I'm a fun-loving Military wife, Type 1 Diabetic, also living with Myasthenia Gravis.
I like to do Daily Vlogging, Life Stories, fun videos with family & friends.
Camera used: Nikon Coolpix L810
Movie Editing Software: Sony Movie Studio Platinum 11 Edition
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Thank you so much for sharing. I hope you feel better soon
Hi do u have an email? What do u mean by taking mestinon as needed? Do u take it daily? Did u have ur thymectomy immediately after being diagnosed ? Does your fatigue go away after taking mestinon?
Thank you.🙏😘
Warrior Queen.👑🔥🙏😘
How have you been? I’m thinking about getting a thymectomy but kinda nervous. Would love to get an update on your symptoms. Also how long did it take for you to see an improvement post surgery?
Hello, Like to know after these years how you doing now. Any update with MG. Did you able to get rid of . Please update. Thanks;
How are you doing now?
Seems like i need to do an update video
Thank you for sharing your story:)
So I been diagnosed with Myasthenia Gravis back in like April or May and I’m up for thymectomy in September. The only medication I take is Mestinon and I have had two Rituximab infusions and two series of 5 PLEX plasmapheresis. I’m currently waiting on a alternative medication called LDN ( low dose naltrexone. I been told that the chances of my remission is high. I hope I can say I used to have Myasthenia Gravis.
My brother Atson had myasthenia gravis since 2015. He got medically discharged out of the Army, a job he loved well. His heart had 5 myasthenic crises, 3 being severe enough to be ventilated or require CPAP (continuous positive airway pressure) helmet. He have had countless plasma exchanges as his veins are bad. He also needed Hickman lines inserted, he have been on azathioprine, mycophenolate (CellCept), methotrexate and none have worked. He is currently done with his herbal remedy I purchase from totalcureherbsfoundation .com which has totally cured his condition with a surprise after almost four months of their usage, he was discouraged and never thought he would be myasthenia gravis (MG) free ,to me the best to get rid of this condition is totalcureherbsfoundation com treatment because all medications we used never worked include mycophenolate (CellCept)
Have you been having episode of your voice changing ?
I will try & do an update for you guys who follow my channel; I’m in the best of health nowadays. Take care & God Bless you all!!
How many incisions do they make? 3 or 4?
Anonymous65 they made 3 for me
@@laurene.fairley5251 Thanks for you quick response.
See KZread.com Myasthenia Gravis symptoms disappear. This MAY be a cure - 90 days - 70% improvement in MG - 90% shrinkage in tumours. "7 X more oxygen/Better Breathing, its free, simple, 2 min. try on phone, call me 905 642 2689 Bill Allen
See KZread.com Myasthenia Gravis symptoms disappear. This MAY be a cure - 90 days - 70% improvement in MG - 90% shrinkage in tumours. "7 X more oxygen/Better Breathing, its free, simple, 2 min. try on phone, call me 905 642 2689 Bill Allen
The following information is free and may be of great interest to those suffering from Myasthenia. Please see story online “york region bill allen”. When my newspaper story came out online Dec. 6th., I received a call from Anna Abramian who has two cancerous tumours in her breasts, and has Myasthenia Gravis (a muscular disorder). She had started chemotherapy in late Nov., and came to my office on Dec. 8th. With only three high oxygen breaths she got the following relief from Myasthenia symptoms: - her partially paralyzed jaw, tongue and mouth loosened up. - her double vision became crystal clear and droopy eyelids disappeared. - strength, feeling and blood circulation returned to her arms and legs. You cannot imagine the shock and relief she went through. She continues the breathing routine to this date. The blood circulation improved all over her body, from a little extra oxygen and as of this date she estimates that her Myasthenia has improved 70%. The next time she went for her chemotherapy almost all of the usual side effects: nausea, vomiting, sores in mouth and nose, numbness, cramps, pain, paralysis; didn’t occur. Nov. 28th. - 1st. chemo - Lg. tumour 42 sq. cm., sm. tumour - size of finger tip Dec. 19th. - 2nd. chemo Jan. 8th. - 3rd. chemo - Anna lost 6 ½ lbs., tumour 1/3 the size (14 sq. cm.) Jan. 29th. - 4th. chemo - Anna has lost 9 lbs.- Lg. tumour now 8 sq. cm. - Oncologist exclaimed “Wow” - said he had never seen anything like this. This date Oxygen 100%, heart rate 78, blood pressure 117/78 (her B/P was 177/110 in late Nov.) Anna started her next series of chemo this date - Jan. 29th. - The nurse said to expect her finger nails to turn black and her hands would have to be put in ice water for 20 minutes. It wasn’t necessary. Anna has had little or no side effects. Feb. 16th. Tumour is now 1.25 sq. cm - 97% reduction in lg. tumour in 12 wks. small tumour gone - has lost about 17 lbs. Feb. 19th. 5th. chemo - almost no side effects I would be glad to demonstrate over the phone, how you can take these simple breaths that add 10 times the oxygen to your blood and we will see if you get the same results as Anna. Please call me - again it’s free. Bill Allen [email protected] Tel. 905 642-2689
How long were the hospital stay after the surgery?
Thanks for the video. If you are interested I will subscribe to your channel if you subscribe to mine. My channel focuses on life, health, education, and living in ketogenic lifestyle. I hope you enjoy, like them and subscribe.
Hi Lauren, Happy New Year. Thank you very much for sharing your experience. May I ask you how you are doing with the symptoms. I have to go for the surgery in March this year. I would like to know if that is going to help my condition. Please let me know.
tanmaya18 I will make a F/U video soon; I don’t have any symptoms of MG anymore, nor do I take any medication to control weakness related symptoms of MG. I’ve found that the biggest help with MG came from changes in my diet: I longer eat any type of meat, dairy, eggs, highly processed foods, I’m basically vegan and that has been the #1 staple in controlling this disease. I no longer see a Neurologist, no more weekly infusions, no more chemotherapy treatments, please consider a vegan lifestyle diet before you have this surgery to see if that helps first. God bless you!!!?
Lauren Jones thank you for sharing this input. I will try your diet tips and eat vegan. My surgery is scheduled in March so I have some time now to try it out. I will let you know if that helps.
tanmaya18 If I knew then what I know now about the plant-based diet, I would’ve postponed the Thymectomy... please do let me know if it helps your symptoms because I’ve heard from other MGer’s that this works, not just for myself.
I just had plasmapheresis for Transverse Myelitis .they put my catheter in my neck and looked crazy . I m still in hospital for rehabilitation now .the condition left me paralysed from waist down .it’ll be 7weeks on Thursday. Hope you are doing well?
Beautiful Coco God bless you, keep going this isn’t the end young lady!!! I’m sorry to hear that it left you paralyzed, but I’ll be praying for your recovery!!! God bless!!!
THANK U FOR SHARING YOUR STORY
This video was really great and informative. I'm considering plasmapheresis for my mg and was curious what other patients thought of it. I hope you're doing better now! <3
Kelseytoon I'm doing awesome now!! Before you do the PLEX, Have you considered changing your diet? No meat, no dairy, no eggs? That's what has helped me, I don't take any meds for MG anymore and I don't get symptoms as long as I stay on my plant based diet.
So glad to hear that you are doing well and that you are off of your medications! Continue to stay blessed and share your message!
Stephen Noble Thanks Dr. Noble, you were the right doctor to do the Thymectomy; very much appreciated!!!
How is your myasthenia doing? Im thinking of having a thymectomy and kinda scared.
They finally have. 3 shades for WOC. 👍🏾
You go girl, I have a thyme to my, and now I am on prednisones and Lyrica. I'm a little older than you but I believe you must move move move. Kudos to you. Larry Texas
ok I saw the pictures it doesn't match but your skin looks amazing
but they do need more shades
it looks really pretty on you
Blessing to you. Thank God for your continuous healing in advance. ❤❤
I had the same issue but I mixed the foundation with a darker foundation I have from NARS n it works wonders. It's really good makeup. But you still look beautiful dear. Stay blessed.
Thanks for the video. I have a darker skin tone and I don't wear makeup at all, but I was about to try this. I am looking for something natural looking, but I think the rich is a little too light for me. idk, this make up thing is so confusing....
i thought it was pretty on you
But me looking at your face after it's done it looks very pretty and you can see a huge difference I'd like the product I am about to order your tone is glowing right now I guess you just can't see it it looks very pretty and I'm not just saying that the product really do work from the looks of it I think I am about to order
If they create more shades for WOC it will be on!!! I love how it lays on the face, my MAC isn't like this formula and i'm sure others will agree; MAC gives you a studio look, It cosmetics gives you a natural looking finish, like real skin. i will give them another try, but i can't look grey while doing it; I guess it's just me, but it looked grey.
I think if you try it again it might work I think as you put it on with the cloth you're also taking it back off at the same time that's probably why it might not be working for you try using your fingers as you use your fingers it just smooths into your skin as you rub it but using a cloth is like taking the foundation moisturizer back off your face and you're not getting that coverage that you want try using your fingers again Doll
I already sent this back; I don't think using my fingers, a sponge, or a brush would have made a difference, the undertone cannot look grey. I needed a yellow/warm undertone for this to work. Thanks for watching!
I Love the Real girls! The pictures and the Video were Great! I believe IT will introduce more colors for WOC...
Me too, I wanted/want an everyday foundation, to me MAC is not for everyday
Correction: MAC studio fix fluid,.
Dermablend and Fashion Fair hands down best for WOC...
I've heard a lot of great things about FF, maybe i'll try theirs.
my son is only 16 and will be starting this very soon, all the other treatments did not work for him, the surgery, the ivig, oral medications, this is his last result
brandii whitley I pray it works for him, it did help for me, but because I'm a diabetic, my Neuro was concerned about the port easily getting infected if we left it in for longer than a month, so i couldn't get it again.
brandii whitley how did it go?
Did the health insurance cover it without any problems? The IVGs does it also cover it? It's december now have you felt a huge difference by now? if so in which way? I have a niece who has MG and we are thinking about doing it too.
val255 yes, my insurance plan covered the surgery fully; I cannot see a difference in having the surgery, i think it was a waste of my time and recovery; I still feel the same, nothing has changed
I also deal with Mg , give me a call 806-790-4944
Hi it feels great to see other women with the same condition I was diagnosed with MG when I was 9 yrs of age it's been a rollercoaster I was in remission about 4 yrs after I had my kids and while being pregnant it flared up my youngest is 2 yrs old and it's like my mestine isn't working my kids have Autism my pregnancy was very high risk I'm thankful to god they are here I just hope god keeps me around to at lest see them grow prayers to u and everyone withMG much love
How was it being pregnant and having MG? I think the symptoms of MG started happening in 2009, but i wasn't diagnosed until 2013. I think a year after I had my son, it just became so bad all at once.
Hey thanks for response I was pretty good pregnant with both kids until I got like 7 months with them really when I got heavier it start flaring up both my kids I had to have csections with being I was high risk and my drs did not want me pushing due to the Mystenia both my kids are Autistic though aftee my son who is 2 now my symptoms are out of remission ang I believe I need a bigger dosage in taking 60 mg my right eye drops, fatigue , shortness of breath all of the above and the stress with all the kids appointments make it worst . Stress ,weight gain ,drinking , smoke , anything over exzert the body makes Mg flare up , ur energy is restored through sleep so sleep we have things to do but our health is more important
Wa'na B hi I have mg I live in California is there a support group
Hey lauren I have Myasthenia Gravis as well and every time I get any treatment I get benadryl and Tylenol. Hope all is well for you.
yes, i get that now too, everythingnis smooth sailing now
Hi I also have MG have you tried pyrostigmine med. It works for me.
I've already been on and tried that, it doesn't work for me
I'm so sorry my goodness... I'm praying for you.
I Watch your videos and I don't feel alone!!! had my thymectomy in 1998! I sure wish I would've had mine now because I absolutely hate my scars. Cellcept didn't work for me, nor did Imuran. I did plasmapheresis for about 6 months, but I had an unexplained seizure that was stopped immediately after. But IVIG has been the best along with 2 mestinon pills and prednisone (which I seem to not be able to get off of). In the beginning I was on 60mg one day and 40mg the other so weight gain and hair growth have been a really big issue. But as of now I'm doing pretty well considering the journey it took.
I'm so glad to hear that you found something works for you, I'm still working to see what works for me. The scars that I have on my chest used to bother me a lot, I used to think people stare b/c they may think I survived a gunshot to the chest, but it's apart of the journey, there's a story behind our scars, if people ask, I tell them, if not, I never bring it up. Thanks for your comment!!! Much love
hi, im glad hearing that you working out. that's a progress right there. me myself im battling with MG since 2006 together with rheumatoid arthritis, trust me thats a combination nobody wants. ive decided from day 1 after being diagnosed to throw the mestinon away after reading about it. and for my RA pain ive been taking anti inflamatories painkillers. one thing that makes me sad above all the pain and limbness weakness, is my damn droopy eyelids. makes me wear dark shades everywhere i go even at nights. lately ive been studying alot about natural cures for both of my illnesses and i came across cannabis oil which i started using last week. now i must say i dont feel any arthritical pain since the second day i used the cannabis oil. i suggest you to do a research about the oil as they say it heals everything even high level cancers. the other natural remedy i came across is the mineral borax/ boron. i started using a boron supplement for 5 days and i must say im starting to feel way better feeling less weak in my legs and muscles. im looking forward to start using a purer form of borax. i suggest you to read about the borax cure and consider to try it out, before you go ahead and start with the steroids. the steroid use just dont sound right imo. cannabis oil and borax. read about them and give them a try. natural remedies that cures all deseases. god bless you and your family!
im a MG patient combined with RA. i was just wondering whats your update on your MG symptoms. thank you and take care
I'm uploading a video update for this, please check it out
+Lauren Jones okay thanks
Lauren, thank you so much for sharing your story. My older brother has Type 2 Diabetes and just 3 months ago was diagnosed with MG. We're trying to research all we can about this disease. He will be starting plasmapheresis tomorrow. Will keep you in my thoughts and prayers ... sending positive vibes your way! :)
Mestinon sucks for me, I have spasms, difficulty speaking, tearing up all the time. MG got so bad with me that I was loosing all body control. Sucks when your dinner lies in front of you on the ground ;) But MG got better and I even started working out and am ripped now, just keep on fighting. Don´t want to do surgery as well.
I take Mestinon very occasionally now, I had the surgery in February 2016, I feel great!!! I don't do IVIG anymore, I take cellcept still also, I changed my diet a little bit, but other wise, I'm doing very well; I need to know from another MGer, how did you get ripped?? It's hard to get into a routine of working out since I haven't been able to, but I need the deets on this, do share...
Lauren Jones Well yeah, hardest is getting a daily routine, but you just have to push yourself to start and keep doing it. I´m not so well in the morning for working out but push myself to do a few press-ups and sit-ups. But afternoon 3 times a week I go to a gym, which I would recommend, since I noticed that I give up fast when training at home. Every second day so I can fully rest one day and weekends. While in the gym I mostly use the machines, because I get tired out faster with the weights. Also, I do Antigravity one time a week which is something similar to Yoga and would recommend that as well to relax and stretch the muscles, so you don´t get overworked. In time you´ll see what you can do more or have to avoid yourself.
I am 19 and I have just been diagnosed with MG. You are so strong and I hope this procedure runs your MG into the trash ASAP! Thanks for sharing your experience (not that many videos about thymectomies on here). Much love, God bless you. xoxo
Great video snowflake
thanks