The KZread Home of PD Avengers. United to end Parkinson’s. Join us. (www.pdavengers.com)
We are a global alliance of people with Parkinson’s, our partners and friends, standing together to demand change in how the disease is seen and treated. The PD Avengers are not a charity nor are we affiliated with any one organization. Our mandate is to use the value of our combined effort, influence and skills to prove Parkinson’s matters and to build a sense of real urgency to end this disease.
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Great to get a little background on Brian and his life story- will definitely follow more of his work and the PD Avengers as I advocate for all things that lead to life affirming days with PD!
How long do TCE-treated shirts emanate in dangerous levels from when they are purchased. At any given time I have 2-5 shirts in my closet waiting for pickup, which may take up to 5 months to be worn.
So, aside from spending a lot of time and money... what will be accomplished and how soon?
There is no plan to end PD just like there is no medicine to end PD. It’s just a bunch of hype because the cure comes from within. Don’t get your hopes up folks.
Great exchange guys. Squirrel…!
Afraid this will be like everything the govt jumps in to "solve". More govt, more taxes, less freedom. And the program (isn't there always a program?) will be inefficient, ineffective and enriching to a select group at our expense. Find an example to prove me wrong.
Well done and thank you team MJ Fox and Michael J Fox himself, a great and true pioneer and what an achiever. Kudos to you, sir for not giving up and keeping focus on main task of ultimately eliminating Parkinson and thank you for fighting forefront on behalf of all of us who are living with Parkinson ! Thank you all & god bless !
Let's get this done! 👍
I am so glad to hear you so positive. I recently saw a video from you and it was so dark. It scared me. Now you are so up and I am elated to hear it.
This is AWESOME ❤❤❤
Outstanding job, Larry! Fantastic storytelling.
Love this, hope to see even more lights next year!! 💙
What makes the cars roll and what kind of cars are they? What do I look for to purchase them?
Wow! This was super well done! Thank you so much for sharing! Beautiful pictures and videos from around the world!
Larry, can you update on how things are going for you? Hope you are doing well.
🤣 Promo sm
Never give up!!!! We have to come together and make ourselves heard!!! We have to love ourselves enough to care about cleaning up the world we live in.❤
From Maurice White to Mohamed Ali. This is a great collection of inspiring characters. I never would have imagined that so many of the people that inspired me throughout my life would contract the same ailment. Astounding. More proof of how PD doesn't discriminate. We are all equally in danger if we do not do something fast to clean up this planet. I have to give it up for the man and his band who taught me to wish upon a star at an early age. Some songs just get better with age. Yes...and having anything in common with someone who performed a favorite song. Is kinda cool. Even if it is PD.
Just let me know what I can do to help. Mother Nature is not pleased with the recent ruling by the EPA. Multiple times those in charge have made this cause sound unworthy of the time and effort required to read. How can this be? UNACCEPTABLE I say! We simply must find a way. 🌎🏔🌱🌳🦋💓 Thanks to both of you for this reality check. Also thanks for the great book Dr. Ray Dorsey. I'm a former long time resident of Upstate NY. I was also born and raised in the Bay Area Ca. So that book really speaks to my story. As well as to the multiple health issues suffered by my family. And other familys we know who still live in NY.
We may have lost the battle. I cultivate hope and determination that we shall not lose the war!
Is this stuff in Australia?
Unfortunately, yes.
Actually the coating and fillers play a small role in the dosing. The FDA allows a 20% difference from the standard dose. That can be 20% lower or 20% higher . So a total of 40% difference is allowed between different batches of the drug.. within its own generic company or its competitors or the brand name. So yes, pay close attention. The patient is the one who may easily notice a difference, not the doctor , or pharmacist or the pharmacy that is more concerned with profit than for your well being.
My mil and husband have PD. My Mil recently passed away. They have had genetic testing and it's not genetic. My mil never owned a washing machine,everything was done at the dry cleaners.
Larry - thanks for this information. I’ve been taking the same generic form of carbi/levodopa for 5 years. Due to travel I had to fill my prescription at an unknown to me (but still CVS pharmacy). The pills were a slightly different shape and not scored. I was a little surprised they hadn’t informed me of the switch but I thought (besides the inconvenience of the nonscored pills) that they would be the same. I’ve been having trouble with my “off times” occurring more frequently and their onset is quite abrupt. I go from feeling ok to being in a severe off time zone immediately. I thought it was me. Now I am going to look into this more. Again thank you
1pp
Best wishes!
Hi Larry. So great to hear that you're doing well after your DBS surgery. Prayers for a complete recovery and it being exactly what you need now for a better quality of life. Cheers!
just had my medtronic turned on and its great.
i just had dbs with dr. foote and dr. okun at the university of florida, i saw dr, soania Mathur in orlando at the michael j fox talk, in watch every pd video i can and Kennedy is a ball of laughs, thank you all.
Having suffered from internal tremors for more than two years, I wonder whether I am with Parkinson’s, a simple test like this would make my life simple. I would love to know one way or the other
The doctor is correct. In a tall family in 1930 in Delano CA 93215 used DDT in food and spray over head 500 gallons in a aircraft over 4,000 sq foot , four times bigger than a three bedroom house 1500 SQ ft and all over the United States and Europe or London dropped DDT. And another chemical with DDT methyl bromide in pesticide and restaurants in Boston MA or New York City the tall work or own. Mexican food huevos ranchero and spices were dried DDT. My uncles are FBI agents in 1939 and 1933 and died in 1948 or 1946 or about. I was informed that ebola was military made San Diego CA Marines scientist for bio warefare and HIV Aids for bio warefare and pneumonia for FBI agents in all United States and here they died by murder in 1948. No other FBI agent Kennedy worked as honorable in CIA agency or FBI agency or in the White House and here military New York City has 241 vials of different cancers with medicine and 200 vials of cancer but no medicine and here ebola virus is still obtained for anniversary date to genocide dark tanned in south Africa by tall 9ft tall Chuy Hernandez a Saudi Arabic impersonating a Caucasian or Latin and in 1902 in Delano CA 93215 two hundred persons died of brain tumors and cancer in 1902 all dead. In 1948 all Delano CA residents died or killed by a ebola pandemic or Aids pandemic or pneumonia in 11 months in 1948 or 1949. I was in quarantine 14 days when ebola broke out in Africa and in Ohio two FBI agents died of ebola similar and two FBI agents died in Idaho of ebola similar and AIDS after 11 months was viral microorganism and CDC was notified and six fbi agents on the ebola and AIDS viral were murdered and we have the medicine for HIV Aids since 1938 and 1939 healthy with HIV Aids and medicine only at San Diego CA military base marines who won't release it to the United States, a terrorists act. So most disease is a microorganism made by New York City military base in United States by men 9' and Bob Mueller in the White House his nephews are Chuy Hernandez and Chuy Cortez Gonzalez in military base New York area who use ebola virus every anniversary of first outbreak and use COVID-19 spray and liquid all United States and countries for genocide of Caucasian and all. Bob Mueller FBI agent and Wray at the White House President of the United States office and are military since civil war and WW 1.
I worked with trico it was used to expand the rubber hand grips on golf clubs and other goods that required it, I had to turn the water tower on to help keep the fumes down when the rubber hosing was submerged. I liked the smell and you knew you'd been working near it because you'd be stoned almost.
The US is a corporate fascist dictatorship.
All talk and no resolution. No with the Republicans 😅😅😅😅
Wow! I’m so glad the Levadopa works for you so well!!!
Thank you Larry
I used Teva than Sun and while Sun was noticeably weaker. It's probably been 5+ years since I've allowed any other brand but I 've run into rumors of shortages anyd the quality of my last two 90day supplies has been noticable decreased. I don't have the name with me but it's round with no score but luckily it cuts ok and I think it is stronger. Almost all my meds haVE changed brands recently and I seem to get dyskenesia, headaches or body aches with many of the changes.
💫Thank you for sharing your experience. Something that changed my life overnight and I tell everyone: 😊 I personally switched from generic cd/ld to the brand name, Rytary, last March and I have to say my side effects from severe fatigue, dizziness upon standing, dry mouth, tearfulness, and terrible dyskinesia (for me included terrible racing thoughts and anxiety!) subsided. My life improved 100%. That's just my story. 😊 Also, I must add: I also realized with the generic, I felt as if it was only getting to 70% of my body. Meaning after trying the Rytary, I could feel my shoulders and feet and hands. Sounds strange but again Parkinson's is so weird, is it not!? Thanks for all PD avengers does Larry!! ❤
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Fabulous! Thanks so much! I needed that! 😅
So there is no cure yet? So getting the government involved will solve it. Mmm , I’m not impressed.
God Bless you Micheal J Fox for Fighting the Big Fight not only for yourself but All PD Patience. We pray for successful research with hopes of a possible cure. Amazingly we have found that Italian Dr. Antonio Constantini's B1 Theropy Paired with CBD/ Medical Marijauna is working for Tremors, Fatigue Anxiety & Appétit, until then we were dead in the water "literally" We are now looking into Focused Ultrsound Treatment which is Proving to be Very Promising for PD🙏
This is wonderful. Thank you for all your hard work!
TCE's are in R22 refrigerant and other refrigerants and a flush in hvac for refrigerant lines R11 flush . You have to do a fair amout of research to find its in it
Three cheers!
Since there are no cure for PD how does early detection be helpful? The reporting was very very poor for a” breakthrough. It lacked explaining how this “ breakthrough” could be beneficial to PD patients. A TV reporter could do a better job. So disappointedly presented. It just left many of us clueless as what has been found.
I have PD. How can I learn more about your organization?
All progress is welcome and to be celebrated but keep in my mind too late for millions unfortunately
Bravo ❤❤❤
Thank you for this important information!!!
I love it! Thanks!
Such fabulous work, all.