The Multiple Sclerosis Trust
The Multiple Sclerosis Trust
We're the MS Trust. We’re here for everyone affected by MS, today, tomorrow and every day after. We're here to help you make sense of MS.
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To find out more visit www.mstrust.org.uk
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Dr Terry cured her MS through dietary changes, I hope you look at her videos, and see how she did it. I can’t remember her surname, sorry, but just search MS and Dr Terry and you will most likely find it. X good luck
I have MS/ Primary. I live in nursing’s home and was told I will always get UTI’S. I went to pelvic exercises and uro*obgyn for interstim. Nothing works so far. Getting frustrated 😢what next?
Hi Pat, This is one where you will need to go back to the urology team or continence services for their input to see what your next options. Interstim is considered a 3rd line option so I suspect you’ve probably already tried all the suggestions we would usually make in terms of medication. You really need more expert individualised advice than we can offer I’m afraid. Sorry not to be of more help in this instance. Kind regards, Ali, MS Trust Enquiry Service www.mstrust.org.uk/helpline
I have Optic Neuritis due to MS since April 2023. I have only 30% vision on my right eye, my left eye is perfect! I was admitted in the Hospital after this for 5 days, was on medical steroids for 3 months… Took Rituximab, I have to take it every 6 months… Hope my right eye vision recovers 🎉. It's been more than a year 😢 But I'm hopeful, and I'm just 27😢
Thank you for sharing your experiences of optic neuritis. Sending you best wishes from the MS Trust.
Carnivore diet is the only thing to get rid of MS check out the doctors on KZread...
I am not able to both get down and get on the bed. When doing the exercise ( first one ,) , my legs just slip down. Please suggest how to go about the 😢
Thank you for your comment. Is this for the the first exercise where you are stretching out your legs? Do you have reduced mobility? Thank you. Nick, the MS Trust
How about people who are using the aid? . I lack balance as well
Thank you so much for sharing the above. Unfortunately i am not able to reason being. Lesion in the spine and hip muscles. I am facing knee lock hyperextension of the left knee . Please suggest how to overcome the same
Hi there, thank you for your comment and for watching the video. Would you like support with hyperextension of the knee, or would you like support with completing the exercise? Thank you again. Nick, the MS Trust
I find that non-mindfulness works better. Distraction, distraction, dis......ooooh squirrel!😜
Thank you for sharing - we certainly know the feeling.
People look and stare. But as a dad I will feed my baby……..
Had one a year ago, first two failtries. These were painful as hell. Third try worked and i felt nearly no pain.
Thank you for sharing your experiences.
No questions, just requests Doctors need to speed up the confirmation tests if one has several of the markers for MS. Taking years to get a dx is ridiculous. Although in my case it really doesn't matter. It's more of recognition of the idea that you could get hit by a bus everyday.🤔
Thanks for this. Important information I didn't have before.
Thank you for watching. Glad to hear that it's useful information.
Unfortunately, it's like a box of chocolates, you never know what your going to get.🤔
Sending you best wishes from the MS Trust.
great
Thank you for watching.
Yo tengo años con este problema. Me dicen que es ansiedad. Ya vi varios doctores y ninguno sabe que puede ser. Ahora que estoy aprendiendo de el ms hug todo tiene sentido porque también tengo muchos síntomas de esclerosis múltiple. Creo que ese será mi diagnóstico ☹️. Siempre me preguntaba que será y porque me da pero nunca lo relacionaba con nada. Ademas no podía explicar lo que siento cuando me da el hug pero es exactamente así como lo describen . Incluso la gente se me queda viendo como si estuviera loca. Voy a ver a mi doctor y le voy a pedir que me haga las pruebas necesarias para ver si tengo ms
Late to watch !!!! I am having cerebral atrophy .is these excersise for neurological conditions..how can I be in touch with u
Hi there, thanks for getting in contact. The Physiotherapist is from a company called Neuro Heroes: www.neuroheroes.co.uk/
Great video ! Very insightful
Thank you for watching.
Yep, I get this and makes me absolutely exhausted the next day, hard when ive got work! Any tips? 😢
Physio, Antimuscarinic medications and botox may help improve the symptoms There are also a number of self management techniques you can try. We have these tips in full on our nocturia page: pulse.ly/wuznmkuxni. Flora, MS Trust Enquiry Service 0800 032 3839 / [email protected]
Yeah well here in America, trying to find a doctor to talk to for mental health is IMPOSSIBLE! Most don't take health insurance & you end up having to pay a $500 consultation fee and $375 a month for a visit. At least we have free crisis text here. Outside of that; you're screwed unless you're rich
Help
Help
Help
How much does it cost per infusion ?
Hi there. Thank you for your question. This treatment is carried out in the UK by the NHS. Many thanks Nick
Pls I’m very depressed
No time line
My appointment is next week pls help me pls I need help I’m very depressed
Hi, thanks so much for getting in contact. We can help by answering any questions that you might have about the process. Is there anything that you'd like to ask us?
@@mstrusthow do I make my neurologist give me medications on the first meeting and do all my tests and eeg soon ass possible because I’ve been suffering for months my head feels numb cause I had chemicals long time ago which damaged my brain pls help
Until your neurologist has diagnosed MS then they would not be able to prescribe treatments specifically to treat MS. However, you can always highlight symptoms you are currently experiencing and ask if they can recommend treatments you can try to alleviate symptoms whilst you are waiting to learn more. They may be able to write to your GP to ask them to prescribe certain treatments. We have more information on symptomatic treatments here: mstrust.org.uk/information-support/ms-drugs-treatments/how-is-ms-treated#treating-ms Flora, MS Trust Enquiry Service 0800 032 3839 / [email protected]
"healthy fats" = tallow
The myelin sheath is made up of saturated fat and cholesterol
I've had Ms since 2011. I went plant-based whole food for 8-1/2 years and lesions on the brain only grew and became more active. I went high fat carnivore in 2021 and the lesions stopped reproducing and started shrinking and disappearing
The thought of military precision in my diet is another exhaustion factor that I don’t need. A couple of suggestions here and there is the most I can cope with
They don’t work. Never have, never will. Just look after yourself and eat healthy. You will feel better. But miracle diets to cure ms are BS.
This is why we are riddled with too many scams from banking to online scams to name a few, KZread needs to revisit there guidelines on bogus claims and band them. Instead if you critique them and their narratives, they are very fast to lodge a complaint against you to silence it 🤐so the money machine can continue….
We need our legs back again
I'm going thru the same. But doctor says it's not MS and I KNOW it is. Even have legions on my brain. And so much more symptoms 😭
Thank you for sharing. I hope that you find out what's happening soon. Sending you best wishes from the MS Trust.
i had a leak with mine but they didnt tell me it was a bad thing but i wasnt allowed to do anything but lie down. i had a bad experience as the newbies in emergency had trouble and had to do it more than once . my brother in laws brother who was a doctor said that in emergency they have doctors learning to be a doctor and he said i shouldnt have had it . twas a horrible experience as they commented on my body and blamed that for them not to do it right. i felt like an experiment
So sorry to hear about that experience. That must have been really distressing. Sending you best wishes from the MS Trust.
Funny guy.. you funny guy!!!
Can u pass me more information about injector? Where i can buy. I need only injector nothing else . Thank you!
If your injector is broken, it is best to contact your MS nurse. You can find contact details on the map at (mstrust.org.uk/information-support/support-services/ms-services-near-me). Failing that, the drug is manufactured by Bayer (pulse.ly/vhtgv8kf4e). As the pens are designed for use with a specific medication, it is unlikely that you could get an injector without a prescription for Betaferon. MS Trust Enquiry Service
I felt this
Sending you best wishes from the MS Trust. 💙
I hate MS. My mom has it. I wish you well with your disease. Hopefully yours is the kind that goes into remission for decades like my moms did. Stress brought her out of it. So take care of yourself the best you can. ❣️
Thank you for sharing. Sending you and your mother best wishes from the MS Trust
Empecé a sentir eso hace 2 meses, y baje mucho peso. Sera eso? Yo pienso qué es otra cosa pero no le encuentro sentido. Pero siento como si me estrujaran las tripas, a veces se me ven las venas de el torso y sobre mi abdomen todo todo . Sera que es ms abrazo? Tengo ms
My Neurologist likes me to bring a loved one with me to meetings. That way they can tell on me. It is easy to forget what is going on with ourselves.
That's a really good tip - thank you for sharing.
@@mstrusthelp me
Being encased in cement and walking thru wet sand
Thank you for sharing 💙
You are a beautiful human being .Inside and out.Never give up and keep doing what you are doing .God Bless.🙏🏾🙏🏾🙏🏾❤️🌹
💙💙💙
Diagnosed at 31. Im 34 now. Thishit mehard before they caught what was going on for me. Im on ocrevis. I don't have any rrlapses, so i think it is working. Walking, standing, all bad. Optical nueropathy on left eye, so blind there. PT is only helping so much. Very shaky. I just want to walk again. Doing my best every day. Going to continue to do my best in the future. Thanks for this.
I am just here to vent about an LP. Yes and LP alone was ruff the healing process after was Hell… the worst headache I have ever had in my life…. If you get one just don’t move for 2 weeks after or else.
Thank you for sharing your very honest experiences of having a lumbar puncture. Sending you best wishes from the MS Trust.
I have all the symptoms of MS (double vision too, but not optic neuritis). I’m struggling to walk, have severe muscle pain, mainly in my legs, weird numbness/loss of sensation that has been spreading for years now, nausea, dizzyness, gastrointestinal problems, problems with sexual dysfunction, problems with bladder and bowels, electric shock when I turn my head (not every time), unbearable itching whenever I get out of water or brush/bang against something… You name the MS symptom, I probably have it. My brother has MS, and he believes I do too. I do have lesions on my brain consistent with MS, but ALL my tests have been normal. We even did a lumbar puncture. Normal. So I have no diagnosis, and my doctors feel there isn’t anything else to do. But I was an athlete. I was a graceful dancer and martial artist. And suddenly, I lost it all. I can’t walk very far without cramping up, and if I push it, my legs will buckle and give out. I struggle even to push an empty grocery cart. It’s like my body doesn’t remember how to work. I’m really scared it will just keep getting worse. Meanwhile, no one believes me but my brother, and there is no treatment for me. I would do better with keg braces, but I can’t get my doctors to take me seriously. One said, “Let’s try Lyrica for merve pain, and maybe if you have less pain, you won’t have to walk so slowly.” I don’t walk slowly because it hurts! I walk slowly because my legs don’t work! I don’t know how else to say it! I’m scared and alone and feel like I’m watching life from the outside now.
Sorry about the typos. I’m also having trouble typing the right letters.
Thank you for sharing what you're going through. That must be such a difficult situation to be in. If you're UK based, we have a free, confidential helpline. They offer information and resources that could help. You can contact them via phone or email. pulse.ly/sy3isx9tri Sending you best wishes from the MS Trust. 💙
Excellent interview
Thank you for watching 💙
The thing is about Oritsè is, he gives everyone 100%, whether that's being a kind and caring person or musically giving, there's always everything that he puts into something. I'm so proud of him and his achievements, he makes me incredibly amazed at everything he's ever done. If only people could be like him more, only as the world is already a scary place at times, we need more compassion. Never stop being you, Oritsè!!! We love you and your beautiful mum, she's so lucky to have a son in you❤️
Thank you for watching 💙
The 5th time I got it done, it Def hit a nerve because my entire hip and leg went numb
Thank you for sharing 💙
I had this done 5x and each time. Each time, I was in major pain each time..
Thank you for sharing 💙
Most doctors act bothered or think the patient is a hypochondriac. I'm almost 50 and have brought up so many symptoms that I eventually stopped telling them. Recently my eye doctor told me I had something that she could see a my optic nerve that is linked to MS. That was only last week. I was there w a cane and an injury that I had no idea how it happened. So I'm glad she said something. I'm off of work w this mystery thing right now. I kind of dismissed my eye doctor at the time, but now reading up on it, a lot makes sense. If I get this as a diagnosis I won't be surprised, I might even be relieved. I've been tired for years. Wrote off my clumsiness as an ADHD symptom. I've had tingles and LOTS of twitching to the point of thinking I may later get Parkinson's. I'm adopted so I do not have family history. The doctor speaking- it looks like all of you have autoimmune issues, that's the link. Thank you for sharing your story and thank you all for the great information on this channel❤
Thank you for sharing your experiences and your journey. 💙
i understand your frustration i have had doctors say when i visit one thing to deal with at a time as i had too many symptoms they didnt want to know about