Best way to diagnose IBM is from a muscle biopsy. Bloodwork and an MRI can also support the initial diagnosis. Unfortunately, I have it. (Canadian)

In 2021, I was diagnosed having Parkinson, I have PTSD, Hypertension, had a stroke, and this past March 3rd, my Neurologist said I have ALS. Vietnam veteran, 78 yrs. old. Nice gifts from AO.

Diagnosed with IBM in November 2017 with a muscle biopsy. Basic training at Fort Ord, then to Fort Ord. Six months active duty, then 5 1/2 years national guard with summer duty at Fort Lewis and Yakima Firing Center.

My husband died of IBM. It was slowly coming on, for several years we did not know what it was. Weakness, gave up golf due to weak hand muscles. Progressed in 2017 to leg weakness, went from walking independently to needing walker, then scooter, then pretty much immobile. Next, the arms, then it attacked his diaphragm and he could not breathe. Others with IBM lose ability to swallow and live with a feeding tube. My husband would have refused that if it had come to that. He died in 2019, just as he was going to need nursing home care. He had been a medical evacuation helicopter pilot in VietNam so some thought it could be Agent Orange related, but other doctors thought it was related to many years of taking statins for high cholesterol. It is just a horrible disease and not much is known about it.

@susanjacquier5358

Ай бұрын

I'm so sorry for your loss. 😢

My name is Leslie and I was diagnosed by a neurologist with ibm through a muscle biopsy,7yrs ago.but symptoms started 20 yrs ago in my early 50s.

My father had IBM and he was in the Marines. He ALWAYS thought there was a correlation but could never prove it. Unfortunately he passed away two years ago.

I was just diagnosed with IBM through genetic blood test by a Neuro Specialist. I was never in the military. I am 53 and symptoms started after my husband died in 2018 but really were noticeable after a car accident in 2021. I already have breathing issues from a partially paralyzed diaphragm from being overweight for years. Although during my husbands bvFTD I lost a lot of my weight from caring for him. I am having balance and walking problems now and am reluctant to start using my rollator walker. I live in central Indiana and would like to find a support group here that can help me through some things and with questions about the disease.

I have been diagnosed with IBM and have never been in service

Veteran 76-83 Army aviation, toxic exposure and have 3:17 IBM

I will definitely keep this in mind, because I never was diagnosed with ALS, but that was some thing they were looking at some years back with me. Thank God that wasn’t the case but I do experience some of these symptoms, weaknesses, and that sort of thing, but it could also be a audio immune disease thyroid, or just other conditions hopefully that’s not my case but I will pay attention. Thanks for the video. Very interesting.

@curtbennett8402

Жыл бұрын

My are where 19 inch now 12 inch.

@curtbennett8402

Жыл бұрын

Arms where 19 inch

My husband has this. Filed a claim and was denied

My husband has IBM, he was diagnosed 5 years ago, the doctor believes he has had this for maybe as long 10 years.

I have all the Symptoms listed from the VA web site.

WAS AWARDED DISABILITY 10% HYPERTENSION. NOW Have diabetes, and Stage 3, Critical Kidney Disease can I file all on one claim form. Is the hypertension my nexus? 😊

i have been diagnosed with IBM but i have never been the service

I’d like to know about Stiff Persons