I have FTD and I m taking supplements Genius Mushrooms otc also MCT 0il sublingual. Enrgy,focus quality of life. Thank God truly
@nanolight43377 ай бұрын
Watched early on when mom was violent and care was virtually impossible. Just rewatched when progressed to behavioral medication to prevent violence to carer. No way to care without the med lorazepam. It however moved mom to bed bound and incountenance care. All in home health suggested nursing home care but we could not afford $6,590 a month! Mom now sleeps 20-22 hours a day without behavioral meds and is edging closer to end of life. Open Bible on lap of carer was the one thing to cause a sundowner bent on violence to turn back. Read the Bible all the way through three times this year to cope with mom’s behaviors. 😢
@johnmartinsen96310 ай бұрын
Ever heard of Therapeutic Ketosis? Keto is not a diet, it is a metabolic state. It has been proven effective in treating many different mental and overall health conditions. Don't trust your physician, dietitian or nutritionist to understand the therapy...their training curriculum was developed by corrupt pharmaceutical and food corporations 😮 I'm praying this message inspires YOU to keep believing there is hope, have faith not fear 🙏🙏🙏
@laurah.160 Жыл бұрын
I have Aspergers'; my Mother has this disease. I am a profoundly big feeling kind of person and her disease literally tried to kill me everyday of my life! But she gave me so much material to study.
@Hashlipe1 Жыл бұрын
Muy claramente explicado....
@TheRedStateBlue Жыл бұрын
my only "hope" with my father's FTD is that something else kills him before he forgets who he is.
@kbs3028 Жыл бұрын
Con que estudios médicos se diagnostica esta enfermedad?
@lauramonserratnunezuvalle391 Жыл бұрын
Ve con un neurólogo
@MarioMoreno-tq1nr6 ай бұрын
@@lauramonserratnunezuvalle391un TAC para ver el cerebro
@oakfat5178 Жыл бұрын
Thank you all so much for your courage and persistence to make as much as you can from what is left to us. I noticed and reported "dementia-like symptoms" beginning 15 years ago. I, and everyone else, thought that having insight was an absolutely excluding condition for FTD, or any other kind of dementia. You've added greatly to my courage to continue seeking a diagnosis and appropriate care. Thank you all from the bottom of my heart.
@jenniferrobinson17922 жыл бұрын
Thank you for explaining this condition. I believe that I have this. It is gradual, but it’s devastating. It has eroded my personality. I told my sister that I don’t want to be remembered this way. I am so sorry that you had to endure this. Nobody deserves this.
@stevewilliams48422 жыл бұрын
Would you like to elaborate a bit?I'm currently going through the same thing and it's just heartbreaking to say the least
@leesadoe24402 жыл бұрын
most mentally ill people out there on the street should be institutionalized too, but thanks to Reagan, California has become a living nightmare and its getting worse. Police will not take these people off the street. Many have severe cognitive decline due to brain disease either aging, trauma or...drug damage etc... these people are out in traffic running in middle of street and highway. Police say it is not against the law, and it is not a "quality of life issue" so they do nothing.
@GlynisWilliams12 жыл бұрын
Thank you
@MrTtheCat3 жыл бұрын
This was excellent! I can say that as an FTDer your website is very confusing...I thought I was fully signed up since last Jan 2019... I just checked again as of Jan 2021... sure enough only on step 2... this is my third or fourth attempt to complete the initial multi step registration... it saddens me that I’ve been avail to participate in research for the last 2 years but it wasn’t know... I strongly suggest revamping the initial website registration process so it’s more achievable for us FTDers... the data is already WAY skewed by “caregivers”... the researchers need to hear from us with FTD... especially those of us WITHOUT known genetic connections... which is MOST of us... & out story seems to be quite different than many of the gene influenced FTDers. Thank u for the great presentation. (Diagnosed age 46 Dec 2018, now 48 1/2...)
@TheAFTD3 жыл бұрын
The FTD Registry is sorry that you encountered difficulties while attempting to sign up. They have been accumulating user experience feedback like yours which, along with items the Registry noticed, has guided the development of a new registration process that is expected to be implemented very soon. The Registry will be reaching out personally to you to assist and verify you were able to complete your registration. Thank you for participating!
@MrTtheCat3 жыл бұрын
Fantastic Fantastic talk! Nature is indeed always there... & walking in cemeteries is a brilliant idea! Age 48, diagnosed FTD age 45...
@MrTtheCat3 жыл бұрын
I wish there were som English slides
@MrTtheCat3 жыл бұрын
This was fantastic, thank u. I would like to (respectfully) strongly disagree on 1 aspect... in actuality MANY of us higher functioning/higher “cognitive reserve/highly educated... HAVE in fact been bringing up concerns to Drs... but especially when under 60 (let alone under 50!!!) we as well as the Drs assume that the issues we r reporting r related to anxiety or depression or stress or fatigue in general... this is very IMPORTANT for Drs to understand... as this is skewing the clinical diagnostic criteria... YES I have been very aware that I’ve dramatically changed... just most often not in the moment... but if asked targeted questions... Drs could have easily noted the dramatic changes in me. And not everyone has a spouse or family to bring them into the Dr... & most importantly what the “Caregiver” describes as going on, & what we the FTDer would describe as actually happening... is often very different... so this again is skewing the data. It is critical that researchers start interviewing FTDers very early... not just caregivers... we in fact could give critical missing pieces of info. I’m age 48, diagnosed age 45. Using all my prior education to use nutrition & lifestyle (physical & mental exercises) to slow down my FTD progression... successfully. What is commonly called “Apathy” is experienced more as a “Laisse Faire” attitude in us... it’s like I see the house is burning down around me... & my reaction is “meh.” Very very bizarre for someone like me who’s had high Self Efficacy all my life. Thank u for everyone’s efforts.
Пікірлер
Thanks for sharing Billy
I have FTD and I m taking supplements Genius Mushrooms otc also MCT 0il sublingual. Enrgy,focus quality of life. Thank God truly
Watched early on when mom was violent and care was virtually impossible. Just rewatched when progressed to behavioral medication to prevent violence to carer. No way to care without the med lorazepam. It however moved mom to bed bound and incountenance care. All in home health suggested nursing home care but we could not afford $6,590 a month! Mom now sleeps 20-22 hours a day without behavioral meds and is edging closer to end of life. Open Bible on lap of carer was the one thing to cause a sundowner bent on violence to turn back. Read the Bible all the way through three times this year to cope with mom’s behaviors. 😢
Ever heard of Therapeutic Ketosis? Keto is not a diet, it is a metabolic state. It has been proven effective in treating many different mental and overall health conditions. Don't trust your physician, dietitian or nutritionist to understand the therapy...their training curriculum was developed by corrupt pharmaceutical and food corporations 😮 I'm praying this message inspires YOU to keep believing there is hope, have faith not fear 🙏🙏🙏
I have Aspergers'; my Mother has this disease. I am a profoundly big feeling kind of person and her disease literally tried to kill me everyday of my life! But she gave me so much material to study.
Muy claramente explicado....
my only "hope" with my father's FTD is that something else kills him before he forgets who he is.
Con que estudios médicos se diagnostica esta enfermedad?
Ve con un neurólogo
@@lauramonserratnunezuvalle391un TAC para ver el cerebro
Thank you all so much for your courage and persistence to make as much as you can from what is left to us. I noticed and reported "dementia-like symptoms" beginning 15 years ago. I, and everyone else, thought that having insight was an absolutely excluding condition for FTD, or any other kind of dementia. You've added greatly to my courage to continue seeking a diagnosis and appropriate care. Thank you all from the bottom of my heart.
Thank you for explaining this condition. I believe that I have this. It is gradual, but it’s devastating. It has eroded my personality. I told my sister that I don’t want to be remembered this way. I am so sorry that you had to endure this. Nobody deserves this.
Would you like to elaborate a bit?I'm currently going through the same thing and it's just heartbreaking to say the least
most mentally ill people out there on the street should be institutionalized too, but thanks to Reagan, California has become a living nightmare and its getting worse. Police will not take these people off the street. Many have severe cognitive decline due to brain disease either aging, trauma or...drug damage etc... these people are out in traffic running in middle of street and highway. Police say it is not against the law, and it is not a "quality of life issue" so they do nothing.
Thank you
This was excellent! I can say that as an FTDer your website is very confusing...I thought I was fully signed up since last Jan 2019... I just checked again as of Jan 2021... sure enough only on step 2... this is my third or fourth attempt to complete the initial multi step registration... it saddens me that I’ve been avail to participate in research for the last 2 years but it wasn’t know... I strongly suggest revamping the initial website registration process so it’s more achievable for us FTDers... the data is already WAY skewed by “caregivers”... the researchers need to hear from us with FTD... especially those of us WITHOUT known genetic connections... which is MOST of us... & out story seems to be quite different than many of the gene influenced FTDers. Thank u for the great presentation. (Diagnosed age 46 Dec 2018, now 48 1/2...)
The FTD Registry is sorry that you encountered difficulties while attempting to sign up. They have been accumulating user experience feedback like yours which, along with items the Registry noticed, has guided the development of a new registration process that is expected to be implemented very soon. The Registry will be reaching out personally to you to assist and verify you were able to complete your registration. Thank you for participating!
Fantastic Fantastic talk! Nature is indeed always there... & walking in cemeteries is a brilliant idea! Age 48, diagnosed FTD age 45...
I wish there were som English slides
This was fantastic, thank u. I would like to (respectfully) strongly disagree on 1 aspect... in actuality MANY of us higher functioning/higher “cognitive reserve/highly educated... HAVE in fact been bringing up concerns to Drs... but especially when under 60 (let alone under 50!!!) we as well as the Drs assume that the issues we r reporting r related to anxiety or depression or stress or fatigue in general... this is very IMPORTANT for Drs to understand... as this is skewing the clinical diagnostic criteria... YES I have been very aware that I’ve dramatically changed... just most often not in the moment... but if asked targeted questions... Drs could have easily noted the dramatic changes in me. And not everyone has a spouse or family to bring them into the Dr... & most importantly what the “Caregiver” describes as going on, & what we the FTDer would describe as actually happening... is often very different... so this again is skewing the data. It is critical that researchers start interviewing FTDers very early... not just caregivers... we in fact could give critical missing pieces of info. I’m age 48, diagnosed age 45. Using all my prior education to use nutrition & lifestyle (physical & mental exercises) to slow down my FTD progression... successfully. What is commonly called “Apathy” is experienced more as a “Laisse Faire” attitude in us... it’s like I see the house is burning down around me... & my reaction is “meh.” Very very bizarre for someone like me who’s had high Self Efficacy all my life. Thank u for everyone’s efforts.