Welcome to Quirk House! We are Kaitlin and Nicholas, and this is our family channel! We are both a little quirky, so be prepared for some fun, random videos on this channel!
Sounds like me. Have you been tested for Lyme Disease or Mold Toxicity?
@charlottestandage2765 Жыл бұрын
Are you certain they are correct when saying your not hypermobile. I didn't think I was as the first rheumatologist said I wasn't hypermobile. Granted she looked away when I was doing the Beighton score and it was like she didn't want to see it. I told the first rheumatologist that my identical twin sister had been diagnosed with hEDS and she didn't believe me. So I printed out my sisters diagnosis letters and bought them to my me to appointment at the hypermobility clinic in London and was told I score 7/9 on the Beighton scale. So some doctors don't understand how to do this part of the criteria. Even I thought that I wasn't hypermobile, so you can be wrong about it too. Best wishes on your journey. Xxx
@roseobeng45232 жыл бұрын
What age did u have the feeding tube ?
@acel7212 жыл бұрын
I know this is a really old video but have you looked into MCAS? I know a lot of people can’t eat or can’t eat a lot with it and it happen with POTS a lot.
@ansfridaeyowulfsdottir80952 жыл бұрын
Can you eat while you have the tube in place? {:-:-:}
@Isabella-nt6kj2 жыл бұрын
I won't ever forget this hvs2 situation through Dr ado he make me great
@shirley63772 жыл бұрын
I get Cured ured completely with the help of Dr Ado herbal medicine thank you so much for making me smile again 🤗🤗
@Jonezie82 жыл бұрын
Wow, we are so similar!
@faithjanney17813 жыл бұрын
Am so grateful to meet with DR Rorpopor herbal on KZread for helping me to cure my herpes ❣️ totally with his herbal medication God bless you DR Rorpopor herbal on KZread 🤝🤝🤝💯you can contact too for any kind of sickness, Doctor Rorpopor herbal is a God sent to the world......🌹🌹
@suzq27443 жыл бұрын
You could always sauté the veggies in veggie broth instead of oil if it’s easier on your tummy
@suzq27443 жыл бұрын
MCAS could also explain your sensitivities to medications and why you develop a tolerance
@suzq27443 жыл бұрын
If you don’t have EDS you might have MCAS (Mast Cell Activation Syndrome) the symptoms can be very similar to EDS & causes joint pain
This was incredibly well done! And so informative, it was really good to see how the one tube can be both G and J. It was so good to get the visual, thanks for this video
@daveborden25723 жыл бұрын
Hey,Great video!!I want to convert from daytime feeding to nightime feeding during my sleep.I am wondering what position do you sleep in while feeding? I can't imagine laying flat on back.I sometime sleep in my recliner anyways,does that seem like the right thing to do?
@karenmertz73203 жыл бұрын
Hi, Did they look for MCAs (mast cell activation syndrome) because it can also cause pots and muscle pain, among other things. Hope you'll find what's going on. ;)
@mariachacin11483 жыл бұрын
Do you feel any difference between tubes? My daughter had a G, then it was switched to GJ, since that she is very irritable, has colics when has a BM. She has cerebral palsy and is not verbal. I have the feeling that is uncomfortable for her. One time she had an intussuception and was very painful.
@quirkhouse98183 жыл бұрын
I don’t feel a difference with mine, other than some symptoms relief with using the J. But everyone is different, and a GJ might not be best for her! I would bring it up to her doctors and see what they think!
@quinn20143 жыл бұрын
I never had that stuff for my tube when I had one I had to use silver nitrate and that shit hurts. Your site actually looks really healthy.
@quirkhouse98183 жыл бұрын
Silver nitrate is the worst! This definitely burns too, but not as much as silver nitrate. It’s the only thing that has helped my tissue!
@annaWdbn3 жыл бұрын
Are you still searching for a diagnosis? I have POTS from my mast cell activation syndrome and bruise easily and have joint pain and odd reactions to meds.
@quirkhouse98183 жыл бұрын
Yes, still looking! I have POTS as well. Mast Cell and connective tissue issues are not out of the question for me, they’re just so difficult to get a definitive diagnosis for. It sounds like we’re very similar!
@MsRebel3 жыл бұрын
How do they test for mcas?
@annaWdbn3 жыл бұрын
@@MsRebel They test for heparin, chromogranin a, histamine, Prostaglandin D2, and Leukotriene (LT) E4. Tryptase to rule out mastocytosis.
@MsRebel3 жыл бұрын
@@annaWdbn mastocytosis is different than mcas though right? Like mcas is less severe? Idk...
@annaWdbn3 жыл бұрын
@@MsRebel mastocytosis is too many mast cells where mcas is over active mast cells. Both can be pretty devastating to the body because they both result in excess mediators.
@annaWdbn3 жыл бұрын
Were you ever able to get a diagnosis for your GI?
@quirkhouse98183 жыл бұрын
Not yet. I am working with a new Functional Medicine Doctor now, so we’re hoping to find something through her.
@annaWdbn3 жыл бұрын
@@quirkhouse9818 I'm sorry you haven't found what is wrong. I was just diagnosed last year but had problems all my life. I mentioned MCAS in another comment but mine presented purely GI up until 2 years ago. Sometimes it just takes time for the disease to advance enough to diagnose. A lot of the comments you have made align with MCAS though. Its often missed because doctors will only test for one mast cell disorder, mastocytosis, but MCAS is actually more common. I could be totally wrong and just projecting but honestly my MCAS would have taken my life if I wasn't able to intervene so sorry if this is annoying. You probably get stuff like this all the time.
@quirkhouse98183 жыл бұрын
No, thanks so much for sharing!! It is encouraging (in a way) to hear stories like this, though I’m sorry you have to deal with this as well. The bulk of my symptoms stem from GI as well, and most of my fatigue is directly linked eating food, which is why my tube helps so much (at the time of this video, I was in somewhat of a remission). I have tried some treatment for mast cell, just Incase. But I either couldn’t tolerate it or it didn’t do anything to help. But it’s definitely not out of the question. 💛
@mikailaguerra30673 жыл бұрын
When Nicholas handed the lamp with his feet bwahaha
@quirkhouse98183 жыл бұрын
Haha! I’m not sure I even noticed that before! 😂
@quirkhouse98183 жыл бұрын
We linked the test that we took in the bio, but we usually prefer to take the test from this link: www.eclecticenergies.com/enneagram/dotest . It was too long to take for video purposes, but it may yield more accurate results! Sometimes, a test can mistype you if the questions are not extensive enough.
@naomigreen69573 жыл бұрын
It said I was a nine too but on the pie chart 6 looked equal. I'm definitely a six though.
@quirkhouse98183 жыл бұрын
That’s so strange! I did test high for 6 this time as well. I had been questioning myself and my belief that I was a 2 this entire time, but I guess this particular test might mistype people a lot!
@bluehoof3 жыл бұрын
This test gave me 9
@quirkhouse98183 жыл бұрын
Really?? Thats interesting, since it told me a different number too. Maybe because it isn’t as lengthy as other tests are, so there’s less question variety. Thanks for sharing!
@naomigreen69573 жыл бұрын
Ok well now I have to see what it gives me... 🤣
@ashleykendig23163 жыл бұрын
Looks like so much fun!! I thought Nicholas was going to cut himself when he was cutting up the apples haha
@quirkhouse98183 жыл бұрын
Hahaha! He always gets concerned when I cut fruit. Doesn’t seem to trust me with knives 😂 except for this occasion.
@heatherfurman59684 жыл бұрын
Thank you for sharing your story! I have POTS and it's helpful to hear other peoples stories. Have you checked for food allergies? My cousin had sores in his throat and his stomach shut down and all the doctors couldn't find out what was wrong. He did a blood test for 200 foods and found out he is sensitive to dairy and eggs. Now he is totally healthy. I also did the same test and have 16 foods my body is sensitive to. I have been working with a nutritionist and it has made a huge difference for me. I hope things improve for you!
@quirkhouse98184 жыл бұрын
I had extensive allergy testing done years ago, and I had very mild “reactions” to a several things, but my stomach will hurt no matter what I put in it. I’ve gone off several foods for periods of time, but it didn’t make any improvements. I’m so glad you have had some improvement though!! Thanks for connecting with me!
@GeorginasJourney4 жыл бұрын
This made me want to try it 😂
@quirkhouse98184 жыл бұрын
Haha you totally should!! Let us know how you do! ☺️
@wtscl4 жыл бұрын
Poor Nicholas!
@melodygough22764 жыл бұрын
😆😆 he's a good sport!
@naomigreen69574 жыл бұрын
Too funny. Love your blue floral t-shirt in the end!
@quirkhouse98184 жыл бұрын
Thanks!! It was from a friend’s fundraiser.
@ashleykendig23164 жыл бұрын
Love Sassy's Ponytail! And a very pretty farm! :-D
@quirkhouse98184 жыл бұрын
Do you recognize the quote on the letter board at the end?? Comment below your guess of what it's from!
@megancollingwood88934 жыл бұрын
I just saw your video where you said you were misdiagnosed with eds... weird, most people are misdiagnosed with a whole bunch of other things before they get their true diagnosis of eds.
@megancollingwood88934 жыл бұрын
Have you heard of gastroperesis? I saw on one of your other videos that you have pots and it isn’t unusual for people with dysautonomia/pots to also have gastroperesis. Ehlers danlos syndrome is usually the main condition that is thought to cause this group of comorbidities.
@quirkhouse98184 жыл бұрын
Yes, I actually have rapid emptying! I’ve had a large variety of GI testing done in the past, and nothing really led to an explanation that makes sense of my symptoms. And then for EDS, the reason I was originally diagnosed is because it helped link my pots and GI issues together. But since then, many doctors believe I don’t have it, because I am not hypermobile and do not dislocate/subluxate. It’s tough to know who to trust. 🤷🏼♀️ But for me right now, having a diagnosis of EDS or not wont change much of my current treatment. Thanks for sharing!
@mackenziehacker77874 жыл бұрын
Way does you need a g tube can you eat by mouth how about drink by mouth
@quirkhouse98184 жыл бұрын
Good question! I am actually fed through my intestines, so it skips past my stomach. Even drinking liquids causes stomach pain and major fatigue for me. Eating/drinking “too much” at once causes a lot of nausea. I wish I could just drink it 😊 I’m just not able to drink enough of what I need without causing symptoms.
@mackenziehacker77874 жыл бұрын
@@quirkhouse9818 okay
@stitch_andherhuman18884 жыл бұрын
I have chiari, pots and many other health conditions. It took many years to get answers and I had decompression surgery. Thank you for sharing!
@quirkhouse98184 жыл бұрын
Thanks for watching! Hope you are well 💛
@GeorginasJourney4 жыл бұрын
Looks great! And you’re a natural vlogger Nicholas, great job with the video too!
@quirkhouse98184 жыл бұрын
Thanks so much!
@sheliaj.314 жыл бұрын
Great job 👏
@quirkhouse98184 жыл бұрын
Thank you! 😃
@jamhands42384 жыл бұрын
Can't wait to see where the channel goes! I'm staying subscribed for sure!!! 🤎🤎
@melodygough22764 жыл бұрын
I'm glad Sassy is getting her 5 minutes of fame! :)
@sheliaj.314 жыл бұрын
I am also excited to see your videos.
@jodiquinlivan43424 жыл бұрын
Oh Sassafras...
@seleldjdfmn2214 жыл бұрын
Here before 300 Subscribers. What drives you to do better at something? also, Let's be youtube partners =O
@quirkhouse98184 жыл бұрын
I would say just knowing that I will have accomplished something at the end of it. That is enough of a reward for me!
@jamhands42384 жыл бұрын
The fort was so cool! I don't usually think about doing outside the normal day-to-day things, but that looked like fun! Can't wait to see where your channel goes as more of a family channel! ☺️
@naomigreen69574 жыл бұрын
A- adorable shorts B- so funny when you threw sassy! C- I was looking at that white lamp on Amazon, so cute!
@naomigreen69574 жыл бұрын
D- I love patchwork!
@naomigreen69574 жыл бұрын
E- did you just say 2 and 1/2?
@quirkhouse98184 жыл бұрын
C- oh, funny! We love ours (we have two)! Esther is actually the one that bought them from our registry! D- it was your Patchwork that made me fall in love with the game! E- hahaha omg! 😂 Two and a half meaning two and a sass 😉
@anhlovesuu4 жыл бұрын
Loved this video! Excited to see the new parts of your channel! 💗
@quirkhouse98184 жыл бұрын
Thanks girl! 😊
@GeorginasJourney4 жыл бұрын
You guys did such a great job! And that was so funny when you were in there 😂 Ps, your dog is soooo cute!
@quirkhouse98184 жыл бұрын
Hahaha! Aww, thanks! She thinks she’s cute too! ☺️😂
Пікірлер
Congratulations ❤
How those electrolytes taste like? Salty?
Sounds like me. Have you been tested for Lyme Disease or Mold Toxicity?
Are you certain they are correct when saying your not hypermobile. I didn't think I was as the first rheumatologist said I wasn't hypermobile. Granted she looked away when I was doing the Beighton score and it was like she didn't want to see it. I told the first rheumatologist that my identical twin sister had been diagnosed with hEDS and she didn't believe me. So I printed out my sisters diagnosis letters and bought them to my me to appointment at the hypermobility clinic in London and was told I score 7/9 on the Beighton scale. So some doctors don't understand how to do this part of the criteria. Even I thought that I wasn't hypermobile, so you can be wrong about it too. Best wishes on your journey. Xxx
What age did u have the feeding tube ?
I know this is a really old video but have you looked into MCAS? I know a lot of people can’t eat or can’t eat a lot with it and it happen with POTS a lot.
Can you eat while you have the tube in place? {:-:-:}
I won't ever forget this hvs2 situation through Dr ado he make me great
I get Cured ured completely with the help of Dr Ado herbal medicine thank you so much for making me smile again 🤗🤗
Wow, we are so similar!
Am so grateful to meet with DR Rorpopor herbal on KZread for helping me to cure my herpes ❣️ totally with his herbal medication God bless you DR Rorpopor herbal on KZread 🤝🤝🤝💯you can contact too for any kind of sickness, Doctor Rorpopor herbal is a God sent to the world......🌹🌹
You could always sauté the veggies in veggie broth instead of oil if it’s easier on your tummy
MCAS could also explain your sensitivities to medications and why you develop a tolerance
If you don’t have EDS you might have MCAS (Mast Cell Activation Syndrome) the symptoms can be very similar to EDS & causes joint pain
Possibly fibromyalgia or MCAS
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This was incredibly well done! And so informative, it was really good to see how the one tube can be both G and J. It was so good to get the visual, thanks for this video
Hey,Great video!!I want to convert from daytime feeding to nightime feeding during my sleep.I am wondering what position do you sleep in while feeding? I can't imagine laying flat on back.I sometime sleep in my recliner anyways,does that seem like the right thing to do?
Hi, Did they look for MCAs (mast cell activation syndrome) because it can also cause pots and muscle pain, among other things. Hope you'll find what's going on. ;)
Do you feel any difference between tubes? My daughter had a G, then it was switched to GJ, since that she is very irritable, has colics when has a BM. She has cerebral palsy and is not verbal. I have the feeling that is uncomfortable for her. One time she had an intussuception and was very painful.
I don’t feel a difference with mine, other than some symptoms relief with using the J. But everyone is different, and a GJ might not be best for her! I would bring it up to her doctors and see what they think!
I never had that stuff for my tube when I had one I had to use silver nitrate and that shit hurts. Your site actually looks really healthy.
Silver nitrate is the worst! This definitely burns too, but not as much as silver nitrate. It’s the only thing that has helped my tissue!
Are you still searching for a diagnosis? I have POTS from my mast cell activation syndrome and bruise easily and have joint pain and odd reactions to meds.
Yes, still looking! I have POTS as well. Mast Cell and connective tissue issues are not out of the question for me, they’re just so difficult to get a definitive diagnosis for. It sounds like we’re very similar!
How do they test for mcas?
@@MsRebel They test for heparin, chromogranin a, histamine, Prostaglandin D2, and Leukotriene (LT) E4. Tryptase to rule out mastocytosis.
@@annaWdbn mastocytosis is different than mcas though right? Like mcas is less severe? Idk...
@@MsRebel mastocytosis is too many mast cells where mcas is over active mast cells. Both can be pretty devastating to the body because they both result in excess mediators.
Were you ever able to get a diagnosis for your GI?
Not yet. I am working with a new Functional Medicine Doctor now, so we’re hoping to find something through her.
@@quirkhouse9818 I'm sorry you haven't found what is wrong. I was just diagnosed last year but had problems all my life. I mentioned MCAS in another comment but mine presented purely GI up until 2 years ago. Sometimes it just takes time for the disease to advance enough to diagnose. A lot of the comments you have made align with MCAS though. Its often missed because doctors will only test for one mast cell disorder, mastocytosis, but MCAS is actually more common. I could be totally wrong and just projecting but honestly my MCAS would have taken my life if I wasn't able to intervene so sorry if this is annoying. You probably get stuff like this all the time.
No, thanks so much for sharing!! It is encouraging (in a way) to hear stories like this, though I’m sorry you have to deal with this as well. The bulk of my symptoms stem from GI as well, and most of my fatigue is directly linked eating food, which is why my tube helps so much (at the time of this video, I was in somewhat of a remission). I have tried some treatment for mast cell, just Incase. But I either couldn’t tolerate it or it didn’t do anything to help. But it’s definitely not out of the question. 💛
When Nicholas handed the lamp with his feet bwahaha
Haha! I’m not sure I even noticed that before! 😂
We linked the test that we took in the bio, but we usually prefer to take the test from this link: www.eclecticenergies.com/enneagram/dotest . It was too long to take for video purposes, but it may yield more accurate results! Sometimes, a test can mistype you if the questions are not extensive enough.
It said I was a nine too but on the pie chart 6 looked equal. I'm definitely a six though.
That’s so strange! I did test high for 6 this time as well. I had been questioning myself and my belief that I was a 2 this entire time, but I guess this particular test might mistype people a lot!
This test gave me 9
Really?? Thats interesting, since it told me a different number too. Maybe because it isn’t as lengthy as other tests are, so there’s less question variety. Thanks for sharing!
Ok well now I have to see what it gives me... 🤣
Looks like so much fun!! I thought Nicholas was going to cut himself when he was cutting up the apples haha
Hahaha! He always gets concerned when I cut fruit. Doesn’t seem to trust me with knives 😂 except for this occasion.
Thank you for sharing your story! I have POTS and it's helpful to hear other peoples stories. Have you checked for food allergies? My cousin had sores in his throat and his stomach shut down and all the doctors couldn't find out what was wrong. He did a blood test for 200 foods and found out he is sensitive to dairy and eggs. Now he is totally healthy. I also did the same test and have 16 foods my body is sensitive to. I have been working with a nutritionist and it has made a huge difference for me. I hope things improve for you!
I had extensive allergy testing done years ago, and I had very mild “reactions” to a several things, but my stomach will hurt no matter what I put in it. I’ve gone off several foods for periods of time, but it didn’t make any improvements. I’m so glad you have had some improvement though!! Thanks for connecting with me!
This made me want to try it 😂
Haha you totally should!! Let us know how you do! ☺️
Poor Nicholas!
😆😆 he's a good sport!
Too funny. Love your blue floral t-shirt in the end!
Thanks!! It was from a friend’s fundraiser.
Love Sassy's Ponytail! And a very pretty farm! :-D
Do you recognize the quote on the letter board at the end?? Comment below your guess of what it's from!
I just saw your video where you said you were misdiagnosed with eds... weird, most people are misdiagnosed with a whole bunch of other things before they get their true diagnosis of eds.
Have you heard of gastroperesis? I saw on one of your other videos that you have pots and it isn’t unusual for people with dysautonomia/pots to also have gastroperesis. Ehlers danlos syndrome is usually the main condition that is thought to cause this group of comorbidities.
Yes, I actually have rapid emptying! I’ve had a large variety of GI testing done in the past, and nothing really led to an explanation that makes sense of my symptoms. And then for EDS, the reason I was originally diagnosed is because it helped link my pots and GI issues together. But since then, many doctors believe I don’t have it, because I am not hypermobile and do not dislocate/subluxate. It’s tough to know who to trust. 🤷🏼♀️ But for me right now, having a diagnosis of EDS or not wont change much of my current treatment. Thanks for sharing!
Way does you need a g tube can you eat by mouth how about drink by mouth
Good question! I am actually fed through my intestines, so it skips past my stomach. Even drinking liquids causes stomach pain and major fatigue for me. Eating/drinking “too much” at once causes a lot of nausea. I wish I could just drink it 😊 I’m just not able to drink enough of what I need without causing symptoms.
@@quirkhouse9818 okay
I have chiari, pots and many other health conditions. It took many years to get answers and I had decompression surgery. Thank you for sharing!
Thanks for watching! Hope you are well 💛
Looks great! And you’re a natural vlogger Nicholas, great job with the video too!
Thanks so much!
Great job 👏
Thank you! 😃
Can't wait to see where the channel goes! I'm staying subscribed for sure!!! 🤎🤎
I'm glad Sassy is getting her 5 minutes of fame! :)
I am also excited to see your videos.
Oh Sassafras...
Here before 300 Subscribers. What drives you to do better at something? also, Let's be youtube partners =O
I would say just knowing that I will have accomplished something at the end of it. That is enough of a reward for me!
The fort was so cool! I don't usually think about doing outside the normal day-to-day things, but that looked like fun! Can't wait to see where your channel goes as more of a family channel! ☺️
A- adorable shorts B- so funny when you threw sassy! C- I was looking at that white lamp on Amazon, so cute!
D- I love patchwork!
E- did you just say 2 and 1/2?
C- oh, funny! We love ours (we have two)! Esther is actually the one that bought them from our registry! D- it was your Patchwork that made me fall in love with the game! E- hahaha omg! 😂 Two and a half meaning two and a sass 😉
Loved this video! Excited to see the new parts of your channel! 💗
Thanks girl! 😊
You guys did such a great job! And that was so funny when you were in there 😂 Ps, your dog is soooo cute!
Hahaha! Aww, thanks! She thinks she’s cute too! ☺️😂