Пікірлер

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  @SydopathАй бұрын

  Great video that resonates with my experiences. No health issues till I started having absences at 56. Was diagnosed as stress and I took SSRIs for 3 years with no benefit. Then, I was at home one night watching the tv and woke up in an ambulance with blue lights. I had collapsed and wife had to give me CPR. Been on Keppra for 4 years since, haven’t had andthe major, but still get those absences every couple of weeks, and feels like a hangover afterwards. Haven’t driven since, since I don’t want to live with the guilt of killing somebody. Gave up engineering work, now do part-time in a local office job. It’s really messed with my retirement plans - but you just got to adapt 👍

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  @mumofcuties5873Ай бұрын

  Absolutely disgraceful! Children with epilepsy SHOULD NOT be feared. They are still humans who have feelings, emotions, and also a right to education! I hate to say it, but they would never kick out an autistic child for having a meltdown, but they will kick out a child who happens to have seizures? Why is it so many educators have been trained in autism and how to apply coping mechanisms, but refuse to learn basic first aid for seizures? Some people with epilepsy, like my daughter, has lost everything else she used to do. She isnt allowed to ride a bike, or go swimming, she cant go to friends houses after school...the only thing she has left IS school, and I'm so glad she goes to a school who has made sure they know what to do for her. They also got trained in how to use her VNS device. Who is going to tell that little boy that he cant attend kinder because of discrimination? So angry right now, and i hope those parents take this further. NO child should be excluded because of a disability. EVERY child has a right to try and live their best life possible. I can only imagine how this will affect that little boys mental health. He is already terrified because of his seizures, now he finds that people won't accept his condition and would rather him miss out than do the training. If i can learn what to do, then ANYONE can!

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  @roxannedacey7880Ай бұрын

  Oh that so funny I have epilepsy and education support is 50/50 fu*ked

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  @yesubabuduvvu80072 ай бұрын

  Any treatment available?

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  @mumofcuties58734 ай бұрын

  Beautiful heros

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  @kimbercoleman70895 ай бұрын

  I have epilepsy, I wish the woman had made a point of telling the audience how dangerous it is to drive, especially after her episode. Keep doing what you always did, may not have been the best message.

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  @charlescrawford1066 ай бұрын

  You are trash what you said about novac. I hope you keep taking your boosters 💉💉💉💉☠️☠️☠️☠️☠️

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  @lisapinfold5066 ай бұрын

  I wonder if seizures are often mistaken for strokes in people over 50? Some symptoms can be similar.

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  @ryanhardy89157 ай бұрын

  😞 P r o m o s m

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  @Sydopath7 ай бұрын

  This was 5 years ago. How are you doing now?

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  @stevenharris66267 ай бұрын

  I'm a retired MD with partial seizures. TON of meds, (keep me stable), but keeping active at the gym is crucial. Finding people who understand why I can't remember things is tough. Keeping positive is difficult but important. All people with seizures should keep a diary is important. Get a bracelet with your Dr. phone number and the fact that you have a seizure disorder is so important!!

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  @marty38887 ай бұрын

  With me it's all about taking the medication. I can go to bed at 1 AM and I'm fine. As far as drinking; I learned long time ago I can't drink and I don't need to to have fun.

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  @user-jg6fo9fx4i8 ай бұрын

  In Africa??

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  @RobertDW18 ай бұрын

  I was diagnosed with Epilepsy when I was 2 and had a Brain Tumor surgically removed when I was 8. 23 years seizure free.

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  @mumofcuties58739 ай бұрын

  On behalf of my daughter, thankyou.

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  @bethhemann937310 ай бұрын

  Such a beautiful testimony! thank you so much for sharing!

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  @danielderrick606210 ай бұрын

  Loser bec

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  @thomasboyd77010 ай бұрын

  Cheers Neil and the boys from afl 360 to being some light on it

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  @mumofcuties587310 ай бұрын

  Well done Neil. Keep bringing awareness. My daughter is one of the 30% who is drug resistant. She is having VNS surgery tomorrow. I have my fingers crossed this will change things for her.

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  @suzymahney25711 ай бұрын

  👍

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  @diligentmindz11 ай бұрын

  Good stuff. Keep it public and increase support for more medical research so we continue to develop our understanding of epilepsy and it’s treatment

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  @devinwilson816 Жыл бұрын

  I'm myself is going through some people don't want call it disability but I do. It's also a condition. Here's my story -: kzread.info/dash/bejne/X2GYqtyoj9qaZ5M.html

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  @devinwilson816 Жыл бұрын

  I do my best to see what can ease it off or take off stress. Here's my story -: kzread.info/dash/bejne/X2GYqtyoj9qaZ5M.html

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  @t_AgustD_Suga3372 Жыл бұрын

  How early in night I should sleep? I sleep usally at 12:30 at night...Is it a problem ? Should I sleep around 11:30 ?

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  @dipascoe194 Жыл бұрын

  open and honest helpful

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  @trunkblast785 Жыл бұрын

  I love it.

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  @shelbygoodwin6909 Жыл бұрын

  I use to have Epilepsy when I was younger but I outgrow it but come back because I have started to Absence Seizure and Petite Mal Seizure tiggers are fishing light and overheating

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  @owlson2527 Жыл бұрын

  Just wanted to comment that this was a really helpful cideo! THank you! EFA

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  @rajivrajoria4526 Жыл бұрын

  Rx tab albendazole 400mg, tab folic acid 5mg tab epiford cr 500mg , bd.

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  @stephaniesart1609 Жыл бұрын

  This was super helpful thank you

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  @valery9958 Жыл бұрын

  😑 Promo`SM

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  @MercelynGuerra-vx3px Жыл бұрын

  My son suffering late developement due to epelipsy condition please he need help thank you.

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  @shelbygoodwin6909 Жыл бұрын

  I am very epilepsy. Try had when I was younger coming back and I have a absent seizure one absent in Petite seizure mal ones not last Friday, but the Friday before I had Harding Moana where my eyes rolled back into my head.

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  @hanstoppani5114 Жыл бұрын

  Thankyou!❤

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  @naseebullah648 Жыл бұрын

  Never let down disabled .there should be presentation of disabled in the UN to raise their voice

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  @rjvowels Жыл бұрын

  I'm severely epileptic as well. I have grand mals and always go status epilepticus.... have been hospitalized by ambulance over 70 times. It's a really tough disease to live with...

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  @sarinirangedera7476 Жыл бұрын

  such an inspiration ♡♡

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  @eviannafaye5269 Жыл бұрын

  Your story is so inspiring,, Joe. Hope you live a wonderful great life with lots of blessings your way.

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  @lonesorensen-by1pb Жыл бұрын

  This had such an impact on me. Just like Kirsty's family I did not know or were told that the epilepsy my beautiful 29-year-old son was diagnosed with in September could be deadly. On the contrary he was told not to worry and as Kirsty that it was mild. On 27 October he died in the morning getting ready to go to work. He was on his stomach and was found by his employer who had gone to his flat when he didn't come in to work. It was the most devastating moment of my life to receive that phone call telling me I had lost my lovely son and friend. His employer told me he had died of a seizure since he recognized the signs from Jonathan once having had a seizure at work. I had never heard of SUDEP either before and the coroner is still to admit that was what he died of, but I wish I had! We would have been much more involved and made sure some kind of alarm system was in place to alert his flat mates if a seizure occurred. We never got that chance. It is time the medical profession wakes up and make sure that ALL people who get epilepsy are aware of the dangers and what to put in place to safeguard themselves. I have since learned that over 700 young people, mainly young men, die every year and 250 in Australia from SUDEP. When you read the stories of these young people it echoes what I and Kirsty's family have experienced. God bless you all and make sure you take epilepsy seriously!

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  @saardfetner8620 Жыл бұрын

  Don't swim.

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  @gregcollins6686 Жыл бұрын

  Excellent

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  @ulrikezachmann7596 Жыл бұрын

  Oh the comments? No one here knows anything about disability. That’s the problem with disability services they are not trained .

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  @chriswilliams251410 ай бұрын

  I was a support worker and I was highly trained. Xx❤❤

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  @tarabutler71116 ай бұрын

  I am also a D.S. Worker and I’ve been trained for 4+ weeks . 3 And a half trained in different classes plus on sight training at the different homes. 😊

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  @tarabutler71116 ай бұрын

  I treat everyone of my clients as my own family.

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  @lauraclaire Жыл бұрын

  Thank you I hope one day there is a day where Epilepsy and none epilepsy (yes it exists I have both) will have medication where people can live life without having such a frightening condition to deal with.

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  @senvid9640 Жыл бұрын

  This video is being used in my nursing degree to teach us about Epilepsy. You're helping so many people by doing this video and spreading awareness for people who've got epilepsy

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  @morrisdonald8795 Жыл бұрын

  All thanks to #DrObahistoricalherbsvy on KZread who cure me from epilepsy virus to I'm free thank you once again Dr you are the best on KZread.

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  @morrisdonald8795 Жыл бұрын

  All thanks to #DrObahistoricalherbsvy on KZread who cure me from epilepsy virus to I'm free thank you once again Dr you are the best on KZread.

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  @mister3722 Жыл бұрын

  I've been refused gym memberships, restaurant entrance, work, been left by the main road in post ictal by paramedics repeatedly while still bleeding. The list goes on and on. What can I do about it? In Sydney, NSW

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  @smythie27 Жыл бұрын

  That just makes it even more frustrating. I have been told all my life that I could not join the force because of my epilepsy which was a dream of mine since I was in high school.

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  @morrisdonald8795 Жыл бұрын

  #DrObahistoricalherbs.