National Headache Foundation
National Headache Foundation
Imagine, A World Without Headache™
For over 50 years, our mission at the National Headache Foundation has been to further awareness of headache and migraine as legitimate neurobiological diseases. Much has changed during this time. With aid from advanced technology and clinical innovation, there are more treatment options than ever before. However, we understand that these diseases are still largely misunderstood and that finding the right treatment options for you requires insight.
We have collected the most comprehensive information on headache disorders and migraine disease, which we make freely available to you. Every day, our health care provider finder connects patients, who have just begun to seek treatment or those who are looking for more options. In your continuing pursuit of the treatment and understanding that you deserve, please know that the National Headache Foundation is your partner. We have been inspiring hope since 1970.
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I had an attack back in March which lasted for 14 days. I took some psilocybin mushrooms that I had saved for this. I was so ill/scared/not myself that I didn't dare to take them immediately when the attacks started coming. It had to beat me to trash and my mental state was very off from sleep depravation and bodily pain, and I was in a state where "whatever, I can take these and have headaches while tripping or possibly get better, because I can't see this get any worse than this". I took them, and within 45 minutes I was in a state of bliss, my then 3/10 headache faded away. I cried some. And the following night I slept for 9 hours. Woke up with a 0,5/10 headache. And my cycle stopped. Was hung over for about 6 weeks, but no clusters since I ate the mushrooms. I am diagnosed 2 years ago, and I have had 4 attacks since 2018. One thing I feel is some kind of disassosiation. Like one of me which is healthy and normal, then there is me while I'm ill. It doesn't feel real when I look back at how my state was, it's surreal. All the dark thoughts I never really play with when not in pain. It is intense. But it doesn't bother me when in normal state, I'm just aware on how badly it messes with my mental health while ill.
I found it crazy when I started connecting the dots of my life and where it began and where it's led. :(
Ladies ~ Thank-you soooooo Much for this Video !! I'm [just recently] off work right now due to Migraines & Vertigo - I just 'cannot' do this anymore ... My workplace E.D. has been very sarcastic & un-supportive of me ... (ie) {like video said} Oh, I've had Headaches etc, no big deal - is often told to me by my E.D. : ( & on a few occasions (in front of other staff) has said ''Life has to go on - Suck it up'' ... I literally started crying when you ''spoke to'' the definition of Migraine & explained all the assoc. negative & debilitating fall-out ... I feel soooo *vindicated* & *supported* by this *video* ! : ) Again, *Thank-you* both, I'm so very Appreciative of this ... Hope you both HAGoodWeekend, ! Sincerely, Cindy
Record him saying it and take him.to court sought them record everything nowadays
I believe everyone needs to experience at least one horrible migraine in their lifetime. People just cannot even fathom how terrible the pain is. My heart ❤️ goes out to you.
@@braklola Hmmm ? ... Interesting thought (comment) Yes, You are right - that would probably def. change things ! Thank-you so Much for taking the time to write your *Heartfelt* comment ~ it really did make me Feel Better [& still does] There's a lot of 'bad' on the www but ''also'' - *TONS* of Good too & Your *Kind* & *Supportive Words* - proves this to be true ! Again Thank YOU ! Hope you enjoy the rest of your Weekend ! Cindy : )
@@Truerealism747 Thank-you for taking the time to read my comment & reply ! : ) I am truly *appreciative* of your suggestion, I will probably seek out some legal advice etc on this BUT : ) I wouldn't have thought of it - if you hadn't suggested it ! That said, [as I'm sure you know,] when 'one is not well' & in debilitating pain, the ability to think of other strategies, coping skills etc def. wanes etc : ( Again, Much Thanks to You for your supportive comment & concern !! Hope you are enjoying the remainder of the weekend ! Cindy : )
President of headaches institution..... 🤔 title should only be given to one man on this planet I believe Dr Ross Hausser Caring Medical 🙏 he will explain what intercrainial hypertension is.
I would like to hear from professionals about migraine and chronic PTSD in migraine patients. The pain itself is abusive like an unpredictable, violent spouse. Treatment by ER health care workers are emotionally and verbally abusive also.
Absolutely true! Chronic migraines for 32 years and traumatized. Suffer from cptsd that is horrible.
@@braklolado you have them everyday mine are in the upper body daily no headache nsame pain
@@Truerealism747 Yes, it is a daily battle at this point. I was having 15-18 mg days a month , but in the last few years it is 28-30. I also get cluster headaches now.
❤ thank you
I get visual migraines when I don't eat for long period of time or if I have a hard workout on an empty stomach
I was diagnosed with these lesions 7 years ago and the cognitive decline and severe brain fog/forgetfulness started 3 years ago. Recent MRI showed some growths and new lesion emerged.
I'm so relieved dementia isn't increased. I was sent spiralling into fear and deep depression.
I had a history of migraines. Due to a sudden blurred vision, wetting myself, numbness, tingling, struggling to walk, and left leg slightly paralysed, I was sent for an mri. Both technicen and cardio specialist saw what they said 2 embolisms had gone off on two sides of my brain. My neuro says no, you didn't and says I'll treat your migraines. She then saw me walk and said, "Your brain isn't telling your legs to move. She sent me away and said I'll see you in 4 months." I'm still struggling to walk and have other issues. I won't be going back. Ischemic aetiology was written on the mri as likely cause. My cardiologist saw and read the scans, she is investigating with heart tests. I'm on low dose aspirin. My legs at night have horrendous pain. All this has caused confusion, anger, upset, anxiety, and depression.
So if I’m 41 and on the patch I’m a 2xs greater risk for stroke? Is that what I’m hearing them say? I had a hysterectomy about a year ago and my estradiol levels have gone from 150-200 to 50 😢 I feel awful.. should I stop using my patch?
I understand her. I live with MUMS. It will wreck you. Migraines can last for days, weeks and even many many months long. It's terribly unpredictable. The list of symptoms is numerous and if you have the misfortune of seeing the wrong neurologist you get wrecked again with a psychiatric diagnosis. I for one had a medical background and knew the diagnosis didn't match what was going on with me so I continued looking and stumbled across a headache specialist and that was when I finally started getting proper treatment and the correct diagnosis. A great Headache Specialist/Neurologist is a must with this condition. I hope that MUMS will have more research.
I had Chronic Migraine for 25 years and it took 20 before I got any serious treatment for it after I got a stroke from it and got hospitalized because of it. But I also have Cluster headache for more than 10 years and not until now gotten the full diagnosis for it. when I started getting this it was several times worse than migraine with Aura and everything I had thousands of in total now and I was absolutely shocked how strong this "migraine" was. I did not get any sort of treatment for 10 years regarding these cluster attacks and just had to deal with them with normal aspirin because I can´t take sumatriptan for migraine. but the last years I had record amounts of cluster attacks and migraine all together and these triggers each other. 250 days a year I am living the nightmare people don´t even dare to think about. every day I open my eyes I just hope the pain is on a level I can mentally handle. My migraine/cluster is on the chronic scale and last, Migraine typically 3 days, cluster 1 day, (I often wake up with it in the morning and it last through out the day while getting worse the longer the day goes until i am able to sleep or pass out from pain to the next day. it don't work to sleep away directly either. ) I don´t wish anyone to have Cluster headache. but the problem is that no one else will understand what kind of pain this is and what we go through unless they had it too...
This is so encouraging! So far I've had limited success with the anti-CGRP drugs and Botox.
Thank you! I hadn't heard of the sphenopalatine nerve.
are women more pron because of their diet , not eating animal fats or eggs so they dont put on weigh like eating steaks for example which gives a balanced range of amino acids and fat content to preduce a protective layer of fat around the nerves ?
Has anyone seen an autopsy on the brain with these white spots ??
Thank you Dr Martin and Ms Satchell. All relevant migraine info is helpful for migraine sufferers as myself. :)
I am in pain and can't concentrate on a 45 minute video. Even though it sounds interesting.
I am the same, 4 year now and I don’t know what to do…
I get an aura and then I couldn't remember what a chipmunk or a candle was. I also couldn't recognize the work migraine. After a half hour, I get the headache. Usually, when I get the aura, I take a Tylenol and an ibuprofen. Then I have no pain.
You hit the nail on the head!
Thank you! I have daily migraine, with fluctuating pain levels. This was encouraging Christina 🦝
"Others MIGHT be judging you?" Oh, they're judging. As much as I explain, I end up apologizing twice as much. It's like a fulltime job you don't get paid for and you can't quit.
Yes!
The timing of this was perfect. I've been having almost daily migraines for three years now and my coworkers have been very nasty about it. It has turned me into a timid, subservient person at work who is always apologizing and I've noticed countless times where they have scapegoated and gaslit me because I'm the one they can blame. I took vacation only to have migraine every day. The middle aged crazy woman is who caused the mistake at work as far as my coworkers are concerned. Never their incompetence or them assigning tasks to me that aren't my job. It's very hard to want to try to do a good job but I do and yet they seem to get more abusive when I do well. At any rate, yes, burn out. Also, why are people so cruel?
People are animals good ones are hidden I have migraine in my body daily no headache same pain very hard
@@Truerealism747 Sending loads of empathy!
So helpful. Thank you!
Thank-you for clarifying these issues, Much Appreciated !! : )
Pajama conversation!!😂
Get rid of carbohydrates especially wheat and all sugar including fructose and you'll most likely get rid of all migraines, headaches.
I have gastroparesis (I am not diabetic) and chronic daily migraine so this is extremely interesting to me.
Thank you for this stimulate. How do you stimulate the Vagus Nerve ? 😊 I have tinnitus really bad in my left ear, I was diagnosed with dual vertigo plus occipital neuralgia on the right side of my head. I am a 74 year old male.
There are several ways one can stimulate the vagus nerve. Do a google search and then find something that works for you.
Thank you for clarifying that white matter lesions does not necessarily mean that there is an increased likelihood of dementia. Aldo helped me to understand the possible causes of white matter lesions and migraines.
If i feel a migraine coming on early, at the first sign, I'll take 3-4 grams of organic kratom. Not that gas station garbage, not a head shop product. But a quality, organic, tested for pesticides and heavy metals kratom and I'll feel the migraine blow over or change course. I describe it as watching a storm coming in and then passing me by. If I'm to late then yeah, my vision gets starry and i find a quiet place and hope to die. But catch it early enough and kratom is a miracle. It's a leaf. It's not bad for you. 3-4 grams of leaf powder for men 1-2 grams for women. Take to much and you'll wish you didn't. Less is more. Too much makes you stomach sick. I'd recommend where i get mine but then you'd think I'm just trying to sell you stuff and i want you to get the relief i get. I won't tarnish my recommendations with what you may construe as a sales pitch. Good luck
I have it when I was child and I developed depression and bad lifestyle due to strong incapacitated pain
Thank you, Ladies. From me and my inner child. 🤍
How about non gluten grains?
Vestibular migraines too :(
Silent migraines are terrible too
Ty
Dr. Martin is great. He has really tried hard to help me. He really goes out of his way to help and he listens.
Do you have fybromyalgia or migraine in the body. Is your pain better
I too had my silent migraines stop once i added Mg supplements to my diet, on the suggestion of my naturopath.
I'm so Thankful for this podcast ! I have subbed .... After years of migraines, vertigo, light sensitivity, nausea, tinnitus I've had an Appt. with the Audiologist & waiting for the ENT appt hopefully coming up soon. I've learned so much !!! Thank-you both for your time etc ~ Much Appreciated !!! : )
Ty
Low glutamate diet too
Thank you
Im about to enter my GP surgery to talk about my IBS flare ups, stomach problems. I know now there's a link to my headaches. I can guarantee my Dr will dismiss this
Doctors immediately blame the patient : "you" are not managing your stress, "you" need to lose weight, "you" need yoga/meditation, and it goes on. When it is migraine vs. any other pain, it is the patients fault.
Silent migraines make it hard for me to see if these symptoms apply to me 😞
My nose does not run until the headache starts to go away. I am so tired of my life being controlled by headache.
Being miserable all the time makes you miserable all the time, got it
Who is this quest? Name please.
Dr. Dawn Buse