Quality sleep has completely changed my life. 🥰

@Whatthekell962

3 жыл бұрын

Can you elaborate more on how its changed your life?

@mirazahed4176

2 жыл бұрын

Kindly share what has allowed you to have quality sleep again

@yahyaelmi8435

11 ай бұрын

When people heal they are so traumatised from previous sleep apnea that they forget to replay to people loool . I hope God bless you

One cannot emphasize too much the shortcomings of home sleep testing. Keep fighting!

@federalbureauofindigestion4084

2 жыл бұрын

In-lab PSGs can be flogged too, particularly for conditions like this.

@RichHandsome

2 жыл бұрын

Can you please expand on this ? I had a home sleep study done and it showed 7 AHI events and they said I should be ok but I wake up feeling crappy every morning and I feel like it's more that 7 events an hour

@cebruthius

2 жыл бұрын

@@RichHandsome Then you probably need treatment. You can buy your own equipment. I recommend BiPAP, it's much better than CPAP.

@skateranddancer

2 жыл бұрын

@@RichHandsome uars can have many more events that are not captured on most at home sleep studies. It causes many cortisol spikes and arousings throughout the night

@zedrad1

Жыл бұрын

@@RichHandsome Not all sleep techs are going to be equal. So many times people are only cued to look at something when they HEAR something. These things can be really subtle or they may not even know what to be looking for..go back and listen at around 24 min.

This is caused by narrow palates narrow jaws and recessed jaws. All of which are caused by improper tongue posture from childhood into adulthood. CPAP is great for treating the symptoms but it is NOT a solution. The solution is expanding the palate and jaws and often MMA CCW jaw surgery that moves both jaws forward and rotates them counter clockwise

I so needed this video ten years ago. I have been touching it out holding my lower jaw open with a full face mask. GP told me I was fine with the low 4-10 AHI.

Thanks for spreading the word on this neglected but so important branch of medicine. There's a need for more accurate home testing systems, not just to save money, but because factors in the home, eg., dust mite, or pets, may be contributing to a patient's problems, and the problem may not be detected in a lab environment, or it may be an intermittent problem. A person could rent home equipment several times over a month, and maybe it would catch events that are significant but don't happen every night. I have a heart rhythm quirk that only happens now and then, and it took half a year for me to identify it and find the cause. It didn't show up during the one sleep study I did.

this is such an awesome video. Thank you for posting this great information! I was just diagnosed with UARS and will be starting treatment in a week.

@kal7049

11 ай бұрын

How are you doing today? What treatment were you given?

@alexbochelmusic

11 ай бұрын

ah man what a WILD ride it has been. I will give you the shortest possible answer haha@@kal7049 (1) Myofunctional therapy took me from feeling 10% to 50% (2) Tongue tie release did not help sleep but did help with other things like daytime breathing, posture, etc (3) CPap took me from 50% to 60% (4) Switching CPap for MAD took me to 70% (5) 4 months on MAD and strict adherence to a program meant to improve Vitamin D levels and B levels has gotten me to 80%. It feels like the last 20% will come with time as I repair all the damage done by my garbage sleep for the past however many years!

Why don’t more insurance companies recognize UARS/cover various treatments? That’s the greatest obstacle to recovery and the medical community struggles to advocate for those who suffer worst. Only the very wealthy or those with high AHIs can afford the invasive surgeries that we need to fix our issues.

Thank you for this information I've been battling with sleepiness and fatigue for years I've been using bipap machine had 2 sleep studies 🤦🏾‍♂️ recently my ahi has been 1.5 and under usually according to the machine but yet I'm still always tired 😫

@iDTecKt

8 ай бұрын

Did you have any luck? Nasal issues, are your teeth crowded etc?

I’ve been using nasal pillows for years, but mouth leaking is a big problem to me, as my mouth naturally open during my sleep. So I started mouth taping, leaking gets better, AHI is low, but sleep is still fragmented, and I feel not rested.

Hi Mam, I am suffering from a unique probkem ..I am able to breath from nose but it get obstructed when coming out when I lay down on bed (not sleep)...Dr done endoscopy but don't find anything .please help me in this ..what is it..

What they dont mention here is that its way worse on your back, i have severe sleep apnea while on my back but its non existent on my side, but im sure i have UARS because i cant breathe through my nose properly even after septoplasty and turbinate reduction.

Thank you 💛. I haven't been able to get a UARS diagnosis yet in the Netherlands. I don't have sleepapnea, AHI=1 Chronic mouth breather from birth due to bottle feeding and thumbsucking. Worsened by retractive orthodontics (headgear braces) This ruined my quality of life 😩 Please help, no snoring (imw 30.9mm) Many arousals.. (Insomnia, depressive mood)

@JustinRM20

3 жыл бұрын

I’m from the Netherlands too. I’ve made an appointment at the kempehaeghe hospital for a polysomnography + pharyngeal endoscopy, this will measure AHI and RDI (the latter being the most important for UARS) If you’re interested, please contact me. There are treatments available for UARS.

@fadjeja3141

3 жыл бұрын

@@JustinRM20super dankjewel! Je spreekt Nederlands neem ik aan ;-) Heb je naast UARS ook OSA of enkel UARS? Ik heb 2x een psg test laten doen en beide keren kwam er "niets" uit. De RDI was niet gemonitord..Ik pas in het typische plaatje van een UARS patient: hoog smal gehemelte en onderontwikkelde kaken (long face syndrome) Bij welke arts ben jij geweest? Ik ben nu erg enthousiast, want ik dacht dat ik nooit erkenning zou krijgen, enkel wanneer ik aan de OSA criteria zou voldoen.

@JustinRM20

3 жыл бұрын

@@fadjeja3141 Ik heb de PSG met PES nog niet gedaan, die moet nog komen. Wel heb ik een WatchPAT studie gedaan die ook RERAs meet, begreep alleen dat dit deze test wat minder accuraat was en ook nog niet geaccepteerd in Nederland. Ik zou beginnen met een watchPAT studie doen, deze heb ik zelf gedaan bij SomnoClinic. Neem alleen de test daar en luister vooral niet naar de behandelingen die zij aanbieden, is allemaal kwalzalverij namelijk. Helaas zijn zij de enige die zo’n PAT test aanbieden in NL

@fadjeja3141

3 жыл бұрын

@@JustinRM20 watchpat studie heb ik volgens mij al laten doen via Sein naast de PSG test. De RERA's werden niet gemeten en de flow limitations. RDI buiten beschouwing gelaten. De arts van Sein heeft me de diagnose "chronische insomnia" gegeven en geen UARS. Hij stuurde me door naar een slaappsycholoog. Daar ben ik niet op in gegaan. Ik ben bang dat als in NL je AHI laag is dat je met lege handen staat. De laborant die de bedrading bij Sein afkoppelde zei bij het uitlezen dat ik erg veel "arousals" heb per uur. De longarts ging daar bij de uitslag verder niet op in. Denk je dat ik toch nog in Zwolle terecht kan? Ik zit nu in een orthodontisch traject voor een tandenboogverbreding en kaakoperatie maar ik kan dat losse beugeltje niet verdragen. Extra plastic in de mond en nog minder ruimte voor de tong. Heb jij vroeger ook een beugel gehad wat je situatie er erger op heeft gemaakt? Ik heb sinds mijn 12e last van steeds terugkerende depressieve klachten en slapeloosheid, duurt 2 a 3 weken en dan is het weer voorbij. Denk dat dat gerelateerd is aan UARS. Dit heeft mij veel onzekerheid bezorgd omdat ik het stempel bipolaire stoornis heb gekregen, wat achteraf een misdiagnose is. Ik zou om het orthodon tisch traject te kunnen volhouden toch het liefst tijdelijk een dreamstation willen gebruiken voor een goede nachtrust.

@JustinRM20

3 жыл бұрын

@@fadjeja3141 Wat voor orthodontistisch traject volg je? Ik ben bekend met de maxillary skeletal expander (MSE) verder ken ik niets wat effectief de maxilla uitbreid. Aan de UARS diagnose heb je sowieso niet veel, het is meer een bewijs voor jezelf.

I got a CPAP, but have found it to be less helpful than expected because my nose and throat become progressively more irritated while using it on most nights. After a few hours, my nose is usually completely stuffed up and I wake up feeling like I can't breathe and off goes the mask for the rest of night.

@Daurentius322

Жыл бұрын

Not sure if this is correct and I am not an expert but I'd wager on the basis of what you describe that your machine is blowing cold air into your nose/mouth, I know from my own experience that this can and does irritate the soft tissue in my nose and throat, that is why I got a CPAP machine that allows the use of accessories that heat the air so that I do not end up irritating the soft tissue in my nose and mouth.

@utubeuserintheusa

Жыл бұрын

@@Daurentius322 I had the ResMed AirSense 11 with the ClimateLine heated tubing. Experimented with different temperatures/ humidity levels based on how the room felt each night. When it did work well, it would end up leaking and waking me up before I had enough sleep. Hoping the allergist and ENT will be able help when I finally get in to see them.

is cpap for UARS covered ?

@NNKDude

2 жыл бұрын

Hi! I just got prescribed CPAP for my UARS. The official diagnosis for UARS is OSA so most insurance should cover it!

@jakec5618

Жыл бұрын

@@trembling3674 Got an apap. But it isnt really helping...

@Daurentius322

Жыл бұрын

@@jakec5618 How did you conclude that you have UARS?

@jakec5618

Жыл бұрын

@@Daurentius322 i didn't. I was jw if they cover that tx for it.

what parts of the body does sleep apnea affect?

@alicerolling9158

3 жыл бұрын

David in my experience the lack of getting the good restorative sleep has an impact on our whole body.

@shuikai272

3 жыл бұрын

Cognitive function Fatigue / Energy Back pain, joint pain Cardiovascular issues

@cebruthius

3 жыл бұрын

@@shuikai272 Yep, had them all. I'm treating my UARS with Dreamstation DSX900 ASV.

@baswold7979

3 жыл бұрын

@@cebruthius Awesome, is it helping?

@cebruthius

3 жыл бұрын

@@baswold7979 It is fully effective.

UARS eventually leads to OSA .