Hi there!
My name is Alice, and I am a chronically ill classical musician. You probably couldn’t tell either of those things just by looking at me though, could you?
At age 24, I was diagnosed with both Inflammatory Bowel Disease (ulcerative colitis) and Undifferentiated Connective Tissue Disease, and since then my life has changed drastically. Now, two years later, I’m documenting my journey, publicly, and learning a whole lot about myself in the process.
On this channel, I will be sharing my experiences from colonoscopy prep to audition prep and everything in between, and I hope you’ll consider joining me along the way!
Welcome to Chronically Musical!
***Subscribe for videos whenever!***
For more chronic illness + musical content, follow me on Instagram!
Instagram: @alicepingviola
Website: aliceping.com
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Thank you so much for this video. This is exactly the info I needed and you make the topic feel so comfortable and less “taboo.” By the way, I play viola, too! I’m so lucky to find this video today.
Honestly thank you so much for this video
Thank you for the video
The JC Bach Concerto in C Minor was actually written by French Violist Henri Casadesus, published the year he died, 1947, written in the style of JC Bach.
Yes that is absolutely correct!
Hello, Is this a "mezzoforte Carbon-Viola" from the 🇪🇺🇩🇪 Company "mf" from Werther Westfalen 🇪🇺🇩🇪? From Mr Kleinalstede? The owner of "mf". It looks like? The "f-Wholes"!!!🤔😃 I've got the same as well "Electronic " . Great for you!! ! And all the best for you 🍀🍀🍀 Kind regards from 🇪🇺 🇩🇪 Black Forest Region, to the US 🇺🇸, from a Classical-Tenor-Violist-Collègue , Yours, Josha 🙋♂️
Thank you so much, i just got diagnosed with ulcerative colitis and also prescribed with the suppositories plus oral medication, i have no clue how to use suppositories and this helped soooo much, God bless u 💐
❤ Thank you for being brave and sharing your wisdom. Your story is more than worth it.💐💐
Which Bach piece was that , sounds amazing with that song
"Tell me your a Violist without telling me your a Violist" "...I'm an upper Strings player..."
thank you bruh ive been literally dying th past like 2 weeks and yesterday I decided to just order an enema so I can feel better and ive been so anxious about it 🫠 this made me feel a lot better, will report back later when it arrives 🫡
I used a Fleet suppository 4 hrs. ago and I still havent pooped. What should I do ? Ty😢
You can try some stool softeners like dulcolax, if I was in your position I would also try another enema but if that still doesn’t work I would call your doctor.
Great video thank you
Thank you!! I did not know how to do this 🫠I’m a classically trained pianist with bloody poo as well….we’re twins 😂
She did not say when the first time she went to the bathroom. 10PM???
Hi Alice, 1 year later. How’s been your experience with the case? I’m considering getting a BAM for my violin :)
Hey! This is coming from a violist but what does this mean?
It doesn’t have anything to do with viola so don’t worry! 😆
@@ChronicallyMusical ok!
I've just put one in now it's like a bullet . It definitely feels weird for hemorrhoids
If you could place the actual plastic container on the toilet that would be helpful. Thanks.
You should just be able to place the container on the toilet seat and then sit on top of it. The curved part of the counter should face towards the front of the toilet. Hope that helps!
MacGyver would be proud
I think so too! 😂
I enjoyed this too much 😂
Bahaha well I’m glad to hear that!
Hi queen the note at 10:33 is a B 😍
Thank you!
You have to stay flexible if you have to do this when you get older. It ain’t easy. 🙄😂 Great and funny tutorial. You got to the bottom of things…😂😂. Imho… Suppositories may sting briefly if you have swollen hemorrhoids. But usually mild and manageable. They melt quickly and take down inflammation. They can leak a bit so wear a pad if going to work. Unless the suppository was to make you have a bowel movement, most are just to take down inflammation locally so it is unlikely you will have cramping. Diet wise… Tip: try to stay away from nitrates and sulfites. They can cause a bowel flare up and anal issues. That includes most white wine.🥲 Don’t be afraid or embarrassed to talk about your tooter, butt, ass, and your back passage as my Mother would say. lol Bottoms up!
Thanks for the tips!! Wearing a pad when using suppositories is definitely a great suggestion. Most of the time I don't have any leakage but sometimes that's not the case!
Can you use any other enema than the saline? I know that the saline enemas cause severe cramping and cause rectal burning.
There are definitely different types of enemas for different things. Sometimes suspension enemas are used to treat diseases like IBD. In my experience, I have only used saline enemas to deal with an impacted stool or prep for a scope procedure. Unfortunately cramping and stomach pain is just part of the process but that usually goes away once I use the bathroom!
@@ChronicallyMusical There is no other enema that you can use to cut out or minimize the cramping? IBD alone is bad enough.
@ChronicallyMusical Do you experience rectal burning, too? And if you have any fissures or irritated hemorrhoids, the burning is unbelievable.
Mesalamine suspension enemas can be used to treat IBD, but otherwise I don’t know of an other enemas that are used to help treat symptoms of the disease like cramping. I would definitely seek out a gastroenterologist if you don’t have one to see if they have some treatment options for you to help with the pain 😔
@ChronicallyMusical I don't have IBD or any colon issues. I just see your KZread videos and feel bad for what you are going through. Constipation alone is very uncomfortable and painful at times.
Are you having to still use foam on remicade sometimes?
Yes, sometimes! I have not entered a full blown flare since starting Remicade, but I have had some mild bleeding and increased inflammation here and there, and when that happens I do a short round of foam to get the bleeding under control before having to turn to something like oral steroids. It helps knock it out!
Amazing video, much appreciated 👍
Happy to help!
I recently had my first colonoscopy (and upper endoscopy) at 28, and I was literally watching all of your colonoscopy prep videos while enduring my own prep experience. My doctor prescribed a "split prep" of drinking half the Miralax solution the evening before the procedure and the other half 5 hours before the procedure, with some Dulcolax laxatives and Gas-X in between at specific times. It WORKED. I found some flushable wipes that are alcohol-free and have both aloe and witch hazel (very soothing!). I admittedly slept on my bathroom floor that night (well... attempted to sleep). The doctor ended up finding a large pre-cancerous polyp which he removed in several pieces, and I get to be re-scoped in a year (oh joy!). Ultimately very glad I went through with the procedure and caught this early. Thank you for being so open about such an important topic. It really is so important to de-stigmatize and de-mystify the whole experience so that it's not some big scary horrible thing.
Oof, welcome to the colonoscopy club! I'm so glad my videos helped you during the process and made it all a little less scary. I'm so glad to hear you caught the polyp early, and I hope continued screening going forward will keep everything under control! And great tip about the wipes - witch hazel is my savior!
from your experience how long do you have to hold it in for?
Once all the fluid has been administered you do not have to hold the enema in place.
@@ChronicallyMusical oh I thought it needed time to work.
@@ChronicallyMusical not sure if I asked correctly. Do you have to hold the fluid in for a certain amount of time and if so from your experience how long have you had to hold it in for?
@@dynomite1988it will get you a point where you cannot hold it in anymore at which point you will need to use the toilet. I imagine it’s different for everyone, I recall it taking 5-10 minutes in my experience. You should hole the position you chose for administration until you absolutely cannot anymore which is why I recommend doing this in the bathroom so you don’t have far to travel. Hope that helps!
Thanks girl! These videos are so helpful, I was diagnosed just a few weeks ago with UC
Oh man, I'm so sorry to hear that! But you are not alone, and I'm so glad my videos have been helpful to you. Hang in there!
Constipation is dangerous for many reasons... In particular with myself, after many days, the ammonia levels can rise and reek all sorts of havoc... I can tell because my eyes start to get a yellowish tinge to them. But on the flip side, my medication can REALLY make you GO. (Lactulose) You can easily get dehydrated if you are not careful. My Fiancé also struggles with ABS and has found your videos very helpful with the information that you provide. I have told you this before, but Thank you again for what you do Alice. Just knowing others are dealing with these issues as well, makes things a bit less daunting. 🎻
Theoretically, this is a solo activity... 😂
Sometimes you gotta ask for help 😂🥴
Nossa!!😂😂
Thank you very much for this information, it was very helpful.
Glad it was helpful!
The fancy device is called a hat
😂
Had 2 as child. Now 75.
75 colonoscopies?!?
Thank you so much!! Just got diagnosed and feeling so overwhelmed with how to do these drugs. This video helped immensely :)
Hang in there! I’m glad you found this helpful!
What is this😅 ? I was looking for a bartok Viola concerto😂 video, btw I am sure bartok 5th page is more painful than a suppository 😖
Well I am also a professional violist so I’m guessing that’s how you ended up here 😂😂
Hello! Just curious if you ever had a FIT stool test done? Can your conditions cause a positive result?
Hi there! I have never done a FIT stool test before, just calprotectin and other parasite type tests, so I can't speak on this. I would definitely ask your doctor if it's possible to get a positive FIT result with IBD.
You’re so damn annoying kept beating around the bush instead of getting to the point
Thank you so much for making this video. You're so brave! LOL I have a question regarding transporting one's specimen. The technician said that my sample has to be frozen. My wife and I are not cool with putting the sample in our fridge or freezer. Do you think it'd be ok to turn in my sample at room temp or even with an ice pack instead of frozen if I drop it off 2-3 hours after doing #2? Or when they say frozen, they mean frozen? I usually poop around 10AM and I literally live down the street from Quest Diagnostics, but my appointment to drop off isn't til 110PM. Hope to hear from u soon!
Hi there! I would follow directions as best you can, if you’re able to drop the sample off immediately after collection it would be fine but if it will be a few hours fridge/freezer is what you should do. I would double bag it if you’re uncomfy of that!
Will only know what that's gonna sound like in 30-50 years. Might be an investment might be a mistake.
I guess the same could be said for any instrument?
Yes there are other ways to say it - I’m on medical professional myself, and I never have to resort to using trashy language 👎not professional
I guess it’s a good thing I’m not a medical professional!
You had me at Steam Facial from a Stanly Hamock ...
lol!
i mixed with lime gatorade and didnt mind it too much
dank u❤
Anytime!
It’s ribbed 😂😂 I deeply appreciate the education with the comedic relief. 😁
So glad you found it informative and entertaining!
Congratulations your videos Motivation for me😊😊
Glad to hear that!!
Esse som me faz lembrar Princesa Mononoke quando aparece o Deus da floresta
Hi, I've been using Cica Care. It's nice, but keeps falling off in between playing when I take my violin off my chin. Any way to prevent that? Or should I use a Strad Pad?
I will say I do struggle with the same issue, it doesn't stay on that well while playing but it does help! Recently I've been using chamois while I play and then the cica care at night when I sleep and that is a good combo for me. The strad pad wasn't for me, but I know a lot of people use them!
@@ChronicallyMusical Thanks! Does Chamois or Cica Care get absorbed into the skin and bloodstream? Also does Chamois protect the skin from irritation while playing?
I don’t believe either gets absorbed anywhere as they are not creams or liquid or anything? But I’m not a medical professional so don’t quote me! The chamois is basically a suede cloth you can cut to whatever size you want and place on your chin rest before you put your chin/neck down to play. I find it really helps when my neck is super inflamed!
As a man, it took a lot for me to muster up the courage to insert my suppository for haemorrhoids. Thank you very much. In the UK, for steroid suppositories, we use ANUSOL - which is essentially rectal hydrocortisone.
Happy to help! Hope you find relief soon.
Right now I’ve never wanted to put something up my but so bad😂
Wear a turtle neck
Unfortunately turtle necks aren't super comfy for me to play in and they also don't go high enough, but I appreciate the suggestion!