Migraine Australia is a national patient advocacy organisation to support all Australians living with migraine and their families.
Through advocacy, information and support, and led by people living with migraine, our mission is to actively and demonstrably improve the quality of life and wellbeing of all Australians living with migraine and their families, and reduce the burden of migraine on both those directly affected and the broader community, through the prevention of migraine attacks, medication overuse headache, and other migraine related conditions.
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I have been told by my own mother that my sense of humour is not only darker than my coffee but also brutally sarcastic so I love Ella's outlook and share it
I agree the alerts are not as accurate as my head
Ty
Love this doctor
❤
5:09
Going to give this a ago. I deal with it 24/7 and can no longer walk. It's taken my ability to live my life. Need a wheelchair to get around. I live in a dark room with hardly any sound or light. I hope it helps. I don't want to live like this for much longer.
WOW- another utterly factually WRONG -person ! I’m OUT ANOTHER BULL SHITTER !
I cannot wrap my head around the fact that you need to pay for your medications in US 👀👀👀 In Europe, we get them free of charge 😅 And I think it’s also cheaper in Europe - the current price for AJOVY is 383 EUR.
Agreed. Am in the U.K and on my second year (Free) of Ajove but we in the U.K have to jump through “Hoops” to meet the strict criteria to be prescribed and continue the prescription. Most have to have an enforced 3 month break after the year before we start the questioning of the criteria again!😡 (Probably down to funding) - luckily I only had to have a 3 week break.
Some insurance companies cover it but it’s a small inconvenience compared to everything else we have access to in the U.S.
It usnt covered in canada either.
what about patients who were well before a martial artist, soccer player, swimmer and in the army so impeccable balance and tolerance, but post head injury pain/migrains and sensitity all the time, disabled and can't hardly leave the house.
I have constant headaches, noise light sensitivity, sensitivity to scents, trouble balancing and all kinds of problems after a head injury. I never had problems or headaches before my head injury, I also have oscillopsia and visual vertigo, extreeme fatigue. But tests show the vestibular system is norma;l my neuro said it's hypersensitivities post head injury and a study from cambridge came out this year and corroborated that saying post concussion hyperconnected pathways can cause the myriad of symptoms we suffer. The question is how on earth do you treat it as I've had vision and vestibular therapy with a slight improvement to how dizzy I get but not massive. It also feels like the dizziness and imbalance can fluctuate which is confusing, I have heard autonomic issues can cause dizziness and I have alot of issues like I don't sweat anymore and my stomach doesn't seem to work properly. Could it be autonomic causing the dizziness and imbalance. It's been 5 years I'm completely disabled, can't work and rarely leave the house because it causes so much more suffering.
You cover alot of ground there but what about post head injury headaches? I have a constant aching head and almost constant migraine, how do you abort it when it never goes away? A patient who never had headaches in life and post head injury is disabled by them and many other symptoms going on 5 years now.
This may be my last hope. I've tried so many things and medicines. I cant walk anymore or see straight and doctors dont care. Its 24/7 i cant live like this.
My advise. Be patient. Some are Slow Responders and need more than the 3 month trial here in the U.K we are given. I was one of them but once Ajove started to build into my system I started to see improving results. I was in an awful state for many years before the correct diagnoses. I can not begin to tell you the amount of Vomiting / Pain Days I had and missed dinners and outings before Ajove. I had tried 4 oral preventatives before 2 rounds of Botox and then Ajove. Am now on my 2nd year on Ajove. Is NOT a miracle drug as there is no complete cure but I am living my Best Life now with a reassurance I can carry out my daily plans. ❤Good Luck❤️
@@susanterry4698 That is amazing to hear! I'll take more better days. Any if given. My insurance sadly denied Ajovy. I have to try Emgality or one other before I can appeal. I hope they help. Thank you for your reply. I hope you are still doing well.
The wear off period is killing me
What is the wear off period? My Dr. Prescribed this.
Wear off?
Would you be willing to share a little more ? 💕
You need to visit a psychiatrist, Ajovy isn't a problem.
My name is Doris , and I zam from Peru. I suffered with migrain gor many, many year. It was a hell, I suffered terribles mom 3:00 moments of pain but thans to a Dr Schults I recovered my life. If you would like to contact me I be very glad to help on your research about this awful ill.😊
The low dose almost killed my sister. Tachycardia, weight gain, hair loss, not to mention the migraines were the same. Oh fatigue and inability to sleep. Plus the long term effects of suppressing calcitonin is a dangerous path
They claim these side effects arent proven? Did they happen right away or over time?
You know what it does not even matter if my migraines dont improve id rather not live anyway. This is not a life worth living.
@@soulair3038 I’ve spent a lot of time researching patient reviews & many patients are reporting similar side effects, all of which were absent pre Ajovy treatment.
My doctor won’t prescribe Triptans due to having history of asthma even though it was over 10 years ago. They’ve put me on anti depressants instead for migraines but doing my research I’m convinced the anti depressants will be less beneficial compared to triptans
My doctor gave me a sample of Emgality. I'm still reading and listening about it. Thank you for sharing your experience. Several months ago I did injection of Ajovy. I like it. I took a break from a migraine more than one month. There were about 6 migraines during this period. Some of it gone itself.
It's a shame you don't have more views on this video. I'm certain it could help so many people! Thank you for interviewing the great Anne Swain!
The auras are the problem for me, just debilitating and sometimes last all day. How to prevent these?😊
This doctor is one of the few who actually understand. Thank you.
I'm starting Ajovy tomorrow so fingers crossed. I was on botox and after intitial success it stopped working which was heartbreaking so I am hoping this will give me back some quality of life.
Has it helped you? I live with migraines 24/7 I can't walk anymore.
@@Ashsplashofcolor it occurs you daily?
@@Yugeshmgr Yes. I have no migraine breaks anymore.
So I've been dealing with vestibular migraines for a decade. Only I didn't find out they were vestibular migraines until about three months ago. It's gotten so bad to the point that I have blackouts, vision loss, and vertigo. I also survived two massive heart attacks this year and I'm only 33 and so many medications I am denied as I am at major heart risk. I'm at the point where I don't want to live anymore and am so broken and depressed. I can't even leave the house let alone my bed. I don't want to die but at this point, I don't want to feel anymore pain
We highly recommend joining our chat groups for support. We have a central group to support and localised support groups. There's likely one in your area. You can find more info here www.migraine.org.au/support Our website also holds a lot of information and facrsheets that you can use to discuss your symptoms with your Drs. It might also be time to see a new neurologist. Someone that specialises in migraine and headache disorders. If there are none in your area, travelling for care can often be worthwhile. Your local support group will be able to help recommend a Neuro with experience and empathy. If you need to speak to someone directly today, call Lifeline on 13 11 14 We hope you'll reach out for support. We see you, we hear you and we're here to help.
I feel the same way, I'm so tired of pain and all the other symtpms after a head injury nothing has helped all the meds have made me worse and some like botox seem outright toxic. I can't take all the meds I had such awful side effects to them as can happen after a head injury as the body doesn't metabolise drugs the same way and you can have a permeable blood brain barrier, but all they wanted to do was trhow awful drugs at me. I was scared of anything they wanted to do afte the drugs made me so much worse.
Someone should try making lenses which block out all colours by at least 50%. At least then we know we aren’t missing anything 😄
Green light makes headaches better. Gotta keep dat green. 💚💚💚
@@emy9272 I’m okay with red and green light but other colours start giving me migraines and the worst is white
After mixed results with Botox, I'm giving Ajovy a crack next week. At least it's on the PBS now. Wish me luck!
How'd it go??
I've had my first double dose of Emgality. It's been 3 weeks. Still waiting for positive results. Fingers crossed. I've got all my eggs in this basket.
Any feedback ?
@@2forfun007 No luck. I had mild improvement with the first two injections then the migraines continued without pause. But don't take me as an example. I think my case is a strange one.
I hope you find something that helps. I love with migraines 24/7 it's hell I can no longer walk safely and need a wheelchair. Going to give injections a go
I have been on Ajovy for 9 months and I still have to take meds for my Migraines. The Adovy helps very little with my problem.
@maxxonetwo3 We are sorry to hear you're struggling. Unfortunately, not everyone responds to medications in the same way. It sounds like it might be time to speak with your Neuro for a medication review.
Am Christine from Kenya 🇰🇪, migraine patient.
Thanks, this was a very informative video!
Thanks.
amazing! thank you for sharing
Can I ask you how much does Aimovig cost in Australia per month? Thank you. Andrea New Zealand
Interesting interview, thank you. @Reay_of_light_
Good on you Flynn!
Interesting interview!
❤️
I suffer from chronic migraine that last for 5-30 hours every time I cough, sneeze or bend over.
Love your advice about saying no.... unless it makes you heart sing
Very interesting!
So interesting. What's the clinic book and books mentioned? I definitely am hearing new things here re eliminating. I have the dizzy cook and heal your headache books and have done both of those. I did find out I can't have oj or lemon but confused on the rest.
www.slhd.nsw.gov.au/rpa/allergy/resources/foodintol/ff-handbooks.html and the Friendly Food cookbook you can but just about anywhere
Great interview!
Very fantastic chat!
Great discussion. I have been having success on the Heal Your Headache diet and this seems to validate what I am experiencing.
Your content was very insightful. I have been trying to research for KZread vid like yours that educates the stuff in this vid! 👏 👌 That knowledge at 1:23 is my favorite. Your video really is similar to the content of Dr Ethan! Ethan's videos are totally useful and I actually learned a lot for wellness. He is an insightful medical student on KZread and he talks about vitamins and diabetes. I suggest you check his page out and give the medical student a subscribe! 👉 #DoctorEthan
I loved your content so much! I've been trying to research for a KZread video similar to yours that really teaches everything in this video. 🧑🏻⚕️Your tip reminds me of the channel from this educational health enthusiast Doctor Ethan. Dr's demonstrations are actually useful and I actually learned a lot for exams! You should watch his YT out and give the Dr a like! ➡️ #DoctorEthanQuestions
Interesting and informative video!
Could links please be added to description, or comments, to things such as : contact details (which are mentioned); survey; trials; anything which could be followed-up. TY.
Awesome content. You're great. Let's Build each other Up :o