I really admire your tenacity to find answers, good doctors and advocating for yourself. To make that kind of journey even when you're in as much discomfort as you are. I have such respect and admiration for you, you wonderful woman, and just know that you are such a source of inspiration and strength to me when I find myself struggling on my own chronic illness journey. Thanks to your can do-spirit I found the courage to keep looking for answers with my anaphylaxis when no one was willing to help me. I went back to a clinic where I’d had a horrible experience with one allergist previously but this time I saw another one and she was amazing and is now handling my case. The whole night before the visit I was plying your vlogs for moral support. What I’m trying to say with that, slightly long winded comment, is that you give so much to me, and scores of others I’m sure, so don't feel stressed about the info update. It’ll happen when it happens. ☺️ Just take your time, relax (as much as your body'll allow) and heal😘. We'll still be here 😊💗👋🏻🤗 Lots of love to you, Judd and Harlow from overseas 🤗🇸🇪🇸🇪🇸🇪🇸🇪

Aww Jaquie take your time and get your rest I really do miss your smile, JUDD IS awesome

I appreciate that you want to keep us up-to-date, but do always let your health come first. If you can't, then you can't. Don't demand the impossible of yourselves.

Please rest and recuperate. I'm so HAPPY that you found a knowledgeable doctor. I'm looking forward to your update and hope you feel better soon. Who cares if you went in your pajamas? I work at home and all my clothes double as pajamas. It's fine!!! Love you guys! (And Harlow).

I'm so happy you updated us. I have been worried about you. I pray you feel better very soon.

Hey Jaquie! My brother and I got this new board game called Disney Villainous, and it's really fun. I don't know if you've heard of it or played it, but you play as a Disney Villain and you have to complete your mission first. I think you would really enjoy it, seeing as you love Disney so much. Hope you feel better soon!

The distant we will travel for a great doctor is well worth it. After 5 years in a new state, we I finally found a GP for my daughter that has experience with chronic illness and she cares. So glad you found this doctor and was able to push through to see him. Have a quiet and restful weekend. P.S. my daughter is awaiting her smart drive wheelchair. She is finally excited about getting out of the house.

Glad your appointment went well. Hope you feel better very soon! ❤

Exciting and encouraging news, Jaquie!!! Take as much time as you need to rest and conquer this flare! ❤️🤗🙏🏻🙏🏻

Blessed girl!!! Take the time you need to get past this. We are here and we want you feeling better!!!

Glad ya'll made it home safe. Get better soon Jaquie!

Feel better and good luck with treatment!

Hi Jacklin! Glad ya'll made it home safe. Take care of yourself and rest. Hope you feel better soon. Prayers for you and your family!🙏🏼🙏🏼

Hope you feel better soon Jacquie we can wait your health is more important love you Jacquie

So sorry you're feeling so bad. But so happy to hear that you found a doctor that is willing to work with you and give you new options. It's so rare to find a doctor like that these days. Take good care and thank you for giving this update that you did.

So sweet of you to think about us, but please get some rest! I really hope you feel better soon :). Thank you as always for sharing your story with us. Sending hugs and love your way!

I'm so sorry Jacqueline that you're down, I hope you find some relief soon! Praying for you!

Thank you for the update. Hope the flair is finished by the time you read this if not sooner.

My prayers are with you guys. I hope you feel better soon. Love you guys

Bless you both, always take care of yourselves first.

Gentle hugs chicky!! Thankyou for updating us so we dont worry xoxo

Hope you feel better soon. Will be praying for you and your health. 💝

Yay! Sounds positive! There's always hope!!!

Glad you made it to the doctor. Rest and give us an update later. Hugs.

I hope this flare gets over soon. It’s wonderful this new doctor has ideas!

I hope you feel better soon. I’m in a flare too and it sucks. I’d love to hear more about your genetics visit when you feel up to it. I also have hEDS, GP, MCAS and POTS and I suspect mito too.

Awww sweetie, i hope you feel some relief soon. Hugs and prayers

hopefully you'll get over the flare soon. Don't worry about updating, that can wait!

sorry you're not feeling good Jaquie! hopefully you will feel better soon!

Sounds like a great start!

Don't worry about updating a video just rest. Keeping you in my prayers as always. Many blessings to you and your families & Harlow 💗

Take it easy and take care of yourself. You can update us when you feel better.

Praying for you Jaquie!

You got this lovely girl!! I really wish there was like a big group chat for chronic pain users .. Fourms online do nothing. If anyone has a group chat, that would be amazing - please let me know! It's frustrating being told "having back issues is for old people. You shouldn't have back pain." Much love

@MountainGirl7771

5 жыл бұрын

Maybe discord could be used for a chat. It would be cool to have.

@nickywallington9166

5 жыл бұрын

Here’s a pretty big chronic pain discord (~500 people) discord.gg/Ak3zsfU

Hugs guys ❤️ thank you Judd for taking care of our girl 🙏🏼 I feel for you both so much. Wish love was a cure 🙁

Good luck! 🍀👍🏻

A connection with a doctor is so important.

My prayers!🙏

Feel better soon!❤❤❤❤❤❤🙏🙏🙏🙏🙏

Sending lots of love

Thanks Jaquie for the update. You would think there would be some sort of medical news letter or special group for new info on treatments for your mito problem. Why would you have to wait to get news of these new treatments? You could have been on these new treatments for awhile now! Hope you get better soon from the continuation of your flare!

I have Ankylosing Spondylitis, and I am also one that suffers from chronic pain; however my asthma and allergies don't allow me to take medicine for the pain. I'm glad that you found a doctor that can help you. I wish I had a one in Miami. :(

Glad your finding solutions 🥰🥰

Sending hugs!

Mayo in Jax is the Best, That’s where I’m getting worked up for liver transplant🙂 Hang in there Rest & Relax. Blessings your way! North Florida 🙏

Feel better!

Feel better soon 💕 Don’t worry upload the videos Please just resting this weekend

I hope you feel better soon.

Feel better and get some rest Jaquie

Yea good doctors rock I'm so happy for you !!

I LOVE your new glasses so much!!!!

Feel Better.

I absolutely love y'all

I go to the Mayo Clinic too. Best place for me so far! They will help you. I see Dr Francis. Maybe we will run into each other there one day! Beat of luck to you.

U neva have to apologise for not being well or not being able to update us immediately... take the time u need n update us wen u can Hunnie.... sending huge gentle hugs n much luv ur way Hunnie xxx

You guys are awesome keep fighting. You are awesome people stay strong. Hope to meet you guys when we come the end of May. My wife has a chronic illness she has Wegners.

I hope you feel better and I love your pajamas ! Where did you buy them ? Have a great weekend TO You and Jud

Rest up!

aw, Jaquie, please rest! Feel better soon. Jode +4🐕

Get well

Wow, I've never been first to comment. Exciting news about a possible treatment, so rest up and get better.

You concentrate on getting through your flare. We can wait xxxxxxxxx

Judd’s such a good guy

Hope your doing better now!

I hope you are better!! I do have a question ~ with EDS do most people get dx when they are young & same question about all the other illnesses that can acompany the EDS??

Its far from easy when your body kicks the hell out of you. Lovely Harlow is so in tune

I hope everything will be okay.

Gastroparesis is is kicking my butt for over 2 weeks now. Can't eat any solid food.

Where do you get your mask at?

I hope you feel all better really soon Jaquie, here is a link to a video you may enjoy watching during your recovery or when you plan your next Disney world adventure! It’s a video about all sorts of cool secrets in animal kingdom (particularly somehelpful stuff that you may benefit from e.g. There’s a restaurant mentioned that is really quiet and not busy near Pandora that I think you would really enjoy and find useful when you need a time out). I must admit it is a long video so oh don’t have to watch all of it as it says at the beginning and end of the video this link to their website where you can get the list of all the secrets for free in PDF form Here is the link I hope you like it😊👍🏻 kzread.info/dash/bejne/aYKEs5KHn7qrn5s.html

Hey jaquie

pls dont worry about us your health is more important

❤️❤️❤️🙏🏻🙏🏻🙏🏻

I am trying to get diagnosed with pots. I live in Nevada & these doctors are horrible. They wouldn't give me a tilt table test cuz I'm in a wheelchair. I have every single symptom of pots. It's a shame because I wish I could get treatment for it.

💕

I'm so very Sorry

Judd is cute too! You have 2 cuties, lucky girl.❤️

No views but 6 likes KZread go to bed your drunk