Just lost my grandmother to it. My mom has it. I'm 22 years old, and 95 days clean from heroin, I don't know if I have it, but I know I must stay clean to care for my mom. Please keep my family in your prayers

@andrewli2656

Жыл бұрын

A little late, but congratulations on your sobriety!

@elena.t3251

Жыл бұрын

Dear Emma, The family from my mother have this. This is not fair, but this world is not fair. I pray for you and your family ✝️✝️ From Europe

@furbabiesarefamilytoo

Жыл бұрын

Praying for you and your family

@mattavellino3147

Жыл бұрын

Just lost my gram to it too. My father was just diagnosed at 50. I lost my brother to heroin. I still struggle with my addiction as well. Emma i dont know you but i feel like i had to reach out. Our stories are too similar. Oh and im 24 btw.

@E4MB1011

Жыл бұрын

Prayers and god bless you. I dealt with addiction for 10 years and have been sober for almost 4 years. God bless you and your family and keep doing what ya gotta do to be strong and the best person you can be ❤️🙏🏼

I’ve take care of several people with this disease. I’ve always wondered why people with Huntington's disease decide to have children when this is hereditary. To each it’s own but I wldnt wish this on my worst enemy.

@BRACEY12345

3 ай бұрын

A lot of people didn't know about the genetics of it until recently.Also, lots of people only show symptoms once their children have already grown up and had their kids. Also, you can do tests on the placenta to see if its passed on 50% chance with choice to abort at week 11-12 or do IVF to not pass it on.

my nieces had Huntingtons and they gave them something to stop the movement. I am so grateful this Christmas I didn't get it. Best gift ever.Many in my family died from it. My prayers go out to those who are suffering from this disease. We all need to work to find a cure.

@marinarigattisantiago9851

2 жыл бұрын

Me too I'm Scared to be tested because I feel like it will make it certain instead of unknown

She is so beautiful. So very sorry she has to deal with this.

Thank God for these care givers.

HD has taken so many lives in my family. Thank God for places like this that offer some measure of peace. I pray for the day we can stop this beast.

Having kids while knowing they might have HD is the most fucked up and selfish thing to do

@andrewhughes2753

Жыл бұрын

So what does somebody do? Not have children? Or abort a perfectly healthy baby? I’m curious as to what that tiny little brain of yours thinks.

@MyCold1

7 ай бұрын

True...a family freind has it so never had children on purpose

What a lovely mom; 😞

Why would someone who carries this condition have kids with a 50% chance of them inheriting it?

@terisammon5180

5 жыл бұрын

They can because they want to. Nobody can determine the value or outcome of anyone's life. Can you?

@watchensee

5 жыл бұрын

Some people don't know they have Huntington's Disease until after they've had children, and the disease starts to show. :(

@dodgebullet7423

3 жыл бұрын

We didn’t know, her dad started symptoms late

@MollyKaren

3 жыл бұрын

I know this was 2 years ago but there are actually many reasons! HD sometimes doesn't start presenting until people are in their 30s, and if they don't know that one of their parents had HD (they may have died when they were young, or left the family due to the emotional effects), they may have children without realising that they could pass it on. Often the first symptoms are emotional - anger and irritability - so there are cases where a couple has a child, then they end up separating due to this, with the partner who does not have HD never finding out that their child may have it.

@lindamitchell-fox1926

2 жыл бұрын

@@terisammon5180 I can…and Huntingtons disease should absolutely not be passed on if you know it runs in your family and you won’t get tested or you’ve tested positive. The disease can be eliminated in one generation…just one generation. It’s so horrible to watch someone with HD from beginning to end. There are ways now to have children that are HD free even if you tested positive and there are even funds set up to assist with the expense of it.

I'm a caregiver I lost my client of four years to this disease yesterday. My heavy heart led me here😞Bless all of you that are or have dealt with this❤️‍🩹😞🙏🏾

Please God heal these people for Your purpose... Amen

@MyCold1

7 ай бұрын

News flash...asking a pretend god will not cure 1 person suffering from this

@coraldell3091

2 ай бұрын

​@@MyCold1 Thankyou so much for your brilliant comment. ❤❤❤

HD is basically Gruesome Death with an installment plan. Audience wishes doomed and grievously afflicted folks all the best. Cheers!

@coraldell3091

2 ай бұрын

Lecton , you don't understand unfortunately, yes cheers every and each day , 🤔

Christians please forget about the stigma ascoiated with canniboids which really will slow down the progression of this diseaes and that goes for Alzheimers.

My birth mom was suspected of having it so I got tested. I do not have it and if I wanted which I don't I can give birth to an unaffected child.

Maybe allocate more 🤷‍♀️ if youre the only one who specializes then maybe only do that so these people have a place!

Paying plenty of taxes without any return from the government. Government should be sued

how bad will be the affect on a patient with 42 repeats ?

@talldaddy7890

2 жыл бұрын

usually if someone has over 40 repeats, they will have the disease but the symptoms won't be so outlandish

I don't have a cure, but I may have something that improves the symptoms overtime, I only wish I had one patient and one doctor willing to work on this with me. If I can't test it on a patient I'll never know

@MyCold1

7 ай бұрын

Utter rubbish

@coraldell3091

2 ай бұрын

What is that.. ?

I'm my wife's advocate she has huntentons chorea, where can I find medicine and advice in Spokane WA??

@farrellgerard9776

7 жыл бұрын

Discovеr A Simple Holistic Systeeeem For Curing Candida аand Yеаst Infеctions Onссcе And Fоr All using 100% Guаrantееd AАAAll-Naааatural Method.Click Here -->twitter.com/692e39fffe2a3db05/status/784262969735516160 Тrеating Huntingtonâ s Disеase Раtients

@lanastar264

Жыл бұрын

University of Washington medical center

هل تم الحصول على العلاج

cedar Brookfield facility

God bless you

❤❤❤❤❤

She's beautiful.

@phillipdennis8911

4 жыл бұрын

Nina Matt yeah as seem alike she touching my heart as love one as kinda of very special. I believe god knows of those are griefs plus suffering to living with those whose has many kinds of diseases. He will healing them in someday.

This is such an awful diseases

Why in God's name would you have children if it's a 50/50 chance

@apriljones1013

6 ай бұрын

I think sometimes people don’t always know they have it until they’ve already had kids.

@coraldell3091

2 ай бұрын

If you do want to have kids, who are you to judge. FFS. 😊 What others do , choses to do ?

@teehee4096

2 ай бұрын

Choose to give their child a crippling genetic illness...​@@coraldell3091

@teehee4096

2 ай бұрын

​@@apriljones1013Yes, that's the only valid/blameless reason I can think of.

All thanks to dr Stanley who cured me from my Huntington’s disease I am forever grateful

@debbie2382

Жыл бұрын

It's fatal... read the information that's provided...

@elena.t3251

Жыл бұрын

Gunter Liam Which Doctor, and where??? Tell us, please.

@junbh2

10 ай бұрын

No they didn't. And it's a horrible thing to try to scam frightened people.

@caniseeyourinsides

9 ай бұрын

There's no cure... stop spreading false hope. That's heartless!

@andrewforrester8386

9 ай бұрын

It's genetic in my mom's side of the family. My mom died or a brain hemorrhage before she could be tested. I'm due a HD test. To clarify there is no cure for huntington's disease or anyway to slow/stop it getting worse. I do hope they find more effective treatments in the future. Won't be in my lifetime but I hope they find a way.