This Is Lupus

Lupus affects millions.
Individuals whose lives have been greatly affected by lupus describe the suffering caused by disease and offer ways that you can help find a cure.

With nearly 300 chapters, branches and support groups in 32 states, the Lupus Foundation of America (LFA) is the nation's leading non-profit voluntary health organization dedicated to finding the causes and cure for lupus. Our mission is to improve the diagnosis and treatment of lupus, support individuals and families affected by the disease, increase awareness of lupus among health professionals and the public, and find the causes and cure. Research, education, and patient services are at the heart of LFA's programs.

Пікірлер: 129

  • @LisaVanAllenPhD
    @LisaVanAllenPhD15 жыл бұрын

    Stress and fear are the greatest enemy of this disease. Lupus is unpredictable and can be debilitating -- but most of us do not die. We learn to live with it. We find hope and ways to cope. For me, a deep faith in God and prayer have kept me going. Good information, healthy choices and a positive mental attitude help me actually live day to day.

  • @ronssexybikerbae
    @ronssexybikerbae13 жыл бұрын

    I'm 25 years old and i just found out i have Lupus I'm scared I never been so scared in my whole life

  • @lupiebutterfly4464
    @lupiebutterfly44647 жыл бұрын

    I have been diagnosed with Lupus and Fibromyalgia. I have had so many sleepless nights afraid that I may not be awake the next morning. Lupus have stolen a lot from my life. It has impacted my career, my social life, my mental state. I wish we can find a cure in my lifetime. I dream of being normal again

  • @infiniterra
    @infiniterra10 жыл бұрын

    Lupus can be as bad as cancer. Some cancers can be cured or eliminated. Some lupus sufferers have a painful life without cure. Every case is different.

  • @luisnitro91
    @luisnitro9114 жыл бұрын

    I just found out that my wife have lupus, my God I'm all here by my self thinking of this and geting all the info I can gather together with tears on my eyes. Sorry I just had to take this out of my chest a bit please someone help I just found out today.

  • @teresa-hy9um
    @teresa-hy9um9 жыл бұрын

    My lupus, I had this illness since I was 22 now I'm 52 I have marked on my face my hair is thin and bald spots all over, I'm on disability and I work part time I have no children and I'm alone .I'm scared now that I'm older my husband died my mom is gone I'm alone

  • @Noosa1978
    @Noosa197816 жыл бұрын

    My cousin has had lupus since she was 23. She is a single mom with 3 girls. Her husband died last year. She is not afraid of dying because she is extreamly religious. We are christians. However she does not want to die till her daughters are old enough to care for themselves. Most of our family is in Egypt and she does not trust her american in-laws because they are too liberal. I hope for a cure someday.

  • @violet2048
    @violet204816 жыл бұрын

    Hi! I'm 60, female and was diagnosed in 1991 after nearly 2 years of unusual symptoms. Finally got so sick I was in bed for about 5 months, I got a second opinion and told the doctor my hunch about lupus, because my cousin also has it. My kidneys were bad,epstein bar was off the chart, my joints were extremely painful, my skin was involved, and the fatigue was and still is a problem. I've been in remission now 3 years but have to stay out of the sun and take the plaquenil. I feel lucky today

  • @sraphael
    @sraphael13 жыл бұрын

    I recently met a young woman with lupus... I didn't quite understand what it was or how it affects people but after watching this, I have so much more respect for how positive and joyful she is. Her kidneys are in a lot of trouble but she remains so optimistic. The lucky who aren't affected by major illnesses could learn so much from people like this. I'm truly considering if I'd be the right tissue and blood match for my friend so she could have one of my kidneys. God bless everyone here xx

  • @jennys77
    @jennys7715 жыл бұрын

    Hi: Great video I was diagnose with Lupus at the age of 13 in 1990. I received kimo because my kidneys were damage but in 1992 everything was fine and since then I've been in remition and have two beautiful kids. Is not easy having Lupus.

  • @loveemogirl4u
    @loveemogirl4u13 жыл бұрын

    GOD PROMISED TO HEAL ME i was diagnosed with lupus IV nephritis @ the beautiful age of 21, it was very aggressive. god blessed me with a wonderful supportive parents, family, friends,group of doctors and sent a great man into my life. god sent through this man that i was going to be okay to, to not be scared and that he (god)was with me. under went kemo theropy and 1year before treatment was over i was healed like he promised stop treatment and now pregnant with my frist child. god is true

  • @glozell1
    @glozell116 жыл бұрын

    This was a great video on Lupus... will you please take the time to see Lisa's Lupus story... It's Lisa Life Love and Lupus on You Tube... Thanks so much for sharing the word about Lupus... Thanks GloZell

  • @BowlingFreak218
    @BowlingFreak21816 жыл бұрын

    Best thing I can say is eat healthy. Make sure you get all your vitamins, minerals and Anti-oxidants. Stay away from fast food. Fruits ,vegetables should be part of your daily diet. If you're tired relax. Take a nap. Remove stress from your life.

  • @LisaVanAllenPhD
    @LisaVanAllenPhD15 жыл бұрын

    Childbirth is often a trigger for a lupus flare. It is not the cause, but exacerbates the disease that might have been lying dormant. There has been quite a bit on research on this.

  • @taylorcam321
    @taylorcam32113 жыл бұрын

    im 14 and a twin and me and my sister were diagnosed with lupus she at age 11 me at age 12 i lost all the hair on the top of my head and lost a rapid amount of weight i had 2 be homeschooled in the 6th grade and my sisters kidneys failed had 2 be in the hopistal 4 weeks got out had a seizure went back 2 the hospital 4 much longer and now has dialysis every mon tues thurs and sat had to be homeschooled as well but now were both in school and hangin in there with love and support from family, GOD

  • @emeous
    @emeous14 жыл бұрын

    I got diagnosed with lupus when I was 4 years old. I just turned 21 yesterday. It's been a part of my life as long as I can remember, so it's kind of a natural part of life or me. But sometimes I get so scared that I won't be able to live the life I want. And it's so hard to explain to friends, however close they are, how it feels to be a 20-yr old with the body of an 85-yr old...

  • @PandaValentine
    @PandaValentine13 жыл бұрын

    I had a friend who's mom had lupus. When I heard about it I had no idea what it was. I ended up looking up 1000 faces and saw it explained everything I've been going through. I may be obsessed with finding the diagnosis to my problem, but I think I'm just too afraid of finding the diagnosis on this. Hopefully SCIENCE comes through and finds a cure.

  • @CrackerBarrelXheese
    @CrackerBarrelXheese12 жыл бұрын

    My mother has Lupus, but she has a very unique form.. Its been in remission since they found it, just before I was born... =/

  • @theleepchatchannel
    @theleepchatchannel15 жыл бұрын

    I'm so happy to hear you're in remission and were able to have children. I was diagnosed in 2003...

  • @LupusOrg
    @LupusOrg16 жыл бұрын

    These autoantibodies cause inflammation, pain and damage in various parts of the body. Lupus is a disease of flares (the symptoms worsen and you feel ill) and remissions (the symptoms improve and you feel better). Lupus can range from mild to life-threatening and should always be treated by a doctor. With good medical care, most people with lupus can lead a full life.