Living Beyond Breast Cancer
Living Beyond Breast Cancer
Living Beyond Breast Cancer is a national nonprofit organization that seeks to create a world that understands there is more than one way to have breast cancer. To fulfill our mission of providing trusted information and a community of support, we offer on-demand emotional, practical, and evidence-based content that is meaningful to those newly diagnosed, in treatment, post-treatment, and living with metastatic disease.
For over 30 years, Living Beyond Breast Cancer has imparted wisdom and connection via conferences, events, a peer-to-peer helpline, and more. Today, we remain committed to creating a culture of acceptance-where sharing the diversity of the lived experience of breast cancer fosters self-advocacy and hope.
Learn more at LBBC.ORG.
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Thank you ❤
Well done young gals❤. I coached under 30 that included my wife for U-30 Soccer. At almost 79 with, congested Heart and two stents what do you suggest ? Thanks
Thank you for your comment. Since we are unable to answer specific medical questions or provide medical consultation, we encourage you to speak to your team of providers to learn more about this concern and to get answers based on your unique medical situation. Thanks again for your comment and we hope this information is helpful to you.
Good news on The Right Choice Study. Note that endocrine therapy can also be used neoadjuvantly to shrink a mass in early-stage breast cancers. This again, gives patients the option to forego chemotherapy for endocrine therapy + targeted therapy (CDK 4/6 inhibitors). This is an FDA approved path which can be used in advanced stage 2 and stage 3 hormone positive breast cancer (typically presenting with nodal involvement). One can also understand that perhaps with the less aggressive treatment there are less aggressive responses from the cancer itself outwitting treatments. With less aggressive treatments sometimes outcomes are just better and less is actually more. This means less chemotherapy-induced metastatic disease. We still need to keep chemo in our arsenal, but we should only use it when absolutely needed. the following paper discusses understanding how low dose and less aggressive options may spare patients from more aggressive responses from the disease itself This is very important to understand because we can see that with cases like Shannen Doherty's case, her cancer's response to aggressive treatment was only to get more aggressive. This is a cautionary tale that presents us with many seeming catch 22s. On the one hand we want to be aggressive with cancer and try to eradicate it, but on the other hand we need to proceed extremely cautiously. Learn more: aacrjournals.org/cancerres/article/79/18/4567/638281/Chemotherapy-Induced-Metastasis-Molecular
🇯🇵 😊
What is the longest someone can live with metastatic cancer to the bone? My oncologist hasn’t known anyone who has past 4 years. He also does not recommend surgery to remove the tumor on the pelvic bone which has stabilized since chemo & radiation but is expected to become active and spread as is the nature of bone Mets. Is there nothing that can help someone other than chemo and radiation for new spread sites, which, treatments themselves, weaken bone?
Thank you for your comment. Here is a link to more information about bone mets on our website: www.lbbc.org/about-breast-cancer/types-breast-cancer/metastatic-breast-cancer/bone-metastases Since we are unable to answer specific medical questions or provide medical consultation, we encourage you to speak to your team of providers to learn more about the latest treatments and to get answers based on your unique medical situation. Thanks again for your comment and we hope this information is helpful to you.
I love this series! I heard about it from a friend who is a cancer survivor. I am not, but I have had three joint replacements (one shoulder, two knees) and I've been looking for a routine that has adaptations built into it--this does, and works so well for me. Three options of movement are offered for each routine, which works well (for example, I can't kneel because of the. knee replacements, so floor work is not an option, but I have a lot of stamina, so I can do the higher level options for routines that aren't on the floor). I also like the circuit nature of the exercises--not too much time on any one activity. Thanks for this, Sami!
Thank you for your comment. We are delighted that you have found this series helpful! We wish you continued good health.
Very helpful video.
To know in Tamil language
I am having rare iimmune check point inhibitor related neuropathy and cholangiopathy- with everything stopped from 1 + month now - the liver enzymes are still up and down and up again.... I am super health and doing everything iincluding organic plant based 99% except an egg once in a while and I exercise daily... (walking and biking)....
Thank you for your comment. Here is a link to more information about exercise and nutrition on our website: www.lbbc.org/about-breast-cancer/wellness-body-image/nutrition-exercise Since we are unable to answer specific medical questions or provide medical consultation, we encourage you to speak to your team of providers to get answers based on your unique medical situation. Thanks again for your comment and we hope this information is helpful to you.
A caring Doctor is noe truly a rare thing. Bless you.
My cancer is HER 2 neg. Estrogen positive plus squamous cell 10 per cent. Surgery done plus 22 lymph nodes removed six had cancer cells. Any recommendentations? tumour grade 3.
Thank you for your comment. Here is a link to more information about HER2-negative breast cancer on our website. www.lbbc.org/about-breast-cancer/treatments/targeted-therapy/for-triple-negative Since we are unable to answer specific medical questions or provide medical consultation, we encourage you to speak to your team of providers to get answers based on your unique medical situation. Thanks again for your comment and we hope this information is helpful to you.
Can you please provide what kind of exercise is safe to do for osteoporosis with bone meds spread to spine. Thanks for sharing
Thank you for your comment, @veenathummala6469. Here is a link to more information about exercise on our website, and a link to our BeACTive exercise videos for people with breast cancer: www.lbbc.org/about-breast-cancer/wellness-body-image/nutrition-exercise www.lbbc.org/about-breast-cancer/wellness-body-image/nutrition-exercise/exercise/beactive-exercise-series Since we are unable to answer specific medical questions or provide medical consultation, we encourage you to speak to your team of providers to learn more about exercise and bone mets and to get answers based on your unique medical situation. Thanks again for your comment and we hope this information is helpful to you.
Hi, the first doctor indicated that radiation is used to stop breast cancer in the bone from growing, but the second doctor mentioned only given for pain, did I understand this correctly?
Thank you for your comment @christineavarro7641. Here is a link to more information about radiation on our website. www.lbbc.org/about-breast-cancer/treatments/radiation-therapy Since we are unable to answer specific medical questions or provide medical consultation, we encourage you to speak to your team of providers to learn more about this concern and to get answers based on your unique medical situation. Thanks again for your comment and we hope this information is helpful to you.
I am so glad I found these workouts! They are perfect for me
Thank you @wiebkepapenfus4189 We are glad you found this workout series helpful. You can find more reroutes for exercise and nutrition on website here: www.lbbc.org/about-breast-cancer/wellness-body-image/nutrition-exercise
They are so expensive to purchase. We are ALREADY going through a lot and having to pay so much for a bra so that we can mentally feel better is such a jab. YES, I did order one and didn't care for the fit or the sizing; so I found a bra that did the same thing at TARGET and provided a better support. Please make these type of bras MORE affordable, we are just trying to make it.
Thank you for your comment. We're glad you found a solution that works for you. If you still need bras, you can find resources for free, buy one get one, and discounted post-surgery bras, as well as information on insurance coverage of these garments here: www.anaono.com/blogs/dressing-room/free-bras-for-breast-cancer-survivors-via-pink-warrior-advocates Good luck!
Thank you.
Dr. Copit took care of my reconstruction over 20 years ago and then , my daughter 16 years later. He is a gifted and awesome surgeon. God bless him.
Dr. Copit took excellent care of me and 16 years later , he took excellent care of my daughter. God bless him.
I had a lumpectomy for LCIS. Can that morph into invasive
Thank you for your comment. Here is a link to more information about lobular breast cancer on our website: www.lbbc.org/about-breast-cancer/types-breast-cancer/lobular-breast-cancer Since we are unable to answer specific medical questions or provide medical consultation, we encourage you to speak to your team of providers to learn more about this concern and to get answers based on your unique medical situation. Thanks again for your comment and we hope this information is helpful to you.
Jennifer Frenke from Cobourg ?
Thank you for your comment. This video features Jennifer Schelter.
I came across your channel and I’m so happy that I did❤I’m trying to recover from three years of a Fighting breast cancer alone😊
Thank you for your comment. We're so glad you found us and found the content helpful. Below is a link to some information about our online support groups: www.lbbc.org/about-breast-cancer/emotional-health/online-breast-cancer-support-groups Thanks again for your comment and we hope this information is helpful to you.
Which cold cap did you use ?
Thank you for your comment. Here is a link to more information about cold capping on our website, as well as some personal stories. www.lbbc.org/about-breast-cancer/side-effects/hair-loss/scalp-cooling-help-prevent-hair-loss Since we are unable to answer specific medical questions or provide medical consultation, we encourage you to speak to your team of providers to learn more about recommended cold capping therapies based on your unique medical situation. Thanks again for your comment and we hope this information is helpful to you.
I don’t know how I could be diagnosed with stage for breast cancer last April I had stage 1b1 scamocell cervical cancer when through chemotherapy total hysterectomy and radiation plus bracky therapy. I October 2023 I was told I was cancer free it was all gone. 3 months later I have a pet scan and I’m told I have Her2 positive er and pr negative stage for Brest cancer after a biopsy. There is no cancer in my breast. It’s in my liver virginal wall stomach. They can’t find the primary what could have caused this. None of the cancers were more than 16mm. I have since had paclitaxel and trastuzumab pertuzumab in combination. I have been to,d I have to be on trastuzumab and pertuzumab for the rest of my life. My question is how could this happen. The second question is there a vaccine coming out for someone like me if so when.
Thank you for your comment. It's difficult to hear that you may need to be in treatment for the rest of your life. Here is some additional information on coping that may be a comfort: www.lbbc.org/about-breast-cancer/emotional-health/emotional-stages-cancer-diagnosis Since we are unable to answer specific medical questions or provide medical consultation, we encourage you to speak to your team of providers to learn more about your option, including any vaccines currently in development, and to get answers based on your unique medical situation. Thanks again for your comment and we hope this information is helpful to you.
@@LivingBeyondBC thank you so much
Halleluja
This was so informative. It always calms me down when listening to an objective fact based analysis of BC recurrence risk. Based on this information, my risk of recurrence is relatively low.
But the before and after look the same!
Rest in peace, Sheila.❤
Sun ☀️ is burning your skin
Scarring 😐🫤😕😮😯😵
Oils would be good for your skin
Sunscreen is not bad for then skin buy one without chemicals and dye
I would also wear earrings and makeup 💄
I would go for breasts implants and breasts reconstruction
I would never wanna remove my breasts from where it belongs
Tattoos are art 🎨 but i would put any on my chest or arms or legs
Dyes are amazing without chemicals
Violet
Lavender 🪻
Aloe vera gel
Dark or light skin
Why remove your lovely 🌹 breasts 1:20
Lovely❤
I will never remove my breasts
Thank you sista/docs. Extremely helpful.
Glad it was helpful!
I was able to cure my bone cancer permanently using Dr. Obehi Herbal Home's herbal remedy on KZread......