Doctors don’t know or care.

I don’t have an adrenal issue, took dexamethasone for a week for oral surgery…I stopped it 3 days ago and I’ve got severe brain fog and fatigue. I am praying this lifts soon because I feel terrible.

This sounds like a very interesting topic.. love your channel. I’ve been on prednisolone for just over three years. Long story short I’m at the stage whereby I feel this drug is damaging my eyes. Just recently I’ve had a large onset of eye floaters, as well as blurred vision (optician says eye are ok).. I realise the drug is doing good by reducing inflammation in my spinal cord, but no longer can I cope with the visual side effects which, I know it’s renowned for. Slowly, and against my consultants advice, I’m weening myself off the drug. Unfortunately, my mobility and pain are worsening as a result .. but I feel I have to choose, mobility/pain or eye sight. I’m looking forward to watching your video. Always a 👍from me to help your channel. All the best - Neil (uk).

@PrednisonePharmacist

Жыл бұрын

Aw, thanks, Neil! It’s sure tricky deciding which is more important, side effects or good effects, isn’t it?

@sneakypress

9 ай бұрын

@@PrednisonePharmacist ….. 6 months -- Try almost 30 years ! They (doctors) buggered my health and made out as though there was nothing wrong. It’s not possible to fix the damage they cause with STEROIDS . IT’S AN ENDLESS NIGHTMARE.

@Lian-ez8gx

3 ай бұрын

After taking nsaids, I experienced eye pain. But i think it's getting better now after 2 months off from the pill. But i still feel mild eye fatigue.

Im on it permanently 😢 its a horrible life! Been on it since 2002 and im only 43.. its caused a nightmare circle of medical problems and finally put me on disability in 2018.

So my journey started 17 yrs ago with a foot surgery that resulted in needing a shot in my foot and a week of steroids. Later that year I ended up needing neck surgery and fusion. 2 yrs later after getting so fatigued I couldn't function I was DXd w adrenal fatigue and put on hydrocortisone...I've been on it for all these years and have tried several times to wean off. I have not been successful. I also cannot regulate my electrolytes and fear I have full blown Addison's now. Has anyone ever gotten off steroids after being on them this long? I wish I could go off just don't know if it's wise. I have a had several crisis. Terrifying.

Rare video.. Good job. What about serum cortisol test to check your cortisol levels though? Noticed you telling theres no way to measure the cortisol status.

And yet many doctors seem to prescribe steroids without any understanding of, or regard for, the risks to the patient for developing adrenal insufficiency - and not everybody can recover to a state of normal functioning of their HPA axis and adrenal gland once they stop taking steroids, a significant number of people end up needing to take steroids every day for the rest of their lives - and believe me, adrenal insufficiency is an absolutely horrible medical condition to have to live with and most people find it has a significant negative impact on their quality of life, and it is very challenging to manage on a day to day basis or to find doctors who understand it and how to treat it.

@sherryblatt4459

28 күн бұрын

Can you elaborate more? I need to hear more about this!

Male who was at 61 diagnosed with RA. For last 3 years. daily doses of 5 to 7.5mg, with as much as 20 mg on flare ups, no side effects I'm aware of. So, Pred allows me to live an almost normal athletic active life. Haven't found anything else that works. Though I'm sure I have an elevated risk for the listed long term side effects related to heart, bone, and eyes.

So how does adrenal insufficiency occur? Is it just from medication? Or are there other factors that effect people’s response?

@Brooklynlife1000

Жыл бұрын

The steroid hijacks the adrenal gland.

What if you were diagnosed with Addison’s disease and you’re not on any medication? Will this help this prednisone?

Can you still feel out of balance after stopping Pred and your cortisol blood test was in range?

Thank you for this video, very informative. 👍

I found your channel recently, Dr. Megan. Brilliant videos, congrats. I don't know if I can post my questions here (if there's another channel for questions, please lmk). I experience a lot of daytime sleepiness and my morning cortisol ranges from 8 ug/dl to 12 ug/dl, which are values that are still considered normal, although they are close to the lower limit. I wonder if there is any level of morning cortisol that is considered ideal.

@dead115

3 ай бұрын

I forgot to mention. The reason for this question is because I read that Prednisone is used to treat Chronic Fatigue Syndrome.

@PrednisonePharmacist

3 ай бұрын

Good question. I'm not an endocrinologist and that's outside of my expertise.

Hey Doc - I’ve been on it for a little over 3 years. I recently tapered too fast, from 10mg to 5mg, and after about 2 weeks I have had a low-grade fever for 3 days straight with swollen lymph nodes on day 3. Are these symptoms normal with prednisone withdrawal? I’m going to hop back on to 10mg and work with my doctor to help me taper off properly. This shit is no fun

@desertshadow72

Жыл бұрын

I'm not a doctor but it seems reasonable you could just try tapering slower

@karrievanengen3019

Жыл бұрын

I am going through the high fever right now. I was wondering if it was due to Prednisone withdrawal? I never had that symptom before. Of course when I go to the hospital today. They will say it has nothing to do with Prednisone. Maybe doctors should start listening to their patients? 😢

@Lian-ez8gx

2 ай бұрын

​@@karrievanengen3019hello. How are you now?..

Thoughts on oral Budesonide? I was told by an Endocrinologist that I couldn’t have AI because Budesonide is not absorbed systematically. I had inadvertently stopped Budesonide during a severe illness and then developed all the symptoms of AI after I recovered from strep throat. Months later, after feeling better, my ACTH stim test showed a result of 18.8 at 60 minutes. Any thoughts?

Madam i have used betamethasone for just 3 days, and I feel adrenal gland problem. What should I do?

@PrednisonePharmacist

4 ай бұрын

Talk to your doctor and slowly taper off.

thank. you for this video. this is where I am.

VERY HELPFUL

I have taken prednisone 20mg for 5 days, and stopped abruptly, it s been 3 months and I m still struggling with sleep ... Went from 9-10 hrs to 6 if I m lucky enough! Wthell ...

@ajajpk

6 ай бұрын

hey, did it improve? I'm going through the same

@TheAshrafDali

6 ай бұрын

@@ajajpk This lack of sleep got me into burnout depression, which I am treating right now. I suggest you see a doctor, without self-diagnose

Upon tapering off, I became sick with the RSV and muscle weakness. Im 3 months from taking prednisone. Is this a withdrawal side effect?

@YtubeUserr

7 ай бұрын

A cortisol test should tell you if you are on the path to recovery. Do a blood/urine test and check if your cortisol levels are good. Visit an endocrinologist if needed.

@Satorugojo841

7 ай бұрын

@@YtubeUserr yes my endo have me doing a blood test, I'll ask her for the urine test as well. Thank you for replying to me.

Do a cortisol test, people. Don't keep guessing. Get your blood test done for cortisol levels. Visit an endocrinologist if needed.

@PrednisonePharmacist

7 ай бұрын

If only it was that simple!

Is the danger less if I was in only 5 mg for many years?

@PrednisonePharmacist

Жыл бұрын

The sheer number of milligrams you are exposed to does make a difference in recovery, but it’s not an exact link. Several side effects are lessened based on the dose you take, like heart disease. So that’s in your favor.

@Brooklynlife1000

Жыл бұрын

@@PrednisonePharmacist thank you so much for responding. I'm finally tapering off and going half mg every few weeks. My concern is adrenal issues. I'm hoping since it's a low dose, I won't have to worry about that but just in case, I'm taking it very slow. I know I will have to take it again but I want to be a quick taper than a lifelong servant to it.

@richardsackler7627

Жыл бұрын

@@Brooklynlife1000 5mg a day, for 8 years, 3.5 years was the longest time someone has been on then tempered off prednisone. I had a real asshole for a doctor that prevented me from gettign offf prednisone before this period expired. A lot of doctors realy havne't a clue what they are talking about.

@Brooklynlife1000

Жыл бұрын

@@richardsackler7627 very true in that one. My drs in the past twenty years have been toxic precribers and didn't care about the long term possible issues. Though we are responsible to learn ourselves but it's overwhelming to read it all and when desperate, we just fall into the medicine regimen. It's great for a short term taper but ongoing is often dangerous. I hope you are doing well and was able to avoid the horrid things this medical can do to us.