The Teenager With Vanishing Bones | BORN DIFFERENT

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DUE to an incredibly rare condition, a teenager’s bones are quite literally vanishing. Born with a disease that means her body slowly absorbs the calcium designated for her bones, Natalia Villegas’ bones are slowly disappearing. Natalia, 14, wasn’t diagnosed with Idiopathic Multicentric Osteolysis, or IMO, until she was two-year-old; so little is known about IMO - there are only 100 known cases in the world - that there is currently no cure. Also referred to as the ‘vanishing bone disease’, Natalia admits she is in constant pain but won’t let that stop her from living as full and independent a life as possible.
Video Credits:
Videographer / director: Ben Derico, Ben Holland
Producer: Liam Miller, Ruby Coote
Editor: Sonia Estal
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Пікірлер: 1 400

  • @alyssaguess
    @alyssaguess5 жыл бұрын

    14?!?! I thought she was like 18/19. It’s sad that w/ certain disabilities you have to mature faster, not making you able to do the same things people your age can.

  • @youremybiggestfan

    @youremybiggestfan

    5 жыл бұрын

    I guess sometimes going to hard stuff gives you experience and you grow better to cope with it. She seems to have a great attitude.

  • @SymphonyTaylor

    @SymphonyTaylor

    5 жыл бұрын

    Right 😞

  • @user-em8td1wv6f

    @user-em8td1wv6f

    5 жыл бұрын

    I just wanted to say the same. She looks so mature in a psychological way... Much more than other kids of her age and older.

  • @leomqz3681

    @leomqz3681

    5 жыл бұрын

    twin snakes danielle bregolli is 15

  • @PixelTheExtraTerrestrial

    @PixelTheExtraTerrestrial

    5 жыл бұрын

    Why do u have to be negitive and say it's sad she seams like a talented kid

  • @ssnadera6498
    @ssnadera64985 жыл бұрын

    Thats a new disorder i never heard of, the opposite of the one where everything turns into bone

  • @bellgarling8899

    @bellgarling8899

    5 жыл бұрын

    And there's also one that breaks your bone easily

  • @BrookeKatherine.

    @BrookeKatherine.

    5 жыл бұрын

    Bell Garling that’s what I have. I always think it’s cool when people know of it.

  • @famkedegraaf5135

    @famkedegraaf5135

    5 жыл бұрын

    I feel like there could be an answer for both diseases hidden inside the other one

  • @bellgarling8899

    @bellgarling8899

    5 жыл бұрын

    @@famkedegraaf5135 Well maybe

  • @no-yj2cf

    @no-yj2cf

    5 жыл бұрын

    @@famkedegraaf5135 You might be onto something.

  • @ascent8487
    @ascent84875 жыл бұрын

    She has such a sweet gentle spirit about her.

  • @bellgarling8899

    @bellgarling8899

    5 жыл бұрын

    Yea

  • @alisaforesthillsvictoria1129

    @alisaforesthillsvictoria1129

    5 жыл бұрын

    Yes she does and she and nobody deserves this

  • @bellgarling8899

    @bellgarling8899

    5 жыл бұрын

    @@alisaforesthillsvictoria1129 Yea nobody deserves this

  • @C.X17

    @C.X17

    5 жыл бұрын

    Right?! She's so sweet and adorable I wish her the best

  • @BiRDiEHere

    @BiRDiEHere

    4 жыл бұрын

    She's so beautiful ^_^

  • @bridgetmcgarry7917
    @bridgetmcgarry79175 жыл бұрын

    This girl goes to my school. I've known her brother since I was 5 years old, and I've known her for forever now. She's super sweet and determined

  • @isaiahharris4249

    @isaiahharris4249

    4 жыл бұрын

    Which school?

  • @tillyhossain1049

    @tillyhossain1049

    4 жыл бұрын

    Sure she does

  • @Zoe-ef6ey

    @Zoe-ef6ey

    4 жыл бұрын

    I know I’m late but make sure to tell her that she is amazing!

  • @isaiahharris4249

    @isaiahharris4249

    4 жыл бұрын

    Jungle aka Jungkook I was not stalking. I was simply asking to find out if Bridget McGarry was lying. I’m sorry that me asking a question is considered stalking.

  • @isaiahharris4249

    @isaiahharris4249

    4 жыл бұрын

    yikes What would you suggest then?

  • @nightlydreamer_
    @nightlydreamer_5 жыл бұрын

    She’s so mature!! And she’s only 14

  • @perfectworld9651

    @perfectworld9651

    5 жыл бұрын

    At a few minutes in, I thought wow she's got an old soul, beautiful human!

  • @MOUNIRMOUNIR-pg3ek

    @MOUNIRMOUNIR-pg3ek

    5 жыл бұрын

    Hi

  • @SuperGezmo

    @SuperGezmo

    5 жыл бұрын

    she’s so cute. Her baby face is adorable

  • @kilIstation

    @kilIstation

    5 жыл бұрын

    My friends and I are as mature as this woman, we’re turning 15...

  • @purple00134

    @purple00134

    5 жыл бұрын

    Pain matures a person faster

  • @Glorious_Kim_Jong_Un
    @Glorious_Kim_Jong_Un5 жыл бұрын

    Thousands of strangers are now thinking about you, stay strong!

  • @ilafar_8513

    @ilafar_8513

    5 жыл бұрын

    Queen Elizabeth Not me

  • @Glorious_Kim_Jong_Un

    @Glorious_Kim_Jong_Un

    5 жыл бұрын

    @@ilafar_8513 You're a little bridge troll, nobody cares what you think either way

  • @goallanimego8925

    @goallanimego8925

    5 жыл бұрын

    @@Glorious_Kim_Jong_Un lol

  • @Adventure_fuel

    @Adventure_fuel

    4 жыл бұрын

    Queen Elizabeth II actually he is a fully grown man that will and or is a competitor for the common thought. So if the culture was an expression of his personality. Which is what culture is the expression of the forefathers the mother land and his dna. Had the culture been f his dna and being She had been murdered at the first sign of worthlessness. Your world view is your fathers will and all is abriteay and rights are imginary but still acted upon

  • @starsfalldown1234567

    @starsfalldown1234567

    4 жыл бұрын

    @@ilafar_8513 and I doubt anyone thinks about someone as insignificant as you.

  • @sapphohxrself
    @sapphohxrself5 жыл бұрын

    Gosh, she’s so pretty and it’s bolstered by her wonderful positivity and perseverance. I sincerely hope she lives a beautiful and fulfilling life and that her family enjoy and support her wholeheartedly

  • @alisaforesthillsvictoria1129

    @alisaforesthillsvictoria1129

    5 жыл бұрын

    She's very pretty👌👍💛💙💛🏅💖🏅🏅🏅🏅🏅👍👍👍👍👍👍👍😇

  • @israelperalez2105

    @israelperalez2105

    5 жыл бұрын

    Yes exactly she is a very beautiful young woman. God bless her w a long happy life. Her attitude is very inspiring.

  • @oscarthefunnydoggo9695

    @oscarthefunnydoggo9695

    5 жыл бұрын

    Very well said. I totally agree ❤️

  • @Rose-bq2ns

    @Rose-bq2ns

    3 жыл бұрын

    Omg your sooooo nice 👍❤️🧡💛💚💙💜

  • @minapowerup

    @minapowerup

    3 жыл бұрын

    True

  • @mrluwid172
    @mrluwid1725 жыл бұрын

    I didn't think she was 14, not for a second. I thought she was in her 20s! She's a lot more mature than me 😂

  • @SoMooLand1nine7

    @SoMooLand1nine7

    4 жыл бұрын

    You think that's funny???

  • @alexamullican7479

    @alexamullican7479

    4 жыл бұрын

    ruth_loveSNSD 9IRLS'6ENERAT10N what is your issue? Calm down

  • @millihehe

    @millihehe

    3 жыл бұрын

    @@SoMooLand1nine7 ikr its not funny

  • @mrskaren7063

    @mrskaren7063

    3 жыл бұрын

    @@SoMooLand1nine7 calm down 😒

  • @kallutozoldyck2612

    @kallutozoldyck2612

    3 жыл бұрын

    @@SoMooLand1nine7 what’s wrong? She just said she was mature for her age.

  • @juliamadison7256
    @juliamadison72565 жыл бұрын

    I thought her teacher was her classmate for a sec

  • @DukeCyrus

    @DukeCyrus

    5 жыл бұрын

    Yeah he looks really young

  • @kayleepineda9290

    @kayleepineda9290

    5 жыл бұрын

    Me too

  • @Rae-hs1ix

    @Rae-hs1ix

    5 жыл бұрын

    julia madison me too lol

  • @Crazy_Rich_Asian

    @Crazy_Rich_Asian

    5 жыл бұрын

    Those Asian dudes..)

  • @ebonyyoung710

    @ebonyyoung710

    5 жыл бұрын

    julia madison me to he looks very young

  • @almakehlerbrown3935
    @almakehlerbrown39355 жыл бұрын

    I'm ashamed for the complaining I do about a lot lesser aches than what this beautiful young lady has to live with on a daily basis. ❤

  • @jjxrden

    @jjxrden

    5 жыл бұрын

    You shouldn’t be. It’s normal to complain. Your life isn’t less important than hers.

  • @boopsnop6132

    @boopsnop6132

    5 жыл бұрын

    @@jjxrden your so kind

  • @aliyahmiller1085

    @aliyahmiller1085

    5 жыл бұрын

    @@jjxrden you're so nice. Needed to hear that

  • @angeloflight2210

    @angeloflight2210

    5 жыл бұрын

    All life have worth and value, we’re created in the image of God with a purpose. It’s normal to complain. It doesn’t matter, what color we are, short, tall, disability.. ect. We are all human beings. Be grateful for things you have in life and have humility. Mathew 25 “Therefore I tell you, do not worry about your life, what you will eat or drink; or about your body, what you will wear. Is not life more than food, and the body more than clothes? 26 Look at the birds of the air; they do not sow or reap or store away in barns, and yet your heavenly Father feeds them. Are you not much more valuable than they? 27 Can any one of you by worrying add a single hour to your life? 28 “And why do you worry about clothes? See how the flowers of the field grow. They do not labor or spin. 29 Yet I tell you that not even Solomon in all his splendor was dressed like one of these. 30 If that is how God clothes the grass of the field, which is here today and tomorrow is thrown into the fire, will he not much more clothe you-you of little faith? 31 So do not worry, saying, ‘What shall we eat?’ or ‘What shall we drink?’ or ‘What shall we wear?’ 32 For the pagans run after all these things, and your heavenly Father knows that you need them. 33 But seek first his kingdom and his righteousness, and all these things will be given to you as well. 34 Therefore do not worry about tomorrow, for tomorrow will worry about itself. Each day has enough trouble of its own. God bless all you! 🕊

  • @almakehlerbrown3935

    @almakehlerbrown3935

    5 жыл бұрын

    @@angeloflight2210 Amen! I needed this today, ty💛

  • @lemonflute100
    @lemonflute1004 жыл бұрын

    "I'm in pain every minute of every day." Poor baby.

  • @lanit.1460
    @lanit.14605 жыл бұрын

    Her voice kinda sounds like sounds like Mabel form Gravity Falls. Cute!

  • @makeupbyxaykin94

    @makeupbyxaykin94

    4 жыл бұрын

    Yess 😍

  • @Nicmares404

    @Nicmares404

    4 жыл бұрын

    Lani T. That’s exactly what I was thinking lol 😂

  • @moonlitmoss_

    @moonlitmoss_

    4 жыл бұрын

    Yes 😭🥰

  • @nyahlovell2356

    @nyahlovell2356

    3 жыл бұрын

    Omgggg now I can't unhear it

  • @kolpkii

    @kolpkii

    3 жыл бұрын

    yooo i cant unhear it now

  • @fayjohnson9891
    @fayjohnson98913 жыл бұрын

    Natalia is like the kind of girl you'd invite everywhere to have fun with, like she brings things alive with her personality

  • @dadofducks
    @dadofducks2 жыл бұрын

    If you close your eyes, you would swear this girl is 24 years old with how smart and articulate she speaks and acts. When you open your eyes, she is so cute and adorable and strong spirited. What a wonderful person and I hope she does well for the rest of your life. Thanks for sharing your story.

  • @madelinewhite1749
    @madelinewhite17495 жыл бұрын

    She reminds me of Violet from the Incredibles! ☺️❤️

  • @lilkeyla5769

    @lilkeyla5769

    4 жыл бұрын

    Oh true, kinda looks like her too

  • @diadoraduketennis575
    @diadoraduketennis5755 жыл бұрын

    What a mature, beautiful young woman! I hope that they find a cure for her illness soon!

  • @ilafar_8513

    @ilafar_8513

    5 жыл бұрын

    Hell no

  • @bellgarling8899

    @bellgarling8899

    5 жыл бұрын

    @@ilafar_8513 wdym?

  • @kookieyumyum7119

    @kookieyumyum7119

    3 жыл бұрын

    @@ilafar_8513 what????

  • @frenchfryfrenchie5402
    @frenchfryfrenchie54025 жыл бұрын

    How rich are they? Like seriously . Bless her that she is in a family that can financially support her .

  • @misscindy1596

    @misscindy1596

    5 жыл бұрын

    They look comfortable but disability social security checks help her im sure, plus she probably gets medicaid since she is disabled which covers most if not all of her medical bills

  • @mr.sushi2221

    @mr.sushi2221

    5 жыл бұрын

    If only Medicare for all existed here...🙄

  • @misscindy1596

    @misscindy1596

    5 жыл бұрын

    @@mr.sushi2221 medicaid is for low income or some people get if disabled and medicare is for 65 and older you have to pay a premium( required) plus get a supplemental insurance.this girl is only 14 so its possible shes on her parents insurance through their work and not on medicaid.most people with disabilities get money from the government because they really need the help.we do not have free health care for all here in America but the UK does have free health care for all im told

  • @KH2KH2

    @KH2KH2

    5 жыл бұрын

    It doesnt matter how much money they have. lets pray for her

  • @misscindy1596

    @misscindy1596

    5 жыл бұрын

    @@KH2KH2 thats right, she has a difficult life she could use all the power that prayers can bring for her

  • @doyouwannabite9153
    @doyouwannabite91535 жыл бұрын

    It's not fair. She has an amazing soul. And talent. And beautiful face

  • @phillipdennis8911

    @phillipdennis8911

    5 жыл бұрын

    Doyou Wannabite I was born with deaf since my ear nerve damaged before was born as my grandpa was deaf. I believe god sent me someone special as existly she has it as just happened. She have to appect with it as existly I do the same thing. She can do in her best as I can do. I working my job at Pilgrim’s pride chicken plant for passed 20 years. Deaf can do alike u do, making no sense. No big deal.

  • @esmewvimes2901
    @esmewvimes29015 жыл бұрын

    It's amazing that the people with the most horrific problems with their health are the kindest, most optimistic people you'll meet. Not to stereotype, but it's in my experience. I get angry with doctors that want to manage her pain. She is suffering, it's not like she has many years ahead of her. Stop worrying she'll become an addict and worry about the quality of life she has now. Don't make her suffer needlessly.

  • @greenisnotacreativecolour
    @greenisnotacreativecolour5 жыл бұрын

    I keep thinking I've seen it all, then Barcroft comes out with a new video and I'm like, damn, that's a thing!? What an awesome kid for dealing so well with such a rare and nightmarish disease! Man, I really take my bones for granted... Thanks guys, you're doing a great job!

  • @SPANIMATIONS4114
    @SPANIMATIONS41143 жыл бұрын

    "It does get a little frustrating, but I think I've just been able to figure out a different way to be independent." Hits different.

  • @mochi__26
    @mochi__265 жыл бұрын

    I hope she lives a very happy rest of her life and hope theres a cure. 💚

  • @bellgarling8899

    @bellgarling8899

    5 жыл бұрын

    Yea me too

  • @Itachisan-cf9ic

    @Itachisan-cf9ic

    4 жыл бұрын

    Yea

  • @Itachisan-cf9ic

    @Itachisan-cf9ic

    4 жыл бұрын

    God bless all👍🙌👏💪☝🙏

  • @jeffsipes2140
    @jeffsipes21404 жыл бұрын

    I hope medicine and technology will give this person a higher quality of life with less pain...

  • @lagunamiller
    @lagunamiller5 жыл бұрын

    She is so pretty! God bless her!!

  • @minivoyce6121
    @minivoyce61215 жыл бұрын

    Why would someone dislike this?

  • @edrooney9580

    @edrooney9580

    5 жыл бұрын

    They dislike the disability

  • @lordsysop

    @lordsysop

    5 жыл бұрын

    Some would be misclicks... bots too im guessing randomly upvoting/downvoting

  • @bellgarling8899

    @bellgarling8899

    5 жыл бұрын

    @@edrooney9580 Maybe

  • @everleighrose6111

    @everleighrose6111

    5 жыл бұрын

    Had the device upside down

  • @noblecyborg-savage

    @noblecyborg-savage

    4 жыл бұрын

    I dislike this comment

  • @hellodarkness4812
    @hellodarkness48124 жыл бұрын

    They are amazing parents for making that elevator, it must have been so expensive and they are trying so hard to let her be independent!

  • @mrc6032
    @mrc60325 жыл бұрын

    She does seem more mature than her actual age. Which is a good thing! I wish i had my head screwed on like that at only 14.

  • @emiliesmith9917

    @emiliesmith9917

    4 жыл бұрын

    mr c Disability does that. I’m fifteen and most of the time I feel like I’m in my nineties.

  • @georgelingrant8947
    @georgelingrant89474 жыл бұрын

    Ooohhh noooo! I want to cry She's smiling through it all. And sometimes I think my disability is the worst thing ever! Look at her! Just look at her! she's so positive and sweet. I will pray for you Natalie. You're so beautiful!

  • @Fr0galicious
    @Fr0galicious5 жыл бұрын

    She’s so pretty!! 💙

  • @mlkkk629

    @mlkkk629

    4 жыл бұрын

    No

  • @momomomoe2613

    @momomomoe2613

    4 жыл бұрын

    @@mlkkk629 yes

  • @k-poppersince0951

    @k-poppersince0951

    3 жыл бұрын

    She honestly is. Such a lovely lady ❤️

  • @hiyesiambanana2310

    @hiyesiambanana2310

    3 жыл бұрын

    @@mlkkk629 Why would you say something so controversial yet so brave?

  • @NeetaManis
    @NeetaManis4 жыл бұрын

    She’s so cute🥺 if only Hogwarts was real, she could have drank some Skele-gro 😕

  • @beavis9535

    @beavis9535

    4 жыл бұрын

    I wanted to laugh after reading this ☹️

  • @CrazehhTacozz

    @CrazehhTacozz

    4 жыл бұрын

    chase gunther bro no she’s 14

  • @johnkowalsky1988

    @johnkowalsky1988

    4 жыл бұрын

    Mademoiselle Chatte hello darkness my old friend...

  • @perdanamaja9900

    @perdanamaja9900

    4 жыл бұрын

    you are indonesiaaan!

  • @jaxxiet5851
    @jaxxiet58514 жыл бұрын

    This literally has me crying, my heart is so sad for her pain, and she's such a sweet spirit. Makes me check myself about what I complain about.

  • @iBeDramatic
    @iBeDramatic5 жыл бұрын

    I wish I could meet this girl. She is so pretty, creative, and positive.

  • @lavinieaaa801
    @lavinieaaa8015 жыл бұрын

    she is so strong and her energy is amazing

  • @bingus2828
    @bingus28285 жыл бұрын

    AMAZING! People like this enspire me to help people.

  • @wesnarwhal815

    @wesnarwhal815

    5 жыл бұрын

    Me too but I never know how...

  • @kinsleyrc
    @kinsleyrc5 жыл бұрын

    She takes it really well and is very mature about it. This is such a strong girl. The is also gorgeous!! I'm serious, she is strong and pretty but she keeps on going!! Inspiration at its finest!! She is also so kind and nice!! I will also keep her in my prayers because she is strong and deserves the world!!❤❤❤

  • @uffda5619
    @uffda56195 жыл бұрын

    Attitude is everything. What a fantastic young lady! I never new this situation existed. Thank you for the education.

  • @shalynfowler1342
    @shalynfowler13424 жыл бұрын

    I love how confident she is, and how much she smiles, although she is in great pain and no one should have to suffer through this.

  • @DanyV1
    @DanyV15 жыл бұрын

    I'm surprised. She's only 14 and she is so mature already! Seems like an amazing person to hang with! I wish her all the best and really hope doctors find a solution for her. She deserves a chance!

  • @ie3410
    @ie3410 Жыл бұрын

    she looked so happy when she was bowling it's making me wanna tear up! absolutely sweet and determined girl. god bless.

  • @minairie3890
    @minairie38905 жыл бұрын

    This gentle spirited & soft spoken young girl remains positive despite her living w/this rare but painful condition. I admire her strength. What an Angel.

  • @jessicadoyle1615
    @jessicadoyle16154 жыл бұрын

    Can we just take a second to appreciate her art it’s really good 🥰🥰

  • @Justin-wf5nr
    @Justin-wf5nr5 жыл бұрын

    This is so sad:( She must be incredibly strong. just wow. Stay strong!!!!

  • @duane8620
    @duane86204 жыл бұрын

    What a beautiful young lady! What I've learned from this channel and Special Books for Special Kids is they have a far better appreciation towards life, love and family. Too many people who take their fully functioning bodies for granted believe life "is against them" yet people like Natalia don't let anything get in the way of enjoying those special moments with people we know and/or love. Hope this young lady has a wonderful life filled with amazing caring people who see her for the awesome person she is! Never give up!!

  • @dogtoes3192
    @dogtoes31924 жыл бұрын

    i wanna be her friend, she seems like such a nice, cool person

  • @ninalemieux6226
    @ninalemieux62265 жыл бұрын

    So much love, and positive thoughts and vibes going to you, Natalia, and your loved ones. stay YOU! ❤️

  • @rra2541
    @rra25415 жыл бұрын

    Such a beautiful young lady, awesome approach to life. God bless you and your family

  • @voutoo7899
    @voutoo78994 жыл бұрын

    She so cute ! I feel bad. Lately I have been watching all the born different truly series. It helps me with depression and anxiety and make me feel better and stop overthinking about life. Thank you and wish you all the very best !

  • @alietheartist734
    @alietheartist7343 жыл бұрын

    I love her art, it’s so beautiful. I really wanted to ask her questions about that more than anything. I also love how her parents and her school work with her to help her be as independent as possible. She seems like such a cool person..

  • @Dedede63
    @Dedede635 жыл бұрын

    maybe make a fake bone structure like they do with synthetic arteries.

  • @SoMooLand1nine7

    @SoMooLand1nine7

    4 жыл бұрын

    There's no treatment or cure for this, being a rare case. That's why none 9f the doctors have input/experiment of what you've said. *As I know tho*

  • @AccidentallyOnPurpose

    @AccidentallyOnPurpose

    4 жыл бұрын

    The problem is fake bones only work because they are attached to other bones (like a hip replacement). It would be impossible unless you replaced every bone in her body with steel.

  • @nootnootpengui8015

    @nootnootpengui8015

    4 жыл бұрын

    bruh, that would make her Wolverine. Do you think we have such Tech, asking for a friend.

  • @XOPaulineJo
    @XOPaulineJo5 жыл бұрын

    she’s amazing! praying for her beautiful soul!

  • @rhetgoosner5242
    @rhetgoosner52424 жыл бұрын

    Stay strong! You've got this and we are so proud of you!!

  • @ValeriaVUrzua
    @ValeriaVUrzua Жыл бұрын

    My father had this. He just past away from cancer he got from radiation as a treatment for this desease. Truly warriors are the ones who have this. Respect 🙏🏼

  • @njoolong
    @njoolong3 жыл бұрын

    She's so mature for 14. I thought she was a young adult. Great personality and attitude!

  • @Hi-xz3fm
    @Hi-xz3fm3 жыл бұрын

    The dislikes are from the people who cant draw as good as she can

  • @midnightaustin9287
    @midnightaustin92874 жыл бұрын

    she is so kind, her voice her smile, and look at how her soft heart touches other. And salute to her parent and brothers!

  • @marinas5995
    @marinas59954 жыл бұрын

    She's so nice and has the sweetest heart and doesn't give up she puts her mind to things

  • @happinesshappens6631
    @happinesshappens66315 жыл бұрын

    Bless her sweet heart! My heart breaks knowing she’s in constant pain. Stay strong sweet girl!

  • @maplejakee
    @maplejakee5 жыл бұрын

    She genuinely looks 18-19!

  • @DarkPhoenixSaga

    @DarkPhoenixSaga

    5 жыл бұрын

    I thought she was older too.

  • @donnawaters5174
    @donnawaters51744 жыл бұрын

    She's one amazing young lady!! Very wise beyond her years. I pray a cure or solution is found for her. I hate having just a little pain and she's so strong and positive. Good luck little lady!!

  • @mairi2w2
    @mairi2w25 жыл бұрын

    I love how happy she is! She teaches us to enjoy life no matter what. Beautiful!

  • @geoscraftylife3884
    @geoscraftylife38844 жыл бұрын

    I love how she excepts what she has and still lives life to the fullest

  • @rimlouaste4933
    @rimlouaste49335 жыл бұрын

    the way she says hi is so heartmelting😭😭😭❤❤❤

  • @inesdje7748
    @inesdje77485 жыл бұрын

    You r so strong and none can tell you that can't reach what you want in life.. millions of ppl in the entire world r praying for ur beautiful soul.. Stay determined and happy.. Do everything you enjoy in life ..im so surprised that u r 14 and have this mature mind ...a great attitude u got.. Keep going... Love 💕💕💕💕💕💕💕

  • @katherinehalliwell
    @katherinehalliwell3 жыл бұрын

    I love her so much!!!! Such a sweet girl!!! I feel so bad that shes going through all of this. She deserves a better life. I love her motivation and pride.

  • @angelinatheron6849
    @angelinatheron68495 жыл бұрын

    She is so gorgeous!! If you ever read this, don’t listen to what people say, you are awesome!

  • @jxwelle
    @jxwelle5 жыл бұрын

    Do anyone else think she lowkey sounds like Mabel from gravity falls?

  • @danghomie151

    @danghomie151

    5 жыл бұрын

    i though that too

  • @lilkeyla5769

    @lilkeyla5769

    4 жыл бұрын

    True

  • @TH1515FAK3

    @TH1515FAK3

    4 жыл бұрын

    Joelle Diones I’m not the only one who hears it.

  • @linachambers3327

    @linachambers3327

    4 жыл бұрын

    I was just thinking about that nothing to think about in quarantine besides so she sounds like Mabel from gravity falls

  • @aiihairyou1336

    @aiihairyou1336

    3 жыл бұрын

    Omg...i can't unhear it

  • @heyitskc192
    @heyitskc1923 жыл бұрын

    omg! she's so pretty. sweetie it must've been so tough but you pushed through all that. keep up the spirit and just wanted to say you're absolutely beautiful

  • @HannahCamille_18
    @HannahCamille_183 жыл бұрын

    This girl is incredible. So stunningly incredible. Like she is so positive and sweet. It just blows me away how much strength, power, and courage she has to live her life like that. Its amazing. YOU GO GIRL!!!

  • @LupitaGee21
    @LupitaGee215 жыл бұрын

    I love this channel thank you for sharing inspiring stories!

  • @elpidakappa5555
    @elpidakappa55555 жыл бұрын

    Despite her rare condition, she has such an amazing personality and very pretty also!

  • @danielababilonia6804
    @danielababilonia68044 жыл бұрын

    She´s such a sweetheart and a complete angel, I hope she finds a way to feel less pain or ti inspire other that have rare diseases . God bless her!

  • @bennydretti5867
    @bennydretti58675 жыл бұрын

    These videos always make me cry. I feel guilty because it relieves my stress and anger but it’s not fair that people are suffering. I wish my prayers help in some way.

  • @impunitythebagpuss
    @impunitythebagpuss5 жыл бұрын

    Just when you think you've got a hard life.... amazing girl!

  • @Itachisan-cf9ic

    @Itachisan-cf9ic

    4 жыл бұрын

    Fax

  • @mckaylayoung2626

    @mckaylayoung2626

    4 жыл бұрын

    impunitythebagpuss jus because someone else has a tougher life, doesn’t mean your struggles are invalid

  • @kartiknair5186
    @kartiknair51865 жыл бұрын

    You are beautiful and keep smiling. You are amazing

  • @mambaregime

    @mambaregime

    5 жыл бұрын

    She's gorgeous...

  • @bellgarling8899

    @bellgarling8899

    5 жыл бұрын

    @@mambaregime ikr

  • @isola--
    @isola--3 жыл бұрын

    So proud of this girl! She is so sweet and gentle!

  • @thatgamingmonke1381
    @thatgamingmonke13815 жыл бұрын

    she’s such a gentle girl and also beautiful. I hope your life goes good!

  • @wwebb1
    @wwebb15 жыл бұрын

    God bless her and her family. She seems like such a wonderful person!

  • @animalshorts619
    @animalshorts6194 жыл бұрын

    There is also a teenager who’s muscles turn into more bones

  • @beezlouise8151
    @beezlouise81514 жыл бұрын

    It makes me so happy that she is always smiling and having a positive attitude! :) She is such an amazing person and I hope that they find a cure.

  • @steezmeister888
    @steezmeister8884 жыл бұрын

    i love that even with her battling this she keeps a smile thats being strong and proud

  • @imanartnugget7812
    @imanartnugget78124 жыл бұрын

    Shes so pretty. I love how happy spirited she is

  • @Starblood
    @Starblood5 жыл бұрын

    She has a beautiful smile

  • @lanieslusser1551
    @lanieslusser15514 жыл бұрын

    Bless her! She is so sweet and she is trying to live her best life! I hope she can live the longest life she can

  • @niruthaveesan2093
    @niruthaveesan20933 жыл бұрын

    You can do this! Stay strong and healthy. I’m so sorry, you are truly so brave and inspiring. Sending love and support ❤️

  • @lavinieaaa801
    @lavinieaaa8015 жыл бұрын

    she is so beautiful and strong🥰

  • @epikcyne
    @epikcyne5 жыл бұрын

    Damn I have no reason to complain about my life. Tbh I’m not worried about her because I can see she has a lot of great support around her. I hope she can stay positive and keep moving forward in life.

  • @LoriJMarshall
    @LoriJMarshall2 жыл бұрын

    She is adorable. Thanks for telling us your story. It helps me understand.

  • @Dark_Shadow9226
    @Dark_Shadow92262 жыл бұрын

    You go girl!! Nothing will to stop you and you are always gonna be beautiful like you always are!! Your the best!! So brave and courageous that’s what I want to see ♥️✨

  • @laurazander3012
    @laurazander30125 жыл бұрын

    God bless her and others like her please let there be a good treatment

  • @5p674
    @5p6745 жыл бұрын

    Yes, mature and knowledgeable...and beautiful, too.

  • @shooky-thatshawt8451
    @shooky-thatshawt84515 жыл бұрын

    Beautiful girl, She is always smiling through out this entire video... Bless her.. She is an empowering outgoing woman.. may she forever be that way.

  • @i_love_rescue_animals
    @i_love_rescue_animals3 жыл бұрын

    She seems like the sweetest person ever!! I.can't imagine what she must go through on.a daily basis - but she is just happy and living her life as fully as possible. ❤️

  • @zewm
    @zewm5 жыл бұрын

    I've seen this already. Is this a re-upload? or am I following too many documentary channels. If this isn't a re-upload then she was featured on a different channel? EDIT: Yup, this was on 'BBC Three' channel 4 weeks ago.

  • @payamyazdi7672
    @payamyazdi76725 жыл бұрын

    and this morning I complained about having a flat tire,God please forgive me for being so ungrateful

  • @mariex8168

    @mariex8168

    4 жыл бұрын

    It's ok to complain and be upset about things in your life too. Just because one person has to deal with harder things doesn't mean you aren't allowed to be upset at inconveniences either.

  • @shawn7172

    @shawn7172

    4 жыл бұрын

    Yo I'm jesus, I don't forgive ya

  • @emiliesmith9917

    @emiliesmith9917

    4 жыл бұрын

    You can complain about stuff, speaking as a disabled person. Just because people have poorer health than you doesn’t mean you’re not allowed to complain.

  • @haiylelarson8010

    @haiylelarson8010

    4 жыл бұрын

    @@shawn7172 this is my favorite comment😂😂

  • @SevenGC89
    @SevenGC893 жыл бұрын

    Such a strong brave young lady. Bone pain is the absolute worst. Living with it every day makes keeping your spirit up and not getting depressed very very hard. I have 3 bone diseases from 10 years on dialysis between my 3 kidney transplants and I know how hard it is living with constant bone pain day in and day out. She has such a fantastic personality and outlook and spirit. Bless her :-)

  • @Liz-ub7wv
    @Liz-ub7wv5 жыл бұрын

    Such a Strong Girl! Just Keep Enjoying life and Don’t let Nothing Keep You from Smiling💕

  • @MsSparklingwater
    @MsSparklingwater5 жыл бұрын

    What a smart brave young lady. God bless you hun. Fight on beautifull

  • @aemanakhtar8914
    @aemanakhtar89145 жыл бұрын

    Her skin is so clear and shiny and she looks much prettier than a normal people ..

  • @Sealthard
    @Sealthard5 жыл бұрын

    She's just incredible and her positivity is infectious. Yep, I'm crying

  • @SRBOMBONICA86
    @SRBOMBONICA862 жыл бұрын

    Such intelligent ,and articulate girl ,your voice is so sweet 💜stay strong ,you are brave and a great example for people