I can definitely relate with the driving with double vision my vision became a problem in 2012 which lasted for a month I was seeing things horizontally but I wasn't diagnosed until 2015. In 2014 my whole life changed I had to be spoon fed bathed wiped and dressed I was completely disabled with no explanation why for a year I remained like this. But when my vision became affected in 2012 after that I had been experiencing unexplained symptoms that would occur but I was just blowing it off. When I was dx'd in 2015 I was numb with no emotion I truly didn't know what to say because I couldn't believe I had such a debilitating disease such as MG a name I had never heard of. It's been 9 years and still counting I've been in remission twice once for 7 months and for 4 years with no signs or symptoms of MG and last December my symptoms returned from the pits of hell due to an intense and heated argument with a sibling and an over exerted 3 day move. I'm now back at square one 😢 but they're mild symptoms here and there MG shows it's face that's when I know I'm doing too much. Otherwise I'm okay with MG just dealing with my other health issues. Sorry this is so long my apologies. Thanks for sharing your story as well ❤ more awareness is so crucial.
@MichaelJamesActuallyАй бұрын
Thank you for this. My Daughter is having her thymectomy today.
@Sgt.Speed_III2 ай бұрын
hey your facebook and instagram didnt work, did you delete it? i like storys about myasthenia gravis... i hope you are fine in 2024 ^^
@zack.dar402 ай бұрын
Hi. Congrats. Can you tell us how you're doing now? Any MG symtoms or medications?
@shahilagh3 ай бұрын
Hope you are doing well.
@ShandasJourney3 ай бұрын
Hello gorgeous ❤I’m so happy that you shared your experience! I’m about to have this surgery in a few weeks and you have helped ease my mind about the whole ordeal! I’m gonna do it and I Will Be OK 👍🏾 I Hope you’re doing well ❤
@akashajoti64564 ай бұрын
I am 12 days post Robotic Thymectomy. I would not say that I feel well enough to go back to work. But, I am already having improvement in my MG symptoms.
@akashajoti64565 ай бұрын
Our MG medications are soo time specific!! I had an issue with Nurses wanting to not let them be with me when I had Gallbladder Surgery. I’m waiting for Thymectomy and am feeling soo hopeful about having improvement in my MG Symptoms. I’m so happy you have had good results!!! Thanks for sharing!
@daveatauvich28265 ай бұрын
My MG went into remission on its own. Thank God.
@DrumMenace2 ай бұрын
Mine did also...for four years. Now it's back and I am having a thymectomy in a few months (July).
@zack.dar402 ай бұрын
Thanks for sharing. How long did it take to go into remission? Did you change your diet? Can you share Any changes in your habits from before and after remission
@gardenjoy52236 ай бұрын
It's really hard to hear, even with the headphones on. And what is 'mg' ??? Yeah, loneliness is a nasty side effect of a prolonged illness. After 10 years I had lost everyone, except my husband, although our marriage did suffer too. All the nice things in life fall away. I can't even go to church. I can't go to the grocery store without getting really ill there. I was always there for everyone. No one is there for me. I was too ill to even receive friends for a couple of years. Chronic Lyme Disease in my case. Most horrid. Cruel to an outgoing person. Bad for your finances too.
@yfa62448 ай бұрын
I am shocked at no comments and lack of thumbs up! What she has to say is so important. I see this vloger stopped two years ago. Wonder why? ; (
@wendymcevoy71358 ай бұрын
Hey guys can you all weigh in if you are seronegative or have the antibodies? I’m negative. Was originally diagnosed in 2013, was on prednisone 50mg, imuran and mestonin. Recently came out of remission and this time I’m unable to tolerate mestonin at all. Tried every which way to take it, broke pills down into quarters and everything, side effects were worse than the symptoms of MG. I’m just really struggling. My stress level is through the roof and not much hope of my home situation changing either. Husband had a stroke and he’s where he’s always going to be with his needs. I also have multiple other autoimmune diseases and they’re also flaring at times too. I’m going to see a third neurologist in a week. I’ve had a positive EMG/SFNCS as well. I did a genetic test which one of the very young neurologist told me because of the genetic test I don’t have mg. My head is spinning and this is also causing lot of stress too. I’m only taking prednisone 10 mg this time due to some pretty serious osteoporosis. I’m also having trouble with elevated blood pressure and my meds for this are not holding it down. I’m beyond exhausted and weak, have ptosis in both eyes left worse than right. I also have a lot of pain and thank goodness I do have pain meds for this. I’m out on disability due to severe issues with my autoimmune diseases and at the time I retired my MG was not a factor, that just flared last November, after a pretty resistant urinary tract infection. I feel like I’m “wagging the dog.” Anyway if anyone would respond if they’ve had positive or negative antibodies for their mg I would appreciate it. I’m trying to see how many had a thymectomy with good outcome who were seronegative. Thanks everyone and be well.
@zack.dar402 ай бұрын
Hi. I hope you're better now. That sounded horrible. Did you end up doing the thymectomy? Any results?
@paulasanz960010 ай бұрын
Love this video thank you 😊 You helped me to say yes to the surgery My Thymectomy is scheduled for September 28th I was diagnosed on August the 1st .. 4x2 cms (mass) Taking PYRIDOSTIGMINE only 3/4. Times per day Mostly ocular MG sometimes I feel some weaknesses in my arms Thank you again Hope you are doing great 💓✨🙏
@zack.dar402 ай бұрын
Congrats. Any update on your symptoms?
@paulasanz960010 ай бұрын
Love your videos they are helping me a lot ✨💫❤️🩹 Thank you 🙏
@christinabellamoore Жыл бұрын
Thank you for this video x How are you doing now? Xx
@marissahumayun2190 Жыл бұрын
Thank you so much for sharing, your story gives me so much hope, as I am making the decision of thymectomy or not. Your attitude is very inspiring.
@paulasanz960010 ай бұрын
Hello dear I’m having my Thymectomy 4 days from now today is September 23rd Diagnosed on August the 1st Taking Mestinon only Mostly Ocular MG Did you have your Thymectomy done ? Hope you are doing well
@rawmilkmike Жыл бұрын
Do you like beef, butter, bacon, lamb, fish, or eggs? Humans don't need to eat plants, and we are much happier and healthier when we don't. If you live near a source of fresh, unprocessed milk, a quart of that, a day works as well. Allergies are also auto-immune.
@camalebell Жыл бұрын
I'm going Neurologist appt next Thursday I have to go back to the throat doctor they did nothing but check my bumps under my tongue which could not be removed because of the bone I was so angry 😢 I i thought it was stones its something else
@camalebell Жыл бұрын
I mean I did over work out too much which cost myasthenia gravis condition but but my the heat in my house wasn't on in September and October I got sick it hot in my house I had the windows s d fan on,
@camalebell Жыл бұрын
How are you doing I'm sorry you had myasthenia gravis condition muscle spasms and muscle weakness, I have myasthenia gravis condition muscle spasms and muscle weakness disease
@julieberns1474 Жыл бұрын
Fellow MGer here! Thanks for your videos. I just found your channel tonight. “It’s really good to see you” is the line that I say to others dealing with illness.
@MrHiesy Жыл бұрын
I have my thymectomy 4 months ago i the best decision I getting off my medicine little my little now I can talk I can eat
@AuthorizedKingJames2 жыл бұрын
Ye must be born again. Romans 3:23 - For all have sinned, and come short of the glory of God; 1 Corinthians 15:1-4 - Moreover, brethren, I declare unto you the gospel which I preached unto you, which also ye have received, and wherein ye stand; By which also ye are saved, if ye keep in memory what I preached unto you, unless ye have believed in vain. For I delivered unto you first of all that which I also received, how that Christ died for our sins according to the scriptures; And that he was buried, and that he rose again the third day according to the scriptures: Acts 20:21 - Testifying both to the Jews, and also to the Greeks, repentance toward God, and faith toward our Lord Jesus Christ. John 3:3 - Jesus answered and said unto him, Verily, verily, I say unto thee, Except a man be born again, he cannot see the kingdom of God. John 3:36 - He that believeth on the Son hath everlasting life: and he that believeth not the Son shall not see life; but the wrath of God abideth on him. Ephesians 2:8-9 - For by grace are ye saved through faith; and that not of yourselves: it is the gift of God: Not of works, lest any man should boast. Romans 10:17 - So then faith cometh by hearing, and hearing by the word of God. Romans 10:9-13 - That if thou shalt confess with thy mouth the Lord Jesus, and shalt believe in thine heart that God hath raised him from the dead, thou shalt be saved. For with the heart man believeth unto righteousness; and with the mouth confession is made unto salvation. For the scripture saith, Whosoever believeth on him shall not be ashamed. For there is no difference between the Jew and the Greek: for the same Lord over all is rich unto all that call upon him. For whosoever shall call upon the name of the Lord shall be saved. 2 Corinthians 5:17 - Therefore if any man be in Christ, he is a new creature: old things are passed away; behold, all things are become new. 2 Corinthians 13:5 - Examine yourselves, whether ye be in the faith; prove your own selves. Know ye not your own selves, how that Jesus Christ is in you, except ye be reprobates? Revelation 21:8 - But the fearful, and unbelieving, and the abominable, and murderers, and whoremongers, and sorcerers, and idolaters, and all liars, shall have their part in the lake which burneth with fire and brimstone: which is the second death. Salvation Message: kzread.info/dash/bejne/do2Jpo-gpq6eoqQ.html The word of God in English is the King James Bible. www.localchurchbiblepublishers.com
@Walkinfaith122 жыл бұрын
Thanks for the app.!! 👍🏽
@JLsports7772 жыл бұрын
Run at the gym on treadmill
@IsWasWillBe2 жыл бұрын
That’s a great alternative for some especially to keep cool. Personally I’m not fond of treadmill running. I love the scenery of outdoors. And I hope to one day run a marathon so I want to get used to being outdoors.
@shahilagh2 жыл бұрын
I was seeing the gp yesterday and she said do u have dark thoughts I said no but that was a lie. Of course no point saying when I know I m real and they aren’t gonna help. I wanted a family ppl helping me when I m sick I have none of those . I v bern sick and didn’t even have energy often to follow up my diagnoses too .., everything’s myself since this began years ago .. I couldn’t have a life I wanted and I see everyone had around me
@namratamatsya67532 жыл бұрын
i am about to get my robotic thymectomy done and i am very excited to be able to run ,drive, being medication free. even now while i am typing my hands are hurting so i am looking forward for the surgery
@IsWasWillBe2 жыл бұрын
I hope you get all of the relief!!!!
@paulasanz960010 ай бұрын
Hello there How did your Thymectomy go ? Hope you are doing good?
@aboutthed00r2 жыл бұрын
Thanks for making this x
@shanikapalm13122 жыл бұрын
Thanks for this info
@klarajonsson37042 жыл бұрын
I am having my thymectomy in less than 3 weeks and I'm so nervous!!
@IsWasWillBe2 жыл бұрын
Good luck. Claiming that everything will go smoothly and your recovery will be fast. ✨
@paulasanz960010 ай бұрын
Hello there ✨🙏💫how are you doing after your Thymectomy? Hope you are doing good
@TinaMarie2 жыл бұрын
I only been on it 4 days and up 10lbs
@IsWasWillBe2 жыл бұрын
Girl… it’s the worst. Just try to watch what you’re eating as much as possible and don’t obsess over it. It will literally consume you if you let it.
@dyterrianrainey42892 жыл бұрын
@@IsWasWillBe I’m on 20 mg and I literally can’t sleep for work. I have no desire for sleep🤦🏿♂️
@Thareallslimm10 ай бұрын
I’m on a low dose will I get the weight gain?
@Kandeekane-12 жыл бұрын
Update please 💋
@msteeshell37932 жыл бұрын
My diagnosis with MG was I was really tried and feeling weak. I was thinking that a was having depression or diabetes because my Dr said I was boarder line diabetic. So over past couple months my symptoms was getting worse. My weakness increased and my voice change. Sound so crazy everyone noticed my voice. My right eye started drooping. So I went to PCP Dr he notice it and ran test. And then in form me that I have MG and need to see a Neurologist. It was hard for me to get an appt so I just went to ER because I was so weak I couldn’t hardly get around. So going to ER I was able to see a Neurologist and he test me and informed me that it’s medication that could help with my symptoms. He put me on mestinon and I start to feel better. I was in admitted to hospital for 3 days of monitoring and testing. After all the medication is helping me and I still early in my diagnosis. So this is my journey so far. Thank you for sharing your story. It really helps to know that I’m not alone in this journey. 🙏🏾💜💪🏾 Stay strong and blessed
@lizafield90022 жыл бұрын
Thank you for doing God's work on this planet. You are great at this, a true healer, so needed at this time on Earth! I always urge people to get outdoors, even if to sleep under a tree & watch clouds sail over & see the night stars. Humans have imprisoned ourselves indoors, can't smell good earthy airs or fall leaves, can't hear cicadas sing or owls or wind in trees. We eat dead food, watch a flat screen, don't sing or dance or work or walk places together. Then wonder why the young especially are depressed. A guy named Will Allen has a good response to these plights in Detroit where he gets people out gardening, laughing, composting, planting trees & helping one another. I think it is called Growing Power. I hope to make similar changes in Virginia. Anyhow, these videos all help me thru chronic lung adventures; can't thank you enough!
@PrintPraySlay2 жыл бұрын
These are so neat and yes I agree silence is golden lol.
@veravero57152 жыл бұрын
Thank you for video , so good you are ok now🙏
@IsWasWillBe2 жыл бұрын
Yes. I'm doing much better now. Thank you for asking
@veravero57152 жыл бұрын
Super!
@veravero57152 жыл бұрын
Thank you for the video. Have you looked at anti-inflammatory diet? It is so hard but if there is a chance to bring life as it was before ?....
@IsWasWillBe2 жыл бұрын
Yes. I've done AIP a couple times.
@shaymotley69142 жыл бұрын
1 word... hospital As soon as they start talking that "you need to go to hospital stuff.." I freak out..im getting better at it though. I feel helpless there especially during this pandemic because family can't be there to see what's happening and make sure they are taking care of you, and I sometimes can't even speak for myself. . . My last impatient stay was a complete nightmare. So I think once, twice, and sometimes three times before I check into anybodys hospital. It's scary.
@IsWasWillBe2 жыл бұрын
"Admitted to the hospital" is definitely a trigger statement. I didn't even think about being stuck in the hospital and not being able to be visited by family. Sounds absolutely awful
@birdiexoxo2 жыл бұрын
Wow, this is perfectly timed! I had a flare up on June 23rd and didn’t really get an explanation for why it happened. And then it happened again this past weekend and I’ve been feeling terrible ever since and haven’t really gotten a lot of sleep. I’m pretty sure most of it is just my anxiety about my health, but that doesn’t make it any less scary. I’ve got an appointment with my doctor on Wednesday and I swear this week has been the longest week ever. I was diagnosed with CPTSD for some abusive relationships I was in so that connecting to my chronic illness would make sense. Also, you talking about being terrified about going back to where you were at the beginning of your chronic health journey is something I’ve really been struggling with. I went to the ER about 6 years ago for three days because of my blood pressure/heart rate and then spent the next two years not able to really do anything because my POTS was so bad. I was telling my mother recently that I cannot handle that again. Especially now with corona coming back up where I am, I can’t imagine being in the ER right now.
@IsWasWillBe2 жыл бұрын
First of all, thank you for helping me NOT feel crazy or alone. Since you're a little familiar with PTSD, do you find any of those therapies helpful in managing stress or triggers? I definitely don't want to be anywhere near a hospital right now. It's like an additional worry/burden on top of the heavy mental load of having a chronic illness. Best wishes for your upcoming appointment. Hope you get some answers and relief!
@birdiexoxo2 жыл бұрын
@@IsWasWillBe Of course! I’ve found that regular therapy and also finding some sort of anxiety meds that work for your body really helped me. I believe that my therapist is closest to DBT, but finding the right therapist for you is very important. I also did one of those genetic tests at my doctors office to see which medications work best with my body chemistry. Lots of rest and compassion for yourself are a must as well. I have found though that doing breathing exercises actually makes me freak out more sometimes, so as long as I’m not hyperventilating, I don’t worry about my respiration. My best coping mechanism personally is a sleep podcast that I like and I listen to it when I get a little too freaked out. It’s not a guided meditation so it doesn’t feel forced, but it’s also something calming that you can focus on. As for triggers like hospitals and such, I’m still working on that one myself!
@IsWasWillBe2 жыл бұрын
@@birdiexoxo I absolutely love everything you just said. I just started working with a new therapist and we are focusing on mindfulness so its pretty aligned with some of the things you've encountered. I'll have to try that sleep podcast idea.
@PrintPraySlay3 жыл бұрын
LOL @ that fire drill. You are doing a lot of traveling which is cool but I agree that you have to listen to your body and chill. I know it felt good to make it to the special events though.
@IsWasWillBe3 жыл бұрын
Chocolate melts in the sun!!! I haven't gone anywhere THIS summer. I'm talking about summers past and the lessons learned. Thanks for watching!
@PrintPraySlay3 жыл бұрын
@@IsWasWillBe lol oh this summer didn't seem that hot for me but that probably because I am indoors mostly as well
@PrintPraySlay3 жыл бұрын
Congrats on your nomination Morgan!
@IsWasWillBe3 жыл бұрын
Thanks Kelly!!!!
@veravero57152 жыл бұрын
I wish to send you email but I could not get your address
I may be going on this soon. The double vision hasn’t gotten better for me. I am still able to workout since MG hasn’t truly affected my limbs. Ocular for me. If I do get on this. I will workout every day like before. And gets meal prep service.
@IsWasWillBe3 жыл бұрын
If you just have ocular MG, then it wont impact the rest of your body function. I still found it a little crazy to workout with the double vision though. I would get super dizzy.
@Pusfilth2 жыл бұрын
@@IsWasWillBe I just close one eye
@PrintPraySlay3 жыл бұрын
New video! It was nice to hear your perspective and feelings on this Morgan. I think you should tell your friends how you feel. I am sure they will be understanding if they aren't already in the know. I would suggest making smaller plans with each friend since you mentioned that you don't have many. That is what I have done and it works! I still wear my mask (until eating) and its perfectly fine. We eat outside or in a place with the door/windows open. OH and you know I understand your point about working in your purpose and how a job may not fill that space. I made a major life change with my career and I love it. I had to really evaluate what was important to me and my daily joy won! I like the art you made. It looked freeing!
@TheDragonshadow12313 жыл бұрын
@Is Was Will Be. Whatever you buy look for company who produce natural at first place and do not believe company making alternative greener product who known to produce chemical at first place. Such, instance like Dawn/Tide/Windex/Lysol/Johnson and many more!. Half even bought them and they thought it "Natural" cause of the labeled and they the company behind producing chemical at first place!. Method it's 50-50%/ Mrs. Meyer/J.R.Watkins/Ecover/Biokleen/Melaluca/Better Life/ Seventh Generation/ Indigo Wild/Ecos/Nellie's/Puracy/Molly's Sud/Poo-Pourri/Soapnut Republic/ Borax/ Dr's Bronner/Castile Soap/Attitude and the list goes on e.t.c. Known for producing Natural at first place!
@IsWasWillBe3 жыл бұрын
This is a great tip! Do you have a go-to reference to look up company info or do you google?
@TheDragonshadow12313 жыл бұрын
@@IsWasWillBe Well, it more of a research based and I do researching on history of each basis of almost all company what they do. Primarily, googling+wikipedia and the company info website forums comments and FAQ site etc
@AlanaEsoterica3 жыл бұрын
ALL OF THIS!!! Thank you for making this video. I'm also the very independent and accomplished one in my family. So the side effects and flare ups associated with multiple myeloma made me depressed and embarrassed. Neither my body nor my house was up to my standards so I hid. I stopped making KZread videos. It was only last year that I began to be grateful for what I have and start releasing the shame. It's a work in progress. My policy is if I wouldn't let someone else say it to me then I should not say it to me either. I'm practicing being kind to myself.
@candicecoleman95083 жыл бұрын
hi mo
@candicecoleman95083 жыл бұрын
hi no
@jefffisher24333 жыл бұрын
I wish the doctors and be truthful when you're diagnosed with mg I've never treated anybody with mg I don't know anything about in it never tell you you can have crisis's and quit breathing and be put on ventilators are you can't chew and swallow your food I wish you could find one doctor that would just be truthful and tell you good truth about this illness I was diagnosed in 2020 hospitalized six times power port put in my chest IVIG plasmapheresis and now they just took out my thymus gland
@IsWasWillBe3 жыл бұрын
I definitely relate to general neurologists not being aware of MG or how to treat it. Thankfully. I was able to find a specialist that treats MG patients. That has been a game changer in my journey. Also things got better for me after my thymectomy but it takes a while to really see the change. Hoping for you to see improvements soon.
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I can definitely relate with the driving with double vision my vision became a problem in 2012 which lasted for a month I was seeing things horizontally but I wasn't diagnosed until 2015. In 2014 my whole life changed I had to be spoon fed bathed wiped and dressed I was completely disabled with no explanation why for a year I remained like this. But when my vision became affected in 2012 after that I had been experiencing unexplained symptoms that would occur but I was just blowing it off. When I was dx'd in 2015 I was numb with no emotion I truly didn't know what to say because I couldn't believe I had such a debilitating disease such as MG a name I had never heard of. It's been 9 years and still counting I've been in remission twice once for 7 months and for 4 years with no signs or symptoms of MG and last December my symptoms returned from the pits of hell due to an intense and heated argument with a sibling and an over exerted 3 day move. I'm now back at square one 😢 but they're mild symptoms here and there MG shows it's face that's when I know I'm doing too much. Otherwise I'm okay with MG just dealing with my other health issues. Sorry this is so long my apologies. Thanks for sharing your story as well ❤ more awareness is so crucial.
Thank you for this. My Daughter is having her thymectomy today.
hey your facebook and instagram didnt work, did you delete it? i like storys about myasthenia gravis... i hope you are fine in 2024 ^^
Hi. Congrats. Can you tell us how you're doing now? Any MG symtoms or medications?
Hope you are doing well.
Hello gorgeous ❤I’m so happy that you shared your experience! I’m about to have this surgery in a few weeks and you have helped ease my mind about the whole ordeal! I’m gonna do it and I Will Be OK 👍🏾 I Hope you’re doing well ❤
I am 12 days post Robotic Thymectomy. I would not say that I feel well enough to go back to work. But, I am already having improvement in my MG symptoms.
Our MG medications are soo time specific!! I had an issue with Nurses wanting to not let them be with me when I had Gallbladder Surgery. I’m waiting for Thymectomy and am feeling soo hopeful about having improvement in my MG Symptoms. I’m so happy you have had good results!!! Thanks for sharing!
My MG went into remission on its own. Thank God.
Mine did also...for four years. Now it's back and I am having a thymectomy in a few months (July).
Thanks for sharing. How long did it take to go into remission? Did you change your diet? Can you share Any changes in your habits from before and after remission
It's really hard to hear, even with the headphones on. And what is 'mg' ??? Yeah, loneliness is a nasty side effect of a prolonged illness. After 10 years I had lost everyone, except my husband, although our marriage did suffer too. All the nice things in life fall away. I can't even go to church. I can't go to the grocery store without getting really ill there. I was always there for everyone. No one is there for me. I was too ill to even receive friends for a couple of years. Chronic Lyme Disease in my case. Most horrid. Cruel to an outgoing person. Bad for your finances too.
I am shocked at no comments and lack of thumbs up! What she has to say is so important. I see this vloger stopped two years ago. Wonder why? ; (
Hey guys can you all weigh in if you are seronegative or have the antibodies? I’m negative. Was originally diagnosed in 2013, was on prednisone 50mg, imuran and mestonin. Recently came out of remission and this time I’m unable to tolerate mestonin at all. Tried every which way to take it, broke pills down into quarters and everything, side effects were worse than the symptoms of MG. I’m just really struggling. My stress level is through the roof and not much hope of my home situation changing either. Husband had a stroke and he’s where he’s always going to be with his needs. I also have multiple other autoimmune diseases and they’re also flaring at times too. I’m going to see a third neurologist in a week. I’ve had a positive EMG/SFNCS as well. I did a genetic test which one of the very young neurologist told me because of the genetic test I don’t have mg. My head is spinning and this is also causing lot of stress too. I’m only taking prednisone 10 mg this time due to some pretty serious osteoporosis. I’m also having trouble with elevated blood pressure and my meds for this are not holding it down. I’m beyond exhausted and weak, have ptosis in both eyes left worse than right. I also have a lot of pain and thank goodness I do have pain meds for this. I’m out on disability due to severe issues with my autoimmune diseases and at the time I retired my MG was not a factor, that just flared last November, after a pretty resistant urinary tract infection. I feel like I’m “wagging the dog.” Anyway if anyone would respond if they’ve had positive or negative antibodies for their mg I would appreciate it. I’m trying to see how many had a thymectomy with good outcome who were seronegative. Thanks everyone and be well.
Hi. I hope you're better now. That sounded horrible. Did you end up doing the thymectomy? Any results?
Love this video thank you 😊 You helped me to say yes to the surgery My Thymectomy is scheduled for September 28th I was diagnosed on August the 1st .. 4x2 cms (mass) Taking PYRIDOSTIGMINE only 3/4. Times per day Mostly ocular MG sometimes I feel some weaknesses in my arms Thank you again Hope you are doing great 💓✨🙏
Congrats. Any update on your symptoms?
Love your videos they are helping me a lot ✨💫❤️🩹 Thank you 🙏
Thank you for this video x How are you doing now? Xx
Thank you so much for sharing, your story gives me so much hope, as I am making the decision of thymectomy or not. Your attitude is very inspiring.
Hello dear I’m having my Thymectomy 4 days from now today is September 23rd Diagnosed on August the 1st Taking Mestinon only Mostly Ocular MG Did you have your Thymectomy done ? Hope you are doing well
Do you like beef, butter, bacon, lamb, fish, or eggs? Humans don't need to eat plants, and we are much happier and healthier when we don't. If you live near a source of fresh, unprocessed milk, a quart of that, a day works as well. Allergies are also auto-immune.
I'm going Neurologist appt next Thursday I have to go back to the throat doctor they did nothing but check my bumps under my tongue which could not be removed because of the bone I was so angry 😢 I i thought it was stones its something else
I mean I did over work out too much which cost myasthenia gravis condition but but my the heat in my house wasn't on in September and October I got sick it hot in my house I had the windows s d fan on,
How are you doing I'm sorry you had myasthenia gravis condition muscle spasms and muscle weakness, I have myasthenia gravis condition muscle spasms and muscle weakness disease
Fellow MGer here! Thanks for your videos. I just found your channel tonight. “It’s really good to see you” is the line that I say to others dealing with illness.
I have my thymectomy 4 months ago i the best decision I getting off my medicine little my little now I can talk I can eat
Ye must be born again. Romans 3:23 - For all have sinned, and come short of the glory of God; 1 Corinthians 15:1-4 - Moreover, brethren, I declare unto you the gospel which I preached unto you, which also ye have received, and wherein ye stand; By which also ye are saved, if ye keep in memory what I preached unto you, unless ye have believed in vain. For I delivered unto you first of all that which I also received, how that Christ died for our sins according to the scriptures; And that he was buried, and that he rose again the third day according to the scriptures: Acts 20:21 - Testifying both to the Jews, and also to the Greeks, repentance toward God, and faith toward our Lord Jesus Christ. John 3:3 - Jesus answered and said unto him, Verily, verily, I say unto thee, Except a man be born again, he cannot see the kingdom of God. John 3:36 - He that believeth on the Son hath everlasting life: and he that believeth not the Son shall not see life; but the wrath of God abideth on him. Ephesians 2:8-9 - For by grace are ye saved through faith; and that not of yourselves: it is the gift of God: Not of works, lest any man should boast. Romans 10:17 - So then faith cometh by hearing, and hearing by the word of God. Romans 10:9-13 - That if thou shalt confess with thy mouth the Lord Jesus, and shalt believe in thine heart that God hath raised him from the dead, thou shalt be saved. For with the heart man believeth unto righteousness; and with the mouth confession is made unto salvation. For the scripture saith, Whosoever believeth on him shall not be ashamed. For there is no difference between the Jew and the Greek: for the same Lord over all is rich unto all that call upon him. For whosoever shall call upon the name of the Lord shall be saved. 2 Corinthians 5:17 - Therefore if any man be in Christ, he is a new creature: old things are passed away; behold, all things are become new. 2 Corinthians 13:5 - Examine yourselves, whether ye be in the faith; prove your own selves. Know ye not your own selves, how that Jesus Christ is in you, except ye be reprobates? Revelation 21:8 - But the fearful, and unbelieving, and the abominable, and murderers, and whoremongers, and sorcerers, and idolaters, and all liars, shall have their part in the lake which burneth with fire and brimstone: which is the second death. Salvation Message: kzread.info/dash/bejne/do2Jpo-gpq6eoqQ.html The word of God in English is the King James Bible. www.localchurchbiblepublishers.com
Thanks for the app.!! 👍🏽
Run at the gym on treadmill
That’s a great alternative for some especially to keep cool. Personally I’m not fond of treadmill running. I love the scenery of outdoors. And I hope to one day run a marathon so I want to get used to being outdoors.
I was seeing the gp yesterday and she said do u have dark thoughts I said no but that was a lie. Of course no point saying when I know I m real and they aren’t gonna help. I wanted a family ppl helping me when I m sick I have none of those . I v bern sick and didn’t even have energy often to follow up my diagnoses too .., everything’s myself since this began years ago .. I couldn’t have a life I wanted and I see everyone had around me
i am about to get my robotic thymectomy done and i am very excited to be able to run ,drive, being medication free. even now while i am typing my hands are hurting so i am looking forward for the surgery
I hope you get all of the relief!!!!
Hello there How did your Thymectomy go ? Hope you are doing good?
Thanks for making this x
Thanks for this info
I am having my thymectomy in less than 3 weeks and I'm so nervous!!
Good luck. Claiming that everything will go smoothly and your recovery will be fast. ✨
Hello there ✨🙏💫how are you doing after your Thymectomy? Hope you are doing good
I only been on it 4 days and up 10lbs
Girl… it’s the worst. Just try to watch what you’re eating as much as possible and don’t obsess over it. It will literally consume you if you let it.
@@IsWasWillBe I’m on 20 mg and I literally can’t sleep for work. I have no desire for sleep🤦🏿♂️
I’m on a low dose will I get the weight gain?
Update please 💋
My diagnosis with MG was I was really tried and feeling weak. I was thinking that a was having depression or diabetes because my Dr said I was boarder line diabetic. So over past couple months my symptoms was getting worse. My weakness increased and my voice change. Sound so crazy everyone noticed my voice. My right eye started drooping. So I went to PCP Dr he notice it and ran test. And then in form me that I have MG and need to see a Neurologist. It was hard for me to get an appt so I just went to ER because I was so weak I couldn’t hardly get around. So going to ER I was able to see a Neurologist and he test me and informed me that it’s medication that could help with my symptoms. He put me on mestinon and I start to feel better. I was in admitted to hospital for 3 days of monitoring and testing. After all the medication is helping me and I still early in my diagnosis. So this is my journey so far. Thank you for sharing your story. It really helps to know that I’m not alone in this journey. 🙏🏾💜💪🏾 Stay strong and blessed
Thank you for doing God's work on this planet. You are great at this, a true healer, so needed at this time on Earth! I always urge people to get outdoors, even if to sleep under a tree & watch clouds sail over & see the night stars. Humans have imprisoned ourselves indoors, can't smell good earthy airs or fall leaves, can't hear cicadas sing or owls or wind in trees. We eat dead food, watch a flat screen, don't sing or dance or work or walk places together. Then wonder why the young especially are depressed. A guy named Will Allen has a good response to these plights in Detroit where he gets people out gardening, laughing, composting, planting trees & helping one another. I think it is called Growing Power. I hope to make similar changes in Virginia. Anyhow, these videos all help me thru chronic lung adventures; can't thank you enough!
These are so neat and yes I agree silence is golden lol.
Thank you for video , so good you are ok now🙏
Yes. I'm doing much better now. Thank you for asking
Super!
Thank you for the video. Have you looked at anti-inflammatory diet? It is so hard but if there is a chance to bring life as it was before ?....
Yes. I've done AIP a couple times.
1 word... hospital As soon as they start talking that "you need to go to hospital stuff.." I freak out..im getting better at it though. I feel helpless there especially during this pandemic because family can't be there to see what's happening and make sure they are taking care of you, and I sometimes can't even speak for myself. . . My last impatient stay was a complete nightmare. So I think once, twice, and sometimes three times before I check into anybodys hospital. It's scary.
"Admitted to the hospital" is definitely a trigger statement. I didn't even think about being stuck in the hospital and not being able to be visited by family. Sounds absolutely awful
Wow, this is perfectly timed! I had a flare up on June 23rd and didn’t really get an explanation for why it happened. And then it happened again this past weekend and I’ve been feeling terrible ever since and haven’t really gotten a lot of sleep. I’m pretty sure most of it is just my anxiety about my health, but that doesn’t make it any less scary. I’ve got an appointment with my doctor on Wednesday and I swear this week has been the longest week ever. I was diagnosed with CPTSD for some abusive relationships I was in so that connecting to my chronic illness would make sense. Also, you talking about being terrified about going back to where you were at the beginning of your chronic health journey is something I’ve really been struggling with. I went to the ER about 6 years ago for three days because of my blood pressure/heart rate and then spent the next two years not able to really do anything because my POTS was so bad. I was telling my mother recently that I cannot handle that again. Especially now with corona coming back up where I am, I can’t imagine being in the ER right now.
First of all, thank you for helping me NOT feel crazy or alone. Since you're a little familiar with PTSD, do you find any of those therapies helpful in managing stress or triggers? I definitely don't want to be anywhere near a hospital right now. It's like an additional worry/burden on top of the heavy mental load of having a chronic illness. Best wishes for your upcoming appointment. Hope you get some answers and relief!
@@IsWasWillBe Of course! I’ve found that regular therapy and also finding some sort of anxiety meds that work for your body really helped me. I believe that my therapist is closest to DBT, but finding the right therapist for you is very important. I also did one of those genetic tests at my doctors office to see which medications work best with my body chemistry. Lots of rest and compassion for yourself are a must as well. I have found though that doing breathing exercises actually makes me freak out more sometimes, so as long as I’m not hyperventilating, I don’t worry about my respiration. My best coping mechanism personally is a sleep podcast that I like and I listen to it when I get a little too freaked out. It’s not a guided meditation so it doesn’t feel forced, but it’s also something calming that you can focus on. As for triggers like hospitals and such, I’m still working on that one myself!
@@birdiexoxo I absolutely love everything you just said. I just started working with a new therapist and we are focusing on mindfulness so its pretty aligned with some of the things you've encountered. I'll have to try that sleep podcast idea.
LOL @ that fire drill. You are doing a lot of traveling which is cool but I agree that you have to listen to your body and chill. I know it felt good to make it to the special events though.
Chocolate melts in the sun!!! I haven't gone anywhere THIS summer. I'm talking about summers past and the lessons learned. Thanks for watching!
@@IsWasWillBe lol oh this summer didn't seem that hot for me but that probably because I am indoors mostly as well
Congrats on your nomination Morgan!
Thanks Kelly!!!!
I wish to send you email but I could not get your address
@@veravero5715 you can reach me here: [email protected]
I may be going on this soon. The double vision hasn’t gotten better for me. I am still able to workout since MG hasn’t truly affected my limbs. Ocular for me. If I do get on this. I will workout every day like before. And gets meal prep service.
If you just have ocular MG, then it wont impact the rest of your body function. I still found it a little crazy to workout with the double vision though. I would get super dizzy.
@@IsWasWillBe I just close one eye
New video! It was nice to hear your perspective and feelings on this Morgan. I think you should tell your friends how you feel. I am sure they will be understanding if they aren't already in the know. I would suggest making smaller plans with each friend since you mentioned that you don't have many. That is what I have done and it works! I still wear my mask (until eating) and its perfectly fine. We eat outside or in a place with the door/windows open. OH and you know I understand your point about working in your purpose and how a job may not fill that space. I made a major life change with my career and I love it. I had to really evaluate what was important to me and my daily joy won! I like the art you made. It looked freeing!
@Is Was Will Be. Whatever you buy look for company who produce natural at first place and do not believe company making alternative greener product who known to produce chemical at first place. Such, instance like Dawn/Tide/Windex/Lysol/Johnson and many more!. Half even bought them and they thought it "Natural" cause of the labeled and they the company behind producing chemical at first place!. Method it's 50-50%/ Mrs. Meyer/J.R.Watkins/Ecover/Biokleen/Melaluca/Better Life/ Seventh Generation/ Indigo Wild/Ecos/Nellie's/Puracy/Molly's Sud/Poo-Pourri/Soapnut Republic/ Borax/ Dr's Bronner/Castile Soap/Attitude and the list goes on e.t.c. Known for producing Natural at first place!
This is a great tip! Do you have a go-to reference to look up company info or do you google?
@@IsWasWillBe Well, it more of a research based and I do researching on history of each basis of almost all company what they do. Primarily, googling+wikipedia and the company info website forums comments and FAQ site etc
ALL OF THIS!!! Thank you for making this video. I'm also the very independent and accomplished one in my family. So the side effects and flare ups associated with multiple myeloma made me depressed and embarrassed. Neither my body nor my house was up to my standards so I hid. I stopped making KZread videos. It was only last year that I began to be grateful for what I have and start releasing the shame. It's a work in progress. My policy is if I wouldn't let someone else say it to me then I should not say it to me either. I'm practicing being kind to myself.
hi mo
hi no
I wish the doctors and be truthful when you're diagnosed with mg I've never treated anybody with mg I don't know anything about in it never tell you you can have crisis's and quit breathing and be put on ventilators are you can't chew and swallow your food I wish you could find one doctor that would just be truthful and tell you good truth about this illness I was diagnosed in 2020 hospitalized six times power port put in my chest IVIG plasmapheresis and now they just took out my thymus gland
I definitely relate to general neurologists not being aware of MG or how to treat it. Thankfully. I was able to find a specialist that treats MG patients. That has been a game changer in my journey. Also things got better for me after my thymectomy but it takes a while to really see the change. Hoping for you to see improvements soon.
OmG