Great insights. Look forward to more videos

@BrainAttackMusic

3 жыл бұрын

Thank you. There's plenty more here on my Channel!

This is so true, with any illness.

I feel what you describe is commonplace with brain injury survivors. Most of us dont want to appear to be needy or self intrested so meet and greet others with the normality facade... i had people reassiring themselves by letting me know how normal i appeared !

@BrainAttackMusic

2 ай бұрын

Yep, you're absolutely right, in my opinion!

Congratulations for bringing this up. I get this a great deal. I just go with it now. It's been two and a half years and I'm coming good . Slowly but surely.

I know what you mean, people seem to expect one thing & if they don't see it they feel your making it up , but on the other hand if you don't look good & you need to talk or need some support, they run a mile!! . Have a wonderful Christmas and a brilliant New year. PEACE AND LOVE TO EVERYONE ❤❤.

@BrainAttackMusic

6 ай бұрын

Yep, that's so true. Most people, when asking "How are you?" just want to hear "Fine, thanks" and then the conversation can move on. Answering the question with a truthful answer ( which might be "Pretty awful, actually") generally makes the other person feel uncomfortable, so we can't win either way!

YES! 2 years post stroke and cycling between ‘I can do that’ and ‘crashing’. Thank you for explaining! I think once you accept the pattern, it’s easier relatively speaking to accept. I’ve been constantly beating myself up over this. I too was very driven work wise, so the contrast is stark. But listening to you has ‘clicked’ I will try to smooth things out. Thanks.

@BrainAttackMusic

Ай бұрын

I'm pleased my rambling has helped, Shelagh. The whole 'coming to terms' with what's happened to us is huge and takes a long time to process and get to grips with. There may be other videos of mine that will help, too, so please have a browse. Thanks for commenting and all the very best to you. Regards, Andy

Well done! Incredible video daring to tackle the painful truth...that others ONLY SEE US on our GOOOD DAYS. Thank you for courageously broaching a painful subject for Stroke Survivors!

@BrainAttackMusic

3 жыл бұрын

Thanks for the feedback. It's very much appreciated. Take care

Great explanation. People often feel like they've lost some of their identity after a brain injury or stroke, hence the 'act' of being fine. We need more education and awareness around the symptoms following a brain injury so that people don't feel the need to go into the 'default mode'. Really helpful video.

@BrainAttackMusic

3 жыл бұрын

I agree. Thank you for your feedback!

Amazing video, I thought it would only scratch the surface, but this went quite deep and made me rethink.. I am 3 months post stroke, most of the people don't know as I've tried to keep it a secret. I get zombie and hospital days, I get PTSD days and I get anger days too. But no one apart my girlfriend knows what I am feeling.. After a stroke I've managed to recover to the point that I am better at some things that I was before... But only for short time, but expectations from my employers went up. It's a rollercoaster ride.. 3 months later I am crashing even after relaxed days.

@BrainAttackMusic

3 жыл бұрын

Sorry to hear about your circumstances but thanks for your feedback. There are plenty of other videos on my Channel that might be useful for you to watch, if your feeling up to it! The whole 'dealing with post-stroke life' is a minefield - I still struggle after 7 years and 8 months. It's the emotional and mental effects that don't get enough attention, in my opinion. The invisible deficits. But they are often the ones that are the hardest to deal with and face up to. All the best to you

1:59. The friend expected to see you physically suffering. The typical distorted left arm and left leg because that’s what they are seeing when they know someone has a stroke. It is true when you say “What they don’t see”. It is hard for them to see your reality.

Good explanation of what can happen some of my friends ran away from me like I was the unexpected to them and most of my so what called family did the same they never give you the time of day like you had something catching like they never or anyone even your employer (being a staff nurse for 22 years no one ever gave you a chance.only to discriminate !

@BrainAttackMusic

3 жыл бұрын

Thanks, Austin. I appreciate your time and thoughts.

@austinpollard5600

3 жыл бұрын

No problem thank you, you know it gives me more determination listening to you.

Keep grinding!

@BrainAttackMusic

3 жыл бұрын

I will!

I am 6 years post cerebellar stroke. This video hit me hard. I am still walking around resorting to my default mode prior to my stroke. I have a 10 year old and she is constantly on the go with activities and it is always crash and burn for me. I’m always playing catch up and I am unable to find that balance. I wonder now how this up and down for 6 years has affected or inhibited my recovery process. I too lost my neurologist because of the 3 strikes you’re out policy. It was devastating for me.

@BrainAttackMusic

3 жыл бұрын

Thanks for your comments. Wow, that must be tough with a 10 year old. I think back to when my sons were that age and, if I had my stroke back then, I'd be permanently wiped out. I hope that you can work at finding a better balance in your life, particularly as your 10 year old becomes more independent. Take care x

Excellent video! I needed to hear this, and ponder the questions posed. I definitely try to only go out when I’m well, as I too live in a small town. I think I’m not so worried about what people will think of me, but I’m concerned about embarrassing my husband. (Although I don’t think he would be embarrassed) when my speech goes however, I do try to hide that because It’s been mistaken before for drunkenness. 🧐

@BrainAttackMusic

3 жыл бұрын

Thanks for commenting. I understand what you're saying. I wobble around a bit, even with my walking stick, and used to feel a bit self conscious. I've got over that now but it took time. All the best to you

@TheBlackCat1337

7 ай бұрын

yes. people see my wobbling side to side, barely able to react and take sometimes 24 hours to respond to a question. Let alone being overwhelmed by the lights, sounds and movements of everything around me. for speech I'm finding that I need to go slow and focus calmly on each syllable and use premeditated responses. Its the same technique people with aphasia and dementia use. breath calming breaths, go your speed, keep talking until you are finished, even when people try to talk over you.

I'm on my last strike and have been trying to see anyone for the last 2 years. zero support. in poverty with 18K$ in credit debit. All I have been able to do is get social assistance when I was dying from not eating all last November. but that only covers my rent. I have to call the case worker every month, so I lose 2 weeks just to that call. Every appointment I have tried to make I'm late for hours. Just getting ready to leave takes you out for the day. Now my land lord has taken out my heater and its in the negatives. the stress is making my health even worse.

@normanmacfarlane6724

6 ай бұрын

Sorry to hear of your situation.