This video and all that you said has really made me feel a whole lot better and better equipped for meeting ppl now. Ty so much for making and posting this. I super appreciate it ❤
@alderoth012 ай бұрын
I've been single for 4.5 years and wouldn't have it any other way.
@Jilref5 ай бұрын
I was diagnosed with multiple sclerosis 4 years ago and since then, I have serious abandonment issues because my ex decided to end our 3,5-year relationship a few months later, by saying things like "I don't like to have holidays in Greece all the time like you do", etc. The reason was obvious, just he didn't want to admit that he hated to be with a "sick" person. Since then I am just struggling with how and when I should announce my chronic illness, which was actually never really an issue until now, except that one time that I was diagnosed with it. Great video, very very helpful and very brave of you to talk about something so sensitive, because it definitely gives us more perspectives. You are a cool badass.
@Lucius16446 ай бұрын
I have CMT1A. I wear braces on both legs from foot to thigh. I also use a cane. So women see that and think I need a care taker and look the other way. I totally understand! It's horrible.
@sarahjaye41178 ай бұрын
Thank you! Pmdd and many others just sound dumb 😢
@eftihiakotopoulou1659 ай бұрын
thank you for this video! ❤
@ajsavard8286 Жыл бұрын
Hi Paula. I have questions. I am possibly facing a sigmoidectomy. You said that they removed your butt hole. What's there now? Is it sewn shut? I'm terrified of needing this procedure. 😱 I have already had a sigmoidoscopy and a colonoscopy. I meet with my surgeon next week to discuss the results and my options. Best of luck with your journey. ❤
@omgitsbees Жыл бұрын
Ooh hey comments are finally open! Okay so, do you keep a pain journal? I know that is a bit off topic, but i've started doing that for my flares and chronic illnesses. But lately just existing is a pain, and I don't want to exist anymore lmao. But also who would be here to shit post on Paula's tiktok? WHO???? So I would continue to work on this. Glad with my partner though, that my chronic illness is not a topic of conversation unless I want to talk about it. We have lots of healthy and good boundaries in place, but worked on together how to support one another without having to talk about specifics, because we both have chronic illnesses, we know what they are, and we know how to take care of one another.
@ghadabdr136 Жыл бұрын
Even though I have a different disease (epilepsy ) but I totally can relate to your feelings and thoughts through the multiple experience you had , just want to let you know hope one day I would be as much as brave as you are , The fact that you speak about this whole hard experience and you didn’t give up try to find your person and I’m sure that God would let you meet the proper person in the right time ♥️♥️ Also I’m agreeing with the fact that don’t tell the person about what happened to you before he get to know you✅
@ghadabdr136 Жыл бұрын
I also have the fear of rejecting just like you because of my disease and I thought there’s no one in the world could relate to this feeling but you just had all what I need to hear in this video thanks from all the bottom of my heart
@mandiemoolove Жыл бұрын
Hey, I just found your channel. I can relate to you so much, I struggle with chronic pain/illness too, and I haven't dated in years because I'm afraid to. You give great advice :) It's nice to find someone who understands.
@omgitsbees Жыл бұрын
Your feelings with chronic illnesses and dating are totally valid. I went through many of the same feelings as well with my crohns disease. On top of that I didn't have a good support network. My parents didn't care, none of my friends at the time understood, and people in my life made me feel like a burden, and even told me I was. Having a lot of issues with my body due to chronic illness also did not help. Just zero self esteem, and being very insecure. Today things are a lot better, I have a wonderful partner, we are married, and things are good. I still have bad days though with feeling like a burden. My crohns disease makes me sick so often, and I never know day to day how I am going to feel, if my body is going to fail on me. Its tough when another human being relies on me, and I rely on them.
@omgitsbees Жыл бұрын
Listening to all of this podcast, and I am so happy for you! It sounds like you have met a great person who is super awesome. I'm completely in your corner, Paula, cheering you on. I know i'm just a random person on the internet that doesn't matter, and I don't want to get all parasocial, but just feeling like you're an awesome friend and we are catching up.
@omgitsbees Жыл бұрын
excited about this weeks podcast! Thank you Paula. Youre the best.
@paulasojoro Жыл бұрын
I’m so excited for you to listen ❤️❤️
@omgitsbees Жыл бұрын
@@paulasojoro if it is okay, I want to give my thoughts after watching. 💖
@izzymoncada1719 Жыл бұрын
I feel like i'm sitting with my best friend just chatting right now❤ love you and your positivity angel
@paulasojoro Жыл бұрын
ILY my queen 🥹💖
@omgitsbees Жыл бұрын
Paula! I am so excited you have a KZread channel now! Been following you for over a month now on TikTok and your content is amazing! As a fellow crohns disease haver I completely understand and share in the struggles you have been going through. It has been so hard and disheartening. Your positivity though has helped, but I will be real; I have been so bitter and angry for what my body has taken away from me, how badly it has failed me, and still does to this day. I've joked about this before though on your TikTok, but I owe you a ton of money for the free therapy you give. You've helped in ways that multiple professional therapists could not because none of them knew anything about chronic illness or how to help someone with chronic illness, and finding a therapist who specializes in that is damn near impossible. They are inaccessible for any number of reasons that are too much to list out here. Thank you, Paula! You're the best and I am grateful for you. I feel seen and heard finally after years of feeling ignored and invisible to the world.
@GutsyKags Жыл бұрын
just started the video but girl I’ve just gotta say, I love you. I can’t even imagine how this journey would’ve been without you. When I was diagnosed and followed you 18 months ago, I had no idea that i’d not only look to you as a teen with IBD, but later a teen mourning their old sense, a teen struggling with being in and out of the hospital, and later getting an ileostomy. but I know realize that I was meant to follow you, because I needed a person like you to relate to. because of your vulnerability and content, I’ve felt heard when nobody in my life understood. I’ve been able to overcome things I thought I never could. And I’m able to love myself, even in a body that isn’t the one I thought I’d have. Ofc, it’s not easy. in fact it’s hard. but it’s because of people like you that we are reminded to feel our lows so that we can realize our highs. you have truly been a saving grace and I could just cry thinking about how much of a light you’ve been to me. thank you so much. your content has and continues to save my life. it’s truly like your content has been a part of my care team, right beside my doctors and psychologist. I hope you know that you’ve truly made a difference. you are such a light. I hope you always give yourself credit. thank you so much for your vulnerability and just everything. 🫶🏾
@paulasojoro Жыл бұрын
my queen 🥹 I am absolutely sobbing right now reading ur beautiful comment. You have no idea how happy it makes me to know that I could have been a friend to you during all this shittiness in some degree. It breaks my heart to hear that you’ve experienced this too… no one should experience this it’s not fair. But your attitude speaks volumes about how brightly u try to and do shine. I know you give me credit for helping u get through this but in reality, you did it all on your own. I’m so proud of u for everything always. Sending you all my love and so many comforting hugs xx
Пікірлер
This video and all that you said has really made me feel a whole lot better and better equipped for meeting ppl now. Ty so much for making and posting this. I super appreciate it ❤
I've been single for 4.5 years and wouldn't have it any other way.
I was diagnosed with multiple sclerosis 4 years ago and since then, I have serious abandonment issues because my ex decided to end our 3,5-year relationship a few months later, by saying things like "I don't like to have holidays in Greece all the time like you do", etc. The reason was obvious, just he didn't want to admit that he hated to be with a "sick" person. Since then I am just struggling with how and when I should announce my chronic illness, which was actually never really an issue until now, except that one time that I was diagnosed with it. Great video, very very helpful and very brave of you to talk about something so sensitive, because it definitely gives us more perspectives. You are a cool badass.
I have CMT1A. I wear braces on both legs from foot to thigh. I also use a cane. So women see that and think I need a care taker and look the other way. I totally understand! It's horrible.
Thank you! Pmdd and many others just sound dumb 😢
thank you for this video! ❤
Hi Paula. I have questions. I am possibly facing a sigmoidectomy. You said that they removed your butt hole. What's there now? Is it sewn shut? I'm terrified of needing this procedure. 😱 I have already had a sigmoidoscopy and a colonoscopy. I meet with my surgeon next week to discuss the results and my options. Best of luck with your journey. ❤
Ooh hey comments are finally open! Okay so, do you keep a pain journal? I know that is a bit off topic, but i've started doing that for my flares and chronic illnesses. But lately just existing is a pain, and I don't want to exist anymore lmao. But also who would be here to shit post on Paula's tiktok? WHO???? So I would continue to work on this. Glad with my partner though, that my chronic illness is not a topic of conversation unless I want to talk about it. We have lots of healthy and good boundaries in place, but worked on together how to support one another without having to talk about specifics, because we both have chronic illnesses, we know what they are, and we know how to take care of one another.
Even though I have a different disease (epilepsy ) but I totally can relate to your feelings and thoughts through the multiple experience you had , just want to let you know hope one day I would be as much as brave as you are , The fact that you speak about this whole hard experience and you didn’t give up try to find your person and I’m sure that God would let you meet the proper person in the right time ♥️♥️ Also I’m agreeing with the fact that don’t tell the person about what happened to you before he get to know you✅
I also have the fear of rejecting just like you because of my disease and I thought there’s no one in the world could relate to this feeling but you just had all what I need to hear in this video thanks from all the bottom of my heart
Hey, I just found your channel. I can relate to you so much, I struggle with chronic pain/illness too, and I haven't dated in years because I'm afraid to. You give great advice :) It's nice to find someone who understands.
Your feelings with chronic illnesses and dating are totally valid. I went through many of the same feelings as well with my crohns disease. On top of that I didn't have a good support network. My parents didn't care, none of my friends at the time understood, and people in my life made me feel like a burden, and even told me I was. Having a lot of issues with my body due to chronic illness also did not help. Just zero self esteem, and being very insecure. Today things are a lot better, I have a wonderful partner, we are married, and things are good. I still have bad days though with feeling like a burden. My crohns disease makes me sick so often, and I never know day to day how I am going to feel, if my body is going to fail on me. Its tough when another human being relies on me, and I rely on them.
Listening to all of this podcast, and I am so happy for you! It sounds like you have met a great person who is super awesome. I'm completely in your corner, Paula, cheering you on. I know i'm just a random person on the internet that doesn't matter, and I don't want to get all parasocial, but just feeling like you're an awesome friend and we are catching up.
excited about this weeks podcast! Thank you Paula. Youre the best.
I’m so excited for you to listen ❤️❤️
@@paulasojoro if it is okay, I want to give my thoughts after watching. 💖
I feel like i'm sitting with my best friend just chatting right now❤ love you and your positivity angel
ILY my queen 🥹💖
Paula! I am so excited you have a KZread channel now! Been following you for over a month now on TikTok and your content is amazing! As a fellow crohns disease haver I completely understand and share in the struggles you have been going through. It has been so hard and disheartening. Your positivity though has helped, but I will be real; I have been so bitter and angry for what my body has taken away from me, how badly it has failed me, and still does to this day. I've joked about this before though on your TikTok, but I owe you a ton of money for the free therapy you give. You've helped in ways that multiple professional therapists could not because none of them knew anything about chronic illness or how to help someone with chronic illness, and finding a therapist who specializes in that is damn near impossible. They are inaccessible for any number of reasons that are too much to list out here. Thank you, Paula! You're the best and I am grateful for you. I feel seen and heard finally after years of feeling ignored and invisible to the world.
just started the video but girl I’ve just gotta say, I love you. I can’t even imagine how this journey would’ve been without you. When I was diagnosed and followed you 18 months ago, I had no idea that i’d not only look to you as a teen with IBD, but later a teen mourning their old sense, a teen struggling with being in and out of the hospital, and later getting an ileostomy. but I know realize that I was meant to follow you, because I needed a person like you to relate to. because of your vulnerability and content, I’ve felt heard when nobody in my life understood. I’ve been able to overcome things I thought I never could. And I’m able to love myself, even in a body that isn’t the one I thought I’d have. Ofc, it’s not easy. in fact it’s hard. but it’s because of people like you that we are reminded to feel our lows so that we can realize our highs. you have truly been a saving grace and I could just cry thinking about how much of a light you’ve been to me. thank you so much. your content has and continues to save my life. it’s truly like your content has been a part of my care team, right beside my doctors and psychologist. I hope you know that you’ve truly made a difference. you are such a light. I hope you always give yourself credit. thank you so much for your vulnerability and just everything. 🫶🏾
my queen 🥹 I am absolutely sobbing right now reading ur beautiful comment. You have no idea how happy it makes me to know that I could have been a friend to you during all this shittiness in some degree. It breaks my heart to hear that you’ve experienced this too… no one should experience this it’s not fair. But your attitude speaks volumes about how brightly u try to and do shine. I know you give me credit for helping u get through this but in reality, you did it all on your own. I’m so proud of u for everything always. Sending you all my love and so many comforting hugs xx
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Ayy you finally brought it to KZread