Пікірлер

• 
  @Phenomenal-vx6sbАй бұрын

  Hi mate, any luck feeling better? Hope you’re doing well.

• 
  @jillradovanovic3460Ай бұрын

  Hi Steve How have you been?

• 
  @juliegillespie9034 ай бұрын

  Hi Steve, it’s so great to hear you are really living life now. You could have quite easily turned the new documentary down but didn’t. Who knows where that could take things. Just great how you are now. X

• 
  @jillradovanovic34606 ай бұрын

  You will be ok Steve and rest.

• 
  @jillradovanovic34606 ай бұрын

  Hope you get better real soon...damn covid!

• 
  @dizzydee20216 ай бұрын

  So proud of you ❤

• 
  @steveslong-covidjourneyPPPD6 ай бұрын

  Thanks Dee x

• 
  @jillradovanovic34606 ай бұрын

  Good luck!

• 
  @jillradovanovic34606 ай бұрын

  Good on you Steve ...glad your doing so well. I'm still trying to get there.

• 
  @dizzydee20216 ай бұрын

  We will xxx

• 
  @steveslong-covidjourneyPPPD6 ай бұрын

  You will get there Jill I promise x Thank you

• 
  @cherylmiers-hv4nc6 ай бұрын

  Well done on all your doing and your positive attitude x

• 
  @juliegillespie9036 ай бұрын

  Thanks Steve. So great to hear you’ve had a good day. Keep going and happy new year. Hope 2024 is a better one for all ❤️

• 
  @steveslong-covidjourneyPPPD6 ай бұрын

  Thanks Julie! Hope you are doing well. I’ve been gods recently but slightly ill atm so blipping a bit! Yes bring on 2024! Hope you are well?

• 
  @Bobnormal47 ай бұрын

  Long covid? Are you serious?😂 Can't possibly be the jabs can it

• 
  @steveslong-covidjourneyPPPD7 ай бұрын

  Lol, it can’t can it? 😂

• 
  @lancerichardmorton19817 ай бұрын

  💙

• 
  @ivonneramos92707 ай бұрын

  Yess ! Loving the positivity ❤

• 
  @dizzydee20217 ай бұрын

  🎉well done mate 🙌🏼🫶🏼

• 
  @dizzydee20218 ай бұрын

  So sorry to hear this about your friend, of course it would affect you. But you’re not well enough to be giving support to others and I’m sure they know that. You are as important as they are ❤

• 
  @Aaliyah-xs9ty8 ай бұрын

  😢

• 
  @jillradovanovic34608 ай бұрын

  So sorry to hear about your friend...its bloody tough. Support is so important. We need to all reach out.

• 
  @steveslong-covidjourneyPPPD8 ай бұрын

  Thanks Jill, it’s not great at all, it really is quite sad, these things seem to affect me as I’m empathic. But I will help and give advice where I can, but need to concentrate on myself too, Hope you are well? Thanks again

• 
  @jillradovanovic34608 ай бұрын

  Yes very sad...lm like you to but we have to look after ourselves too

• 
  @cherylmiers-hv4nc8 ай бұрын

  Think this pppd has made us all stronger if that makes any sense and as you said just do what you want and enjoy hobbies whatever gives you joy. I think you will be a great help to your friend.

• 
  @steveslong-covidjourneyPPPD8 ай бұрын

  Thank you Cheryl that means a lot! I’ve offered advice and said I’m here if needed, but at the same time I need to stay grounded and think about myself too, I agree PPPD has taught me a lot and made me stronger emotionally and spiritually Thanks again hope your doing ok?

• 
  @cherylmiers-hv4nc8 ай бұрын

  Hi Steve I've just started doing tai chi really good for nervous system and good exercise. And your right when you say it's nice to find others in the same situation. When I found the steady coach etc I think it was then I started to recover learn accept and change my mindset.

• 
  @steveslong-covidjourneyPPPD8 ай бұрын

  Good for you Cheryl, it’s all about the right mindset which can be tricky sometimes! We’re all here for you and each other 😊

• 
  @dizzydee20218 ай бұрын

  Glad you’ve had a good week. You’ll adapt to the new work environment. Love that you’re reconnecting with music again 🥰

• 
  @steveslong-covidjourneyPPPD8 ай бұрын

  Thanks Dee, I’m loving the music coming out of me atm 🙂

• 
  @amandar6148 ай бұрын

  Hey Steve and Dee! I couldn't make the live video, but just watched the video! First off, your editing and Dee's tea break was so funny! 😂 Thanks for the laugh! Secondly, I so appreciate your discussion on all this. It is not any better here in America with all the doctors and finding people who really understand this stuff (except for the Steady Coach and Dr. Beh online). I actually went to a vestibular physio and she was the most knowledgeable about pppd, etc. but also doctors dont diagnosis you with mdds unless you were on a cruise here. I believe my symptoms are most in line with mdds (exactly like you Dee). I feel the worst just sitting on a chair. Its a constant movement forward and back. It has gotten more subtle for me recently but its still there. Exercise and walking has helped and im trying to stay away from any passive movement (like rocking chairs, treadmills, and yes even driving for right now). All of those things intensified my symptoms AFTER using them, but during i feel totally normal. So far my walking has felt much more stable since stopping those things. Working out feels almost normal again. Its just sitting still that i still feel the movement subtly. The only other symptom ive been getting is head pressure and eye floaters...but those are more sporadically. Im not sure if i have vestibular migraine going on as well. Anyway, thanks again you guys!

• 
  @jillradovanovic34608 ай бұрын

  Enjoyed the video guys.

• 
  @dizzydee20218 ай бұрын

  Good 😂

• 
  @jillradovanovic34608 ай бұрын

  The system isn't much better herein Australia

• 
  @jillradovanovic34608 ай бұрын

  Lol...Steve has frozen

• 
  @dizzydee20218 ай бұрын

  😂

• 
  @jillradovanovic34608 ай бұрын

  I found it overwhelming too. I've pulled back.on both as well

• 
  @jillradovanovic34608 ай бұрын

  I find standing still hard

• 
  @jillradovanovic34608 ай бұрын

  Hi Guys The exercise ball does help

• 
  @jillradovanovic34608 ай бұрын

  Hi Steve Has the next video gone up yet

• 
  @steveslong-covidjourneyPPPD8 ай бұрын

  Hi Jill, I’ll be editing it today hopefully then itl be up tonight hopefully 🙂

• 
  @amandar6148 ай бұрын

  Thanks for sharing Steve and Dee! I have had pppd for 15 months now. Basically i just feel rocking/movement all the time. Its gotten better or more subtle, but still there. Really appreciate you both sharing your experiences.

• 
  @steveslong-covidjourneyPPPD8 ай бұрын

  No problem Amanda, just keep doing what you are doing and you will get there! Always here to help 👍🏻

• 
  @ivonneramos92708 ай бұрын

  Your doing great ❤

• 
  @steveslong-covidjourneyPPPD8 ай бұрын

  Thank you x

• 
  @jillradovanovic34608 ай бұрын

  Music is a wonderful outlet

• 
  @jillradovanovic34608 ай бұрын

  Hi Steve I've had a rough few days and l think lve reached the point where l need the antidepressants. I'm a bit frightened but l know its time to give it a shot.

• 
  @lancerichardmorton19818 ай бұрын

  Thanks for the discussion folks. I've had PPPD now for a while, previously BPPV. I just take it one day at a time and hopefully I'll be free from this one day. There is very little help out there, apart from a physiotherapist I have been seeing in relation to PPPD. Take care and get well

• 
  @cherylmiers-hv4nc8 ай бұрын

  Keep on with the videos enjoyed and good to know we are all in this together to help each other with our knowledge and tips we all pick up on our journeys

• 
  @jillradovanovic34608 ай бұрын

  Looking forward to the next one

• 
  @jillradovanovic34608 ай бұрын

  Thats me ...lm scared

• 
  @jillradovanovic34608 ай бұрын

  Thank you Steve and Dee for sharing your stories.

• 
  @jillradovanovic34609 ай бұрын

  Thank you for sharing Steve.

• 
  @steveslong-covidjourneyPPPD9 ай бұрын

  No problem 😉

• 
  @jillradovanovic34609 ай бұрын

  Steve do you think the sertraline has helped you?

• 
  @steveslong-covidjourneyPPPD9 ай бұрын

  Hi Jill, yes I’m more ways than one! I’ll cover this with Dee in the video! Anything else you want us to talk about? Hope your doing well

• 
  @alexdiaconu79799 ай бұрын

  Hi Steve. Mind sharing what service or consultant you went to for CBT?

• 
  @steveslong-covidjourneyPPPD9 ай бұрын

  Hi Alex, I have Bupa medical insurance but I went through my therapist Orla Gardam maybe try Googling it? She was amazing for me! Thanks

• 
  @dizzydee20219 ай бұрын

  Big love to you bro ❤ Steve you are doing amazingly well! I’m in the middle of a bad time since increasing dose 2 weeks ago. Will update tomorrow anyway but in the meantime please watch Uncanny on BBCiplayer 😉😜

• 
  @jillradovanovic34609 ай бұрын

  Absolutely true Steve,people dont get it. Getting to know and reach out to.people who get it makes a huge difference.

• 
  @jillradovanovic34609 ай бұрын

  Thanks for.your update

• 
  @jillradovanovic34609 ай бұрын

  Your doing really well Steve. Nice to hear from you.

• 
  @steveslong-covidjourneyPPPD9 ай бұрын

  Thanks Jill! How are you getting on? Always here if you need support!

• 
  @skylasgeneration9 ай бұрын

  you can do this well you nee to do this to get us on holiday

• 
  @skylasgeneration9 ай бұрын

  * need

• 
  @corazonamada18459 ай бұрын

  Maybe would be good to know or do a video on what your typical day is like physically

• 
  @steveslong-covidjourneyPPPD9 ай бұрын

  I like that idea, not sure if I can film at work due to where I work but sure could talk about it!

• 
  @corazonamada18459 ай бұрын

  Thank you for the update. Glad to hear you’re able to keep going with life even with the sensations. How much do you have sensations when you walk? Do you feel like you’re walking on a moving boat or trampoline? Did sertraline take away dizziness? How dizzy are you during the day as you work? Are you able to work 8 hours and do you mostly sit while working

• 
  @steveslong-covidjourneyPPPD9 ай бұрын

  Hi, lots of questions there! I like it, I think the sensations are always there (maybe for everyone) it’s how you notice them / take affect of them. Most of the time when walking in ok, with a bit of brain fog, there are mini flare ups here and there! Used to have the moving boat but lately have steadied the ship. Sertraline has helped massively but I’ve needed to put in the work too! Fight it and acceptance at the same time Currently I work 8 hours I sit with a computer but I move around a lot too, lifting etc Breathing techniques help massively too

• 
  @jillradovanovic346010 ай бұрын

  Well done!

• 
  @skylasgeneration10 ай бұрын

  Well done dad

• 
  @alexdiaconu797910 ай бұрын

  Good stuff Steve! Have you ever been experiencing visual symptoms as well? Visual snow, floaters, migraine aura etc

• 
  @steveslong-covidjourneyPPPD10 ай бұрын

  Yes derealisation was the worst still get it here and there I look around and the sky seems fake / dreamy. I get migraines too, when that happens I take 2 paracetamol and 2 ibroprofen together to try to knock it on its head