My name is Sara Diemer and in 2019 I was diagnosed with Stage 4, Triple Positive, Inflammatory Breast Cancer. I set up this channel and my webpage with the intention of sharing my story (the good, the bad, and the ugly), as well as point y'all towards some other helpful people, resources, and ideas in the world of Breast Cancer.
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My sister has stage 4 TNBC and I am struggling so much. My mom and her partner hate each other. I live in a different state and I feel helpless.
Thank you so much for sharing ❤❤❤
Hi how are u feeling?
Thank you for sharing your story
Hi what is your email ID, need to discuss my prblm with u as I am confused
I am my screening next week Friday...I have a small crust patch about 5mm in size. It doesn't really spread. It itches and my nipple itches as well. Been there for 6months...now looks like a small sore patch with scab. First doctor dismissed it a dry skin, second doctor send me for breast cancer screening. I am hoping for the best.
What happened ,are u ok
I’m going through this now they gave me a ultra sound not showed nothing there just let me go and haven’t followed up I rang doctors today as boob inflamed again pain and swollen they refused to see me had to call 111 this has been going on since may last year
Thank you! 💕🙏👍🌹
How are you doing? I checked your other social media and nothing has been updated since 2022. I pray you are ok.
I have TNBC. I have never felt that I am or ever will be cancer free..
I had the Neulasta on of for my first two rounds of chemo. Bone pain was horrendous even with Claritin for three days. On the third round it fell off so I ended up with the injection (different brand) and the pain was one day and manageable.
I'm sorry I'm so late replying... I'm glad that you found something that could work for you!
Thank you for your honesty and advice! I appreciate your effort to do this video. Wish you all the best! ❤
Thank you for sharing your story. I greatly appreciate your advice.
Thank you!
A lot of physicians do not even know about IBC. Many dismiss the symptoms as infection of some kind. It is absolutely the worst most disfiguring breast cancers. It is awful, awful, awful. Google and see actual photos of IBC. It grows from the inside out, erupts, and finally fungates. The book "In Sickness" is the oncologist husband whose oncologist wife hid her IBC until it became malodorous, necrotic tissue. No surprise ending. She died.
I have found yoga to be such a blessing for me. I’m so glad I had started it a few months before my diagnosis so I already had deeply felt the benefits daily yoga practice brought to my mental and physical health. It’s somewhat challenging at first and for awhile, but it’s incredible to honor your body your health your determination and energy, the connectedness with others who are doing the same for themselves on their mat, it’s an entire hour of slowing down and finding your breath, it’s stabilizing and grounding, I love breathing now it feels amazing! The practice is guided the entire time which helps me stay focused. And this is hardly mentioning the physical benefits, it’s incredible, when you start to see significant progress within two weeks of daily practice, flexibility quickly improves and when you’re old ;) you can notice this a ton because you’ve lost a ton of flexibility over the years, you’ll notice stability in your back, your back core becomes stronger within weeks I promise you, you’re starting to feel that stability & balance build, so it’s less about weight although that’s important and more about vitality, I feel more alive yet more grounded, I feel strong and stable with expansive range of motion, the last thing I’ll mention but there are so many more benefits I have found for consistent yoga practice, is the mental and emotional benefits I noticed early on, I’ve had tears in practice as others likely have too, it’s holding ♥️space for you, it’s a beautiful thing and it’s my saving grace on my cancer survivor journey. I wish for you to find that daily practice that is for you that provides you the self care that you need and deserve. Many people don’t do that naturally in our culture, we self soothe but that’s often not a healthy practice, but when you get a cancer diagnosis you soon realize self care is your dear friend it’s you loving you and getting to know you, taking care of you now. It’s a beautiful thing and naturally impacts the rest of your life your relationships, your recovery, your healing your present. I also mix Pilates, barre, tone&flow classes in there to build muscle because woman start losing a lot of muscle pretty quickly after 35-40. And then there is menopause, seems we often walk that journey through our cancer journey too. That’s my next focus, I’m grateful to have the opportunity to be alive and well, I’m can appreciate the low days too, but slowly over time we are turning toward the opportunities in each new day, the sunshine the blessings our beauty inside and out, our bodies may change as this is part of physical aging and I’ll take it happily everyday!
thank you. I have had a weird red blotch that seems to be getting bigger (no swelling or pain)...I told my doctor 3 months ago..they think it is dermatology related but today I wrote to get an appt with a breast doctor at a cancer center....I just can't shake worrying about this. Just want to get this figured out.
I hope you got good news, but if not please feel free to reach out!
NED is just another hopeful term to give false hope to cancer patients. I had breast cancer and treated it holistically and I'm in year five cancer free. Surgery and REJECTED ALL conventional treatments! I did this under the care of a holistic doctor.
I did Nulasta and gave myself shots 4 times a day and yes, I felt like I was 80 my bones hurt so much😮.... BUT... it was to make enough red blood cells to give my brother for a bone marrow transplant or stem cell transplant. Now, I think I have IBC but my biopsy isn't until tomorrow, which is Saturday the 10th and it's wigging me out because they are not usually in operation on the weekends. I was given the date of February 20th to have the biopsy but they called me when I'd just gotten into my car in the parking structure. I'd ignored the first call because it said spam likely on my phone, then they called again and I answered out of curiosity about the scammer. 😊 In the few minutes between calls they'd called my husband at home and told him of the appointment on Saturday. Anyway, I do not have the orange peel look per se but I have some dimpling on the side of my breast. I also have 2 masses in my breast the biggest is 1.3cm they're at about 1 and 3 o' clock on the outer quadrant of my left breast. They can't be felt. My only symptom is my left breast itches. There's nothing in my armpit per the ultrasound that I'd just had, I have small, dense breasts, almost a b cup. I have flat nipples but they both (sides) seem to be equal in the outer area dipping inwards. So, now I'm freaking out. If this isn't IBC I'm having a double mastectomy, if it is IBC I'm still having a double mastectomy. I made my mind up years ago if I got BC I'd say hasta la vista. I'm 65 if that matters. Oh and I was told I had BC at my appointment, it was a follow up from my mammogram that was on January 16th at a satellite center. They called me to come to the main hospital. All of my mammograms have been 3D I think it's called tomosynthesis.
Edited because I wanted to give as much info as possible.
You are great! Thank you for explaining what you have gone through in such detail. This is very helpful.
Thank you for sharing Sara! I'm new to this and your channel has been helpful.
Yes, ma’am. Cancer is plague that is scared of someone who has a good relationship with our God. Trust me. What I am going through with my cancer treatment is just God. I feel like God has a plan for me, I am grateful to know him and I will continue to serve my Jesus Lord even though I am still in this dark valleys. Thank you so much for your video dear pink sister. Pray for me to. Mention my name ( Jackie) every time you are praying please.
I have all these symptoms and went to the er. They just did an ekg and said to follow up with my doctor but I already went to my doctor a week ago and she said well you have a mammogram coming up in a month so just give it until then! I’m so frustrated and desperate, I don’t know what to do! My mom had breast cancer about 10 yrs ago and had a mastectomy.
Ah! That’s so frustrating! Maybe see if you could get your mammogram sooner??? Tell them all about your symptoms!
Thank you. It's heartbreaking to see my mom crying and scared and you cannot help...
Fantastic!
I'm having the same issue with my left breast.
Have you made an appointment with your doc? If not, try and get seen as soon as possible! Hopefully, it just a bad scare, but it's always better to get it checked out.
I've been in the hospital 4 times. It's been scary. I have never had children. My left breast started out very swollen. Kept getting more red no matter what they done. It's the left breast and mine looked like that. They would put me on antibiotics... Helped with redness very little. I have been going through this 6 months now. Now bc my reg Dr said I needed a mammogram bc he said that would put me in severe pain. The redness only goes away 20 percent and that's it. I see my surgeon today. I'm in severe pain😥 Did your breast get hard too?
Bless you.
So true!!
How are you doing now?
Hi Sara. God bless you. ~ I feel somewhat awkward writing to you but I am worried. Very recent, on 10/23, Monday, I noticed a dime sized pink spot on my right breast on the left side of my areola, I was out of shower and not dressed doing my hair & that is how I noticed it in my mirror reflection. At first I thought is was make-up, and rubbed it with lotion, but it was still there. *This pink spot was not there on 10/22. So, after I finished up in the bathroom I sat at my computer and typed in pink spot on breast and the first hit was Inflammatory breast cancer. I think my heart was going to beat out my chest and I became a bit nauseous from fear. On Tues 10/24 I called my clinic with my concern & asked to please see a Doctor. I went to the doctor on 10/25. We said are hello's and I just didn't waste any time and told her I have a pink dime sized spot on my right breast and I am terrified I have IBC. She is familiar with IBC, which made me feel a sense of relief because some doctors are not. I lied down & she proceed to do a complete exam. She felt my lymphnodes twice. She stated no swollen lymphnodes. She used a microscope(small black one that Dermatologists use to look at moles) and said she thinks she sees an abrasion, like a tiny piece of skin off, like an injury. She gave me packets of antibacterial ointment and said to use this 2x's a day for a week, IF no improvement, she will send me to the Breast dept. and get a biopsy and I think she said MRI. I have my Husband look at it every day to see if he see's any changes, he thinks it looks smaller. I look at it with a magnified mirror dozens of times a day and I can't really tell. IF this spot is not gone by 10/31, I have to call the clinic and proceed with the biopsy. I want to feel reassured in a sense my lymphnodes are not swollen. From your knowledge Sara is it common for the lympnodes to be swollen accompanied with rash or a spot? I watched your videos and you are a beatiful Soul. ~ I will keep you informed with however this turns out. ~I am 63 years old~ God be with you. 🙏
Please don't feel awkward... At this point I've talked about breast so much! You are taking all the correct steps! I THINK that lymph nodes are almost always swollen with IBC. BTW, one way to check if your concerning spot is growing or shrinking, is to circle it with a sharpie. The doctors did that to mine to keep track if the antibiotics were working. I hope it all goes well for you! You will be in my prayers!
Hi Sara.Thank you so much for your kind words and your prayers. I am trying so hard to not be scared. I watch your videos because I actually really like you and you are genuinely a very kind and loving person. I love Jesus Christ and I have been praying for him to take away my fear. ~ Yes Sara, I want to take the right steps. ~ I hope and pray you have a quite peaceful night~ God bless you and your family. @@cancerchats5127 🙏
I’m watching your video because my cousin is losing the fight against brain cancer, very insightful! How are you doing by the way?
Thanks for asking! I'm doing well with my cancer, but the side effects from the meds are kinda rough. However, I will take to still be around with my family. I hope that your cousin has a good support system and y'all are loving them well. Cancer is just the worst.
Beautiful ♥️
Anyone else feel as though they need to comfort family and friends instead of the other way around.
I’m so scared. I have all the symptoms of inflammatory breast cancer but I was told I have mastitis. I’ve been on antibiotics for 11 days and I’m still in a lot of pain and just feel in general not well. I think I have 2 more days of antibiotics. They said I should feel better in 72 hours. I have a mammogram on Thursday, I’m so scared. But I read that a mammogram can’t detect inflammatory breast cancer 😢
If you still have all your symptoms but the antibiotics aren’t doing anything and nothing shows up on the mammogram, push for a biopsy. Hang in there, but be sure to advocate for yourself! 🙏🏻🙏🏻
I hope u r doing well, wish u the best💗💗🫡 happiness and a good life🙏🏻
Heart disease is #1 cause of death …. not cancer
How I would like to be there next to you and give you a hug and a kiss on the cheek! Glad you are well hugs from Brazil
Aw, that is so sweet!
Hope u are doing just fine☺️
Hi girl How you doing? Are you still in the NED club?
I am!! The Lord and treatments still keeping me rocking the NED :)
Ive been having burning feeling in my breast and underam but my doctor insists its nothing and shes considered one of the best breast surgeon in my area. I have state medicaid, so i cant really afford to get 2nd opinion. Im frustrated because my skin is starting to change and i have a rash extending from my breast to my underarms. Im 21 and don’t have any kids.
Ugh, that’s a tough place to be in. Did you ask about IBC in particular? If so, what did she say to that? Did she have any plan for clearing up this rash?
I just found out that our family was picked! I’m so excited and grateful for your video! Thanks!!
You are going to have the best time!!!
Cant believe some of those comments from your friends family and coworkers. Mind blowing. Your info was very insightful. Thank you. Going to waych sll your videos now. ❤ Love to hear how youre doing.
Are you still here?
If you mean, am I still making videos... I'm not right now. If you mean, am I alive? I very much am!
@@cancerchats5127 glad to know you're alive sweetheart keep fighting and enjoy your day to day life ..a close family member got diagnosed with stage 4 cancer (young mother of 4 kids) and is in denial phase and you're content here is helping me cope ..sending you prayers from Africa 💓💓💓💓
Is peau d'orange with thickness normal in pregnancy with no pain
Uhhhh... I know that our breasts can totally change during pregnancy, but I might get that checked out by your ob/gyn.
I'm here because my wife is 20 weeks pregnant with our first child and has developed the peau d'orange look with increased thickness of skin but it is at the bottom, middle of both her breasts. We went to see her OB and he assured us it wasn't IBC. He said it would be a harder texture and also because the affected area is practically mirrored, he's confident it is a combination of hormonal changes and heat irritation from breast swelling (we also live in South Mississippi). However, we are not willing to risk it and have scheduled an appointment with MD Anderson in Houston. Do you mind if I ask if yours is on both breasts or just one?
@@kevinquito7947 I think it’s so smart what y’all are doing! Mine was only on one breast but I’ve heard of it being on both. I’ll be praying that y’all get good results!
Thank you for this!!
Thanks for watching!
mam my mother have triple negative breast cancer also she has multiple lump on her left breast but she also have orange peel skin and redness so mam is it a IBC pls help our dr doesn't say about this my mother have redness pls help what shoul i do
It is always okay to get a second opinion. Try and find another doctor to look at her! 🙏🏻🙏🏻
My left breast is swollen, as well as my lymph nodes under my armpit which has been there for about three months and its uncomfortable, my nipples and around it itches but i don't have a rash, just slightly pink in areas, but now im noticing some red spots appearing on my right breast there is only one spot that is dimpling a very small area, I don't have inverted nipples. But my breast are tender especially my left.
I would totally get that checked out. No reason to panic, but totally a reason to visit you GP. Push for a sono and a biopsy. 🙏🏻 for good results and a helpful doc!
Please help me my mother's breast is enlarged , very lightly red, and it looks like there are holes in the breast and breast is thick and swollen also one lump is there
Get her to a doctor asap. It sure sounds like she needs a sonogram and a biopsy. But her regular GP should be able to get the ball rolling. If she doesn’t have one, go to the ER. 🙏🏻🙏🏻
Thanks for the advice Just finished first chemo treatment and will get the Nuelasta tomorrow.
No you can not be your own advocate! Im suffering from Inflammatory Breast Cancer and i will no longer seek any medical. This is all b.s.
You are, of course, entitled to you opinion. I hope the path you’ve chosen works well for you.
So sorry for your situation, those reading, please as women, NO dairy and no red meat if possible!