You are a very brave women and a courageous one. Thank you for sharing your experiences. I wish you nothing but the best.

@mycerebralamyloidangiopath4710

Жыл бұрын

Thanks for the comment Julie. I am meeting so many people now that are showing me their brave hearts also.

You answered these questions so very well. You are the bravest person I know. I am so grateful we met and look forward to the next cuppa soon 💜

@mycerebralamyloidangiopath4710

Жыл бұрын

I am very much enjoying sharing a cuppa together, You in Canada and I in Australia. It's just very hard trying to pass you a biscuit. LOL

Thanks for sharing. Have you had any brain bleeds? if so, how many and when did it start?

@mycerebralamyloidangiopath4710

4 ай бұрын

Hi There. Yes I have had substantial amount of bleeds and according to my Neurologist "to many to count" Luckily they have not caused to much damage so far. Mild cognitive impairment, unstable when walking. First symptoms occured in 2014 and I was diagnosed in 2020. I am at my 10 year mark this year. It is an inclusive club that no one wants to be a member of. I hope you are doing ok and managing if you are the one with CAA and if you are a carer then on behalf of your loved one, thank you for being there for them. Regards

@bissells

4 ай бұрын

Thank you for taking the time to answer. I assumed that you must have had at least some bleeds over all that time, but I was surprised you didn't mention that, but I have not watched all of your videos yet. Do you remember when you had your first bleed? Was that when you started your countdown clock? Scary stuff, right? But like so many serious conditions, the unknown can be the hardest part. I am the one with CAA and was just diagnosed this month, so I am still trying to process. I feel like I'm in a nightmare at this point. I've had 3 subarachnoid bleeds this month, along with all of the other symptoms you mentioned. But the bleeds were the doctor's main concern and what got me a fairly quick diagnosis. Thank you for posting these very personal videos and know that they are extremely helpful to me and I'm sure many others as well. ❤@@mycerebralamyloidangiopath4710

@bissells

4 ай бұрын

@@mycerebralamyloidangiopath4710 Thank you for taking the time to answer. I assumed that you must have had at least some bleeds over all that time, but I was surprised you didn't mention that, but I have not watched all of your videos yet. Do you remember when you had your first bleed? Was that when you started your countdown clock? Scary stuff, right? But like so many serious conditions, the unknown can be the hardest part. I am the one with CAA and was just diagnosed this month, so I am still trying to process. I feel like I'm in a nightmare at this point. I've had 3 subarachnoid bleeds this month, along with all of the other symptoms you mentioned. But the bleeds were the doctor's main concern and what got me a fairly quick diagnosis. Thank you for posting these very personal videos and know that they are extremely helpful to me and I'm sure many others as well. ❤

@mycerebralamyloidangiopath4710

3 ай бұрын

@@bissells I think making a time line prediction from time of diagnosis cannot really be a true time line when you have had the symptoms for years. My Neurologist believes that I did have it back in 2014 just was not able to give it a "name"