I'm Crissy Mac, and every Sunday, I share my personal experiences with kidney transplant on KZread, as well as in kidney groups. Despite losing my kidneys to Lupus Nephritis, I remain determined and push forward. I believe that we all face our own battles, but the ultimate goal is to stay healthy and inspire others to never give up.
Subscribe to my channel to join me on this journey of kidney wellness and witness the unwavering spirit of a girl who never gives up. I'm here to provide valuable insights, motivation, and support to those navigating similar challenges.
You can check out my store at: ( linktr.ee/crissymac) to support me.
For any inquiries or collaborations, you can reach me at [email protected]. I value your feedback and suggestions, so feel free to connect with me.
Thank you for being a part of this amazing community. Together, let's strive for health, resilience, and endless motivation.
Crissy Mac
6600 SugarLoft Pwky Ste 400-279
Duluth Ga 30097
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I’m in dialysis it’s been 6 months and it’s ok but it’s the sitting down for4 hours 3 times a week 😢.
But besides celcep and prednisone you also take the anti rejection meds right?
People in these comments will say n do n believe anything smh get a life people
What do you mean? This is a positive post on love. I got a kidney transplant and my husband’s love helped my healing process so I said love heals. What’s bad about that?
I have a belly and I’m gonna be 14 years post transplant this august
Congratulations on 14 years
I got my transplant 2 months ago and I also have pain at the incision. I’ve told my doctor’s, and I have to say they’re a bit dismissive of it. It’s frustrating. You look wonderful, Chrissy!!!!
Continue to stand up for yourself no matter what. It can definitely feel frustrating. Thank you I appreciate it. This video was over 4 years ago and things do get so much better years later 🫶🏾 Wishing you all the best on your journey
Thank you for sharing this and your other videos. It helps those of us who are also kidney transplant recipients.
I’m happy you found the videos helpful 🥰
Ty for sharing!! Have a blessed day Crissy. 🥰
I truly appreciate you watching and commenting 🫶🏾
hi crissy, thank you for your detailed explanation of a fistula. I myself have an av fistula and it’s working great! question for you, how do you deal with people commenting on your fistula when they see it. public and close friends. thanks for your time!
This video was made years ago. I no longer have a fistula since i’m post kidney transplant and my doctor did a good job so no one can tell that I had anything in my arm 🙌🏾
I'm having the same exact symptoms rn,every single one one difference I have the cathater in my chest and I'm So miserable rn
I’m currently post kidney transplant but I had a catheter in my chest at one point so I understand how you feel. I pray you find comfort soon.
I just made the cut. 😂😅 tested at 19 percent. 🎉🎉
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Wow so nice video
Thank you
Welcome
I am currently 14 years old and I had a kidney transplant in 2022, things started to decline and i also have to get infusions like you! I’m so glad I found at least one person who I can relate to in this aspect of my life…
It’s always good to find others that understand what you’re dealing with. I will keep you in my prayers
@@CrissyMac ❤️❤️❤️
After my transplant about a year ago, I have so much more energy! I bought a meta quest 3 and do the Les Mills body combat workouts. Also getting my fistula out next week so I can lift weights again.
That’s so good to hear. I’m so excited for you. Keep it going
Thankz for this video. I'm 9 days post kidney transplant 🙌🏾 and I'm all over the place.
It’s like that especially in the beginning but I have made every video I could think about through out my journey. If you need them it’s only kidney transplant playlist 🫶🏾 Pray all goes well for you on this new journey
I have been receiving dialysis treatment since birth due to a chronic kidney condition. In 2003, at the age of 8, I underwent my first kidney transplant from my father. Unfortunately, in 2021, I had to return to dialysis. I am now exploring the possibility of receiving another kidney transplant, this time from a deceased donor. I am seeking information on the potential longevity of a kidney from a deceased donor compared to the 18-year longevity I experienced with my father's kidney.
The best option is to talk to your provider. I pray the new Kidney you get in the future will last you even longer than your original one 🫶🏾
Thanks! This was helpful. Thank goodness I have a lot of things you mentioned checked off. I got my kidney in early April and I start back to work tomorrow which is causing me some anxiety. But I know everything will happen as it needs to. And yes, there are a lot of unknown things that they never cover in the education class when you start out. Like I had to deal with a case of hydrocele as soon as I got discharged. And that is strictly a guy's thing. Nothing throws you off more than looking down and seeing your scrotum the size of a grapefruit the day you were supposed to be heading home! It has just gotten back to normal size. Then there is the Prograff side effects. I was on such a high dose that I was shaking like Michael J Fox. So they did decrease my dosage and started me on Bella last month. But just last week my BK virus numbers skyrocketed. So now I had to go in for an infusion. So it seems like just when you scale one mountain top you get kicked back down into a valley and have to face another mountain. And I am only three months out from my transplant. But I am still being faithful and meticulous about any symptoms or side effects that I am noticing and being transparent with my transplant team. But I am very thankful not to be dealing with in-center or PD any longer! Grateful for every victory!
What is the treadmill? What are your thoughts on mask ?one year transplant
Do you have TikTok???? Here is my TikTok video and the link is attached to the video if you want to get one and start with us on this journey. www.tiktok.com/t/ZTNkMsuSX/
So apt 💯. Exactly no one prepared us for the journey post transplant and the finances are draining. I really need help with drugs right now.
It’s something they lightly touch on but your right no one really prepares us that why I make these videos.
So happy for you!! My son is on his journey now with kidney transplant❤
I’m so happy for him. How is he holding up? Sending blessings his way and your as well as a caregiver
@@CrissyMac Thanks for responding he has his days just mentally accepting this situation l'm his Rock with encouragement
Greetings, I watched this video in Jan 2024 when they told me dialysis was my next option. I really liked what you said but they keep pushing me to PD and start in a few weeks at home saying the same thing I’m a great candidate for PD. Well the surgery and training went well but my life went down after that. pD dialysis made me sick every week and kept me in the hospital every 2 weeks.i lost Over 20 pounds of muscle mass, loss my appetite and no one could figure out why on top of end stage kidney failure. When I almost lost my independence and my mind they finally put me on hemo dialysis and I felt so good after dialysis. The way they promised I would feel on PD dialysis after a few months I felt after 1 day on hemo dialysis at the center. I have been on Hemo dialysis for a month and my energy is back, my appetite is back and my life is back. I wish I would have done more research on home hemo dialysis but they did make it like the best option for me. I hope to be trained on home hemo very soon. I am waiting to get my AV graft because my vascular DR said my veins are way too small. I don’t mind being in center but I feel being at home is the answer for me. I am on two transplant lists as welll. I had a pancreas transplant 10 years ago and now I need a kidney transplant. I feel you live and learn but I just wanted to share my experience. I’m not saying PD is a bad choice, it just did not work for me and my body. I wanted it to work and I worked hard to do the training and learn everything as a model student. I did it for 4 months with no infections, just never felt better. My Pd Cather was removed two weeks ago and it hardly looks like anything was there. Thanks
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Love heals ❤️
Lovely ❤❤❤❤❤❤❤❤❤😂😂❤❤❤❤❤❤❤
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Can we do laser treatment for scars after kidney transplant
You will have to talk to your doctor about your options
Hlo miss i had my kidney transplant in 23 September 2023 soCan i take apple cinder venger for weight loss plz rply
Best advice I can give you is to always consult with your health care provider because each person is different.
@@CrissyMac okk ❤️thank you for the reply
How do you prevent the muscle cramps? I usually get it the night after dialysis ?
Hi Crissy I will get dialysis soon wondering when you get fistula put it does hurt a lot , how long did it take for it to heal. When you get it out, does it affects your hand function at all.
When you do the procedure to get the fistula and if you ever decide in the future to remove it, both ways does have some discomfort everybody’s pain tolerance is different but you will recover as you see in my videos. It took some time, but I was able to recover and bounce back well. Now that I have my arm back in full function, I’m doing much better.
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Love heals ❤️
I started researching walking pads a month or so ago. I would appreciate your input / review of the one you chose.
Do you have the Tik Tok app? if so here is the one that I got or the link for it is in my bio under TikTok finds. It’s in my TikTok shop and I absolutely love it…Check out on Crissy Mac’s showcase on TikTok! vt.tiktok.com/ZTNjMxKAs/?page=TikTokShop
Great video.. now challenge yourself. Walk for 1 min, run for 2.. walk for 3 & run for 4 mins so on & so on. Breaks up the monotony of just running What works for me 👍🏻
Awesome thanks for sharing. Truly appreciate it 💪🏾
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Love heals …thanks for watching
So happy for you! Praise God 🙌🏽
I’m so excited for her as well
Thank you for this video. I do not have kidney disease but I do have kidney stones. I just had kidney stone removal surgery and have bilateral stents. I just checked my creatinine levels and it is high (.99) but it's been higher (1.27) about 13 months ago. I have to get it together. I'm always dehydrated so I have to drink more water. I will make sure I speak with the urologist and nephrologist because this is not fun and pretty scary. I feel so alone in all of this. I'm glad I found your channel.
Keep going, God know how many people you’ve helped . From dialysis to my transplant your content helped and informed me every step. 🙏🏾
I love your videos, I just had my 2nd kidney transplant 6 weeks ago
It has been 11 years since my transplant and it has been working fine. The stability of it has been great. For 4 years, I have been living in Japan. I have decided that it is time to close my fistula. It developed an aneurysm 2 years ago. The Japanese doctors thought it may not be a good idea to remove it just in case when I asked last year and advised me to wait, the reason was I have been moving to place to place, so these were new doctors I have been seeing. In a change of heart, they have finally decided that it is a good time to close. Going back in time, my doctor in Hawaii has recommended it and informed me the surgery is simple. I have also learned that there are other ways they can do it. He also informed that the arm will probably not be the same how it was before I had the fistula made. It will look a bit more "normal" as he put it. I am nervous about it since it will be in Japan, not the care but the procedures before through after surgery. Thank you for sharing your experience. It is helping me to look on the bright side.
Hi Chrissy I have Kidney Disease waiting on a kidney. I try my best to walk every day.
May god give you peace and a safe speedy operation
I’m so proud of you. That kidney is coming soon 🙏🏾
@@CrissyMac Thank you so much I’m just so depressed at times going back and forth to Dialysis. But praying to my God that I will get a very good Kidney donor.
@@user-mq2gd4yf8estay strong
I am so sorry for your bad experience. I had a transplant 10 months ago and found you the first day of recovery. It helped me so much to know what to expect. They never mentioned hair loss. You prepared me for that. Knowing someone who is way ahead in this process is a blessing. Don't be discouraged, you do make a huge difference.
I have been on dialysis just over a year now, I feel cold during dialysis, blurred vision and dizziness, I feel cold during and after and I am starving! So hungry, drained afterwards and yes with me I feel better the day after to a certain degree, I'm losing so much weight and back to a size 10 which I have not been for over 10 years!
Thank you for sharing your experience with me. I completely understand what you’re going through. Dialysis can be incredibly tough, and it’s not uncommon to feel cold, dizzy, and drained during and after the sessions. It’s great that you feel somewhat better the day after, but the hunger and weight loss must be challenging. I remember those days. I myself lost massive amounts of weight. Remember to talk to your healthcare team about these symptoms…they might have some tips or adjustments that could help you feel more comfortable. You’re not alone in this journey, and your strength is truly inspiring. Stay strong and take care of yourself. Sending you lots of love and positive energy!
Attractive couple
Aww thank you 😊
Hey there....😊Sending hugzzzzzz and love....I understand your feelings totally. I am sorry that they have stopped you from doing what you love and what brings joy and hope to others . The Most High will make another way. He always makes ways , where there seem to be none. ❤ Just seeing your beautiful face brings me joy😊 My husband of 40 years , just got a kidney transplant, after waiting almost 6 years (the Covid situation caused a 2 year delay) But wooohooo 🎉🎉😊 He got the transplant April 30th! I started watching your videos while he was in the hospital. We didn't even know a stent was in! Thank you for sharing your journey. We really appreciate it❤ Also, congratulations on your weights at the gym❤ .
Sending big hugzzzzzz and loads of love right back to you! Thank you so much for your kind words and understanding. You’re absolutely right…the Most High always makes a way where there seems to be none. Your support means the world to me. Wow, congratulations on your husband’s kidney transplant! That’s incredible news, and I’m so happy for both of you. Wooohooo indeed! 🎉 April 30th will forever be a special day. I’m honored that you started watching my videos during such a pivotal time. It’s amazing to know that I could bring a bit of joy and hope into your life. Thank you for the congrats on my gym progress! Your encouragement keeps me motivated. Keep shining and stay blessed! I’m on TikTok as well if your on that platform @crissymac
Thank you for another great video! I was concerned that the Bela infusion was going away & thankfully, it's not!!!...Maybe you could explain to the staff about why you film some clips; or maybe there is another infusion center you can go to, that will do the Bela infusion. Maybe there's a place even closer to you. I know of a national center, called Paragon, but don't know if they are located anywhere close to you. You could still film on infusion days (in your car) & let us know how things go. Praying it all works itself out!!! 🙏❤️🙏
Thank you so much for watching and for your kind words! I’m glad to hear you enjoyed the videos on the bela infusion. I appreciate your suggestions about talking to the staff and looking into other infusion centers like Paragon. I’ll definitely consider those options. Filming in the car on infusion days is a great idea too; it could be a nice way to keep everyone updated. Thank you for your prayers and support. It means a lot to me, we will see how next bela appointment works out. Hope all is going well for you 💕
Why would it be discontinued? My doctor let me know about some rejections with Bela. Even though I’m doing much better on it.
Good morning! Hope all is going well with you. Were you able to watch the full video? I explained in detailed what happened at the center to me.
Thanks for sharing another wonderful video.
I truly appreciate you watching and supporting 🫶🏾
i had the bone marrow/kidney transplant together which decreases meds over time. 2 years post and i’m just on bela once a month. i notice that if i don’t eat before my treatment, i am so tired and nauseous afterwards
I always eat before I go because I have to take my meds in the morning so I never experienced that before. That’s awesome that you only take just the bela. Pray for good health and strength throughout your journey. Stay strong 💪🏾
Thank you for posting this video. Positive channels like yours are needed here on KZread 🎉
Aww thank you I truly appreciate your kind words 🫶🏾 I hope you have a beautiful Saturday
@@CrissyMac💞
My dad tough man was European champion thai boxing. Back late 80s early 90s few of his fights had them on vhs remember he fought 3 guys in one night in a tournament.. lost on decision to a dutch fighter who ended on fighting mma was well known.. but anyway the worst pain I've seen him in is when he had multiple kidney stones he was on the floor in agony 😳 i no this mans tough can take pain fought with broken jaw a burst eardrum .. but when i seen him in that pain and it was kidney stones 😦🙏 plz never let me get kidney stones if he was lying in that much pain i no im going to be rolling around crying infront of my kids im not as tough as him and he said its the worst pain hes felt .. 😮 yeah hopefully i never need to deal with that pain ... when he told me that's the worst pain I've felt 🥺🙏 plz god no kidney stones plz 🙏
Thank you for sharing your dad’s story with me. He sounds like an incredibly tough and resilient man, and it must have been so hard to see him in such pain from kidney stones. It’s truly one of the worst pains someone can experience. While I can’t personally relate to kidney stones, I can imagine how frightening it must be to think about going through that. I had a kidney transplant that’s why I went through this. The important thing is to stay proactive about your health-staying hydrated and following any medical advice that can help prevent kidney stones. Remember, it’s okay to feel worried, but know that you’re strong too. You’ve got the support and love of your family, and if anything were to happen, you wouldn’t be facing it alone. Keep taking care of yourself and lean on those around you when you need to. Stay strong and take it one day at a time. Sending you and your dad lots of positive thoughts and well wishes!
How are you now doing?
Blessed and highly favored 🙌🏾
Thank you for this information 🙏
Absolutely wishing all the best