I have marfans and all I hear is mostly depressing stuff how you can have heart issues how life can become difficult and how many things you have to avoid as precautions.. But when he said life is getting better every day it really rose my hopes

This video is a suprisingly resourceful video for researching on Marfan Syndrome for school

Thank you for covering and having a benefit for this serious disorder that very few people are aware of. ✌️❤️🔮

My cousin died early due to heart problems caused by Marfan. I saw a geneticist & I am somewhat “on the spectrum” of it. I have knee dislocations & had retinal detachment, tons of arthritis (an assortment). The fun part is that every day is different lol

Our son passed away from this illness disorder 🙏🏼

I have, long arms, long legs, bad eyesight, flat feet, sunken chest, crowded mouth, bad stamina.... it's safe to say I have it 😭

I have Marfan. Was ‘clinically’ diagnosed 2004 and now Genetically. There’s a general looks as is described by the video, but this condition is tricky, because it varies in so many ways, some aren’t, tall or have long fingers. Some don’t have a heart condition either, as it’s said, about 10% don’t have heart problems. In such cases, most can’t be diagnosed clinically only genetically. I fall in the tall typical looks, but I have relatives who have Marfan as well and are not. They say, though having at least one of the major Marfan problems and some of the minor problems, it’s easier to diagnose clinically. I have family members who have no major or minor problems, so to speak. Yet her children have Marfan and knowing it doesn’t skip generations, we know that she has it, even without obvious signs. Meaning, it can’t skip from grandmother to granddaughter. The mother has to have. But you can have this condition, mild moderate to severe. I fall the moderate but severe overall skeletal problems Pain is our daily problem. Very common among us.

You are welcome 🎉❤

I just have long arms and large hands. It could be a syndrome or just genetics. I can't really tell. No heart issues and no signs of slenderness. It it part of the family doctors job to monitor these things in one's yearly health checkups?

Just found out I got it

How to get a diagnosis

All models

Me same problem 😢

Iam 5ft9 but my arm span middle finger to middle finger also with chest is 6ft3

I have this and I'm a little nervous rn

No-one with Marfan Syndrome should get married, it is a death sentence.