019 Underwent chemo in nov 2019 Admitted to ICU for 13 days in nov 2019 due to infection Self discharged from hospital and quit chemo Seek alternatives treatment homeopathy and physioteraphy This august mark my 5th year AML survivor Maybe i am just being lucky
@user-ly5yp4ue4d11 күн бұрын
My donor just bailed and I"'m taking it as a sign. Could you tell me more about the alternative measures you've experienced? I'm researching now and considering stopping chemo and the transplant. Thank you.
@Nopongasnadaaqui4 ай бұрын
My best friend, Helen died of that and we used to talk a lot R.I.P Helen we miss u
@SE-me2pt4 ай бұрын
God's mercy upon all, I was diagnosed Christmas weekend 2022(56 years old), was feeling sick several months prior. Was transported 125 miles to the Cleveland Clinic-My endless love and thanks to all in G111(Leukemia ward). Spent the month of January(2023) doing 7+3 chemo routine, had to return for 4 consolidation chemo stays on average of 6-7 days each Feb, March, April, and May. Fought many neutropenic fevers which required local hospitalizations and intense antibiotic treatment after each treatment. I obtained remission early (thank God) with no MRD. Although one mutation remained (dmnt3a) have been taking Onureg since June of 23 . I did not do BMT . This has been the toughest fight of my life, I am much better but things are not perfect-chronic fatigue, insomnia, nausea, and flu like symptoms on and off etc. Cannot return to full time work, the latest set back is with the State of Ohio that refuses to approve my disability claim. My everlasting thanks to Dr. Ali and Dr. Molina and many others from Cleveland Clinic I LOVE YOU ALL! And above all I thank God and the many prayers of the faithful that have sustained me. PTL always!
@HealingOil-is5cy4 ай бұрын
chemistry - chemotherapy, hypoalergenics - hymethylagents?? in my experience, aml cured maybe with injections heroin. pure. no contraindications. hahaha.
@angelisone4 ай бұрын
Companies & doctors love AML. Money into the bank. It's all about the money! They will take as much money for you & then you most likely goin to die. Stop supporting them & go out to enjoy what little time you have. My aunt had AML & always sick from all hospital visits. So my uncle signed those papers so they can not be sued. Sold everything & moved into Asian mountain without using USA's treatments & meds. She lived for 26 years
@fadam1324 ай бұрын
I was diagnosed in Nov 2017 at age 47. Failed 3+7 but then got the venetoclax combo as a last resort. It fixed me and on Feb 8 2018 had my transplant. NEVER GIVE UP HOPE !
@FierceOfficial2 ай бұрын
my father is diagnosed with AML at age 47 aswell. He will receive 7+3 chemo , and i rly hope a sustainable survival rate can be achieved
@hawwaeve44214 ай бұрын
On august 2019 at the age of 59 i was diagnose with AML. Go for chemo 24/7 for 6 days. Got infected. Intubated in ICU for 13 days. Get through but bed ridden and got myself blacken left thumb. I find out i could no longer tolerate the modern medicine. Discharge myself after signing all the documents. I turn to hemeopathy. Physiotheraphy. Eats a lot of king's salad from my garden. I also take supplement aphanizomenon flos-aquae a type of algae found in Greats lakes. Remission is always on the back of my mind
@Ourania.b5 ай бұрын
If you had an AML patient with mutations IDH2, SF3B1, ASXL1, NPM1 and a history of heart disease would you choose low intensity chemo with a menin inhibitor or high intensity chemo with a menin inhibitor?
@HTUforBloodCancers5 ай бұрын
Hi there, every AML patient is different and the disease acts differently, so this question would be best answered by your physician. You can also check out our AML specialist directory to seek a second opinion: healthtree.org/aml/community/directory
@Ourania.b5 ай бұрын
thank you @@HTUforBloodCancers
@sagarjawaress21 күн бұрын
Best go for BMT
@marcysikes5 ай бұрын
Is there a subtype TP49 of AML? I may be mistaken on the number. My nephew age 51, said it is rare. He has been given 6 months to 1 year to live. I appreciate any clarification you can give to me. I will try to verify the number. We are heart broken. I pray that he will find his way to any help that is out there!🙏🏻. Thank you!
@HTUforBloodCancers5 ай бұрын
Hi Marci, I am so sorry to hear about your nephew! I have not heard of a TP49 subtype, but perhaps you mean the mutation TP53? If so, here are some resources from our website that talk about TP53 in AML: healthtree.org/aml/search?term=tp53 . There is a good in-depth podcast episode about TP53 here: healthtree.org/aml/community/podcasts/digging-deeper-into-the-tp53-mutation-in-aml-with-rory-shallis-md-yale-new-haven-hospital. I hope this helps!
@marcysikes5 ай бұрын
@@HTUforBloodCancers Thank you! You are right about it being TP53!
@Katie750235 ай бұрын
18 month survival rate for AML with chemo treatments is just prolonging my suffering! So then --why even bother going through all the chemo treatments when they can't guarantee that I'll still be alive in 15-18 months? I might as well just live my life the best way I can until this blood cancer finishes me off in another year. 😢
@fadam1324 ай бұрын
Look at my comment above. Hope it helps.
@llisagomez57062 ай бұрын
No, fight for your life!
@Tonykayemusic2 ай бұрын
Your choice, friend! Hope you find your way.
@kevinyonan966628 күн бұрын
Because there's still hope. Whether you win or lose, your fight can help make better treatments and possibly even cures! You might also be one of the people cured, so why not take that chance?
@podapatimurali41365 ай бұрын
I was diagnosed with aml. and comleted stemcell transplant now iam all right
@mtminds11325 ай бұрын
From which hospital you received your treatment?
@arealousbenjamin7625 ай бұрын
KING 👑 JESUS CHRIST GOD DA FATHER WONDERFUL ALMIGHTY HOLY GHOS SAVES💯🙏🏾💯 HALLELUJAH THANKU KING 👑 JEEEESUS
@user-sl9uz8ut6z6 ай бұрын
CK OUT JOE TIPPENS CANCER PROTOCOL FENBENDAZOLE RIGHT AWAY FENBENDAZOLE KILLS CANCER CELLS AND JESUS LOVES YOU.
@kevanhubbard96736 ай бұрын
Maybe a Stem Cell transplant might defeat it?A friend of mine had one of those for a different cancer, Mycosis Fungoides T Cell Lymphoma at the advanced stage, but it is too early to say if it'll work?
@ronoconnor89716 ай бұрын
I was getting weekly cbc and weekly procrit injections, but for the last ten weeks my hgb has stayed at >11+. I was told wait a month for another cbc. Have had MDS for many years now.
@Katie750236 ай бұрын
Why in the world would someone with AML or some other type of leukemia want to prolong their suffering?! Especially after 2 failed rounds of IV chemo treatments!😷🙄🩸
@danielaborzi32683 ай бұрын
My best friend is suffering soooo much from failed chemotherapy for acute leukaemia. He is 64 years old and put off to palliative care where you wait to die slowly. I do not wish it on anyone 😢
Пікірлер
My wife was diagnosed in October, and she has three rounds of chemotherapy. She has Flt3 mutation aml, the hospitals told us they can't treat her anymore to chemotherapy sessions, we have been together for 14 years, and we dont have any more options.
My mother is suffering from cyclic neotrophenia is it curable
So basically Kyedae is faking it.
My father had exact 20 percent blasts so diagnosed as AML. After 2 yrs he has relapse from azacitadine and venetoclax. He is 61 and now shifted to Citarabin and Veneto. Planning for BMT. Fingures crossed.😢
More Research is Essential for Treatment invention.
My sister have AML with monosomy in chromosome 7 and trisomy at chromosome 8, can you please tell me how much possibility of curable by chemotherapy?
My girlfriend was diagnosed with aml last year in October. She is going through it right now with the radiation. She had three to 4 chemotherapies before the chemo. I just want her to be better, that's all😢😢😢. It hurts me to see her in this state.
Hey my blast count is 9 percnt. What should i do now?
Did six rounds of R-Pola-CHP, in remission so far as I know. 64 years old.
Hello sir my sis in law is suffering from this dreadful disease chemotherapy has started two days back this disease can be cured or not sir plsss reply sir😥
My son is diagnosed with AML 3 mths before, is under treatment
I lost my lovely daughter at her age 16 due to this . The doctor said that she was flt3 positive and need to undergo stemcell transplant . She underwent but had lot of complications thereafter. I now regret having gone for transplantation as she was in complete remission post induction
Are blast cell normal ,if normal . How many count of blast cell are dangerous ? Please answer the question ??
I am Thallaseemia and in cbc machine my report detect (blast?) in wbc message WBC were 2000 normal range is 4000 i am very scared ? Please REPLY if possible
Terrific explanation
I lost my mother last year on 15th November 2023. This disease is not curable we tried our best but she did not survive long. I lost my whole world. When it relapsed it is more deadly. She was caught by infestion and till her last breath her infection was not cured. And then my beloved mother left us. I wish and I will pray that in future no one should die from this deadleast disease I wish there should be permenant cure for this lethal disease.
Wow awesome info 😊
Love this video ❤
Wow very helpful!
Thank you so much! Feel free to go and check out our online course for more videos like this at healthtree.org/
This answered the exact question that I had! Thank you!
We are happy to help! If you have any more questions about lymphomas go and check out our website @ healthtree.org/
Great stuff! I'm so much better informed after watching your videos!! :)
Great to hear! Glad you enjoyed it!
Thank you! Very succinct explanation!
No problem! We are happy to make content for you!
My father diagnosed with AML 64 age the low chemo of Amacitidine and venetoclox is giving by doctor today they stable but how many days survival ..for long term servival what is process stem cell or bone marroe
I am not going to do a stem cell transplant in the FIRST PLACE.
41 yr old wife was diagnosed 5 years ago with CML ,no treatment has worked,bone marrow transplant,cant find a match. She has been in the blast phase for roughly two years now. October of 2023 was sent to hospice, no longer in hospice, however isnt doing much better.
My husband just got the news he has AML today. He is 55 and has health issues. Praying for miracles and struggling to remain positive and strong
God bless him
Stay strong...
My son is 2 years and 10 months old. He could not put his leg on the ground 4 months ago and was taken to Ledrichwe Hospital. It is up to you how successful this course will be. Because his aml status was first bonemerro 50% second 5% less now I don't know what was done yet can I know details about this
Great video, mine are both low… what are my next steps ?
Fruits n protein
Low white blood count is good ,it protects you against certain types of cancer ,mine are law as well.
My mum just turned AML from CML after a year. She is 68 this year. Transplant is out of the picture given her age so what doctor suggest is low intensity chemo. Im scared what can i do....
wow
5+2 will be given for which patient?
My mother (53) diagnose AML at 3 feb 2024 and passed away at 28 feb 2024 due to slip in hospital toilet. Due to slip She had a stroke in brain and she can't survive even 3 days after she slip. I lost my mother in only less then a month which is unbelievable for me.
That is heartbreaking, I'm so sorry to hear that. We hope you and your family the best during this difficult time.
Due to low platelet my father is also diagnosed in platelets are only 5000 but they can survival and the chemo is continuously
Benzene is the cause no?
Benzene can cause AML
I was diagnosed with AML in august 2019 Underwent chemo in nov 2019 Admitted to ICU for 13 days in nov 2019 due to infection Self discharged from hospital and quit chemo Seek alternatives treatment homeopathy and physioteraphy This august mark my 5th year AML survivor Maybe i am just being lucky
My donor just bailed and I"'m taking it as a sign. Could you tell me more about the alternative measures you've experienced? I'm researching now and considering stopping chemo and the transplant. Thank you.
My best friend, Helen died of that and we used to talk a lot R.I.P Helen we miss u
God's mercy upon all, I was diagnosed Christmas weekend 2022(56 years old), was feeling sick several months prior. Was transported 125 miles to the Cleveland Clinic-My endless love and thanks to all in G111(Leukemia ward). Spent the month of January(2023) doing 7+3 chemo routine, had to return for 4 consolidation chemo stays on average of 6-7 days each Feb, March, April, and May. Fought many neutropenic fevers which required local hospitalizations and intense antibiotic treatment after each treatment. I obtained remission early (thank God) with no MRD. Although one mutation remained (dmnt3a) have been taking Onureg since June of 23 . I did not do BMT . This has been the toughest fight of my life, I am much better but things are not perfect-chronic fatigue, insomnia, nausea, and flu like symptoms on and off etc. Cannot return to full time work, the latest set back is with the State of Ohio that refuses to approve my disability claim. My everlasting thanks to Dr. Ali and Dr. Molina and many others from Cleveland Clinic I LOVE YOU ALL! And above all I thank God and the many prayers of the faithful that have sustained me. PTL always!
chemistry - chemotherapy, hypoalergenics - hymethylagents?? in my experience, aml cured maybe with injections heroin. pure. no contraindications. hahaha.
Companies & doctors love AML. Money into the bank. It's all about the money! They will take as much money for you & then you most likely goin to die. Stop supporting them & go out to enjoy what little time you have. My aunt had AML & always sick from all hospital visits. So my uncle signed those papers so they can not be sued. Sold everything & moved into Asian mountain without using USA's treatments & meds. She lived for 26 years
I was diagnosed in Nov 2017 at age 47. Failed 3+7 but then got the venetoclax combo as a last resort. It fixed me and on Feb 8 2018 had my transplant. NEVER GIVE UP HOPE !
my father is diagnosed with AML at age 47 aswell. He will receive 7+3 chemo , and i rly hope a sustainable survival rate can be achieved
On august 2019 at the age of 59 i was diagnose with AML. Go for chemo 24/7 for 6 days. Got infected. Intubated in ICU for 13 days. Get through but bed ridden and got myself blacken left thumb. I find out i could no longer tolerate the modern medicine. Discharge myself after signing all the documents. I turn to hemeopathy. Physiotheraphy. Eats a lot of king's salad from my garden. I also take supplement aphanizomenon flos-aquae a type of algae found in Greats lakes. Remission is always on the back of my mind
If you had an AML patient with mutations IDH2, SF3B1, ASXL1, NPM1 and a history of heart disease would you choose low intensity chemo with a menin inhibitor or high intensity chemo with a menin inhibitor?
Hi there, every AML patient is different and the disease acts differently, so this question would be best answered by your physician. You can also check out our AML specialist directory to seek a second opinion: healthtree.org/aml/community/directory
thank you @@HTUforBloodCancers
Best go for BMT
Is there a subtype TP49 of AML? I may be mistaken on the number. My nephew age 51, said it is rare. He has been given 6 months to 1 year to live. I appreciate any clarification you can give to me. I will try to verify the number. We are heart broken. I pray that he will find his way to any help that is out there!🙏🏻. Thank you!
Hi Marci, I am so sorry to hear about your nephew! I have not heard of a TP49 subtype, but perhaps you mean the mutation TP53? If so, here are some resources from our website that talk about TP53 in AML: healthtree.org/aml/search?term=tp53 . There is a good in-depth podcast episode about TP53 here: healthtree.org/aml/community/podcasts/digging-deeper-into-the-tp53-mutation-in-aml-with-rory-shallis-md-yale-new-haven-hospital. I hope this helps!
@@HTUforBloodCancers Thank you! You are right about it being TP53!
18 month survival rate for AML with chemo treatments is just prolonging my suffering! So then --why even bother going through all the chemo treatments when they can't guarantee that I'll still be alive in 15-18 months? I might as well just live my life the best way I can until this blood cancer finishes me off in another year. 😢
Look at my comment above. Hope it helps.
No, fight for your life!
Your choice, friend! Hope you find your way.
Because there's still hope. Whether you win or lose, your fight can help make better treatments and possibly even cures! You might also be one of the people cured, so why not take that chance?
I was diagnosed with aml. and comleted stemcell transplant now iam all right
From which hospital you received your treatment?
KING 👑 JESUS CHRIST GOD DA FATHER WONDERFUL ALMIGHTY HOLY GHOS SAVES💯🙏🏾💯 HALLELUJAH THANKU KING 👑 JEEEESUS
CK OUT JOE TIPPENS CANCER PROTOCOL FENBENDAZOLE RIGHT AWAY FENBENDAZOLE KILLS CANCER CELLS AND JESUS LOVES YOU.
Maybe a Stem Cell transplant might defeat it?A friend of mine had one of those for a different cancer, Mycosis Fungoides T Cell Lymphoma at the advanced stage, but it is too early to say if it'll work?
I was getting weekly cbc and weekly procrit injections, but for the last ten weeks my hgb has stayed at >11+. I was told wait a month for another cbc. Have had MDS for many years now.
Why in the world would someone with AML or some other type of leukemia want to prolong their suffering?! Especially after 2 failed rounds of IV chemo treatments!😷🙄🩸
My best friend is suffering soooo much from failed chemotherapy for acute leukaemia. He is 64 years old and put off to palliative care where you wait to die slowly. I do not wish it on anyone 😢
Who noticed that his name had the word rizz