I mostly share lifestyle videos, with a sprinkle of spirituality. Creating a space where you can escape reality and laugh with me.
I’m so grateful for all of you subscribing to my channel, and joining me on this crazy KZread journey. You all add purpose to my passion.
How it all started…
I first wanted to start my channel to share my diagnoses journey of my chronic illness, in hope it will support and help those experiencing a similar path. I’ve met so many amazing and strong people, and some of those I can now call friends.
Follow me on Instagram and TikTok - @charleywendy
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Thanks for your descriptive explanation. I have an appointment coming up and I need to be prepared for the extremely cautious view the Dr’s can take even without the proper tests. You could work in the field helping people. You know what it’s like.
Hello I have recently started medication for my autoimmune disease after months. I was wondering when the normal followups are after the initial rheumatologist appointments. I have been given a follow up with a nurse in 12 weeks is that normal? Just trying to figure out the NHS system
12:00 can you please spell the jasper you’re saying ? 💜😊
Hello lovely! It’s hyacinth Jasper, like the flower 🪻💜 beautiful calming energy 🥰
@@charleywendy thank you!
The first black top was stunning! Also loved the long maxi denim skirt! 🤍
Loved this girl! The matcha looked 🤌 next entry to the matcha diaries should be an iced strawberry matcha!!! 🍓 I'd love to know how to make one of those!
Love ur happy breakfast dance ... i need that 4 breakfast 2 ❤
Hi. Thank you for the detailed information. I have been taking Benepali for 8 months and during this time my weight has increased by 8 kg. Has your weight changed during the time you have been using it? Thank you.
The pyrite and aquamarine 🤯 are you kidding me! So stunning 😍
Tell me about it gurrrlll!!!!
They’re all so beautiful!❤
I have the same things and I take the medication , I’m in Germany
Ive only ever injected in mt stomach as i have very minimal muscle in my legs. I have inflammatory arthritis. I was always told to stretch skin. Does it hurt less to pinch? I tried ice, butbitbmade no difference. Thanx in advance
I was told not to stretch or pinch the skin. I should also listen for the first click which is the medicine going in and the 2nd click as the needle retracts. There is no pain.
You are lucky yours injections are painless ☺️
Why is everyone told different things, I was told to only stretch the skin. This lady is pinching. And you don't do either. So confused. Which is best?
Thank you for making this video. Love the content, and your review abt it. And that lip gloss looks amazing ❤️❤️
Thank you so much! ☺️
Ankylosing Spondylitis is different în women!! True spondylitis= spondy= verthebra and itis= inflamation....but at women very rare is spine affected!! Is different at women!!! Only at young men is spine fusing!!! I have 60 years experience as a male with fused spine....în women hormonal System and immune System is different very rare 1% is with spine affected fusion!!
This is so cute. I would be there every day. The cats are soooo adorable 🥹🥹
Oh imagine, happiness level would be always at 100%! ☺️
The rheum sounds terrible. Some people have spondylitis from sero-negative Sjogren’s. Please don’t give up. I have your symptoms with Sjogren’s spondylitis and Plaquenil works really well for the pain.
You are very well spoken and well informed. Looking at this from an objective perspective - I agree with you. I don’t agree with a lot of patient videos where people seem like they’re exaggerating unrelated symptoms. Your symptoms sound spot on for some type of spondylitis - which I’m very familiar with. It seems like the rheum didn’t listen to your history.
❤❤❤❤aww my darling, i live with chronic pain, spinal nerve damage, and spondylitis, im older 62yrs with 2 daughters and grand children, just want to say your young think positiv, there is lots of meds now, god bless you jayne ❤❤ walton, of bristol, love to you❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤
You are such a lovely young lady (inside and out) and I’m so very sorry you have this horrible disease. I happened upon your channel and have found it both immensely entertaining, because of you and your lovely personality, and interesting, because we share Spondyloarthritis. I’m an old lady now (73) and all my life I have suffered from Ehlers-Danlos Syndrome (Type 111 - Hypermobile), Dysautonomia (or PoTS - Postural Orthostatic Tachycardia Syndrome) and Sjogren’s Syndrome which, now has yet another autoimmune disease joining in - Yes, you guessed it - Axial Spondyloarthritis, plus gut and bowel issues! It’s been diagnosed by my Rheumatologist and I’m presently awaiting an appointment for an MRI, with report, and Biotic medication prescription thereafter. It was very interesting to see and listen to all you had been through and prescribed. Like you, the first meds didn’t suit, and I feel OK about the injections as, in the past, I had a trial of new migraine medication, which came in an almost identical injection ‘pen’. I’m presently bed-ridden, because of all the awful symptoms and pain, so I’m hoping and praying the medication helps and affords me with some quality of life again, before I pop my clogs, as I have none at the moment. I just wanted to say thank you to you for all your videos and your kindness in sharing your experiences with us - and also for being so honest, entertaining and ‘real’ about it all. Oh, and you have the most handsome, beautiful cat! Give him(?) a gentle ear-rub from me. Bless you, sweetheart! Hug enclosed 🫂🙋♀️💜Stay as well as you possibly can and have a wonderful cercus life. Christine.
I was diagnosed with Ehlers Danlos Syndrome in 2014 after constant shoulder dislocations. Top half of my body is hypermobile. I’ve had inflammation in my Sacroilliac Joint on the right side of my hip since September last year. This month i could barely walk. Bottom half of my body is stiff and painful, especially on rest. My GP has been amazing, she spent alot of time in Rheumatology during her training so did the HLA-B27 test (i didn’t know this at the time). I’ve also had slight inflammation during previous blood tests for over a year. It came back positive. I then went to have an X-Ray and my hip joint has Osteoarthritis, thickening and subchondral sclerosis. My GP is 99% sure i have AS now and am waiting for Rheumatology appointment. I’m a Nurse…36 years old. I hope they sort you out and GET A SECOND OPINION!!
I buy most of my crystals from the crystal company too, I seen Alex post the tooth picture of FB and my boyfriend said “I want that!” 😂 So fingers crossed we manage to buy one from their site when they go live. Great haul 😊
Hey can u tell me what bowel issues u have as I’ve been having bowel issues and am booked in for a colonoscopy on the 1st march? Thank you
Love your hair 🤍
Lovecyour hair like this
Aww thank you! I am enjoying short hair so much 🥰
I walked into my appointment limping, and the rheumatologist said that's strange it's not normal symptoms of arthritis. I got mri and it was AS. Now my rheumatologist refuses to listen to any of my concerns. Honestly sucks
I am so sorry you experienced this 😔 can you ask to see someone else, get a second opinion? It’s a hard process, but keep pushing for answers 🩷
Thanks for a great information video. I believe this is the score you mentioned: Bath Ankylosing Spondylitis Disease Activity Index (BASDAI) disease activity questionnaire
Your welcome! That sounds like it, thank you ☺️
Thanks for your little video. I found it helpful top tip music playing. 😊
You’re so welcome! I am so glad you found it useful 🩷
I'm buying my rare beauty body location soon. Gonna be getting the aromatherapy pen and the hand cream!!
You will enjoy them all!! 😊
The aromatherapy looks interesting where they expensive??
I think they were priced okay. But when I was editing I realised the mist was about £30! Probably won’t be buying that one again! 🙈
I'm actually fairly impressed with several of these specimens, especially the chlorite phantom cluster. So many of these advent calendars you see are full of tumbled junk and bruised and chipped 5th grade points. I would have personally liked to have seen a Herkimer, but overall it seems like a quality box with some pleasantly unusual offerings. A warning though. Those light colored citrines and smoky clusters should be kept out of direct light, especially sunlight. That type of quartz is prone to color instability and will bleach out to clear (or very pale pee-yellow) over time.
Honestly, these crystal advent calendars are the best I have seen. Very useful tips about the citrine, I always forget this! Thank you.
Fluorite is a personal favourite because of all the different colours it can come in
They are so beautiful aren’t they!
It's so funny you were like 'why do I want to eat this" as I was literally thinking wow I want to bite that so bad lol 😆 the forbidden chip!
You know the feeling 🤪
Any side effects mam?
Not much at all really, mostly just fatigue.
Wow that’s a really beautiful advent calendar with quality pieces. One of the nicest I’ve seen! Thanks for sharing your unboxing! ✨🙏💚
Aren’t they just! Thank you, I’m glad you enjoyed! ☺️
Thank you for sharing this unboxing!! Didn't know such an advent box existed! So beautiful and unique❤
You’re very welcome 🩷 I’m so happy you enjoyed!
rose and lavender have always been my favorite scents. So relaxing and feminine.
How Often do you take biologics
I take them once a week
I'm now subscriber #600 for ya.
Thank you! I appreciate you! ☺️
What a beautiful advent calendar!
Isn’t it just! ☺️
After watching your box opening last year i bought the refill calendar & loved all the crystals i got. The Crystal Company has been added to one of my favourite sellers & i have bought more since then 😊 Thank you for introducing them to me x
Oh yay, you’re so welcome! I’m so glad you love them too 🩷 they are honestly my fave and only place I will buy crystals online. Makes me so happy you love all your crystals from your calendar ☺️ x
I got one this year. I’ve opened every day except Xmas eve and day. I hope the bowl and bracelet are in mine too but my other crystals were different than yours.
I’m glad you managed to grab one! ☺️I have my fingers crossed you have the bowl and bracelet too! You’ll have to let me know 🩷
@@charleywendyI couldn’t wait til Xmas to open. Lol. I opened it yesterday. I had a melt, rose quartz bracelet and a picture Jasper tower. No bowl. 😔 I hope next year I can do a refill of the luxury option.
I like your little helper.
He is the best helper! 🥰
Who is ur fur baby ❤
His name is Barley 🐈🥰
such a fun video! thanks! also the value is amazing here (of crystals)
❤❤
Ooh nice❤❤❤
Your case had like a 99% plausibility given your sister’s diagnosis and everything you experienced symptom wise. You are likely slightly hyper mobile as well, most dancers and gymnasts are (myself included). I had gone through a ton of doctors, through the entire medical system, looked at numerous causes which I had to guide. The second last disease I explored was EDS (Elhers Danlos Syndrome) which is a cartilage and joint disorder that has a lot of similarities with AS. I didn’t for the bill but the doc did mention that I was still hyper mobile (flexible). So you can have better range of motion and still have AS!
I have Ehlers Danlos Syndrome AND have just been diagnosed with Ankylosing Spondylitis. Top half of my body is hypermobile, bottom half is stiff and painful.
You have such a lovely presence ❤! Thanks for sharing. Took me 15 years to get a diagnosis. How did you find friendships and trying to explain this to people who don’t see the invisible disease?
Thank you so much ☺️ I think the best way is to be unapologetic with how you are feeling, be open and honest. I always say if I am low on energy, physically or mentally. When I talk about my AS to my friends/family I still try and be positive about it though. I don't want them to feel sorry for me, or treat me differently. So I kinda talk about it as casually as I can, sometimes in a joking way. I feel that also makes them feel more comfortable talking to me about it, as they can see they won't upset me by asking questions. I hope that helps 🤗
Loved watching this , inspiring . There is hope
There is hope, you've got this ☺️
This blush is absolutely gorgeous! I absolutely love a bright blush like this ❤
Isn't it just! I'm so glad I tried it 🥺