Sheffield ME & Fibromyalgia Group

Sheffield ME & Fibromyalgia Group

PIP reviews explained

PIP reviews explained

New PIP claims explained

New PIP claims explained

Marie's headshave

Marie's headshave

Healthy fats

Healthy fats

Cook your way calm

Cook your way calm

Why real food matters

Why real food matters

Пікірлер

  • @sarahfoulkes735
    @sarahfoulkes7353 күн бұрын

    You are very rare there does not seem to be many of you that have time for the patients these days and that is if you get anyone to see you in the first place.

  • @nicoleheroux5749
    @nicoleheroux574910 күн бұрын

    Vericose veins are awful and swelling started about 2 1/2 wks ago F’myalgia RLS wght dropped to 97 lbs now 110 inflammation and tt very little fragile crepy skin as my gma had Cardiovascular issues and don’t have to do much at all to feel dizzy Light sensitivity RLS struggle !! Heart palpitations big time yes breathlessness!!! POTS I’d say absolutely!!! Ant sleep well IBS Yessssssssss!! Oh lord help me Hot cold inflammation heart rates feel like I’m dying. Scoliosis Eds Sick since I was a lil girl bowlegged tmj hypertension ‘hypo’everything exhausted My stomach hurts and swells in front of my eyes. Extreme constipation !!Years!!! 33 + 😲😵‍💫😢

  • @nicoleheroux5749
    @nicoleheroux574910 күн бұрын

    Also having a lot of jerking episodes. It comes out of nowhere

  • @angelwilks9016
    @angelwilks901611 күн бұрын

    I'm not trying to be disrespectful but as I was saying I have to have neck surgery and the doctors, a doctorioral site and a gentleman that was giving a lecture on it said that if there is a shift in the neck that it can lead to they symptoms I'm having as well and possibly go away when I have the procedure done. I do have the problems of being cold and hot but the more I exercise the better I feel. So, not always does the exercise intolerance coming to play. There are time though I can't get enough sleep and sleep for days but that also goes back to the thyroid disorder I have. So, again please Sir can you do more research on this and redo you podcast or question and answer on this? I listened to you finely and not everything you are saying line up for everyone

  • @angelwilks9016
    @angelwilks901611 күн бұрын

    Sir, I may not be as educated as you are bit I suffer from POTS myself and a lot of what you are saying don't work for myself and I also don't agree with. For me the lower my blood pressure is the better I feel as well as the higher my heart rate is I feel butter but at the Sametime I do have the cloudiness and my adhd medicine helps me. I also can't up my salt intake like you are saying to do because my BODY WILL NOT release the fluids properly and I have to take a direct. But I also have problems with my thyroid and other underlining health problems. And, I'm not always effected by it sometimes I'm okay and bam out of no where I feel yucky again and it last for awhile, than goes away again or last along time. Some of what you are saying I agree with but there's a lot that's being said here that don't help and makes things worse for me. I've been diagnosed with POTS for over 2 years now and co.e to find out it's been longer than that and wasn't realized. When what you are saying is a normal blood pressure is high for me and I'm sick really bad sick. I feel like I'm in a dream type state or a cartoon like state and nothing makes sense to me. Especially when I'm on heart medicine. So, please can you take a look at all the different underlying health conditions that other doctors say goes hand n hand with this syndrome?

  • @leoralph2810
    @leoralph281013 күн бұрын

    Is there a electronic version of this form? I have difficulty holding a pen to write but can use voice recognition if form is online? Ps I know PIP for is online I am asking about review form.

  • @sheffieldmefibromyalgiagroup
    @sheffieldmefibromyalgiagroup2 күн бұрын

    Hello, unfortunately there isn't a DWP 'approved' electronic version, however our advisers advise that you type your answers on a word document making sure you use the relevant question number and attach this to the review form. Making sure that in the DWP paper review form it is clear that they should refer to the attached and still sign the form where needed. Best wishes

  • @CatsityUk
    @CatsityUk27 күн бұрын

    Wow you are an amazing Dr , I am a 3rd generation within my family, with fibromyalgia, hypermobility, gastrointestinal and ibs issues, we are constantly anemic and we are getting worse especially my mum

  • @spirit5278
    @spirit5278Ай бұрын

    I’ve had POTS for over 25 years and still can’t find a way to control it.

  • @jkmjemmadesigns5553
    @jkmjemmadesigns5553Ай бұрын

    The GPs here only deal with diagnoses they punch up in a computer specific to their iuhealth group think AND NO MORE..sad and frustrating. They don'tclike patients who give up on the 15 min 'appointment' with the intern aged doctor goes to ask the professor, essentially, about correct diagnoses for a patient he hasn't even seen...older people just suffer because they have been taught to believe the doctor without question and to accept ' you are just getting old so...' as a result, when I do my research and call them for additional appts armed with data...it is exhausting...and of all things after a couple of years my back pain may have tirned out to be a ureter infection somehow unseen.

  • @tracystandish3420
    @tracystandish3420Ай бұрын

    Is there a easy way to figure out if it's pots or anxiety? The symptoms are almost exactly the same?

  • @sheffieldmefibromyalgiagroup
    @sheffieldmefibromyalgiagroupАй бұрын

    Hello, PoTS UK has some useful advice about how the condition is diagnosed: www.potsuk.org/about-pots/diagnosis/, which would identify if it is PoTS or something else.

  • @maletero9888
    @maletero9888Ай бұрын

    I am diabetic, they blamed diabetes. It may be related but I quit drinking after years when it first happened because I always feel drunk. It may be related to malnutrition due to a defective gut biome. My doctors have barred me for questioning their resolve

  • @maletero9888
    @maletero9888Ай бұрын

    It was only after LAD stenting did my heart beat strong enough to feel the pulse in my head did I realize what was happening. As I stand, my heartrate skyrockets and my blood pressure plummets

  • @SuzanSemore-ce8nc
    @SuzanSemore-ce8ncАй бұрын

    Im a 73 year old woman. I got covid for the 3rd time in march. Sence than i have been suffering fron all the systomes you talked about. It has taken all my energy to type this. What is going on. I was VERY active 3 months ago i could out work any man. Now im weak as a kitten.

  • @barbaragdisis4606
    @barbaragdisis46062 ай бұрын

    Is there a c1q deficiency connection? My daughter also has mass cell disease and ehlers danlos, now lupus

  • @angelsplace
    @angelsplace2 ай бұрын

    Who's still alive in 2024

  • @jrose4209
    @jrose42092 ай бұрын

    Outstanding video. The most helpful thing I’ve heard applauding you Dr.Sanjay

  • @barbaratrepka5896
    @barbaratrepka58962 ай бұрын

    I have pots and my blood pressure drops when I stand and my heart speeds up I take metoprolol and feel so much better

  • @corrinneloudon525
    @corrinneloudon5252 ай бұрын

    Thank you for a most informative talk! In the 15+ years that I’ve had POTS, I’ve never heard any of this, or had any help from my GPs. Self help and Dr Google have been my only remedy. Some of the advice given is in direct opposition to that given for managing my heart failure and damaged mitral valve, e.g. use of diuretics/gliflozins. I think I’ll just have to carry on putting up with the POTS 🙃

  • @peggymicsky8607
    @peggymicsky86072 ай бұрын

    Please put another video on KZread!! This one is for Pots patients and there are many more of us with other problems who enjoy your presentations.

  • @botsareeverywhere
    @botsareeverywhere3 ай бұрын

    I NEED TO FIND A DOCTOR WHO UNDERSTANDS THIS CONDITION 😡 😢

  • @MeMe-ef5fw
    @MeMe-ef5fw3 ай бұрын

    Gupta is a dishonest hack

  • @henry6451
    @henry64513 ай бұрын

    Unfortunate that the S.African lady specifically excluded the idea of the research being relevant to vaccine injury. It there are micro lots from whatever source it clearly could be. I don’t believe she could believe that but she is just avoiding ultravaxxer censorship.

  • @henry6451
    @henry64513 ай бұрын

    I hate the conforming answers about vaccination. Shows the insidious impact of censorship on these poor researchers. The lie is avoiding previous infection as a source of immunity. The question should be are there antibodies? (from whatever source). Not pretending that vaccines are the only source of immunity.

  • @TheGreenEyedMamma
    @TheGreenEyedMamma3 ай бұрын

    You two are hero parents!! Thank you ❤

  • @emmaalbers6320
    @emmaalbers63203 ай бұрын

    I nearly cried listening to this. I was referred by my GI doctor and my PCP (GP) to a cardiologist yesterday for my postural heart rate changes. Im so lucky to have a GI doctor who was so open to help me look at my broader symptoms alongside my GI issues and help me search for that broader answer outside the realm of only the Gastrointestinal tract. I am so grateful, but at the same time the reality is beginning to set in. I am realizing all of the doubts Ive had in my symptoms that have frustrated me ("what if I'm making it up, what if everyone feels this way and I just need to get over it, what if it's "not bad enough" to really be a problem in the eyes of my doctor?") have in truth been the EASIER thing to believe than the fact I have symptoms that will never go away, that will get worse as I age, that have more than halved my ability to work, that will continue to take away my ability to care for myself. I know that I am being more proactive than my family before me with the same symptoms, so maybe I can make it better. But Ive seen what this has done to them - being unable to leave the bed for days on end due to the fatugue and unexplained sense of illness. Every day I get closer to them, and good days remind me It will be even harder the next time a bad day comes around. I am sooo venting in this comment section right now, but I thank Dr Gupta and this channel for such a thorough overview of POTS and comorbiditues, especially the MCA and Hypermobility overlaps. This information can save us. Thank you.

  • @omarabdullah6963
    @omarabdullah69633 ай бұрын

    Hi im baised in Sheffield and i think i have conditions and claim , do you help for filling the application? If so whats the cost , please replay with information, regards

  • @sheffieldmefibromyalgiagroup
    @sheffieldmefibromyalgiagroup3 ай бұрын

    Hello, we support members of our charity with their benefits applications for free. However, membership is £12 per year, but this includes benefits and social care advice and support, a range of free creative and wellbeing activities, social events and meet-ups and a peer-support in a private Facebook group. You can find out about becoming a member here: www.sheffieldmegroup.co.uk/get-involved

  • @DeeDee-44
    @DeeDee-443 ай бұрын

    POTS isn't a heart condition. It's a problem with the Vagus nerve.

  • @Lyf-3276
    @Lyf-32764 ай бұрын

    This is the most detailed thorough explanation of living with pots I’ve ever heard.

  • @nikkimckay860
    @nikkimckay8604 ай бұрын

    I have just come across this video because I have just applied for independence payments pip and I have my health assessment phone call and I'm feeling anxious and overwhelmed about the call your video is very helpful thank you

  • @Truerealism747
    @Truerealism7474 ай бұрын

    And autism adhd genetic vunrability

  • @sophiamyles7798
    @sophiamyles77984 ай бұрын

    I recently had a review and got a text saying your review is complete and will have a decision Letter within 2 weeks does this mean they have made a decision

  • @asadzeethree2726
    @asadzeethree27264 ай бұрын

    I believe so. The letter you'll receive will state what your outcome is. I truly hope you get what you deserve. If you feel it's not a fair decision then be sure to challenge it. I hope you have the support you need (If it comes to that). But I do hope that's something which you don't have to go through and you're happy with the decision. All the best.👍💯🌟💚

  • @florancebella4366
    @florancebella43663 ай бұрын

    My pip appeal is late I'm desperate freKing out I lose my mob I'm house bound now

  • @florancebella4366
    @florancebella43663 ай бұрын

    I need 24 7 care

  • @asadzeethree2726
    @asadzeethree27263 ай бұрын

    @@florancebella4366. Phone their number and ask them if there is any update on your appeal. If you can't make the call then ask someone in your network of support to call them for you! In the meantime, try not to worry too much! All the best 👍

  • @pinky-ud1rt
    @pinky-ud1rtАй бұрын

    ​​@@florancebella4366 iv had 2 messages about my reveiw then a message i may need to see a docter...but heard nothing im dreding it

  • @deborahakey9308
    @deborahakey93084 ай бұрын

    Thanks so much my prayer is : MORE Dr.s like u!!!!!! 🫶🏿

  • @traceyhilder6640
    @traceyhilder66404 ай бұрын

    What a wonderful doctor the world would be a better place with more Dr Gupta I’ve had rapid heart rates I’ve got CFS and fibromyalgia My son is experiencing the same he’s been checked and heart is ok but they don’t know why he’s generally not well daily

  • @Truerealism747
    @Truerealism7474 ай бұрын

    Do your muscles hurt everyday sure fybromyalgia is a symptom of cfs

  • @susanjannarone135
    @susanjannarone1354 ай бұрын

    MYCOTOXINS READ ON KZread ABOUT MYCOTOXINS. I don’t have these symptoms any longer. I sent a urine test to RealTime Labs and my five categories of mycotoxins were all high. I’m fairly sure that ALL my symptoms are caused by the toxin created by mold in the context of moldy homes. Industry has added fungicides since 1970. Open your mind. You don’t need a cardiologist. You need treatment for mycotoxins. A biotoxin.

  • @PamelaWildman-Williams
    @PamelaWildman-Williams5 ай бұрын

    Crumbs - so wordy. But thank you

  • @flirtygirl2569
    @flirtygirl25695 ай бұрын

    I THOUGHT A REVIEW WAS TO ASK IF THERE WERE ANY CHANGES NOT BASICALLY FILL IT OUT LIKE YOUR FULL FORM . WHAT IF THERES NO CHANGES TO CONDITIONS OR ACTIONS ?.

  • @asadzeethree2726
    @asadzeethree27263 ай бұрын

    The review from is not as complicated as the original claim form when you first applied. You should be okay, but do try to send letters from your doctor explaining your current situation with your review form. Also, any other documents you have as evidence explaining your situation like from therapists of support workers. All the best 👍

  • @ladylee1979
    @ladylee19795 ай бұрын

    this is no longer correct the forms have changed there is no break down per question all it says now is preparing food you need prompting then eating/drinking you need prompting thats it,they also make it clear your payments will continue until a decision is made

  • @KK-ex3ej
    @KK-ex3ej5 ай бұрын

    This is incredible thankyou so much for sharing your expertise

  • @donnaslack6203
    @donnaslack62035 ай бұрын

    I wish my daughter could find a doctor like you in San Diego. They all want you to fit in their box for their specialty. It has taken a year to even get an appointment. Most doctors just don't care or won't take the time it takes. The patients aren't able to fit into a 15 minute appointment.

  • @sueregan2782
    @sueregan27825 ай бұрын

    I am 79 years old, have had ME/CFS for 50+ years, but acquired POTS (including all those other dysfunctions on the list) a couple years ago when my PCP put me on a diuretic for B/P. He then wanted me on a reconditioning exercise program. I refused, and had a blood test done through another doctor: my electrolytes were severely depleted. Discontinuing the B/P meds and concentrating on intense restoration of electrolytes and other depleted nutrients has helped reduce the POTS heart rate, eliminate IBS, improve sleep.

  • @mrs.v4565
    @mrs.v45655 ай бұрын

    WOW FINALLY SOME ONE WHO TRULY UNDERSTANDS POTS

  • @elizabethdesmet89
    @elizabethdesmet895 ай бұрын

    Where does Dr Gupta practice?

  • @stepujacybudowlaniec
    @stepujacybudowlaniec6 ай бұрын

    This is MCAS - mast cells activation syndrome - this is the cause of all these symptoms. More than 17% of the population suffers from MCAS.

  • @tingerisi
    @tingerisi6 ай бұрын

    If you are on a enhanced rate for both and you nothing has changed on review.Can you challenge them for reducing or declining ? like they believed you three years ago but not know why if nothing has changed.

  • @AlbaLynxQueen
    @AlbaLynxQueen6 ай бұрын

    Wow. What a doctor. I wish I met such a doctor just once.

  • @MaryinOmshanti
    @MaryinOmshanti6 ай бұрын

    Thank you ~ it's not a disease, it's a condition. I can't take those meds because I have low bp and ischaemic heart disease. I have Dysautonomia (worse than ever) following a Covid infection. There are SO many of us.

  • @AlbAy537
    @AlbAy5376 ай бұрын

    My favorite Doctor

  • @carolwilliams383
    @carolwilliams3836 ай бұрын

    I didn’t get POTS Til I was 52 had to diagnose myself til I went to Cleveland Clinic and was finally diagnosed by a Cardiologist there, three Cardiologist in California said it was panic attacks 🤷‍♀️

  • @consciousreminderswithreah7907
    @consciousreminderswithreah79076 ай бұрын

    Its psychological its anxiety its truma your a hypochondriac ... 10+yrs later Finally after yrs of pushing to be heard Its EDS Fybromyalga & Pots ...

  • @Truerealism747
    @Truerealism7474 ай бұрын

    They don't care these drs ime the same with autism to

  • @lilibethporal4322
    @lilibethporal43226 ай бұрын

    You made me cry Dr Gupta, you are sooo compassionate. God Blessed you!!!