Пікірлер

• 
  @DavidJSmith-hl6kb7 күн бұрын

  WHAT TYPE OF HAND CONTROLS ARE YOU USING?...I HAVE A 2008 MUSTANG V6 WITH AUTO TRANS!...THANKS AND GOD BLESS AMERICA! 🇺🇸 😇

• 
  @VernSea01686 күн бұрын

  Honestly my hand controls were stripped from a professionally built handicap accessible van. My dad is a very hands-on farmer and he just took the Hand Controls out of my minivan and transferred them over. So I couldn’t tell you what kind they are or anything like that. I just know they are professional grade, Hand Controls installed professionally into a minivan to begin with. Hope this helps. You can also get portable Hand Controls off of Amazon for like $200 give or take or you can go the expensive route and have them professionally installed, but that is really expensive. Many people I know, have the portable Hand Controls that they just bought off of Amazon or Walmart. Hope this helps.

• 
  @mikeflick182620 күн бұрын

  The life alert has a button so u can call for help Medicaid and Medicare pays for that

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  @mikeflick182620 күн бұрын

  I also have a life alert necklace I carry with me on the property and also a phone

• 
  @VernSea016820 күн бұрын

  Same! Life alert & phone

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  @mikeflick182619 күн бұрын

  @@VernSea0168 awesome actually everyone should have those

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  @mikeflick182620 күн бұрын

  So what I was talking about with the couch works glad to see that

• 
  @user-hv4gw7jw2n4 ай бұрын

  can'т ѕoмeone нelp her

• 
  @VernSea01684 ай бұрын

  It’s called an attempt for a reason. I attempted it with someone standing by so yes after the video ended, I did have help. I wanted to try so that’s exactly what I did.

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  @user-hv4gw7jw2n4 ай бұрын

  wнaт happpend

• 
  @danhubanks5544 ай бұрын

  God bless you and your family. I'm always here for you if you need anything.

• 
  @VernSea01684 ай бұрын

  Thanks

• 
  @chirpinbird66115 ай бұрын

  I have tears for you in my heart. And on my face. My deepest condolences. 💐

• 
  @VernSea01685 ай бұрын

  Thank you very much. I really appreciate it

• 
  @sadlaughter695 ай бұрын

  Sorry for your loss. I can empathise with you, i went through a similar situation about a year ago. It gets better.

• 
  @VernSea01685 ай бұрын

  Thank you very much. I really appreciate it. I know it will take time, but it still just so fresh.

• 
  @aa649125 ай бұрын

  Lost my mother to Alzheimer’s July 12, 2012. You have my deepest condolences. I believe both our mothers are with God.

• 
  @VernSea01685 ай бұрын

  Definitely agree to that

• 
  @Beingme1115 ай бұрын

  I’m so sorry. Your mother was 4 years younger than me ❤

• 
  @VernSea01685 ай бұрын

  Thank you. I greatly appreciate it.

• 
  @VernSea01685 ай бұрын

  @@mikeflick1826 thank you

• 
  @VernSea01685 ай бұрын

  @@mikeflick1826 thank you

• 
  @mikeflick18265 ай бұрын

  @@VernSea0168 your welcome

• 
  @greg-62055 ай бұрын

  My god taunie. I’m so sorry So much important information. Glad I found this

• 
  @VernSea01685 ай бұрын

  She lost her battle to Alzheimers last Thursday

• 
  @greg-62055 ай бұрын

  So sorry :( I didn’t know these symptoms were this intense It’s Greg jones btw

• 
  @VernSea01685 ай бұрын

  @@greg-6205 oh ok thank you very much

• 
  @powerWithinUs40555 ай бұрын

  Just seems that the mechanics fail. Taunie has great strength and stamina. The chair is at fault. It doesn’t even lock itself. Chair should be voice activated. It should offer Taunie a ride up. She could roll onto a conveyor belt. It should be a steam shovel scoop. A vending machine at the mall is more intuitive…the overhead claw is activated to pick up a stuffed toy. A slant board drop-down , lifts up two feet, allowing for her to skootch before it retracts. Help is on the way. Genetic engineering, Taunie will walk and run.

• 
  @VernSea01685 ай бұрын

  Haha that was very comical and I needed that right now. Thank you very much.

• 
  @user-mw3rf1cp1u5 ай бұрын

  Hi! Please tell me, what is the diameter of your catheter?

• 
  @VernSea01685 ай бұрын

  It is a 24 fringe Cath with a 5cc balloon

• 
  @handicapableadventures5 ай бұрын

  You're amazing!

• 
  @VernSea01685 ай бұрын

  Awww thank you ☺️

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  @handicapableadventures5 ай бұрын

  As an amputee with dual (L1 & S2) spinal cord injuries I know how hard it can be to get back into a wheelchair after having to dismount! I just this week posted a video on my channel showing me having to get back into my all-terrain offroad wheelchair after getting hopelessly stuck while on a 4-mile solo hike through the forest. Although I still have a little bit of use of my remaining leg, I can definitely relate!@@VernSea0168

• 
  @keithchurch78266 ай бұрын

  Hi there young lady. Hope your new year is going well.

• 
  @VernSea01686 ай бұрын

  Happy new year! 🎊🎆🎈 to you too

• 
  @matt675247 ай бұрын

  I am curious about your heart necklace. Is there meaning behind it?

• 
  @VernSea01687 ай бұрын

  Yes there is I’m in a relationship and that right there says so. It’s a sub dom relationship and I chose to be in it because he makes me happy

• 
  @matt675247 ай бұрын

  @@VernSea0168 I thought it was something like that but I didn’t want to say something in case I was wrong lol. Does being paralyzed play a role in you being submissive sexually?

• 
  @VernSea01687 ай бұрын

  @@matt67524no it doesn’t he accepts me for me as I do him he has spina bifida

• 
  @matt675247 ай бұрын

  @@VernSea0168 That’s awesome. So happy for you. He is a lucky dude. 😉

• 
  @VernSea01687 ай бұрын

  @@matt67524 thank you very much

• 
  @datagamer70577 ай бұрын

  I hope u are ok

• 
  @VernSea01687 ай бұрын

  Yes, I’m good that was at least a year ago I think

• 
  @jeandupont44908 ай бұрын

  Ce n'est pas bien de faire voire cela je suis handicapé

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  @VernSea01688 ай бұрын

  I’m doing what’s right for me. This is necessary for me to live alone. I don’t care if you’re disabled or not you’re not me so politely take your negative comments somewhere else

• 
  @TDIPower1238 ай бұрын

  Do you wear incontinence briefs ?

• 
  @kalincerabbani18938 ай бұрын

  God bless you my sister!❤

• 
  @VernSea01688 ай бұрын

  Thank you ☺️ may god bless you n keep you

• 
  @percyajmcdonald9 ай бұрын

  Hi Taunie, I think your amazing, keep doing you. I started following you on Tiktok.

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  @VernSea01689 ай бұрын

  Awesome I have three accounts vernsealock1989, rollwiththepunches, and rollwiththepunches07

• 
  @percyajmcdonald9 ай бұрын

  Such a terrible disease, Im sorry.

• 
  @VernSea01689 ай бұрын

  Thank you very much

• 
  @krizbellabaez522210 ай бұрын

  Sorry to tell you, but you don't have enough strength in your hands to transfer from the floor to the chair. You exhaust yourself by making the effort and you don't achieve it.

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  @krizbellabaez522210 ай бұрын

  It looks like you're going to fall... with The wheelchair...

• 
  @VernSea016810 ай бұрын

  Yeah sometimes it’s scary but independence is key

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  @krizbellabaez522210 ай бұрын

  someone to turn your torso and move your legs so you can sit... Come on, you can...

• 
  @krizbellabaez522210 ай бұрын

  You look very beautiful and very brave, making such an immense effort to get into the wheelchair... Come on, you can do it! Try to hold on well and turn your body until you can sit up... It will be a triumph for you...

• 
  @VernSea016810 ай бұрын

  🥰🥰🥰🥰🥰

• 
  @VernSea016810 ай бұрын

  Thanks for the compliments they mean a lot just having someone cheer for you is awesome

• 
  @krizbellabaez522210 ай бұрын

  Go... go... go... you can do it...

• 
  @VernSea016810 ай бұрын

  Thank you sooo much greatly appreciate it

• 
  @antifatits15719 ай бұрын

  Go go gadget helicopter

• 
  @monikabochmann279211 ай бұрын

  Was für eine krankheit?

• 
  @VernSea016811 ай бұрын

  English

• 
  @VernSea016811 ай бұрын

  I don’t have a disease I was in a car wreck

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  @horsesaremyfriends242 Жыл бұрын

  I dont drive, come give me a lift

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  @VernSea0168 Жыл бұрын

  Haha 😂 I’ll pass cuz idk you

• 
  @horsesaremyfriends242 Жыл бұрын

  ​@@VernSea0168uber drivers do it all the time dont be scared 😂

• 
  @jameswulzen590 Жыл бұрын

  you have different wheelchairs than I have, I have a "Drive".

• 
  @VernSea0168 Жыл бұрын

  Never heard of that

• 
  @TDIPower123 Жыл бұрын

  Have you had diaper in hospital after surgey

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  @VernSea0168 Жыл бұрын

  Um no I did not! I have a catheter and a bowel routine for that I’m not 6 months old

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  @TDIPower123 Жыл бұрын

  @@VernSea0168 dont you have accidents bowel ore bladder ?

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  @VernSea0168 Жыл бұрын

  @@TDIPower123 I have a catheter so no no accidents there and bowel wise yes but only if I’m sick or something like that so I choose to use ninjamas the kids pull up version because I am so little that depends won’t fit me. I do not wear a diaper though.

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  @TDIPower123 Жыл бұрын

  @@VernSea0168 ok but dont the leak if you mess them with poop ? What when you have diarreah ?

• 
  @VernSea0168 Жыл бұрын

  @@TDIPower123 no my body is programmed to go at a certain time if I get sick like I said I wear a brand of pull-ups because I’m so small

• 
  @petejones6030 Жыл бұрын

  So much effort, you’re fantastic. A light to us all.

• 
  @VernSea0168 Жыл бұрын

  Thank you so much

• 
  @mofidulislam5155 Жыл бұрын

  Hii❤

• 
  @shadowx2652 Жыл бұрын

  Interesting

• 
  @VernSea0168 Жыл бұрын

  Thank you 🙏

• 
  @perrydigmshift5092 Жыл бұрын

  What an effort. Great job!!! 👏🏼

• 
  @VernSea0168 Жыл бұрын

  Ty so much

• 
  @aa64912 Жыл бұрын

  My prayers are with you. I lost my mother to Alzheimer’s in 2012.

• 
  @VernSea0168 Жыл бұрын

  Thank you and I’m sorry for your loss my mom is only 60

• 
  @skywyzeparanormal7934 Жыл бұрын

  Sending prayers your way. May you and your family be blessed.

• 
  @VernSea0168 Жыл бұрын

  Thank you so much

• 
  @Beingme111 Жыл бұрын

  I’m so sorry about your mom ❤sending love ❤️

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  @VernSea0168 Жыл бұрын

  Thank you I believe everything happens for a reason

• 
  @lcwheeler567 Жыл бұрын

  ❤🎉 hey just hang in there things will get better at one point in time just hanging and may God be with you and your mom

• 
  @VernSea0168 Жыл бұрын

  Thank you much appreciated

• 
  @lcwheeler567 Жыл бұрын

  💕👾😇

• 
  @OceanSwimmer Жыл бұрын

  Hi Taunie, I found your channel because I was researching suprapubic catheters -- my mom had an episode of acute kidney injury that put her in hospital after I found her unconscious here at home. I thought she'd had a stroke. So did the EMTs and ER doctor. Her tests for stroke were negative. Fortunately, 2 days later it was discovered that she was retaining urine (residual after voiding was 700ccs!!) The day after a catheter was placed, she went from delirious to her regular self. The Urologist we took her to was an @ss#ole, so we're taking her Thursday to one I'm hoping will educate mom and help her understand that having a urinary catheter isn't the end of the world. I'm mom's caregiver & a retired RN. I hope to share information with mom to help her understand if she needs a catheter always, a suprapubic catheter could be her best option. It's baby steps for now. Your video about changing your superapubic catheter is very well done. I think mom would be less intimidated if she saw how it. Thank you for that video! I understand how hard it can be to be a caregiver for someone with Alzheimer's Disease. My brother-in-law had it and passed 2 years ago. Caring for him aged my sister due to fatigue and burnout. I am very impressed with the care you, your dad, and sister give your mom. It is hard sometimes to deal with an older parent who is moody, cruel, or controlling. My mom has no signs of Alzheimer's, but hasn't been a very nice person for many decades. I cry about it sometimes. I try to remember that emotions are transient, that I don't have to react to a mean comment, and I can control my reactions, not give in to them. Still, it's difficult. Thank you for posting this video. I think we all struggle to do the right thing in all situations. I sometimes fail, but keep trying. Best wishes from a California grandma. God bless you always.

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  @VernSea0168 Жыл бұрын

  Of course I’m glad my superpubic video could come in handy to so many people I never thought in my wildest dreams it would get so many views. It sure is hard to get used to having a catheter and yes, if it is not taken care of, they can spout, delirious symptoms such as dementia and Alzheimer’s. I have heard about that. Yes it is hard dealing with my moms Alzheimer’s. I try to keep my head up and praise God for the little blessings. For I believe everything happens for a reason. I’m still helping with her, although her bouts of being mean and cruel are getting worse especially when she gets upset. I deal with her like I would a child and tell her I don’t deserve your attitude. I’m only here to help, so can we please have a good day? She usually changes her tune and we have a good day. I have learned some tricks over the years to help combat her negative attitude. It’s been a struggle, but I pray to God I never have to use these tools again. It’s been a rough road for sure. Have you ever heard of this song? “help me remember“ by Hayes Carll? It’s a great reminder that it is a disease and to hate that disease not the person.

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  @OceanSwimmer Жыл бұрын

  @@VernSea0168, Thank you so much for your kind and thoughtful response. I will look up the song you mentioned by Hayes Carll! Thank you for that, too! Music really is The Doctor, another manifestation of God's Divine Grace....there are many of these everywhere, but I think you know that already. I am grateful my sisters came last week and gave me several days of respite. The first two days I slept round the clock except for the time necessary to empty mom's Foley bag (and teach them how to do it, with limited success). They did all they could, which was plenty. I miss tending mom's garden, which I planted years back with very colorful plants. The garden is one refuge for me..swimming is another. Both are off my calendar for the time being. Mom was discharged from hospital Feb 27th, so I'm still in the "learning to be efficient" phase. Home Health has been good, but requires some juggling between my schedule (I have appointments, too) and mom's appointments. In a few hours I will discuss this week's plan with the HH Scheduler. We're booked for 3 different visits 2 days this week. A bit overwhelming for mom at 97 years. I like your approach to your mom's negativity; simple, truthful, and fair. Good for you! I'll "borrow a page from your playbook" and use that when needed. I know God has made plans for each being, every person without exception. I frequently remind myself that as a rule, people are doing the best they are able, with only a minority of exceptions....and those aren't my business. Thank you for sharing your life, AND 'shining your Light' on a daily/hourly basis. A life devoted to Service isn't easy, but there's nothing like it. DO keep posting your videos, please. They help in ways you couldn't imagine, especially for caregivers. Stay strong, and God bless you always. ❤️🏞️

• 
  @larry9770 Жыл бұрын

  Hey Taunie how are you you look very nice

• 
  @VernSea0168 Жыл бұрын

  I’m good and thank you 😊

• 
  @chirpinbird6611 Жыл бұрын

  Good morning you’re beautiful your face is extremely pretty and attractive and also you’re a BAD A$$. just wanted to remind you of these things in case no one has lately. I hope you have a great day

• 
  @suzannesarni7506 Жыл бұрын

  Also with your SPC How do you wear it under your clothes? Your jeans, for instance. Do you wear a leg bag? And how do you secure the catheter to your body with tape? I bend a lot for transferring and wondered if I be pulling on it constantly but I see you bending in that area a lot for moving your legs and such. How do you keep from pulling out your tube?

• 
  @VernSea0168 Жыл бұрын

  I use the thigh strap I mentioned to you in your other comment and there’s straps that come with my 19oz leg bag that I wear under my jeans during the day. I really hope that helps clear things up a little

• 
  @VernSea0168 Жыл бұрын

  a.co/d/5r3nAMc There’s an example of a thigh strap

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  @suzannesarni7506 Жыл бұрын

  Perfect! Thanks so much!

• 
  @VernSea0168 Жыл бұрын

  @@suzannesarni7506 of course you’re so welcome

• 
  @suzannesarni7506 Жыл бұрын

  Thanks for doing these videos. Also for the ones transferring in and out of bed. I have had MS for over 30 years and found you from your suprapubic catheter video. Thank you for that video too as there isn't that much on KZread for people that are thinking about it!. I retain a lot and it's either SPC or dealing with wet pull-ups every couple hours. It's getting harder and harder to stand up to transfer. It's exhausting and I feel all I do is change my wet clothes all day. I was able to see your SPC coming off of the commode chair in this video, but I had a question. How do you sleep with it? Do you use a night bag and how do you hang it? I am a side sleeper facing into the bed t and n I'm just trying to picture how the catheter tube would look? And would it pull? I have scoliosis so I'm trying to see if my surgeon can put it up a little higher because I lean to one side 😳. I hope you're doing well. Thanks

• 
  @VernSea0168 Жыл бұрын

  You’re so welcome and if you face away from the edge of the bed get yourself a leg strap that hooks to your thigh. It’s just a thigh strap for holding the SP in place is all and if you face away from the edge of the bed just put the thigh strap on and put the catheter through the loop upside down so to speak it will drain that way I’ve done that for years and I have a hanger the is in between my mattress and the box frame that the bag hangs on. As for what I use, yes I use a night bag I find the bigger 4000 ml ones by bard work best as I chug four bottles of water before I go to bed. I also have a bucket that the bag hangs over in case the bag breaks, leaks, or I don’t get it closed off properly. As me anything you’d like I’ll try to help. Thanks for your comment as well as taking an interest in my videos. Much appreciated sweetheart

• 
  @suzannesarni7506 Жыл бұрын

  Oh thanks again! That's a great idea and it gives me more peace knowing that it is doable and I don't have to change my sleeping habits lol. One thing at a time 🙂 one thing at a time. I can't wait to chug water before bed and not worry about it 👍🏻 Thank you for answering me. I may hit you up again 🙂

• 
  @VernSea0168 Жыл бұрын

  @@suzannesarni7506 of course hit me up anytime you want. I’ll try my best to help.

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  @kathleenleonard3461 Жыл бұрын

  Thanks for sharing. Very informative.

• 
  @VernSea0168 Жыл бұрын

  Of course! I wish I had had information like this when it came time to learning how to do it on my own! So I thought it could be of help to others !!

• 
  @garycbishop942 Жыл бұрын

  Taunie, I totally understand the frustrations you go through on a daily basis. My wife has MS which was finally diagnosed after six back surgeries. Her legs are frozen in the seating position which means she sleeps on her back with her legs supported by dense foams in pillow form in pillowcases. Pat has limited use of her left hand, arthritis. I have designed a five-inch high-density foam seat cushion so she can be in her mobility chair all day. We have decided that I should be doing her "foley" instead of the hospital. It's a half a day project once a month, more often if the balloon deflates. Your video gave me the courage to do that, thank you! We are both retired, but I try to make her life as interesting and joyful as possible. I find learning how to be helpful to my wife through her disability a bit sad because everything I've learned/invented will not be passed on. God Bless you on your journey. Pat & Gary

• 
  @VernSea0168 Жыл бұрын

  That’s so sweet of you! God bless you and your wife! When I inflate my balloon for my cath I put in not 5cc but at least 15cc and I only get 10cc back when I change it monthly you’re more than welcome to check it out it’s under Taunie sealocks super pubic cath change I’ll try to post the link here

• 
  @VernSea0168 Жыл бұрын

  kzread.info/dash/bejne/mKqXsduAg5DAo8Y.html There it is hope that helps out a little bit

• 
  @VernSea0168 Жыл бұрын

  You could always create videos on things you do for her to help others just an idea! Thank you for finding my video on this inspiring! I too struggle with arthritis throughout my whole body! I am fused from C1 to S1/2 so I understand the lack of mobility. God bless you and your wife sincerely, me. Taunie.

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  @user-vs8hb1tp5x Жыл бұрын

  @@VernSea0168 Can I contact you on WhatsApp?

• 
  @VernSea0168 Жыл бұрын

  @@user-vs8hb1tp5x no I don’t have what’s app sorry and you don’t really know me no offense

• 
  @patriciasuarez5807 Жыл бұрын

  Thank you so much for teaching us!!!

• 
  @VernSea0168 Жыл бұрын

  Of course!! Glad and happy to be of service!! If you have any questions don’t hesitate to ask !

• 
  @johnhunter1296 Жыл бұрын

  Taunie, hope the ankle break has healed - they can be nasty things

• 
  @VernSea0168 Жыл бұрын

  It is healed, for the most part still hurts sometimes though

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  @cheriepeterson8187 Жыл бұрын

  My gf had muscular dystrophy had she wanted me to try to find some young ppl on here, hope u don't mind I ask is it muscular dystrophy? She has FSH muscular dystrophy..thanks Chica lemme know there not many young women our age w this type of condition at all, damn

• 
  @VernSea0168 Жыл бұрын

  I believe you are correct it is muscular dystrophy! Agreed on the fact that there or not many young women out there with a disability willing to share their disability! I am glad you found my video and liked it! Thank you for commenting

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  @cheriepeterson8187 Жыл бұрын

  Yahh I guess it's more rare then I thought! But ya I'm trying to her out there, and she said she would make videos to share what her life is like, from like transfers, and how we do transfers from like her chair to my car, and like u know more or less "day in my life w. FSH MD", so see this is know inspired her more to wanna so this, and I think it would make her feel soo much better because she's been down lately and I've 🧠 storming on something do get her out of this dark cloud she's been under for a min 😔

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  @VernSea0168 Жыл бұрын

  @@cheriepeterson8187 that’s understandable! Sometimes it’s hard to have serenity and accept the things we cannot change. Courage to change the the things we can change and the wisdom to know the difference!!