The National Stroke Foundation is a national not-for-profit organisation that works with stroke survivors, carers, health professionals, government and the public to reduce the impact of stroke on the Australian community.
We are the voice of stroke in Australia. Our mission is to stop stroke, save lives and end suffering.
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I had a stroke only 4 weeks ago, my sleep is terrible, I'm not a big sleeper anyway, my advice is go to sleep as the Sun goes down, if you can hook into the diurnal rhythm your sleep will be maximised, even if you only sleep 3 or 4 hours, it works for me.
Try smelling cloves I know it sounds funny I had a stroke back in 2022 just a month after my 31st birthday it hasn’t been easy mentally I felt out of place and all that but recently I started chewing one clove before bed and I must admit I get to sleep faster and I’m so relaxed if I smell the cloves it helps me relax💜 also I noticed since I contracted Covid during 2020 my breathing was off but since taking chewing a clove or two before bed I noticed no issues sleeping at all no breathing issues and I usually sleep with the air on because it’s so hot but lately I have not had to do that as much and I can also squat again so I hope this helps someone don’t give up💜🫶🏽 I would say try one clove every night and see how it works for you and come back to comment I hope and pray it helps you all as well🫶🏽 trying chewing one up and then swallowing it helps with tooth aches as well research it for yourself🫶🏽
Gosh I'm 4 years into my recovery with left side paralysis and my emotions are all over the place. I was never a Cryer now i try my hardest not to because that seems to be a go to emotion for me. I was watching Scooby-Doo the other day and at the end of it I was bawling my eyes out. I'm really trying to control this. I avoid ppl now as much as I can
HI my name is Judith Beavis.. I said yes to paying Stroke Foundation $30 a month...bu,t I now have face the facts that I cannot afford this amount each month as Ihave a grandaughter who is having severe financial problems and has to pay for ongoing school fees ..2 out of 3 are needing braces on their teeth and 2 of them have ADHD and need ongoing Ritalin to keep their behaviours from getting out of control..Only one person can help her with medical.dental and educational costs and that is myself so I intend to pay for her ongoing financial problems and help her to get on top of her huge financial commitments...I thoughtCu Ould but I can't do everything that I would like to support.. Maybe things will change in the future but for now I have to say no to Stroke payments as I just can't afford it.. . Please accept my feelings of not being able to fulfil my commitment to you but my family must come first... Judith Beavis
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What a great conversation and one that we need to talk about more often!
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I'm going on 9 years post stroke. It's gotten a lot harder for me in the past few years especially since I moved to another state, I have to rely on myself more to get things done. Best advice, except that some days will be harder than others, Pace yourself and plan things out, don't give yourself to much to do in one day, Prioritize Sleep and try to get 10 hours of sleep every night. More sleep is necessary for stroke recovery. Here's some info that might better explain Post Stroke Fatigue; www.ncbi.nlm.nih.gov/pmc/articles/PMC3263555/ This info here on sleep might help you realize how vitaly important it is for everybody kzread.info/head/PLmstweMnsfa90oUgKC8NshXC5Xsw0Ridv&si=LwJPalBN_BRwgTNe You can also checkout my playlist Stroke/Brain Attack Info for more info on stroke on my channel
Well I for one am happy he is sorry😂❤ haha
I found fatigue was a major symptom after my stroke even after 4 years but since I changed my beta blockers to a slow release tablet called Diltiziem suggested by the cardiologist I have felt much better. I’m also in a fib most of the time so sure that contributes to the fatigue. I’m trying to build myself up to doing more in each day rather than just one thing. I’m also napping less. This is making me feel far more positive. Thank you ☺️
I'm stroke too
@Motusnova has been helpful device to keep my wrist flexible and stretched repetitively especially on cold days. yoga toes helps for toe curling
Very helpful ❤️
Hi there, you may find these sites helpful too: www.enableme.org.au and young.strokefoundation.org.au/ - Diana
I was 27 when I had my stroke, severe tbi, brain bleeding and emergency craniotomy; it is a miracle I am even here and cognitively aware. I am 8 years post stroke and still deal with fatigue, as well as many other things. It is hard to be 34 raising a young child and have all the motivation and energy to do everything I need and desire to do. I appreciate this info as it makes me not feel so crazy and lazy, as what some others may see and not understand what I deal with internally, physically, mentally, emotionally and spiritually daily since all these health issues. Thanking you for this.
The problem really is brain fatigue. The body can do it but the brain really fets exausted😅
I had a stroke about 7 years ago and people acted like it was not a big deal because I had no paralysis. As a result my job pushed me too hard, adding to my workload until I had a seizure and nearly died. Now my emotions are all over the place, from rage to sorrow. I feel like I lost who I was and there is no one to replace him.
I can relate to that feeling of losing one's self. Hope ur doing better now❤
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The FAST thing is completely ineffective!! I nearly died from a stroke because I passed the "FAST" test my husband gave me so we didn't call an ambulance. Alll my tingling & numbness was in my left LEG but my Face, Arms, Speech were all fine so we lost hours of Time because we didn't realize I was having a stroke. This needs to be updated!!
THANKS YOU GOODNESS 🌟 DAPHNE COTTON ALWAYS 💜
LOVELY, THANKS YOU GOODNESS 🌟 DAPHNE COTTON ALWAYS 💜,
I was weeping when i watched this video. I felt and experienced everything you have said . I am depressed every single day. I live alone , no one comes near me. Where to now ? I don't know.
Two and a bit years post stroke. Some day good , some days bad.
So is a stroke just brought on from high blood pressure?
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Thankyou Miriam...i so so understand. i HATE strokes so much- it has devastated our lives. I can't even bring myself to donate when i see the Stroke Foundation collecting.
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I love Miriam ❤
I'm one of the stroke person❤
Two strokes, can't sleep after second stroke, don't want to use drugs, melatonin failing. Always tired but can never sleep for long. Always wake up. 190 lb 65 yr old female. Only take 1 med for bp. Eat twice a day. Coffee in the mornings. Cant exercise so tired but cant sleep. Where can i find more info about this condition?
My mother was never able to recover mentally and emotionally from her hemorrhagic stroke (not massive, but severe). Interestingly, she recovered very well physically; in fact, she was able to walk like she did before the stroke. And her hand was almost back after a year with only a little weakness in the affected hand and fingers. Her memory and speech were excellent after 4 or 5 months. But, sadly, that is where the party stopped. She was an insomniac with OCD with regards to temperature. She would reset the thermostat 20 times a night. She wanted heat on when it was 80 degrees in the house LOL. She gave off a terrible nervous energy that would only go away for an hour or so a day. She would stare blankly and often say that she wanted to die (she was in her 70's). Her apathy got worse and worse, so much so that she didn't want to do anything, even though she had real ability to do simple things like wash clothes, do dishes, cook a little, play solitaire, etc. Emotionally, she couldn't be helped. We did everything possible. The last year of her life is when she started to become very, very unreasonable to the point where she no longer wanted to wash her hair, brush her teeth, take her contacts out at night, etc. She declined even more mentally (not her memory or speech). 2 years post-stroke, she had 2 massive seizures, which caused more brain damage. They said she had no signs of post-stroke dementia, but we came to realize that she was at the end of the road. We feared we could no longer care for her at home. That concern disappeared, however, when she got sepsis 4 weeks after her seizures, dying just 4 days later. We lost her while she was alive, as she wasn't the same person anymore, even though there were real remnants of her that would show through at times. On a good day, she may have been 70% her old self, but it would only last an hour or so. I don't like to feel sad about it. It is what it is. She had a good life overall, but the stroke sadly did her in. Oh well...we love her and miss her, but we would never want her back like she was during the stroke, even though we got used to the "new her" after the stroke. It was just pure suffering for her and those taking care of her. I think she was robbed of 10-15 years of life, but it is what it is. I thought she'd live to over 85, but life takes us by surprise. We just don't have control over such things. Haola! All is well, getting better somehow.
Understand
If a patient has dialated eyes, inability to read, eyes that roll to the right and upward, slow speech, euphoric feeling, urge to giggle, tired and eyes wanting to close/roll back in head, slow thinking and some confusion, able to talk….15-30min episode. Afterward had memory, attention, recall deficits and visual rotation in recall of images during Rey complex figure test. Days afterward patient felt slow, very tired, mixing right and left, but otherwise functioning. Some mild expressive/receptive aphasia and slowed speech continues. Still reports episodes of confusion intermittently. MRI/CT normal. Hx of high BP, arrhythmias, slurred speech, electrolyte abnormalities, autonomic dysfunction, autoimmune disorder and additional stroke like episode of confusion/disorientation, garbled speech, wandering, myoclonis, and imbalance. Where to start with this patient? What is most likely?
the brain has to work harder after a stroke because the signals repeatedly get roadblocked at the dead spot and double back and seek a new route. theres tons of extra work for the same calculation, even if you dont know it. so doing stuff that used to be easy is now very tiring. its really very logical. after a stroke, everything is just more tiring.
Hospital food might cause ‘mushy’ faeces. Being in control of your food enables you to ‘time’ bowel movements and influence creative a more bulky stool.
Thank you. I’m trying to support my mom who just had a stroke and is having trouble seeing life can continue. 🙏❤️
Im unvaxinated but i pray for my loved ones to survive this evil
It is a very emotional thing. I am 4 months post stroke, I cry at the drop of a hat any more. Cant write because right side affected, but Praise God getting stronger and better everyday! But dont think I will ever be the same. I Pray a lot, talk to God a lot, and am very thankful to still be breathing. 🙏🏻✝️🙏🏻❤
Hi Paula, here is some information about emotional changes after stroke, including emotional lability enableme.org.au/resources/emotions - Diana
Hi, Brian. Well done and to quote Robert Crumb Keep On Trucking. My first anniversary is on the 29 April but I was luck as mine was a TIA so I was in and out of the hospital in just two days. I am almost fully recovered now but the biggest pain in the trouser seat is that at 67 I am having to learn to write again. But I am getting there.
Thanks Brian - you’re very inspiring ❤
Strok recovery. Time
Since my significant stroke on Jan 6th of this year, I have noticed that I sometimes say things I never would have said before. It bothers me because it has damaged friendships and I don't seem to have much control over it. I tend to be totally honest about myself without causing embarrassment to others, but this is causing problems that I can't rectify. I don't think I'm trying to use the stroke as an excuse for bad behavior.
Hi Mike, it is quite common after stroke to have a change in personality. Here is some more info: enableme.org.au/resources/personality-changes - Diana
My dad changed after stroke!! 😢 he is overly sensitive and he became different person.. im sad because I love him so much…
5 years post stroke, completely exhausted physically and mentally
Beautiful Miriam Margolyes xx
I love Miriam, she is well-educated woman and her English is perfect 🥰 💞
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