Пікірлер

• 
  @Javanka5 күн бұрын

  Things change indeed, Sweden is not good place to live in anymore. I wish i wasn't stuck here right now. Wonder why would anyone (who isn't extreme right) want to be here now.

• 
  @lostepisode37 күн бұрын

  welcome to eslöv :D

• 
  @Miss.TiffanyАй бұрын

  Good luck girl ... I'm 37 and have been ttc for 10 years... Unexplained infertility is the worst😞 sending you baby dust on this crazy emotional journey

• 
  @Miss.TiffanyАй бұрын

  Ohh? Theres a line on your test? Dont see one hmm make sure those lines popped up fully within the 10 mins bc if they didn't really show until after, they aren't true lines. Good luck.

• 
  @Moniquesimon3967Ай бұрын

  Omg sorry to hear ,sometimes its not unexplained sometimes its you and your partner chemistry not cheming 😪 don't know if that made sense to you. But baby dust to you ask well

• 
  @crosstatt7441Ай бұрын

  Hopefully, your dream will come true!

• 
  @ogjkАй бұрын

  What did you find better about Royal vs NCL besides the bathroom? I have also sailed on Royal at the time the largest cruise in the world, recently got off NCLs smallest thr Spirit. I also prefer NCL over Royals mega ships. It didn't feel like beeing on an actual ship it was so big and crowded as well. Going to try the Escape in November it will be interesting to see how the bigger NCL ship compairs.

• 
  @adventureswithnorajacob6469Ай бұрын

  We have sailed the escape twice and actually really liked it. With NCL we prefer the range of food options, the larger amount of activities geared towards our age group and the cheaper on board shopping.

• 
  @Perisa792 ай бұрын

  What happened with the move to Sweden?

• 
  @adventureswithnorajacob64692 ай бұрын

  Still in the works, hopefully updates to come by august!

• 
  @Spaghetti9893 ай бұрын

  The eyesight thing gets me too, then flares goes away and vision gets better

• 
  @diannekelly33193 ай бұрын

  Any side effects so far I have multiple autoimmune disease and have been fighting for 16yrs to get on something other then steroids and antibiotics every day

• 
  @BeamerMT19799 ай бұрын

  I had to do a CT Entrography. No one knows how to do an MR-E within like 150 miles from me. The prep was bland so that was fine but the bloating was horrible.

• 
  @BeamerMT19799 ай бұрын

  My GI doc is awesome but getting her to respond outside of a phone call is impossible. She even admitted she forgets lol. Oops. But I like her. I’d just keep trying docs till you find one. If you haven’t already lol

• 
  @BeamerMT19799 ай бұрын

  Crap you’re braver than me lol. I’m sticking with the pens 😅

• 
  @AgentOffice4 ай бұрын

  Syringe is way better

• 
  @HMohr9 ай бұрын

  I'm about to start my treatment with Hyrimoz after methotrexate started to impair my liver. I have psoriasis, psoriatic arthritis and mild peripheral neuropathy. Reading about Adalimumab I feel afraid to start treatment. I have a 4-month daughter. Kids get all kind of flu, infections and so on. How is going to affect my health? Also, I read that anti-tnf biologics leave us prone to fungal infections. I really like to perform oral sex on my wife (and she likes it too, I hope you people don't feel uncomfortable as I share this). Will I have to put this practice on hold!? How imunobiologics has affected your sex life? How has it affected your general day-to-day stuff?

• 
  @riharahim978911 ай бұрын

  Hi, would appreciate a lot if you let me know , are you still on this injection thank you söö much ❤

• 
  @adventureswithnorajacob646911 ай бұрын

  I am not, I am now on zeposia

• 
  @riharahim978911 ай бұрын

  ​@@adventureswithnorajacob6469 thank you söö much really appreciate also could you plz tell me hows your UC and how long you been taking this ❤

• 
  @riharahim9789 Жыл бұрын

  Hello, hows your uc and what medication you are on thank you söö much

• 
  @adventureswithnorajacob6469 Жыл бұрын

  I have no switched to Zeposia and I am doing very well on it!

• 
  @matthewmartin4724 Жыл бұрын

  First

• 
  @leocroker5873 Жыл бұрын

  Thank you for the video, i have just taken my last humira injection, and start on stelara next month, did not know what to expect, but now i do, thank you again

• 
  @mikemikegitzmula Жыл бұрын

  Thanks for sharing just had my 4th flare and your exactly right each one is different but as for me it seems worse every time and usually I can detect my flares but this one came out of no where full blown

• 
  @markmcla Жыл бұрын

  So I guess with Remicade (or in my case Inflectra), you MIGHT be totally healed, but you still take Remicade because you don't want to risk a flare returning. Anyway, for me, I'm on board with continuing to take Remicade. I'm so grateful that it's working. And I'm organizing my lifestyle to give Remicade the highest chance of continued success: No caffeine. No alcohol. Homemade Kefir smoothie everyday. Lots of exercise. And I drink a big glass of water first thing in the morning!

• 
  @markmcla Жыл бұрын

  Thanks for sharing. I've been newly diagnosed with ulcerative colitis. The nurses who took care of me during my two hospitalizations were saints. I'm sure you will be a good nurse. Anyway, the medicine, remicade, has helped me tremendously. We are servants to our guts. I hope your flares leave you alone!

• 
  @rdance3 Жыл бұрын

  I came to this video after watching your "Humira Failing" video. My Humira is starting to fail now. I can relate. I started Enbrel for psoriasis, back when it first came out. I was on it for 15 years. The last 8 were double dosed. In 2018, I switched to Stelara Q12 45g, as I was diagnosed wth Ankylosing Spondylitis. 1 year later, I was given a Crohn's diagnosis and went from Q12 to Q8 and from 45g to 90g. Stelara was the best ever, so far. I was looking to see how it did for you. My rheumatologist also has me on 5g prenisone. It's their go-to. I have a rheumatologist appointment this month and I'll be discussing options. Cosentix maybe. It sucks going away from another med because you begin to ask yourself, "Am I going through them faster than they are being created?". I'm getting a B vitamin panel that includes Biotin, Ribflavin, Thiamin, B3, Pantothenic Acid, along with Folate and B12. I think I'm becomeing deficient in Biotin and Riboflavin due to poor absorption. Funny thing is, it by my request and the doctor says it might not be covered. I say, it better be covered if it proves I'm right!. I think it's odd that most doctors don't test for all B vitamins. Hope the Stelara keeps working for you. I'm having

• 
  @DawnGreene Жыл бұрын

  Does this hurt? In two weeks I may have to start doing this shot to myself because I have HS. I’m so scared😢 when I found out it wasnt a pill I cried

• 
  @adventureswithnorajacob6469 Жыл бұрын

  The injection going in doesn't. Most of the time it is the liquid going in that may sting. Using emla cream before can help!

• 
  @lanotakrazii Жыл бұрын

  I'm getting a colonoscopy in 2 weeks to see what I have something going on. I feel like I have this. Have a lot of the symptoms. I poop like 6-8 times a day when I'm flaring. I recently took black seed oil and I feel like it helped me start eating again. I couldn't even drink water because I would have to go to the bathroom. Really hoping that I find some answers soon.

• 
  @ashishdevadig2835 Жыл бұрын

  have you tried homemade Kefir milk?

• 
  @flamboyant731 Жыл бұрын

  Thank you so much for sharing! Just started today.

• 
  @lunithefoxfreitas2181 Жыл бұрын

  Why did you stop taking humira. How long were you taking humira for.

• 
  @adventureswithnorajacob6469 Жыл бұрын

  I was taking it for almost a year however the medication was not working enough and I flared while on it so I had "failed" the medication. I needed to be put on one that would not cause me to flare while being on it.

• 
  @gquatticci Жыл бұрын

  My daughter, who also has UC had her tonsils out in September, she’s 23yrs old, it’s a tough recovery. We live in the Greater Portland area.

• 
  @adventureswithnorajacob6469 Жыл бұрын

  Very much so but i don't regret it! I bet she won't either. I am in the outer areas of Portland so we are not far from each other.

• 
  @citizenkane4831 Жыл бұрын

  Vilken rolig video. Importera inte bilen till sverige. sälj den och behåll pengarna. Ni kan köpa en bil i sverige istället. Det blir mycket billigare. Och vad roligt att du pluggar svenska. Personal inom vården är ett bristyrke, även läkarsekreterare. Men god svenska är ett krav! Don´t import your car. Sell it in the usa and buy one in sweden instead. There´s a shortage of all types of nursing staff, including medical secreteries. But understanding and speaking good swedish espcialy if you work as nurse, doctor or secrerery you just don´t get along with swedish as a second luangage. And the same goes for your boyfriend. He must learn to understand work instructions if it´s about any type of construcion work he is thinking of. When you have a work visa like you talked about. The next hurlde you must have a personnummer. Without that you can´t do anything. you can´t open a bankaccount. you can´t rent or buy a flat or a car. You have to do more resaerch so you know what you have to prepare yourself for if/when you decide to move. But don´t import the car (or the pets) you need the money to other things.

• 
  @lostepisode3 Жыл бұрын

  hej vad roligt att ni ska flytta hit :)

• 
  @MrLeroyJacob Жыл бұрын

  Thanks for your inspiration 2:34 ... I just popped off the caps and did it before I had time to get all anxious. This new formula and smaller needle size make it painless. You can't feel anything. I let the pen sit out for 30mins.

• 
  @richardcraig8780 Жыл бұрын

  I've been on humira for about a year and a half now, it helps but I still have alot of bad days and alot of symptoms.

• 
  @jessicaleslie-byrn8008 Жыл бұрын

  Did you ever find a bigger bottle of sunscreen and try it?

• 
  @adventureswithnorajacob6469 Жыл бұрын

  Not yet, I am still using it as well as another bottle we still had that was full. Once I run out of those though I may try the all good brand sunscreen that is sold on earthhero.com

• 
  @wiser_every_minute Жыл бұрын

  Hello from India, I need to move to US for my masters. Is this medicine available for International Students in US covered under an insurance ? Also, can you tell me the price for it.

• 
  @adventureswithnorajacob6469 Жыл бұрын

  Every insurance is different so it depends on what time you would have and how much they would pay for it. I do not know the different costs for different companies. Out of pocket its $12k a syringe or pen.

• 
  @syamsundarreddy2352 Жыл бұрын

  Same situation no idea what to do 😢

• 
  @padmathalamarla8246 Жыл бұрын

  12 $k means how many $

• 
  @magicalumbrella7151 Жыл бұрын

  Thank you for frankly discussing your symptoms. One thing that is rarely mentioned yet I feel is very important, and that is when food is mentioned the more problematic elements of the food, (for me) is the food additives, preservatives, msg, and especially glyphosate and other pesticides, corn-fed meats, this even effects the eggs ir from corn fed hens! Food toxicity is in my view a huge contributor to our problem. Has anyone else noticed this? You can eat what would normally seem healthy but if it isn't organic you have a flare-up waiting to happen.!

• 
  @adventureswithnorajacob6469 Жыл бұрын

  I agree with this!

• 
  @lorrainenohokau3021 Жыл бұрын

  Thanks for sharing. I have been just diagnosed with Colitis. I also have Barrett's syndrome and Diverticulitis Disease. Your symptoms are the same as I have experienced. I wish you all the best.

• 
  @citizenkane4831 Жыл бұрын

  If you are going to museums, don´t forget Fotografiska. And if you want to eat something special visit Aifur. It´s an Viking restaurant. Try the mead. It´s wine made of honey.

• 
  @jeffreyadams207 Жыл бұрын

  Thank you young lady, doing my shots when I get home from work

• 
  @moxig5717 Жыл бұрын

  Oh my gosh it’s interesting how everybody is talking about joint pain, having the same thing, it seems to move from place to place in the body

• 
  @moxig5717 Жыл бұрын

  I’m going to make a disclaimer right now also I feel the same way thank you for being so open. I just had two flareups this month alone, I have been hospitalized three times, I can’t figure it out, it seems to get worse each time now I have to sit on the toilet with the trashcan in front of me. It is so excruciating, the pain, they have told me before that it is food poisoning, LOL I said I must be the most unlucky person in the world. But it will actually put me out for three or four days, is that what everybody else experiences? Because finally the day that you said quit having to run to the bathroom and quit throwing up, it just feels like the end of a boxing match like you’ve been hit in the gut so many times. Mine always happens in the middle of the night or early morning 99.9% of the time, I will wake up with it with the urge to have to go to the bathroom and I will know as soon as it happens, I’ll once I have to get up twice now I have my arsenal I have a pack of pull-ups, plastic bags, anti-diarrheal, anti-nausea medicine.

• 
  @adventureswithnorajacob6469 Жыл бұрын

  I definitely recommend getting your PCP to refer to you a GI doc and following up with them. They always know best.

• 
  @westside_kratos64872 жыл бұрын

  Syringe over a pen? Never woulda thought lol. To each their own though.

• 
  @adventureswithnorajacob6469 Жыл бұрын

  It gives you more control versus the pen that feels more aggressive.

• 
  @westside_kratos6487 Жыл бұрын

  @@adventureswithnorajacob6469 I dig it. But pen me up all day lol.. just not the joints with the Citrate in ‘em. Keep them shits far away from me.

• 
  @eilidhlewis35872 жыл бұрын

  I was there

• 
  @aladinsqual2 жыл бұрын

  Thank you

• 
  @raztendo35402 жыл бұрын

  Dont think its possible to do Gothenburg in a more wrong way then Uve done. First of, we dont buy water, tap water is even better then bottled water here. Our sodas have real sugar, not the fake one served in US. This was comical to watch, americans are really handicaped when U go abroad.

• 
  @mandymoonstar26802 жыл бұрын

  I think I have this. I'm older. But the onset was severe empty gas which progressed to all of the other things you said. Severe stress was the trigger. You get bad enough that the bowl movements just come out. I wonder if there is a holistic approach to getting through this? Thank you for your story.

• 
  @mandymoonstar26802 жыл бұрын

  Also joint issues for sure.

• 
  @catherinelongno76642 жыл бұрын

  Yay another video! We Missed you!

• 
  @tashagarland91632 жыл бұрын

  Thanks for posting about your flares. I have mostly joint pain, fatigue and weakness with muscle spasms and headaches. I’m in a significant flare right now and I feel awful! Seeing my GI doc on Monday. I think it’s time to start infusion therapy.

• 
  @philo21972 жыл бұрын

  So did the stelars work for you or not?

• 
  @adventureswithnorajacob64692 жыл бұрын

  I can finally say after the infusion and first injection it is working!

• 
  @philo21972 жыл бұрын

  @@adventureswithnorajacob6469 well that’s good to hear. Congrats

• 
  @janulio2 жыл бұрын

  Ohmygod you're so lucky

• 
  @catherinelongno76642 жыл бұрын

  Hi Nora, I just started watching your vids because it was recommended to me when I started watching UC stories. My husband got diagnosed 5 days ago and it's been really hard :( I hope that the Stelara works for you and thank you for sharing your story on KZread..

• 
  @catherinelongno76642 жыл бұрын

  What a great year for you!

• 
  @stoneddragon54002 жыл бұрын

  I feel like no two flare ups are exactly the same.

• 
  @ferarri55362 жыл бұрын

  Thank you so much for this video I learned a lot since I was recently diagnosed with UC. I truly hope Stelara works for you and you get out of this soon!!