HMS Celiac Research and Education Program

HMS Celiac Research and Education Program

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  • @KurtDuerksen
    @KurtDuerksen2 ай бұрын

    Regarding the question around 1:07:36 about celiac disease and seizures, I spent 17 years having about 10 to 12 "seizures" per day (petit seizures, or I called them brain farts). The last 2 years of that period I also had severe heart burn, leading up to a colonoscopy and endoscopy with biopsy that determined I had celiac disease. Once I got the celiac disease diet all figured out, my seizures and heart burn went away completely. I can still get a petit seizure maybe 20 or 30 times in a year due to gluten cross contamination, but that's effectively zero compared to 10 or more per day. Regarding the discussion around that time in the video about getting mega-dosed with gluten and the result that might have, that did happen to me a few years ago when I put quinoa into my meal prep that was not labelled gluten free. I had a grand mal seizure and went to the ER in an ambulance. I recommend *never* accidentally getting mega-dosed with gluten based on that experience--don't even take a chance eating out somewhere that claims a gluten-free option.

  • @renataribeiro.personal
    @renataribeiro.personal4 ай бұрын

    When will the next meeting be?

  • @renataribeiro.personal
    @renataribeiro.personal4 ай бұрын

    Instagram?

  • @user-qe5zj1sr8h
    @user-qe5zj1sr8h6 ай бұрын

    Thank you so much!

  • @il3mendo
    @il3mendo6 ай бұрын

    I developed subclinical hypothyroidism. I have a neurodegenerative disease which affects the cerebellum. Does Gad65 antibodies needs to get activated through gliadin?

  • @muratsubas7397
    @muratsubas73976 ай бұрын

    I hope these meds help folks like us with celiac disease get rid of it and lead a easier life

  • @michelewilson9383
    @michelewilson93836 ай бұрын

    I had the blisters and bad asthma, a blood test for coeliac came back negative but i went totally grain free and after 2 months my skin began to heal and also to my surprise the asthma stopped.

  • @joshuastavos4376
    @joshuastavos43767 ай бұрын

    What is the break down pre and post Covid 19 mRNA therapy for the increase in celiac disease? I ask because I see that the increase in CD was noted for the combined years 2020 and 2021 instead of separated into the two years. Also, the presence of only the spike protein in the blood suggests that it isn’t due to a live virus.

  • @joshuastavos4376
    @joshuastavos43767 ай бұрын

    Can the BioNTech and Moderna injections trigger an immune reaction and increased antibodies against trans glutaminase?

  • @angirgie729
    @angirgie7297 ай бұрын

    Can yoy get them on your feet, shins and knees

  • @blkscreen15
    @blkscreen157 ай бұрын

    THANK YOU

  • @il3mendo
    @il3mendo8 ай бұрын

    Can covid trigger an immune reaction and increase transglutaminase ?

  • @Hollyucinogen
    @Hollyucinogen8 ай бұрын

    I don't have Celiac Disease, just a similar autoimmune disorder (Hashimoto's Thyroiditis) that's in the same category (gluten sensitivity); but theoretically, if you already have a predisposition, you can develop it - but it can't CAUSE it. If you put the body under enough stress, it can trigger almost any autoimmune disorder; i.e. rheumatoid arthritis, multiple sclerosis, lupus, etc.

  • @il3mendo
    @il3mendo8 ай бұрын

    @@Hollyucinogen First of all thanks for your answer. I never been tested positive with COVID but i had and increase on ttg levels that i have never had previously but i was tasted negative for COVID bullshit.

  • @il3mendo
    @il3mendo8 ай бұрын

    Is dental hypoplasia a sign of loss bone density ? I never had a fracture, I am tallest in my family. I have been diagnosed with celiac disease and gluten ataxia 6 years ago, at the age of 33. I was diangosed also with subclinical hypothyroidism, chronic anemia: low folate and iron ( low iron saturation 12%). I just had my bones checked and my mineral density is now perfect: within 6 years from Marsh 3b to 3a and now almost regression. Is it normal that the syntoms if celiac disease changed during its time, such more prevelent on the gastrountestinal tract to neurological aspect ? I have the hla dq2 gene but I have never been tested for Hetero or homozygous. I had severe vitamin d deficiency ( 7,45), now 30 ( i supplement myself with high dosage). I hopr that someone can answer me back.

  • @martyrosenbaum7708
    @martyrosenbaum77089 ай бұрын

    Promo SM 😱

  • @tomthx5804
    @tomthx58049 ай бұрын

    Boston Children's Hospital is the place where they cut off transgender kids body parts.

  • @il3mendo
    @il3mendo9 ай бұрын

    Are tpo antibodies produced by IgA (cd4) ? As It happened to me, High TSH with low Tpo, normal T3 and T4, with low vitamin D (7), folate and iron ( seronegative celiac disease certified back then with Marsh 3b atrophy, gluten Ataxia, gerd and gastroparesis), It meant that my thyroid was under attack? It all happened during the gluten challenge where I ended up with a severe psychosis.....

  • @lesleywhibley
    @lesleywhibley9 ай бұрын

    You do not get any rash with celiac disease it is a food allergy that affects the stomach not the skin my son was born with celiac and i developed it and have no or never had any rash. And my son was diagnosed in 1983.

  • @JIHAN249
    @JIHAN2499 ай бұрын

    HEY YOUR VIDEO REALLY GOOD BUT IT CAN BE VERY BETTER WITH MY EDITING So I think we should collaboration what do you say?

  • @il3mendo
    @il3mendo11 ай бұрын

    That is why a gluten free food are not the best option for us. In stead Omega 3 fatty acid are the best source of energy and if you can tollerate fibers.

  • @fallingfeather21
    @fallingfeather21 Жыл бұрын

    I had it mainly on front of lower legs. And groin!! dibs and dabs everywhere else, Now and then small bit on face/scalp. Quit everything, including gluten, for four months, then gradually added things back in, rash went away. Added foofs back in, lastly gluten. Came ROARING back!! After a year, the skin on my legs is still discolored.

  • @fallingfeather21
    @fallingfeather21 Жыл бұрын

    SO GLAD I WATCHED THIS!!! I had "DH"!! Off and on (mostly on) for a year, and didn't now what it was. I then had a SEVERE digestive issue. My skin is still darkish in some areas. Now I know why! I went of nearly everything, including gluten for four months. ALL symptoms stopped. I gradually added things back in: caffeine, alcohol, meat, dairy. And finally--gluten. Then things started again. Been off the gluten now again. FOREVER!!.

  • @fallingfeather21
    @fallingfeather21 Жыл бұрын

    It's my understanding that in order to take a celiac test, I'd have to eat gluten for 7-10 days first. NOT doing that. I'll assume I either have celiac or non-celiac gluten intolerance.

  • @fallingfeather21
    @fallingfeather21 Жыл бұрын

    Had rash for over a year.... then came gastrointestinal issues.

  • @joeclark2909
    @joeclark2909 Жыл бұрын

    😉 "Promosm"

  • @user-bj7kt9vm2c
    @user-bj7kt9vm2c Жыл бұрын

    Thank you very much for all the information I would appreciate a recommendation on which foods have vitamin D that are not dairy or tahini and nuts?

  • @masrun.dermatologist
    @masrun.dermatologist Жыл бұрын

    How long dapsone should be continued and after recovery from lesion for how long we should continue and when to stop .

  • @wendyhannan2454
    @wendyhannan2454 Жыл бұрын

    Excellent, I enjoyed this video very much. We have come along way since my diagnosis some 20 years ago. Unfortunately more people are being diagnosed with CD. I’m very strict with my diet at home, however eating out is still a problem for me. Many chefs,cooks in cafe’s and restaurants don’t always understand a gluten free diet, and cross contamination can be a big problem. Thank you Drs.

  • @adoniscousin_ovodonny94
    @adoniscousin_ovodonny94 Жыл бұрын

    💚💚💚

  • @wendyhannan2454
    @wendyhannan2454 Жыл бұрын

    Hello to you, from Australia 🇦🇺🐨

  • @rcgamer
    @rcgamer Жыл бұрын

    The rash is how I found out I have celiacs disease. The doctor kept trying to tell me it was a skin infection even after almost two years of having this rash. I finally told him I wanted the special blood test for testing for Celiac and it came back positive and with Iron deficiency and several other things associated with it. The rash was so bad I couldn't sleep much, my anxiety was throug the roof. Even though having Celiac sucks I was at least relieved to find out the cause.

  • @wendyhannan2454
    @wendyhannan2454 Жыл бұрын

    We often diagnose our selves, I know I did. Drs don’t know that much about CD, I had it for years before I had the itching on the scalp. I was accidentally gluten while eating out last night, I was in pain, I had bloating and joint pain, and the itching came back in my scalp. All this within an hour of being glutened. We know our own bodies.

  • @dawnhughes9942
    @dawnhughes99428 ай бұрын

    I think there is a correlation between rash flare ups and anxiety so I appreciate you mention this.I've been GF, dx celiac for 15 yrs. But in the last few years developed horrible red, raw, itchy hives rash on my chest, knees, headaches, joint oain.and awful panic attacks. Drs refused to believe it had anything to do with my celiac disease. Dermatologist couldn't offer any help but steroid creams to use indefinitely.. It wasn't til a nutritionist mentioned gf oats which I had been eating everyday for breakfast are usually NOT ok for celiacs. I cut out the gf oats Within a few months the rash has mostly resolved and my anxiety has decreased.

  • @wendyhannan2454
    @wendyhannan2454 Жыл бұрын

    This is great, as little seems to be known about Celiac Disease side effects. I’ve been putting my dermatitis symptoms down to meds I’ve been taking. I don’t have blisters, I do have awful itching on the scalp and have suffered hair loss, and at times itching on different parts of my body. Thank you for this video, and this valuable information.

  • @angelfreedom911
    @angelfreedom911 Жыл бұрын

    Oxidative stress which get increase with homocysteine.

  • @syzygy2043
    @syzygy2043 Жыл бұрын

    I have all the signs of this rash, including the symmetrical nature, but my dr thinks it is a food allergy and IgE mediated (RAST test negative). I gave up and just went gluten-free myself! I think if drs were honest about things they don't know, then people would be diagnosed quicker.

  • @Fokfeesspecial
    @Fokfeesspecial Жыл бұрын

    I have Dermatitis Herpetiformis and i can confirm even there are no Blisters the itching takes place everywhere on the skin (when you don't see anything) even after 8 months glutenfree, it's still a mess. i know it will take 1 to 2 years to get rid of it.

  • @wendyhannan2454
    @wendyhannan2454 Жыл бұрын

    Thank you, now I know the skin doesn’t have to have blisters to feel itchy all over. I hope you feel better soon, and it doesn’t take as long as you anticipated to recover. 🙏

  • @rcgamer
    @rcgamer Жыл бұрын

    @@wendyhannan2454 In my case the blistering happened when you scratched the little bumps.

  • @wendyhannan2454
    @wendyhannan2454 Жыл бұрын

    @@rcgamerThat makes sense, I had a slight pink rash on my scalp, but no blisters. The itching happens on the upper part of my body, even my eye brows, which thinned right out. 🤷‍♀️ It’s a strange disease, with many side effects. I love these videos there so helpful.

  • @hennah2805
    @hennah28052 жыл бұрын

    was diagnosed with celiac in 2011 when i was 12 years old...i didn't have a gluten free diet.... neither i have any stomachache after eating gluten....the only problem i face is i get rashes on.my.legs after spending few hours outside by walking....all i want to ask now I'm 23 and 153 cm ...can I grow my height now if i go for a gluten free diet????

  • @brainmahifa1147
    @brainmahifa11472 жыл бұрын

    I never found a honest man and legit cure on Hpv until I contacted Dr Okooboh on a referral platform that helps in management of SEX with herpes on #Drokooboh for a one time powder cure of Hsv2 on KZread channel...

  • @johnwayzwayz3106
    @johnwayzwayz31062 жыл бұрын

    I was cured from celiac disease, no more intestine damage or diarrhea, fatigue, with the root tea medication of Dr idialu🍀 kzread.info5Wo9BMbQgmY?feature=share

  • @phylenejanousek2740
    @phylenejanousek27402 жыл бұрын

    Outdated info. So much more is known

  • @rustythegreatandpowerfulla2676
    @rustythegreatandpowerfulla2676 Жыл бұрын

    Oh? Care to source your claim?

  • @maigidamd2462
    @maigidamd24622 жыл бұрын

    Living with the stigma of celiac Disease and not been able to have a healthy life was messing up my life until I got some Super herbs from Dr igho KZread channel, I haven't had any Symptoms for some while now, after I did a test & I'm planning to get another test done, Am grateful & advise you help yourself also

  • @Mo-gq6fn
    @Mo-gq6fn2 жыл бұрын

    Thanks for this video. The information was informative, easy to understand and much needed.

  • @palmiraflister7578
    @palmiraflister75782 жыл бұрын

    Hello

  • @alarnaullah9740
    @alarnaullah97402 жыл бұрын

    I am really Grateful to Herbalist Razor on KZread who Got me cured of Herpes Simplex Virus 1