The worst thing about ME/CFS
The hallmark symptom of ME/CFS is exertion intolerance. No matter how much you want to do normal activities most people take for granted, exertion can make you far more ill - for days, weeks, months, or longer.
Someday, hopefully soon, we’ll be able to explain the exact abnormalities in energy production that are afflicting people with #MECFS, and many people with #LongCOVID, so that they might be reversed.
Until then, we could all use a reminder to stop, rest, and pace. It’s especially hard when there are so many things in this life we’d all like to go and do.
Music composed by Andrew Vickers
Пікірлер: 14
What a terrific visual illustration of this concept! I really felt that little yellow ball trying so hard to make it up that hill after overexertion. Well done!!
This is a beautiful and perfectly accurate representation of what it feels like to progress in this illness. Every loss of energy is dramatic and significant and utterly terrifying because you have no idea if this will be the time that drops you into the abyss. Thank you for representing us all. ❤️❤️. I cried to see this feeling visualized.
@lucreziavilante5993
Жыл бұрын
😢 so true
@ThePublicHealthHeaux
Ай бұрын
This!!!! You never know if a given crash is temporary … or not…
I'm beating up my 5+ years of CFS with my accupressure mats practice. I started over 3 years ago when I became mostly bedridden, 8-12+ hours a day laying on them, desperate to escape this hell. I'm in an interesting stage now. People deserve real medical treatment for this horrific illness!
formidable ! Merci !
This is so good!
Super !
So what is the solution????
@merelyexisting9587
7 ай бұрын
The solution will include 1. Biomarkers that can be used for developing diagnostics and distinguishing different disease subsets. 2. Effective treatments (new & repurposed) that influence specific biomarkers. 3. Unifying hypotheses that tie together the biomarkers and explain the pathophysiology which might lead to a more fitting name for the condition and allow it to graduate from "mysterious syndrome" to well-characterized disease. 4. Set-aside funding $ to support biomedical research to bring about all the above.
@Irpsnerple
7 ай бұрын
@@merelyexisting9587 Sounds interesting but Good luck. I know people suffering terribly with Morgellons and most doctors still believe it is a delusional disorder. I hope you can find the right solution or will there be perhaps a different approach for each individual case?