How long did you or have had the port/cath for and have you had discomfort with muscle tension/tightness around the port, in the neck, chest and shoulder? I have had mine for over three years. If so, would you be willing to share if anything has helped? Curious if anyone else has experienced this.
@Helperdog_Sully12 күн бұрын
did you end up re-homeing the vests??
@wanpijidАй бұрын
Hi Jusr started watching some of your videos. I see that the update was 2 years ago. Are you doing ok?
@jessicalingo4346Ай бұрын
Based on my research of pots be careful with the salt intake. Theres roughly 3 types of pots (a certain chemical dump in your body to cause the pots, an issue with your nerves not firing properly and an issue with the veins and blood flow) 1 of the 2 causes a disregulation of ypur blood pressure. Salt increases ypur bp but if the pots causes an increase in bp its recommended not to take as much salt. So be careful with that
@lucyannmcwilliams38892 ай бұрын
THANK YOU SO VERY MUCH ❤
@thedisabledmermaid2 ай бұрын
Learning tomorrow any tips for getting over the mental part of stabbing urself? Iv done needs before loads of times but the first few times i do any new needle stuff im nervous and woth this needing to be sterile im even more worried. Also i think u might be slightly allergic to the iodide
@Farmchic31852 ай бұрын
Idk if you will get this but I love these videos. I hate that you need that stuff, but as a chronic illness person myself I would rather watch this than organizing makeup or something. My mom had to do daily iv antibiotics for a horrible infection so I'm familiar with a lot of this stuff. I wish I had done this for her would have made my job caring for her a lot easier. Thanks for posting, being real and being you. ❤
@YooperParadiseNails3 ай бұрын
Bag balm would be good for chapped paws. I used it for diaper area on my kids when they were babies on antibiotics for ear infections. I know it sounds odd to use on a baby but it came hghly reccomdended from a relative.
@Beachbumcurls3 ай бұрын
Skip to the 4 minute point to get to anything your looking to hear XD
@monathomas17773 ай бұрын
Thank you for sharing, so important to me.
@ogbanda50163 ай бұрын
You so gorgeous 💖
@mavieautomatique66453 ай бұрын
I have a lot of empathy for you. Life can already be though when everything is fine with your health. Thank you for all your videos. I just bought a bunny for my daughter and learned a lot from you. You are amazing.
@JustCliff3 ай бұрын
Thanks for providing this, was looking into getting a wheelchair for ambulatory purposes after a medical scare yesterday. Have pre-existing conditions that limit how long I can stand/walk. Anything over 30 minutes without breaks, my back and legs can hurt and in severe cases pre-syncope like you explain. I’ve never actually fainted but, had a warning sign to sit down. Only have had that happen one other time but, don’t know if it’s my current conditions or maybe something like POTS.
@dantedevilboy98173 ай бұрын
How is your pots now, please leave an update.
@susangomersall47074 ай бұрын
I have Chronic pancreas
@MishaThePolly_Therian4 ай бұрын
Dog food won't kill a cat but their whole diet being dog food won't be enough nutrients which at some point will kill a cat
@veronicawilliamson83924 ай бұрын
I just bought 3 tangles and love them will buy more.
@GAINZonWHEELS5 ай бұрын
Like them 2 on 25 inch ..
@MMaria_10155 ай бұрын
just found out i most likely have pots waiting to be offically diagnosed so i can start treatments :)
@AmuJaneTV5 ай бұрын
When will you make an update on this channel regarding your health????
@sarahkay36025 ай бұрын
This was very informative and I agree nurses don’t always know. Thank you so much for this video Feel better 😊
@GAINZonWHEELS5 ай бұрын
Nice
@Fiddlinfrenzy6 ай бұрын
What’s the front end cover and caster fork cover called please
@CUZUMofficial6 ай бұрын
I have autism and when my stepdad got me a tangle, I just got addicted, I needed to get more immediately 😅 such a helpful and fun fidget toy! Comes in variety and they all look sick. I'm excited to get my hands on the Steel Palm Metallic Series Tangle, The Therapy Tangle and the Drip Masterpiece Series Tangle
@trinity_b7 ай бұрын
Haley you are GORGEOUS !
@halatoca96287 ай бұрын
Tomorrow I can buy one! Do you guys think they are good!
@aidenreid93257 ай бұрын
Hi, I have a question. I have pots, and I weigh 422. I'm getting a port on my chest for a potassium transfusion. I have to get it in when i have the gastric bypass. Have you heard of other overweight people with pots? I feel a little alone on this.
@dawngonzales4467 ай бұрын
Can anyone tell me how I can get a service dog I’ve tried. I am in a wheelchair and I broke my T12 even getting my little dog that I’ve got because the abuse of people getting emotional support dogs my dog cannot travel with me all the time I need help getting a service dog.
@PrettyEyesz7 ай бұрын
The last time I Fainted I was at work, and I hit the back of my head and had a seizure as I lost consciousness, which resulted in me getting a mild concussion. 5 months ago I was diagnosed with a chronic autoimmune disease, and I also believe I may have POTS too but its been hard getting my doctors to look further into it. This past summer I fainted at least three or four times and that was in a short span of a few weeks. So I definitely want to eventually get a wheelchair or some other ambulatory mobility aid. So that I have that added protection if I start to feel faint or suffering from joint pain, body weakness and fatigue which I suffer from alot.
@singingfan8 ай бұрын
Hey just happened upon your channel! You seem so excited to get your dog but haven’t posted since this video, sadly. How are you? What have you been up to since??
@SDteam_Co10 ай бұрын
I had a doctor tell me I’m making it up. They did an EKG (while I was laying on a table) and when it came back normal he said there was nothing wrong with me and everything was in my head. So fast forward three years im really struggling with my symptoms. We talked to a cardiologist and they quickly said bring me in for a consult and a few tests. I’m going Thursday! I really hope I can find out what’s wrong with me too.
@faithwisdom7886 ай бұрын
What happened ?
@dantedevilboy98173 ай бұрын
So did they find anything?
@renem225710 ай бұрын
Cool
@abbystortz306610 ай бұрын
You got your pup on my b day🎉😅
@ChronicallyJuan10 ай бұрын
Hi Haley, I know that you posted this video a long time ago but I struggle with Orthostatic Hypotension which is a form of Dysautonomia. It's similar to POTS. The only difference is that instead of high heart rate when upright or standing up, my blood pressure drops when I'm upright or stand up. I was recently diagnosed with Orthostatic Hypotension on June 26th of this year when I was 25 years old. I also struggle with Auditory Processing Disorder. I was diagnosed with Auditory Processing Disorder when I was 8 years old. Lastly, I struggle with Anxiety and Depression. I've struggled with Anxiety and Depression since I was 10 years old.
@thechickenladyatkingshomes978110 ай бұрын
Great video.
@liamdacre181811 ай бұрын
Tics are an itch that you can’t scratch
@lawls20020 Жыл бұрын
Fidgeting doesn't work all the time
@dancingpianofairy Жыл бұрын
I'd love to enjoy your video, but no captions. Really strange for someone with (I assume) a disability. 👎🏼
@cyrusknauf9848 Жыл бұрын
Then where are just riverside jet 1369 red and brown are driving seat watch I graduate
@mybrokenmindddd Жыл бұрын
i went 10mplus yrs undiagnosed mistreated told it was anxiety that i needed to "STOP" but i COULDNT!!!!! it wasn't just tics something else was happening but no one would give me answers till one night i had a rage attack that lead me to the hospital the emergency ward i was held dow by nurses doctors even my SIS n MY DAD and them seeing me like that was traumatizing for them i couldnt stop hurting myself then a team of neurology came in after 7 hours i FINALLY mellowed out the said this was a severe case of tourette's not just tics like the other doctors have said to us over the years tourettes is hard to live and deal with their are sooooooo many other ppl like me not being listened to or helped or have a right diagnosis docs need to get more educated i went 10 plus yrs ticing not knowing why cuz all docs said it was anxiety but.....i wasn't anxious or anything i couldn't stop i never asked or wanted this its changed my life soooooo muuucchhh!!!! so pls b kind to ppl wit tourette's or tic disorders
@renem2257 Жыл бұрын
L
@overbuiltautomotive1299 Жыл бұрын
Prayers. Jesus can heal his reach is never to short until then much love
@asecretcourtofcrowsandcloc4084 Жыл бұрын
I hope you and Loua are doing well. You mentioned that you might give away some of the vest and harnesses that don’t fit him, are you still looking to do that? I’ve been looking for some.
@mybubbarat Жыл бұрын
One thing you will need for your emergency kit is a tick remover tool. Even if you do not go camping or hiking you can still pick up ticks anywhere. I always keep one in my kit..😊
@user-tn4qe9ne9j Жыл бұрын
An old ship, which has ended up like a sieve from the waves, from its storeroom it unburies a metal rope. And it starts to hit the beast, the sea (in the dark jaws of which I destroyed my life). And the somewhat young ships watch it and burst in tears, and they keep their masts down, when sailing. The know their time will come, when they will get eaten up in the shallow waters, having lost their wings and searching for them.
@rachelscott5412 Жыл бұрын
I was just diagnosed with Pots two months ago!
@charitybennett1566 Жыл бұрын
I have the same waterer for my service dog
@user-ne4cc9mh7m Жыл бұрын
I have the blinking one it sucks
@mariagarfias123mg Жыл бұрын
I have anxiety and adhd and tachycardia I think I’m dyslexic also
@liamdacre1818 Жыл бұрын
Don’t be embarrassed to tic. It’s who you are and you should always feel safe to tic when you need to regardless of what other people think. I enjoyed watching the video and you deserve all the acceptance and support in the world
Пікірлер
How long did you or have had the port/cath for and have you had discomfort with muscle tension/tightness around the port, in the neck, chest and shoulder? I have had mine for over three years. If so, would you be willing to share if anything has helped? Curious if anyone else has experienced this.
did you end up re-homeing the vests??
Hi Jusr started watching some of your videos. I see that the update was 2 years ago. Are you doing ok?
Based on my research of pots be careful with the salt intake. Theres roughly 3 types of pots (a certain chemical dump in your body to cause the pots, an issue with your nerves not firing properly and an issue with the veins and blood flow) 1 of the 2 causes a disregulation of ypur blood pressure. Salt increases ypur bp but if the pots causes an increase in bp its recommended not to take as much salt. So be careful with that
THANK YOU SO VERY MUCH ❤
Learning tomorrow any tips for getting over the mental part of stabbing urself? Iv done needs before loads of times but the first few times i do any new needle stuff im nervous and woth this needing to be sterile im even more worried. Also i think u might be slightly allergic to the iodide
Idk if you will get this but I love these videos. I hate that you need that stuff, but as a chronic illness person myself I would rather watch this than organizing makeup or something. My mom had to do daily iv antibiotics for a horrible infection so I'm familiar with a lot of this stuff. I wish I had done this for her would have made my job caring for her a lot easier. Thanks for posting, being real and being you. ❤
Bag balm would be good for chapped paws. I used it for diaper area on my kids when they were babies on antibiotics for ear infections. I know it sounds odd to use on a baby but it came hghly reccomdended from a relative.
Skip to the 4 minute point to get to anything your looking to hear XD
Thank you for sharing, so important to me.
You so gorgeous 💖
I have a lot of empathy for you. Life can already be though when everything is fine with your health. Thank you for all your videos. I just bought a bunny for my daughter and learned a lot from you. You are amazing.
Thanks for providing this, was looking into getting a wheelchair for ambulatory purposes after a medical scare yesterday. Have pre-existing conditions that limit how long I can stand/walk. Anything over 30 minutes without breaks, my back and legs can hurt and in severe cases pre-syncope like you explain. I’ve never actually fainted but, had a warning sign to sit down. Only have had that happen one other time but, don’t know if it’s my current conditions or maybe something like POTS.
How is your pots now, please leave an update.
I have Chronic pancreas
Dog food won't kill a cat but their whole diet being dog food won't be enough nutrients which at some point will kill a cat
I just bought 3 tangles and love them will buy more.
Like them 2 on 25 inch ..
just found out i most likely have pots waiting to be offically diagnosed so i can start treatments :)
When will you make an update on this channel regarding your health????
This was very informative and I agree nurses don’t always know. Thank you so much for this video Feel better 😊
Nice
What’s the front end cover and caster fork cover called please
I have autism and when my stepdad got me a tangle, I just got addicted, I needed to get more immediately 😅 such a helpful and fun fidget toy! Comes in variety and they all look sick. I'm excited to get my hands on the Steel Palm Metallic Series Tangle, The Therapy Tangle and the Drip Masterpiece Series Tangle
Haley you are GORGEOUS !
Tomorrow I can buy one! Do you guys think they are good!
Hi, I have a question. I have pots, and I weigh 422. I'm getting a port on my chest for a potassium transfusion. I have to get it in when i have the gastric bypass. Have you heard of other overweight people with pots? I feel a little alone on this.
Can anyone tell me how I can get a service dog I’ve tried. I am in a wheelchair and I broke my T12 even getting my little dog that I’ve got because the abuse of people getting emotional support dogs my dog cannot travel with me all the time I need help getting a service dog.
The last time I Fainted I was at work, and I hit the back of my head and had a seizure as I lost consciousness, which resulted in me getting a mild concussion. 5 months ago I was diagnosed with a chronic autoimmune disease, and I also believe I may have POTS too but its been hard getting my doctors to look further into it. This past summer I fainted at least three or four times and that was in a short span of a few weeks. So I definitely want to eventually get a wheelchair or some other ambulatory mobility aid. So that I have that added protection if I start to feel faint or suffering from joint pain, body weakness and fatigue which I suffer from alot.
Hey just happened upon your channel! You seem so excited to get your dog but haven’t posted since this video, sadly. How are you? What have you been up to since??
I had a doctor tell me I’m making it up. They did an EKG (while I was laying on a table) and when it came back normal he said there was nothing wrong with me and everything was in my head. So fast forward three years im really struggling with my symptoms. We talked to a cardiologist and they quickly said bring me in for a consult and a few tests. I’m going Thursday! I really hope I can find out what’s wrong with me too.
What happened ?
So did they find anything?
Cool
You got your pup on my b day🎉😅
Hi Haley, I know that you posted this video a long time ago but I struggle with Orthostatic Hypotension which is a form of Dysautonomia. It's similar to POTS. The only difference is that instead of high heart rate when upright or standing up, my blood pressure drops when I'm upright or stand up. I was recently diagnosed with Orthostatic Hypotension on June 26th of this year when I was 25 years old. I also struggle with Auditory Processing Disorder. I was diagnosed with Auditory Processing Disorder when I was 8 years old. Lastly, I struggle with Anxiety and Depression. I've struggled with Anxiety and Depression since I was 10 years old.
Great video.
Tics are an itch that you can’t scratch
Fidgeting doesn't work all the time
I'd love to enjoy your video, but no captions. Really strange for someone with (I assume) a disability. 👎🏼
Then where are just riverside jet 1369 red and brown are driving seat watch I graduate
i went 10mplus yrs undiagnosed mistreated told it was anxiety that i needed to "STOP" but i COULDNT!!!!! it wasn't just tics something else was happening but no one would give me answers till one night i had a rage attack that lead me to the hospital the emergency ward i was held dow by nurses doctors even my SIS n MY DAD and them seeing me like that was traumatizing for them i couldnt stop hurting myself then a team of neurology came in after 7 hours i FINALLY mellowed out the said this was a severe case of tourette's not just tics like the other doctors have said to us over the years tourettes is hard to live and deal with their are sooooooo many other ppl like me not being listened to or helped or have a right diagnosis docs need to get more educated i went 10 plus yrs ticing not knowing why cuz all docs said it was anxiety but.....i wasn't anxious or anything i couldn't stop i never asked or wanted this its changed my life soooooo muuucchhh!!!! so pls b kind to ppl wit tourette's or tic disorders
L
Prayers. Jesus can heal his reach is never to short until then much love
I hope you and Loua are doing well. You mentioned that you might give away some of the vest and harnesses that don’t fit him, are you still looking to do that? I’ve been looking for some.
One thing you will need for your emergency kit is a tick remover tool. Even if you do not go camping or hiking you can still pick up ticks anywhere. I always keep one in my kit..😊
An old ship, which has ended up like a sieve from the waves, from its storeroom it unburies a metal rope. And it starts to hit the beast, the sea (in the dark jaws of which I destroyed my life). And the somewhat young ships watch it and burst in tears, and they keep their masts down, when sailing. The know their time will come, when they will get eaten up in the shallow waters, having lost their wings and searching for them.
I was just diagnosed with Pots two months ago!
I have the same waterer for my service dog
I have the blinking one it sucks
I have anxiety and adhd and tachycardia I think I’m dyslexic also
Don’t be embarrassed to tic. It’s who you are and you should always feel safe to tic when you need to regardless of what other people think. I enjoyed watching the video and you deserve all the acceptance and support in the world