We're a community-based organization dedicated to improving the lives of those affected by COPD. blog.copdfoundation.org
Mission
The COPD Foundation's mission is to prevent and cure Chronic Obstructive Pulmonary Disease and to improve the lives of all people affected by COPD.
Company Overview
The COPD Foundation (COPDF) is driven BY those living with COPD, FOR those living with COPD. The forefront organization in the COPD community, the COPDF supports research and offers resources to members of the community to help improve their quality of life until a cure is found.
COPD is almost always preventable,
Almost always treatable.
So why not curable?
General Information
COPD stands for Chronic Obstructive Pulmonary Disease--an umbrella term used to describe progressive lung diseases, encompassing emphysema, chronic bronchitis, refractory asthma, and severe bronchiectasis.
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Thank you!
This surprisingly worked each time I tried this exercise! I've been diagnosed with COPD @ 36 yo (asthma), and came down with a cold that likes to settle in my lungs. Tried this to break it up - and even if it was just a little bit, I got phlegm to come up! Thank you!
Airway clearance is futile when you don’t have mucus
Hi i have symptoms like food get stuck and takes forever to go down, slight chest discomfort, ecid taste in my mouth and I've been coughing up about 100ml of blood for almost 3weeks now. 😔
❤
Interesting
Great instructional video but has a tiny flaw. In the video, the lever is clearly in the closed position when the mouthpiece cover is closed. That's confusing since when you close the cover, the lever is in the open position, and the cover also closes the lever.
Huff cough doesn’t produce any mucus for me
I’ve been diagnosed with NTM and BE. I take 3oral antibiotics and Arikayce. Can’t do airway clearance because of bleeding. I can cough up blood on demand.
Also Anoro
And taking Arikayce which also causes bleeding
TOO NOISEY. STOP IT. AND THE DRAWING IS MIT FUN TO WSTVH. Together with that SO CALLED MUSIC. It’s HORIBLE!!’
Thank you so much, Jeanne, for your presentation; I just started on a nebulized medication and you told me a couple of things that my doctor had not mentioned -- like trying to breathe the medication as deeply as possible. I wasn't told anything, basically, just given the equipment and medication at the pharmacy. Why does everyone assume that people can figure out these things without some guidance? And, yes, of course I understand that healthcare providers are over-worked but it is frustrating. Your video and attitudes you expressed helped me a lot.
Great video
Hello I hope I'm in the right place. I have a situation. 2 and ½ years ago I quit smoking due quitting smoking I have suddenly started having shortness of breath even when just sitting down my doctor put me on an inhaler but it does not seem to be helping. could my problem be due to the weight gain or the copd?
I found out about my COPD in 2009. Keep taking care of yourself 👍🏻
That’s nice but what is the name of the medication you use?
Thankyou for sharing. I learnt a lot from your experience. I can understand as I am one year down with COPD. Appreciate your courage. From India.
This is the worst thing I have ever tried to use. I have used Advair and Trelegy and could not get them because this current administration has decided to do as little as they can for veterans and their families. So we are stuck with this junk. It is the most awkward thing I have ever tried to use. It should be banned.
That’s what happened to me. Same thing.
it's absolute crap. either the delivery device sucks, or the generic formulation sucks, but there's a reason it has a rating of 1.6 out of 10 or lower on every medical website out there.
Awesome post and well said….Thanks!
How long do I inhale the medicine when I first put in on my mouth?
I'm grateful I can provide my own comic relief, as I do at least one thing a day, that prompts me to laugh at myself. 🙏 Persevere🙏
I got copd had no covid jbs. They to pushy with it. Im not anti vaxxxer ive had menajitus typhoid etc west africa. Wouldnt take nothing off them now. Wont take flu jab now dont trust nomore!!
Doctors laugh at old people . They actually wish we would just go away and die . Spoken truly from one that knows .
I believe I had RSV and none of my doctors caught it. For a good month or more , I was coughing almost constantly day and night. My nose was constantly running. I felt drained all the time. It was rough on top of having very severe COPD. I believe years ago when we got vaccinated to go to school , they were real vaccines. People today are just not sure what's real and what's hype. I've had COVID 4 times since being vaccinated for it and 3 boosters.
Very helpful
"PromoSM" ❤️
Great information
Hospice nurses say copd is the worse disease to die from .
About time someone cleared up this "2 ltr/min" myth. But still doctors will raise an eyebrow when you tell them that you/me (at times) adjust the flow rate above their (apparently) sacred '2 ltr/min' proclamation to maintain adequate O2 levels.
Good job Jean
You always do a great job of explaining oxygen therapy. I have heard patients say they work with NASA and testing new equipment
Great job! I play Harmonicas For Health here in Florida. Such fun. We’re all terrible, but a good time is had by all!
what can i do as a caregiver for my husband who has bronchiactisis pseudomonus arg? we typically have multiple hosps and each time he gets more and more sad about the outcome. tu
Wonderful. Looking forward to joining this group!
Awesome ❤
I need oxygen at night but my so called lung doctor ignores me when I tell him I’m struggling at night because he goes by the pulmonary testing
That's got to be pretty frustrating! Have you spoken with him about a test called an "overnight oximetry study," or perhaps even a sleep study? There are a lot of things that can make you short of breath at night in addition to low oxygen levels.
@@mhessrrtyes I had those test and he said I had sleep apnea but I don’t. I recorded myself at night and never once stopped breathing
@@hippiegirl5167 Sometimes apnea events cannot be seen by the naked eye. There are also things called hypopneas where you don't *entirely* stop breathing altogether, but you aren't breathing deeply enough to move air effectively. Those can also cause issues. If you had an overnight sleep study that showed sleep apnea, I would STRONGLY recommend you trust those results and begin treatment as soon as possible!
Great job, folks! 😊
Thank you for this video pretty lady. I ran out of Symacort and I just received the Wixela with no instructions. Thank God for you 💚💚💙💙💙💜💜💛💛💛💛
Me too! I received no instructions when I got the Wixela. I was definitely using it incorrectly. Grateful for this video.
I have emphysema, now from last month I have mucus which is stubborn & not going. When I take methylprednisolone, mucus reduces but once I stop taking medicine, mucus increases & then it gives shortness of breath. What to do? I am 57 years old.
You are the first person to give me hope.
I inhale and it doesnt feel like anything is going into me
There is nothing there. Maybe a dusting occasionally but that's all.
This is a very informative video and I think everyone should watch it. The only issue I have - and I mean no disrespect - is that I had quite a bit of trouble understanding this gentleman in the video. Please use English speakers or those who are at least understandable. If not for the text on the screen, I would have been lost and turned it off.
That you so much! I wish I had been taught this 30 years ago. It might have saved me from 2 lobectomies. 😢
You had to undergo surgeries?
Thanks Gabby! That was great! I fully believe in a wellness plan! ❤
What is it?
Thank you so much for thism Newly diag. and been to the hospital 5 times in the last month.... miserable.. im trying to learn as much as I can so I can be proactive in my health and çopd...
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I don’t even know what that is ?
I agree this is the best.