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• 
  @lifeafter50withmanxАй бұрын

  Recently diagnosed, nice to hear your story 😊 thank you for sharing.

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  @SGCancerUK13 күн бұрын

  Thank you for supporting our channel. Best wishes.

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  @bakkwa8705Ай бұрын

  Thank you . I wish I had the chance to see this video in 2022 when I was first diagnosed . It would have greatly helped me .

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  @SGCancerUK13 күн бұрын

  We're really glad to hear it was helpful. We hope that our videos support SGC patients, carers, clinicians and researchers alike. Thanks for supporting our channel.

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  @mohdnzm-zd8fh2 ай бұрын

  We pray for ur good health.May the creator give u full recovery soon

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  @SGCancerUK13 күн бұрын

  Thanks for your support.

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  @hawklord252 ай бұрын

  God bless sir

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  @SGCancerUK13 күн бұрын

  Thanks for your support.

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  @melaniemann48732 ай бұрын

  Brave 👩🏻 woman x

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  @SGCancerUK13 күн бұрын

  Thanks for supporting our channel.

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  @ameenacrafts22492 ай бұрын

  I love how you bravely talk with positivity. I’m diagnosed with MUCOEPIDERMOID carcinoma and had a couple of surgeries and soon will start my Proton therapy in UK. How can I be part of the community?

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  @SGCancerUK13 күн бұрын

  Hello, we hope you find support by being a part of our community. You're able to join our network on the SGC-UK website here: www.salivaryglandcancer.uk/get-involved/join-our-network/

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  @SGCancerUK9 күн бұрын

  You also might like to know that we are having our next gathering on Sat Oct 19th in London, UK and online. Our gatherings are attended by patients and their caregivers, as well as treating clinicians and those doing research into SGC's. It would be great to have you join us. Details are on the website www.salivaryglandcancer.uk/get-involved/our-events/.

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  @terrimarie46513 ай бұрын

  I had this cancer when I was a kid. I had the tumor for 7 years before having it removed thinking it was just a growth. The odd thing at the time was the tumor grew behind my ear. I had my surgery done at Sloan Kettering. I never had any reacurrance and it will be 40 years in October. Hope this helps someone.😊

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  @SGCancerUK2 ай бұрын

  Thank you so much for sharing your experience

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  @josienanakwe59822 ай бұрын

  whats d symptoms?

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  @Rockstar690004 ай бұрын

  I have this cancer and had 35 radiations 5 years ago. Then I had brain surgery last year because of radiation damage.

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  @heidikurz66094 ай бұрын

  I live just north of Atlanta too and have just finished treatment for ACC. I’m binge watching these videos.

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  @MarcyRaeford3 ай бұрын

  4:22 I, too, live north of Atlanta and am at Emory Winship for treatment. I search for all of this type of information

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  @SGCancerUK2 ай бұрын

  So glad to read the stories are helpful to you

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  @Nitoria.2 ай бұрын

  My aunt has salivary gland cancer but I don't know which type - removed asap and fastly recognized. Year later metastases to lungs ---> chemotherapy + few radiation lights. Results and her feeling were good. Then... just 3 months later --- small netastases in the head... She had 2 weeks + 2 days of radiotheraphy in Febuary (except weekends). Then she felt soooo weak and had huge headaches and ... nobody knows how much these headaches came from cancer and how many from side effects after radiotherapy. Results from April after treatment --- it stopped and smaller dissapeared. But she's so stressed, so scared. She have some little lacks in memory, or not, rather she have to think slower then she used to? She doesn't want to read not to make her brain tired or not to strain it. We're all afraid. Only 2 months and now she needs help almost 24h/7. Like she can walk but she's really weak. She was in hospital amost the whole month between March and April now it's a little bit better but ... nobody knows what's gonna happen ... I live in neighbour country, so we havent see each other for a while. She's 69 with no other illnesses, among other health problems just "hypopigmentation". Generally healthy person, looks young as for her age, was always eating healthy and as she get retired she kept moving, going to sport, yoga etc. never had obesity etc. She's living not in city, in the village. I wanted to see some head metastases survivors but of this cancer it's so hard to find any videos

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  @sbee9854 ай бұрын

  You don’t look 40ish at all!

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  @sbee9854 ай бұрын

  Thank you for sharing your story ❤

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  @SGCancerUK2 ай бұрын

  Thanks for watching!

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  @Rockstar690004 ай бұрын

  I have acc

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  @Joel_Powell2 ай бұрын

  I do too - I hope you are doing well.

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  @Rockstar690002 ай бұрын

  @@Joel_Powell I had 35 radiations 5 years ago then brain surgery because of radiation damage. Please tell me how you are doing. I am here for you

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  @ameenacrafts22495 ай бұрын

  I m so happy you are blessed with your baby boy. Great story. I wish there was more information given about the proton therapy. If anyone can help with more details pls I will be grateful

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  @SGCancerUK4 ай бұрын

  Thanks for your comment @ameenacrafts2249. We've noted your request re more proton therapy specific information. We always like to know what our followers need/want so we can add it into our planning. We will make sure we address this.

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  @davidobiosuagwu82017 ай бұрын

  Wow this is good.

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  @SGCancerUK13 күн бұрын

  Really glad that you found the video helpful. Thank you so much for supporting our channel - it's really appreciated.

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  @mmnoriega23417 ай бұрын

  What are the dental recommendations with those who are affected by head and neck lymphedema? Will the numbing medicine injure the lymphatic system?

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  @SGCancerUK4 ай бұрын

  As Lymphedema of the head and neck can contribute to difficulty swallowing, breathing, or moving the head and neck - when seeking dental treatment, it would be best to discuss any difficulties or preferences with your provider prior to appointments. Providers can then tailor their treatment journey, for example, more time for regular breaks, less water, more suction etc. In terms of keeping the mouth healthy when affected by Lymphedema - that is quite a big question and one that is quite tricky to answer on a post reply as it would very much depend on the patients' individual presentation and clinical needs. On a general level the recommendations would be: fluoride toothpaste with an electric tooth brush (if possible - or small manual), maybe non foaming toothpaste and lean over sink to avoid swallowing or use a suction brush. Use a very small brush like a single tufted brush to get to areas that are tricky to get to. Mouth wash at another time to brushing to keep tissues moist and fluoride levels high. Assuming that "numbing medicine" is local anaesthetic? If so, it is injected into the nerves and not the lymphatic system so should not be a problem but again, best to discuss with the provider as there maybe the potential for other issues to come into play here. We hope this helps.