We also informally weighed all handheld shower heads (i.e. in our hands at the store) before purchasing, and we got the lightest-weight one we could. We were told, "It's not a matter of IF a caregiver will drop the showerhead on your pALS, but WHEN." Yikes.

Thank you so much for your input. The outside wall positioning of the toilet is absolutely correct. Even in rehab facilities & nursing homes this advise is important. I home cared for my late husband over 6 years. The last 3.5 he was a double amputee, at that time bed baths were our ONLY option. PLEASE people listen to her suggestions they will make all the difference in the world. GOD BLESS!

@irenedavo3768

Жыл бұрын

Sending hug !

@ct_cartoonist53

4 ай бұрын

6:14 6:14

Thank you so much for this build. My wife and I have been looking for a design for our son who was diagnosed with Duchenne Muscular Dystrophy. This build would work perfectly. I hope your husband is staying strong, it's not fair. 🙏

The mirror is something I've not seen & is a good point. Putting long lights either side would be helpful, too. Def want WC on exterior wall if possible, or as you said head-on, so much easier. For Wheel Chair users a 5' turning circle in your rooms is desirable & helps with planning & placement of furniture & fixtures. I've heard using colour to demark areas or zones can be helpful and smaller floor tiles with all that grout provide good anti-slip surface. Incorporating niches in the shower area at various reach-heights will also be very helpful. There are excellent ranges of attractive grab rails now available to match your plumbing (or not) which can do double duty as towel rails. They even make grab rails disguised as loo-roll dispensers in USA, not sure you can find them elsewhere. Kohler, I think, even make a sit-in bath (rather than step into) with a pull-up side for those able to sit and manoeuvre, which I'd never seen before! Single lever faucets make life much easier, you don't want knobs for anything, I think! Lighting is also very important & now, ('22) there are so many affordable lighting solutions to make the bathroom a bright & welcoming space. Underfloor heating could be very helpful - worth discussing with your HVAC/plumber/electrician, along with excellent ventilation & extraction. Thanks for this brave video - do hope Life is treating you both kindly...

Thank you for all the great tips. One thing to also consider, put an outer behind the toilet for a bidet seat.

Thank you for such a thorough explanation, its very helpful. Your forthrightness and bravery are inspirational!

@brucencalifornia

5 жыл бұрын

Great information, Lots to consider. Thanks for posting this, I am my wife's caregiver while I'm able to.

Install a heat lamp in the bathroom to warm it up.

The tiles in your bathroom are gorgeous. Great idea for the shower drain

Thank you! We are in the beginning stages of bathroom remodel for my husband who also has ALS. This is the most helpful video yet!

Many great tips, thanks so much for sharing.

Well done, Kristin!!!

Thank you. Very helpful!

Good tips, thanks for the video! 🙂

WOW This was a Great Video!!! So Sad Your Husband is not 100^ but THRILLED You Two got Your Dream Home. I agree about the Toilet Placement on the Exterior Wall. I use that wall for Everything I can. Thank You again for All the Excellent, Detailed Content. You KNOW Your Stuff-:) Warmly, Lay Chaplain Kelly Chase

Thank you!"Awesome information!

Thank you for sharing. I am in the process on redoing a bathroom for my mom. The space is small so we trying to make it easy for her to get in and out.

You mentioned an elongated toilet bowl versus a round one. My wife has MS and the elongated toilet bowl makes it more difficult for her to lower and raise her pants whereas with a round bowl she has more room between the front of the bowl and the back of her legs.

Fantastic

This may very well be a moot point...but a sink with a drain on the side (and pipes on the side) will allow for easier access under the sink as well as easier to turn water on and off.

..I have the same hover lift.

Nice video.

Which way is the shower floor sloped? Looks like you have two drains in there.

@ALS411

3 жыл бұрын

The floor is sloped toward the back drain. The front trench drain catches excess water that flows back toward the room, serving the same purpose as a lip on the front edge a shower.

Hello

My daughter has Friedrich’s ataxia. She is slowly transitioning to a wheelchair now. That’s why I’m here. We need to adjust for the next years ahead.