Worst news for parents to be! A journey from diagnosis to birth.
News no one ever wants to hear about their pregnancy. Sharing our prenatal diagnosis and pregnancy journey with our son diagnosed with 22q11.2 deletion syndrome, spina bifida, hydrocephalus, and tetralogy of fallot with absent pulmonary valve. Diagnosed at 15 weeks in the pregnancy and fighting to keep our son safe until full term.
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Do you all go to the 22Q Clinic at Nationwide? We travel from Cleveland for Gabby to be seen there. Gabby follows with them, and they're all so wonderful there. Toya does wonderful things with scheduling, Rachel is an amazing nurse. Dr. Ari is amazing with neuropsych. Craniofacial Team is also good. Really, theyre all wonderful!
You were the first person I heard of 22Q through years ago. Gabby was diagnosed with 22Q Deletion in 2018, when she was 9 years old. Thank you for sharing this with us! I've followed your story from the very beginning! God bless you!
😭💗 So awesome! But God, yes!! Amazing! Such a great testimony. I also really love how positive you are about all of your medical pros and experiences. The kids and I really enjoyed learning so much about Aiden’s back story and we can’t wait for part 2!
God bless your family keeping Aiden in prayer your story is so touching ty for sharing your precious story with us
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