It's a blessing they have one another. There's people who suffer alone because no one understands or relates to the everyday life with this illness.

@LUCYFRETWELL

2 жыл бұрын

We are so blessed to have each other!! 🥰

@kentuckynanasaves1903

2 жыл бұрын

👏💜👏 Yess, 🚫 only this but so many other 😭 too ❣️... I am in process of a Diagnosis, my legs n back wont totally straighten, my bones are becoming soft n have hairline fractures jus from stepping down step wrong, n my muscles spas up after jus cookin small meal for 2 n can barely make it carrying my plate to table, by then pain is so bad I don't eat right away cause all i can do is deal with unbearable pain . Im hoping to get proper diagnosis 🔜😭❣️, ... As much as it's scary, I need to know so i can prevent further deteriorating, or next steps 💭❣️... I am so happy they have each other cause its very depressing as a ♀️ woman to deal with things that affect your body n appearance Alone without mental health deteriorating also 😭❣️... I jus spoke with my counselor bout it yesterday, n having 🆕 grandbabies, its hard , let alone explain to the 4-5 year olds as to why i can't do this or that that i was doing this time last year, n alot more than now in spring Sadly ❣️.. Its really got to be good to have someone to relate to, let alone a sister, 😇❣️... i just pray I don't have something I pass to my daughter, gut says big possibility as to orher things that I have are or can be genetic so far 😭❣️... are you diagnosed?..

@kentuckynanasaves1903

2 жыл бұрын

@@LUCYFRETWELL 😇, yes .. 👏💜👏 so happy you have so much support for 🚫 only physical, but the mental aspect of physical is as debilitating without support 😭 for myself, having no1 to relate to n with pandemic there's no support groups for newly diagnosed , of anything, im in process of Diagnosis, but I see alot of characteristics of self in her, I commented about above, n its alot, n going fast, now having some health issues, n im low 🗝️ curious if hardening is related to heart n kidney issues until I get into specialist 😭❣️.. Google is good, but often scares you n isn't what you're DR says. 😂😭❣️.. who is rite, 😆 lol.. I cant wait to get proper diagnosis, n try to properly treat so i don't deteriorate as fast as last couple years, or know a long term , n can plan ❣️

@bsociety4647

2 жыл бұрын

I definitely agree

@nadiareynaud7081

2 жыл бұрын

@@LUCYFRETWELL uuuyyuuuuuuuuuuuuyuuuyuyuùuuuuuuuuuuuuuuuuuuuuuùuuùuuuuuuùùuuuùuuùùuuuuuuuuuuuuuuuuuuuuuuuuuùuuuuùùuuuuuùuuuuuuuuuuuuùuuuuuuuuuuuùuuuuuuuuuuuuuuuuuuuuuuuuuuuuuuuuuùuuuuuuuuuuuuuuuuuuuuuuuuujuuuujuuuuuuuuuuuuuuuuuuujuuuuuuuuuuuuuuuuuuuuuuuuuuuuuuuuuuuuuuuuuuuuuuuujuuuuuuujuuuujuuuuuuuuuuuuuuuujjuuuuujuuuuuuuuuuuuuuuuuuuuuuuuuuuuuuuuuuuuuuuuuuuuuujjjjjuuuujuuujjuujjuuuujjuiujuujuuuuuuuuuuuuuuuuuuujuuuujujjuiuuujuuuuuuuuuuujuuujuiuuuuuuujuujjijuiuiuuuuuuiuujujuujuujuujjjjuujjiujujuujuuuuujijuujuiiuuuujjujuujjiujuuuuuijujjjuijjiujujijjiiujjjjiiujujjjuiijuuiiijjijjjjuujijjjuuuuuiujuiiiuuuiuuuuuuuuuuiuuiijjjjjuuuiuuuuuuuuuuuuuuujiuuuiuuuuuuuuuuuuiuuuuuiijiuuuuuuuuuijuiiiuuuuuiuiiiijiiuuiujiuiuujjjjjjjjjjjjjjiuujjjujyjjjjjjjjjjjjjjujjjjjijiuujjiiijujjjujjjjjujjjjjjjjujjjjijjjjjjujujujujjjjjjjujijjjmju6jjjjjjjjjuijjjjjjujjjjjjujjjjjjjj6jjjjjjujjjyiuuuuju

At least they have someone so close in their life that understands what they’re going through.

@imanrusmana8114

2 жыл бұрын

You are a beautiful woman with beautiful eyes like an angel. who was given excess intelligence my god said.

@maddieworrall5383

2 жыл бұрын

@@imanrusmana8114 who me?

@OOTP-

2 жыл бұрын

@@imanrusmana8114 . 🤨🤨🤨

@DemonSlayer_0

2 жыл бұрын

You are so positive ❤️

@imanrusmana8114

2 жыл бұрын

@@maddieworrall5383 You are a beautiful woman with beautiful eyes like an angel. who was given excess intelligence my god said.

This condition is horrible & terrifying wish them the best

The other twin clearly has it a lot less at the moment. I am glad that they have eachother. Both of them are glowing despite their situation! 😄😊

@honeybunch5765

2 жыл бұрын

Beautiful ladies.

@catinabox3048

2 жыл бұрын

This condition means that whenever you have an injury, your body responds by repairing the injured area with bone. That one twin says that she's fallen and broken bones before. That's why she's less mobile today. Her sister is more mobile because she didn't get injured as many times or as severely, and so there were fewer triggers for new bone to form.

@deliciaford4343

2 жыл бұрын

@@catinabox3048 Thank you for explaining it in greater detail.

I’ve seen them before on another special. These ladies are too cute and fashionable! I hope they find a cure or at least dramatically slow the progression.

@TheJesusAlejandra

2 жыл бұрын

Medicine has started to advance so much... and there's still a lot left to discover. I'n hopeful there will be something to slow their progression soon.

I have a dry mouth condition which has made all my teeth rot from the gum line and I cry daily at the way I look. This is so inspiring everyone has their own unique complications to overcome in life

@aisharicci6400

2 жыл бұрын

I am so sorry and I pray that God Almighty may make it easier for you.

@aishaazalea937

2 жыл бұрын

Lots of love and prayers to you🧡🦋

@fishingexplorationeastcoas1346

2 жыл бұрын

Thanks for the nice comments they really did make me smile :)

@jesusheals3799

2 жыл бұрын

I know it hurts and I know you probably wish to look different, but it is something that makes you more beautiful. Although it may not look pleasing aesthetically, it is who you are and that makes it all the cooler. I already LOVE your personality. If it starts causing you problems in the future, I hope you can end up having some procedures to prevent you from experiencing pain and stuff. However, it isnt something you have to feel bad about. God bless you. 🤍

@jesusheals3799

2 жыл бұрын

Love your content, by the way!

My coworkers daughter has FOP and she’s such a wonderful, beautiful soul, just like these two lovely ladies. I pray that they are getting closer to a cure to stop the progression or prevent it completely.

I love that they have eachother...they both seem so strong and are thriving ..hope the best for them

@imanrusmana8114

2 жыл бұрын

You are a beautiful woman with beautiful eyes like an angel. who was given excess intelligence my god said.

@Jesussavedme

2 жыл бұрын

@@imanrusmana8114 Why do you keep commenting this on multiple comments?? That's creepy

2 beautiful strong women 🧡 God bless you both

I suffer with a very rare disease also. (LPHS) is applaud you advocating for yourselves and your disease through education. I’m happy to know you have each other

@laurensullivan1522

2 жыл бұрын

I have a blood disorder also. Yours must be very hard to deal with. I hope you don't experience too much pain. I just get clots in my legs and lungs, but it's not all the time. We are on the opposite of the spectrum. Sending well wishes!

I know these people with these conditions don't want others to feel sorry for them, but these stories are still heartbreaking. Because these people are. Beyond beautiful

Your smiles and attitude towards life, through the adversity, I very inspiring. I really hope that you are not in pain. The sisterly love is felt immensely here, for sure!❣ Thank you 😊 💓

So loving the way they help each other, and how overwhelmingly positive they are!

Sending the twins love and light! It's a blessing that they have each other. I'm blessed to have an identical twin as well!

Makes me grateful for the little things!!! I’m happy they have each other!! Prayers for you guys!!🙏🏾

They are such Sweethearts! And I love their style.

I have never heard of FOP. It is so amazing how the two of you compliment each other. I am one of an identical twin. And having a twin sister is just the best thing ever. You are an inspiration to all.

These beautiful women, sisters with a special bond. They share their lives and it’s wonderful to see. All very best

Beautiful young women. I like how they take care of one another. They are very well spoken. I appreciate them sharing their story.

I wish this video was longer. I would like to have learned more. They are so beautiful & positive.

Years ago, while working in a family practice office, I had the priviledge of having a young lady with this.. She and her mom were the sweetest people I knew.. God bless you both!!

As a mother of twins I can only imagine how it must have felt for their parents to learn both of their children had this horrible disease 😢 On the other hand, they are so lucky to have each other. They are never alone with their disease ❤

Keep on fighting, ladies. 👊🏼

These ladies are soo adorable.. And resilient! ❤️ Love their positive attitude towards life. It's also good that they are close.

They're so strong! :)

they have such positive energy and I'm glad they have each other for support.

Every time I see an episode about this condition is so sad. That’s got to be one of the worst diseases

@missdaydreamss

2 жыл бұрын

And Huntington disease. Both are sad to watch

Two beautiful sisters with an amazing outlook on life despite their difficulties. Blessings on your journey ladies.

How wonderful that they have each other, they are so brave. The determination to do as much as they can for themselves and each other is just so lovely to watch and how they both look so good. I wish them both the very best in their future.

The joy of their togetherness is simply amazing 👏

Love love love their outlook on life. Really beautiful!

Their bond is so sweet and I love that they still seem to live life to the fullest! Also can we appreciate how cute all of their outfits are? ❤️

It's so good they have each and they don't have feel like a burden on anyone bc each twin has and knows what's it's like. Bless them.

I'm from Northern Ireland :) Glad these twins are staying strong, no matter what they always keep trying! 😊👍

@tangaz5819

2 жыл бұрын

I thought I recognised the accent to start.

@missy6379

2 жыл бұрын

Me too! County Armagh :)

@imnotpopular5292

2 жыл бұрын

@@missy6379 County Armagh for me as well,

@Runaway26

2 жыл бұрын

Living in the northwest n. Ireland. Glad to see these ladies help each other.

My great aunt Suzy had this, she was one of the first patient X's in the 80's that underwent experimental treatments trying to find a cure for herself and others. It unfortunately did not work but I am proud of her bravery in life and the fight for it. GOD Bless you ladies, much love to Everyone in the N.O.R.D. family 💛🦓🦓🧬

This is just amazing, I loved every word they said

They are so adorable!!! And so lucky to have each other! And their style is so chic!

Wow God bless these 2 beautiful sisters. Glad they have each other for love & support. They are not alone

Even just emotionally, it must help SO much to have a twin with you who is going through the same thing. And that woman's house is lovely!

Both so beautiful inside and out. I’m glad they have each other 💜

@imanrusmana8114

2 жыл бұрын

You are a beautiful woman with beautiful eyes like an angel. who was given excess intelligence my god said.

What a beautiful relationship they seem to have. I'm glad they've got eachother.

Love your outfits and smiles! Thanks for sharing!

What brave and resilient ladies, thank goodness you have each other as support 🙂

Bless, what a positive outlook they have. Thank god they both have each other. Im also a twin, and we both have medical conditions.

This was hard to watch without tearing up. I'm truely saddened by their condition but, atleast they have eachother n nothins better than your own sister!❤❤❤

They have such good sense of humor, I want to be friends with them!

Love life and live life, great message. I am going to write this on my prayer board to remind myself daily to be thankful. God bless these beautiful sisters I’m happy that they have each other. Great energy.

They are both such positive and courageous gals! Amazing 💖 👏

It is so nice how they help one another hope the best for there lives 🙏

Just wanted to send you both lots of love from Las Vegas Nevada😊

What a blessing they have each other..and why da heck are they sooo cute and stylish!?

Awesome video 👌👌👌👌 Thanks for sharing 🙏

This brought a smile to my heart. BORAHAE 💜✌🏼

I am happy they have each other to lean on for support as they know how it affects their lives. I love how you two are so positive.

Such a beautiful souls they are.

Beautiful how they interact with each other.

These ladies are truly amazing and lucky to have each other

Glad they have each other. Would have been even more amazing to see their partners disclose their face. It comes across that they’re embarrassed but happy the sisters have each other regardless.

I’m glad they’re not alone ❤️

They seem like such sweet women.

@ivonnerodriguez3501

2 жыл бұрын

Çin CENOS si hay paraizo

Touching…god bless you guys!

They are so beautiful and have such strength despite their condition.

Bless you both and praying for you as well.

Love how positive and happy they are ❤❤❤❤❤

They are both beautiful with so much life!! They have each other and are sisters.

The girls are amazing. Your upbeat attitude smile and love for life . Thankyou for sharing this ❤ take care and God bless to you both 🙏❤😊💖

I love their positive attitudes towards their disease 🙏🙏💚

I wish you amazing ladies the best! I'm sorry you have to go through something like this!!

Beautiful people. So much to learn from them ❤️

You two are amazing and so blessed to have each other😇😇

I am so moved by these two women they have humor the most wonderful attitude they are just beautiful inside and out. I think they are a gift to all of us

I’m 65 year old retired horse trainer ( woman ~ with many old injuries) and then a preschool teacher for 25 years ( that caught all kinds of viruses from little people) . I’m now facing many health issues. You both have truly inspired me. I live in San Diego and the canyons and beaches ( and bring with my dog Chelsea ~ an eight month old mahogany colored Goldador) are my places to heal. I’ll try and adopt your positive attitude . And maybe you two could do some “ earthing” and the “Emotional Freedom Technique “ . It helps me a bunch.

Oh my goodness I love you guys 💖 you have a great relationship and don't just give up 🙂 may God bless you with many more years together 🤗

Beautiful story what a positive attitudes.

Lovely young ladies. So good they can help each other.

Beautiful ladies. Thank God they have each other.

You both are so beautiful and amazingly stylish. You are an inspiration I wish you both all the health and happiness

“We’re just gonna love life and live life” talk about positivity!!

@taneragreen2782

2 жыл бұрын

Amazing! So glad they have eachother.

Such lovely women. I wish I had a sister with whom I shared such a deep love and devotion. Blessings to these girls.

Beautiful video

Great story

These two are extremely wonderful

Awe this is so sad 😭 hope they get better ❤️‍🩹 praying 🙏🏻

Glad that they have each other

So inspiring

Beautiful ladies with amazing hearts 💕 God Bless you both ❤️

Y'all are amazing.

Bless you both happy you got each other Wishing you all the best in life 💖 💖

Wow bless them both 🙏 lovely ladies 🤗🥰

You're such inspiration. Such beautiful girls. I wish you a good happy Life! ❤️

You two are incredible women xx

Good for them for staying positive and living their best life .

So true ... I like that have courage for what we can't change otherwise we'll go crazy

Certified Gold!!!!!

They are both so beautiful inside and out and so much strength and positive and blessing angels and course encouragement honesty course and wonderful women 💛❤️💖

I will stop complaining about my chronic pain now…. Amazing ladies.

I am glad they have each other ❤️❤️

Love these 2.

They are beautiful and blessed to have each other ❤

I felt this