ALS Centrum Nederland

ALS Centrum Nederland

Het ALS Centrum Nederland is het expertisecentrum op het gebied van ALS, PSMA en PLS. Naast wetenschappelijk onderzoek met als doel het vinden van effectieve behandelingen, verzorgt het ALS Centrum scholingen en kwaliteitsprojecten voor betere kwaliteit van zorg. Het ALS Centrum werkt nationaal en internationaal samen en wordt gecoördineerd vanuit het UMC Utrecht.

6 Omgaan met ALS (jongeren)

6 Omgaan met ALS (jongeren)

6 Omgaan met ALS (jongeren)

6 Omgaan met ALS (jongeren)

5 Wat is ALS (jongeren)

5 Wat is ALS (jongeren)

1 Praten over ALS (ouders)

1 Praten over ALS (ouders)

8 Vrienden en school

8 Vrienden en school

9 PSMA, PLS en ALS

9 PSMA, PLS en ALS

Promo ALS in het gezin

Promo ALS in het gezin

2 Mantelzorg (ouders)

2 Mantelzorg (ouders)

3 Je kind helpen

3 Je kind helpen

4 Ouderrol

4 Ouderrol

Пікірлер

  • @ManikMehrotra-ed6tb
    @ManikMehrotra-ed6tb3 ай бұрын

    Fufgiff👨‍💻👨‍💻👩‍💻👩‍💻

  • @ManikMehrotra-ed6tb
    @ManikMehrotra-ed6tb3 ай бұрын

    1:07 hhtu👩‍💻👨‍💻👨‍💻

  • @ManikMehrotra-ed6tb
    @ManikMehrotra-ed6tb3 ай бұрын

    0:24 0:28 0:28 0:28 0:36

  • @ManikMehrotra-ed6tb
    @ManikMehrotra-ed6tb3 ай бұрын

    0:24 0:28 0:28 0:28 0:36

  • @ManikMehrotra-ed6tb
    @ManikMehrotra-ed6tb3 ай бұрын

    0:24 0:28 0:28 0:28 0:36

  • @maaikeboot7527
    @maaikeboot75273 ай бұрын

    💔 Verdrietig dat Mark zo snel achteruit is gegaan

  • @mmmixed4032
    @mmmixed40326 ай бұрын

    Goed

  • @JJ-cx8gl
    @JJ-cx8gl6 ай бұрын

    Oh my goodness, I thought I was going to have another birthday before she was done speaking each sentence. I speak to grade schoolers faster than this.

  • @TrenteQuatre
    @TrenteQuatre9 ай бұрын

    First

  • @issarice
    @issarice10 ай бұрын

    Where can I get this device?

  • @jean-baptisteroelands7303
    @jean-baptisteroelands7303 Жыл бұрын

    😢😮❤❤❤❤❤🎉😮

  • @johnhalbe6530
    @johnhalbe6530 Жыл бұрын

    This disease is a waste a resources and a waste of money

  • @before1995
    @before1995 Жыл бұрын

    She is a really ALS girl or just showing people what ALS like?

  • @C4milxx
    @C4milxx4 күн бұрын

    We have ALS.

  • @dzakekrodriguez822
    @dzakekrodriguez822 Жыл бұрын

    😅😊❤😊

  • @madameg8603
    @madameg8603 Жыл бұрын

    That guy does not look 56!

  • @xSeeJay91x
    @xSeeJay91x Жыл бұрын

    I was this in tetany attack (low ionized calcium level).

  • @Thetrurth
    @Thetrurth Жыл бұрын

    What after this test if comes positive or issue with sniffing please what the treatment

  • @o0jency0o
    @o0jency0o Жыл бұрын

    Or because his first language isn't English so she wants to make sure that he understands for the video.

  • @AM000
    @AM000 Жыл бұрын

    mans not 56 yo

  • @TDIPower123
    @TDIPower123 Жыл бұрын

    1:29 hope she messes her diaper while this struggle

  • @TDIPower123
    @TDIPower123 Жыл бұрын

    Her diaper must be full after this

  • @freedacrew
    @freedacrew Жыл бұрын

    Happens to me often, as a c1 quadriplegic and yes probably

  • @TDIPower123
    @TDIPower123 Жыл бұрын

    @@freedacrew must be hard to clean and change the diaper while sitting in wheelchair

  • @freedacrew
    @freedacrew Жыл бұрын

    @@TDIPower123 yes

  • @TDIPower123
    @TDIPower123 Жыл бұрын

    @@freedacrew can you change your diaper without held ?

  • @TDIPower123
    @TDIPower123 Жыл бұрын

    Does she wear diapers ?

  • @C4milxx
    @C4milxx4 күн бұрын

    I dont know in her case, but in my case i do, we have the same disease so i guess she use them too

  • @tufaildawar1451
    @tufaildawar1451 Жыл бұрын

    vitalograph machine????? or spirometer?

  • @91rinoa
    @91rinoa Жыл бұрын

    omg why is she talking like this

  • @robmetcalfe
    @robmetcalfe Жыл бұрын

    Mine is because of producing too much stomach acid from too much alcohol. I try to control my drinking and always take omoprizol to quell the acid.

  • @claireo8987
    @claireo89872 жыл бұрын

    The Larson Maneuver stops laryngospasms! kzread.info/dash/bejne/l32YubSSf7TLnrQ.html Now when I feel a spasm coming on, I just push behind my ear with one finger. The spasm stops within 1-2 breaths; sometimes it even prevents a spasm entirely. This has worked every single time for me, thank goodness! Hope it works for you all too 🙏

  • @come-crime-with-me
    @come-crime-with-me2 жыл бұрын

    Nicely explained but why is she sounding like a robot

  • @thought4u598
    @thought4u5982 жыл бұрын

    Other nostril should have been closed before sniffing

  • @blackpantheress254
    @blackpantheress2542 жыл бұрын

    Shidd I have been having this for 3 days now, these doctors are so misleading and always try to make it out to be like a panic attack or mental issue and it's just not true. This is happening on it's on and came out of nowhere. Why must we beg doctors to really listen to us. I am headed to the ear nose and throat doctor soon wish me luck

  • @xSeeJay91x
    @xSeeJay91x2 жыл бұрын

    I had this after to much alcohol.

  • @ayokay123
    @ayokay1232 жыл бұрын

    Is this woman autistic?

  • @amyamy6709
    @amyamy67092 жыл бұрын

    I wake up from a deep sleep multiple times in my life…very frightening. I then stick my head in the freezer and breath in, it stops completely

  • @lyndawinship9855
    @lyndawinship98556 ай бұрын

    Oh I must try this . Thankyou for sharing . It is terrifying xx

  • @michaelrichardson6051
    @michaelrichardson60512 жыл бұрын

    I've had this since my 20s, now in my 70s. Dr. says caused by acid reflux. Like everybody says STAY CLAM, I know hard to do, take shallow breaths and it will pass. Just a chronic condition. Don't eat late at night, keep head elevated, helps ward it off at night.

  • @sensei1358
    @sensei13589 ай бұрын

    Thank you. I’m 17 and I have this since a week.

  • @irenedavo3768
    @irenedavo37682 жыл бұрын

    Have you seen Lifevac?

  • @nutajusin
    @nutajusin2 жыл бұрын

    can anyone translate in english please, what the woman is saying?

  • @tinsje11
    @tinsje117 ай бұрын

    She speaking Dutch and just saying keep calm, breathe in, breathe out etc. I am Dutch as well and experience this approx 3 times/week. Gotten used to it but it still is frightening.

  • @taniabakalova2922
    @taniabakalova29222 жыл бұрын

    ''eddŋdrmdjdcfggcvglgkgdlfckvkff

  • @janbroert
    @janbroert2 жыл бұрын

    Herkenbaar verhaal van de revalidatiearts. Ik zit in (als patiënt) in een soortgelijke situatie…

  • @kbyrd4840
    @kbyrd48402 жыл бұрын

    Wow these two androids look very life like.

  • @come-crime-with-me
    @come-crime-with-me2 жыл бұрын

    Was thinking the same

  • @demitriwelling1348
    @demitriwelling13482 жыл бұрын

    Excellent

  • @rosemarywright3513
    @rosemarywright35132 жыл бұрын

    I have ALS/MND and have been experiencing this as a result of a slight choke on liquids. It is absolutely terrifying. I'm not sure my doctor fully appreciates what is happening to me, rather explaining it as the result of spasticity in the neck muscles...

  • @silviaacostapatron7488
    @silviaacostapatron74882 жыл бұрын

    at this moment I´m recovering from that terrifying sensation after a laryngospasme...a slight choke with my own saliva....absolutely terrifying indeed....thanks for your comment, it made me feel supported

  • @jensdevos8972
    @jensdevos89722 жыл бұрын

    Pov je bent hier voor bio

  • @hoiikbeneenkip3308
    @hoiikbeneenkip33082 жыл бұрын

    Ik ook man

  • @rzhang7808
    @rzhang78083 жыл бұрын

    Sit upright, hhha

  • @hers6451
    @hers64513 жыл бұрын

    All I can do was LMAO!

  • @user-ii9we3hc4h
    @user-ii9we3hc4h2 жыл бұрын

    "Everyone has left the room now and it's just the two of us..." and "Blow hard! Harder! Keep going, blow blow blow! A little more, almost there." The guy was literally trying his best not to burst out laughing.

  • @thomasst4312
    @thomasst43123 жыл бұрын

    Lol

  • @mankillsquare
    @mankillsquare3 жыл бұрын

    Oh wow, I’m so sorry to see you have an unboxing channel. My heart goes out to you man. Hope you manage to work your issues out and get back to a normal life. X

  • @concharomero5391
    @concharomero53913 жыл бұрын

    DOn´t clossed the other noise ?

  • @chaiyoatid7996
    @chaiyoatid79963 жыл бұрын

    I am Herpes virus negative now, Dr Madida at KZread did helped me cure this virus with his herbal medicine.

  • @ThestrongMetro
    @ThestrongMetro3 жыл бұрын

    hahahahahahahhaahahahahahha

  • @averysgranny
    @averysgranny3 жыл бұрын

    ?

  • @boureychin830
    @boureychin8303 жыл бұрын

    This is a promise I made to *Dr Madida* that if he can cure me of my Human papilloma virus that I will tell everyone about his great herbal service and truly he cured me with his herbal medications. Dr Madida is truly a great herbal healer.

  • @yasmine3626
    @yasmine36263 жыл бұрын

    Hi everyone, my dad was diagnosed with Nurion motor Als disease and they told us there is no cure for it. But I want to thank Dr Ifa who reversed my dad Als with his herbal medicine treatment and I will continue to testify about treating him and God will bless you more. He can cure..Als, Herpes Hsv-1&2, HIV, HPV, Cancer, atonic seizures, reach him through Gmail: [email protected] Doctor website: drifahomecentre.jimdosite.com

  • @yasmine3626
    @yasmine36263 жыл бұрын

    Hi everyone, my dad was diagnosed with Nurion motor Als disease and they told us there is no cure for it. But I want to thank Dr Ifa who reversed my dad Als with his herbal medicine treatment and I will continue to testify about treating him and God will bless you more. He can cure.,,,...Als, Herpes Hsv-1&2, HIV, HPV, Cancer, atonic seizures, reach him through Gmail.. [email protected] Doctor website: drifahomecentre.jimdosite.com

  • @SurendraKumar-he3kc
    @SurendraKumar-he3kc3 жыл бұрын

    Oh god, so is laryngospasm!! Too copy same act was with my father for 10 days, in duration of covid positivity, in india ENT dr just by telemedicine just started post covid hiccups treatment !!! But after watching this video...o my god...that was laryngospasm !!!!!! Anyways God saved him finally