Пікірлер

• 
  @spartanz708819 күн бұрын

  Wow, your pre diagnosis story is a lot like mine. I had been complaining for years about my shortness of breath and was ignored and placated, so I blamed myself. When I finally went into full blown heart failure it was too far advanced for just oral medication. In the 6 years since diagnosis I’m on o2 24/7 and on 3 different medications one which is IV and I’ve been on death’s door 3 times. Please remember to advocate for yourself if you feel your being dismissed get a 2nd opinion.

• 
  @fitnessweАй бұрын

  Very good video.

• 
  @mneraasen2242 ай бұрын

  I was diagnosed at age 11. I’m 52 now and my heart has normal function. I’m on Veletri and tracleer. Sotatercept was released in March in USA. The first drug that treats the disease and not just symptoms. I hope to start it this year. The side affects of my current meds are dibilatating. My life expectancy was age 18.

• 
  @Travesten2 ай бұрын

  I think Cereno Scientific drug cs1 is much better❤

• 
  @Travesten2 ай бұрын

  I think Cereno Scientific drug cs1 will fix this❤❤❤

• 
  @user-lg4qr2ci6m2 ай бұрын

  I learned you are very confused

• 
  @Tyggzz3 ай бұрын

  Thanks for sharing this ..! I’ve also been diagnosed with…!

• 
  @user-hv6on6dk4j3 ай бұрын

  Hello Kate, I have just watched your video. A lot of what you said resonated with myself. I am still coming to terms with having PH. I do not push myself physically, and take one day at a time. Take care.

• 
  @mneraasen2245 ай бұрын

  This see seems much better than the one my doctor has. They make me put this band with a probe on my head and then we walk until a set time. If I can’t finish, then I have to start again. Which makes zero sense because then I try to control my pace so I can finish. Because if you have PPH you already have limited exercise ability 🤷🏼‍♀️🤦‍♀️

• 
  @Melissa-kl9li6 ай бұрын

  I hope you are still ok Scott. I really do. I have pulmonary hypertension and finding out can be a shock. The first time I found out I was worried about not being around to see my kids grow up. I hope you are still going strong.

• 
  @wheesy67257 ай бұрын

  this is something i will have a converssatioon with my specialists about

• 
  @kellykat80577 ай бұрын

  Good on you and thank you. CTEPH patient here, 1yr post PTE. Doing much better now. Love & good health to all PH patients and care teams worldwide.🤗🫁🫀

• 
  @OualidSalhi7 ай бұрын

  I am sick with pulmonary artery hypertension. Can I come to UK to get treatment? I am from Algeria 🙏

• 
  @moonchild6667 ай бұрын

  Legends! 👌🏽

• 
  @wheesy67257 ай бұрын

  fantastic

• 
  @roxananunez42387 ай бұрын

  I hope you are doing better 😞🙏I been having shortness of breath for like 5 months ago I first went to the emergency room and an ecg and chest X-rays and on my diagnosis said tachycardia right heart enlargement chronic pulmonary artery hypertension to be honest I’m scared

• 
  @roxananunez42387 ай бұрын

  I was diagnosed on august 2023 with this terrible disease at the ER 😞😪I’m scared

• 
  @roxananunez42387 ай бұрын

  I been out of breath for the last 5 months my belly is swollen like if I’m 7 months pregnant 😞my legs my face are also retaining lots of fluid my husband took me to the emergency room on august of this year and that day I was diagnosed with tachycardia right enlargement of the heart chronic pulmonary artery hypertension and on October I was also diagnosed with Non alcoholic fatty liver disease I’m so scared 😟

• 
  @stargoldman4 ай бұрын

  Same here and I'm so worried 😢 just know you're not alone G-d is good

• 
  @roxananunez42384 ай бұрын

  @@stargoldman i hope the best for you 🙏

• 
  @roxananunez42387 ай бұрын

  I hope you start feeling better ❤🙏I been diagnosed with chronic pulmonary artery hypertension at the ER I will demand a right heart cath this time I already had a left heart cath a week ago for a blockage in my heart i been having difficulty breathing and I’m scared

• 
  @patzplaze8 ай бұрын

  Oh, Carole, this was my story too: Diagnosed with asthma when I was 50, and put on asthma medication that didn't quite work. 10 years later, I went to a lung specialist and said that I felt I was getting enough oxygen when I breathed! She listened to me, and with tests, was able to diagnose it as IPAH. Things have been so much better, these last 7 years, with the specific PH medications that I am on. Thank you for sharing your story. Much love to you ♥♥♥

• 
  @BALLADOFMEANDMYBRAIN9 ай бұрын

  Annoying that’s my word as someone with PH its annoying. 💜

• 
  @kieranspring99229 ай бұрын

  Sending all the wishes in the world and the best of luck!

• 
  @BadiUrzaman-vu5wb10 ай бұрын

  ❤❤ beautiful you my dear friend 💖💖💖💖💖💖💖💖💖💖

• 
  @meritagjocajmeritagjocaj794010 ай бұрын

  ❤❤

• 
  @jaynehamilton770110 ай бұрын

  I live with this every day I went for 2 and a half years with nobody listening to me , I end up in ICU before being diagnosed with PH I am now on oxygen 24 hours a day and use a wheelchair out of the house. It is a complete life changing disease of which there is still little understanding, I am still trying to come to terms with it all, however I now have an excellent team of experts around me but nobody knows what the future holds. Good luck to you Julie x

• 
  @ainnadia450010 ай бұрын

  Hi does anybody know with this drug,will dr allow patient to get pregnant?i was diagnosed when i was 25 years old but not im already 32 and wanting to get pregnant

• 
  @grandknit101611 ай бұрын

  Excellent presentation! Thank you

• 
  @snape-itachiel6167 Жыл бұрын

  I was diagnosed this year with PAH and my life changed forever, I though 6 months was harsh but you say 8 years? I can't even imagine a life with these horrible symptoms for 8 years. sorry your symptoms are still harsh. are you doing Tyvaso? you can pro with echo eamination,CT etc....

• 
  @andrewbarker499211 ай бұрын

  Think positive be thankful for everyday keep strong exercise is my saviour fatigue is a big part of this illness but believe me u will get used to it

• 
  @linfordpierce3589 Жыл бұрын

  Hi I have pah I'm on 4 medicines for pah altogether I take 17 pills a day how are you doing now?

• 
  @viaceslavsardarov194 Жыл бұрын

  Ive got a 10month old daughter in very bad condition we must try this before its too late is it possible ????......

• 
  @mneraasen2248 ай бұрын

  It’s FDA approved in March in USA

• 
  @snape-itachiel6167 Жыл бұрын

  interesting

• 
  @miltonwaddams2564 Жыл бұрын

  Hope it’s ok I posted this on the pah support group. Having just been diagnosed at the start of the year this is exciting news

• 
  @martinmccrae5863 Жыл бұрын

  Thanks so much , my wife watched this and has started walking as an exercise again. She was previously afraid to do so. She is feeling the benefits.

• 
  @italiansdoitbetter5062 Жыл бұрын

  Thank you My husband of 30 yrs has this and we are young..I went on goggle and got scared with the life expectancy numbers..How long have you had this if you don’t mind me asking

• 
  @mebythesea5 Жыл бұрын

  Thank you for these great tips! ❤

• 
  @danyaa23 Жыл бұрын

  I am diagnosed really fast, I'm still doing many things just can't hurry. Using stairs also tiring but 5 minutes later I'm fine. The doctors I met they give me sign i'm still fine. There was no "scary words" maybe because I'm still look okay. Just feel hurt smtimes

• 
  @danyaa23 Жыл бұрын

  Diagnosed last year but I felt the symptoms about 10 years ago, I also have ASD. Just accept it. I feel more ease now. Life still go on, but now I just take it slow every single step. One I feel rush, then it getting worse

• 
  @robinbrown7953 Жыл бұрын

  They always try to say that most any problem is fro anxiety or just being unfit, if you are a woman…not the way most men are treated

• 
  @pathuzzworld8079 Жыл бұрын

  Please let me know about pregnancy with PAH (mild to sivere)

• 
  @charmianhunt Жыл бұрын

  Super explanation

• 
  @susannawalkingsong7737 Жыл бұрын

  This is excellent! Thank you so much. I found it very helpful, particularly differentiating activity and exercise. Also the advice of varying walking speeds rather than stopping to ease the breathing. We are all different, as you so clearly explain, so we gently learn our own limits and scope. My activities, exercise capacity & quality of life have vastly improved since beginning to include exercise a year ago. From a Walking 6 minute result of 99 I have gradually improved to 275 & fully expect it to be a higher number on the next clinic visit! Thank you for your work and encouragement!

• 
  @pha_uk Жыл бұрын

  That's so good to hear Susanna :-)

• 
  @lifeofhaines Жыл бұрын

  Thank you so much Carol, this has been extremely useful and interesting!! ❤

• 
  @pha_uk Жыл бұрын

  Really pleased you like it!

• 
  @eon7125 Жыл бұрын

  I hope you are doing well.💐

• 
  @Carter-io8ee Жыл бұрын

  🔥 Promo`SM!!

• 
  @moynabailey2172 Жыл бұрын

  How do I get onto a trial

• 
  @TheOzzy1990 Жыл бұрын

  Will there be any side effects?

• 
  @MrSongwriter2 Жыл бұрын

  There’s always side effects from any drug. The more relevant question is does the benefit outweigh the side effects.

• 
  @jeffreypamplona231011 ай бұрын

  bleeding is another side effects

• 
  @charoulamichaelmallouppas4079 Жыл бұрын

  I hope someone has taken over from Dr Morells research as he was so valuable to finding a cure for Ph!

• 
  @danyaa23 Жыл бұрын

  I have ASD, ASD and PH are like best friend. I got the asd diagnosed and PH at the same time, no need long time. But i already felt it about 7 years ago bcs when i feel tired/ less breath, i think i need a moment to break then i back to normal and think i'm getting older, it's normal right when u are getting older you are easily tired

• 
  @martinaskupin9549 Жыл бұрын

  kzread.info/dash/bejne/pKds2LeYitHIhKQ.html&lc=UgxwteLYxOOWkwzFGU94AaABAg

• 
  @bettedavis9610 Жыл бұрын

  Shame on that benefits system 🤔