The Teen Who Dies If He Falls Asleep

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A TEENAGER who suffers from an extremely rare condition means if he falls asleep unassisted - he dies.Liam Derbyshire was born with Ondine’s Curse, officially known as Congenital Central Hypoventilation Syndrome, which causes respiratory arrest due to a patient’s lungs not functioning when they are asleep. The condition, which affects less than 1500 worldwide, means the 17-year-old has to be plugged into a life support machine and watched by a carer every night to keep him alive. Doctors gave Liam just six weeks to live after birth, but later this year the young man from Gosport, South Hampshire, is turning 18 and has truly defied all odds.
Videographer / director: Kashfi Halford, Adam Prosser
Producer: Danny Baggott, Ruby Coote, Nick Johnson
Editor: Sonia Estal
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Пікірлер: 6 400

  • @trashgtaplayer1128
    @trashgtaplayer11287 жыл бұрын

    What happens if the power goes out? Not a joke, a legitimate concern

  • @trashgtaplayer1128

    @trashgtaplayer1128

    7 жыл бұрын

    It's yuh girl mikkeai8908 Oh shit, I hope they have something. But more than likely his parents already have something like that

  • @oddballkimin

    @oddballkimin

    7 жыл бұрын

    I'm much more concerned if his parents pass away. Hopefully whoever looks after him next knows what to do and not fuck it up. Bless this boy though for being alive for so long and wonderful parents!

  • @forgottenpixel

    @forgottenpixel

    7 жыл бұрын

    Backup battery. That device I would say 4-8 hours of battery life. If it went beyond that I am sure he would be arranged to be driven or flown to a hospital with power. And as a last resort probably generators - though if it were to come to that...I am sure they'd rather not think about it. I suppose they could hand vent him for a bit or literally keep him awake with medication for as long as possible. But of course that will have its limits too.

  • @fromanotherdayfilm

    @fromanotherdayfilm

    7 жыл бұрын

    I hope they have a generator

  • @CallCaliber

    @CallCaliber

    7 жыл бұрын

    oddballkimin that’s what I was thinking

  • @pikyokewong2556
    @pikyokewong25567 жыл бұрын

    I thought he had to stay awake all the time

  • @MaryyChan03

    @MaryyChan03

    7 жыл бұрын

    PIK YOKE WONG yeah. But then he would die

  • @tinusweetu5336

    @tinusweetu5336

    6 жыл бұрын

    Akylah Taylor are you stupid? For the average human, if you go 3 days without sleep, it can be fatal.

  • @adi4305

    @adi4305

    6 жыл бұрын

    Yeah but he Would Die then too...SO SAD *;-;*

  • @Rspsand07

    @Rspsand07

    6 жыл бұрын

    3 days?! Don't be ridiculous. You don't even start hallucinating at that point. My friends and I often go 3 or so days while no lifing video games. I think you were thinking of something else: it's when you don't drink anything for 3 days you can die.

  • @beckysberries4441

    @beckysberries4441

    6 жыл бұрын

    PIK YOKE WONG Same

  • @Crim_Zen
    @Crim_Zen5 жыл бұрын

    A friend of mine recently died from this. She had been battling it for over 30 years.

  • @fatimajunaid1480

    @fatimajunaid1480

    3 жыл бұрын

    😭😭🥺🥺

  • @indicolitearts8581

    @indicolitearts8581

    3 жыл бұрын

    I pray your doing better now! God bless you and your friends family I know losing people is hard.

  • @ninaadbhat

    @ninaadbhat

    3 жыл бұрын

    rip

  • @faithviolet7810

    @faithviolet7810

    3 жыл бұрын

    Im so sorry

  • @lthv____

    @lthv____

    3 жыл бұрын

    ☹️

  • @teaganb4596
    @teaganb45963 жыл бұрын

    If anyone bully’s him... just so you know I’m COMING FOR YOU

  • @ReversedTech

    @ReversedTech

    3 жыл бұрын

    When I last knew him back in junior school, no one bullied him, if they did... they'd have to get past me first considering I was like his best friend lol

  • @nicoletine

    @nicoletine

    3 жыл бұрын

    sounds mega fake

  • @JaggedBird

    @JaggedBird

    3 жыл бұрын

    Want to borrow my claymore for that, Teagan?

  • @steviejrr

    @steviejrr

    3 жыл бұрын

    ur ard

  • @munk3064

    @munk3064

    3 жыл бұрын

    Cap.

  • @earlthegamer7429
    @earlthegamer74292 жыл бұрын

    The fact that he survived this long for this condition specifically is absolutely phenomenal for him.

  • @GalosDj06

    @GalosDj06

    2 жыл бұрын

    Yoo I’m a sub

  • @GalosDj06

    @GalosDj06

    2 жыл бұрын

    What a coincidence we met again lol

  • @Dennis-zo5qe

    @Dennis-zo5qe

    2 жыл бұрын

    im cry

  • @peppermeat8059

    @peppermeat8059

    2 жыл бұрын

    i think its when the brain falls asleep its doesnt automatically send signals to the lungs to breathe or something

  • @NazriB

    @NazriB

    2 жыл бұрын

    Lies again? Weak against nature

  • @sefia2171
    @sefia21716 жыл бұрын

    Mom: "18 years since we started this journey, you see." Dad: "yeah I don't regret any day of it." MY TEARS SUDDENLY FELL OFF😭 WHAT A GREAT PARENTS

  • @krazyhippy

    @krazyhippy

    4 жыл бұрын

    Same!!!

  • @glitcher510

    @glitcher510

    4 жыл бұрын

    0098 Sefia Nabila Nur Azmi r/youngpeopleyoutube

  • @sefia2171

    @sefia2171

    4 жыл бұрын

    @@glitcher510 if you mean by my photo profile, no lol. i'm using a photo from a cute korean kid.

  • @Lollirama

    @Lollirama

    3 жыл бұрын

    0098 Sefia Nabila Nur Azmi T. No he’s saying that because you have a heart unlike him

  • @oofchimchim345

    @oofchimchim345

    3 жыл бұрын

    BENTLEYYYYYYY

  • @lilie9042
    @lilie90424 жыл бұрын

    I love his mom Doctor: He wont survive for more than 6 weeks Mom: Game on >:)

  • @koorcJ

    @koorcJ

    4 жыл бұрын

    So true XD

  • @Scrunkles

    @Scrunkles

    3 жыл бұрын

    C h a l l e n g e e x c e p t e d

  • @HeizouShikanoin

    @HeizouShikanoin

    3 жыл бұрын

    So this is how we’re playing it, eh?

  • @dogood4877

    @dogood4877

    3 жыл бұрын

    But doctors and medical science help him survive

  • @FunniEmi

    @FunniEmi

    3 жыл бұрын

    @@dogood4877 his mom and dad didn’t give up tho

  • @nicolewright8801
    @nicolewright88015 жыл бұрын

    Brave young man . Wish I could take it all away from him . God bless him take care buddie you are a strong young man 💙

  • @jeremyalexander8724

    @jeremyalexander8724

    5 жыл бұрын

    U have the biggest heart ever!!!!

  • @nobodycaresnigga9146

    @nobodycaresnigga9146

    5 жыл бұрын

    Your the nicest human ever

  • @trud6346

    @trud6346

    3 жыл бұрын

    God bless you Liam ♥️🧡💛💚💙💜

  • @ReversedTech

    @ReversedTech

    3 жыл бұрын

    @@trud6346 :) I like people like you, I miss liam everyday lol, used to be best friends with him back in junior school, so want to catch up with him if I ever get the chance

  • @trud6346

    @trud6346

    3 жыл бұрын

    @@ReversedTech you are so sweet

  • @hannahridgeway7033
    @hannahridgeway70336 жыл бұрын

    Hurts my heart to imagine how he'll cope when his mother and father pass away, hopefully his close family will stand up and be prepared to keep him alive x

  • @gamert10121

    @gamert10121

    4 жыл бұрын

    He has siblings. So maybe when they pass away, his siblings could take care of him.

  • @ReversedTech

    @ReversedTech

    3 жыл бұрын

    He should know by now how to operate the machine on his own, so their passing shouldn't be a problem

  • @lovedaddy1582

    @lovedaddy1582

    3 жыл бұрын

    You're assuming that he'll live that long.

  • @viperbot5311

    @viperbot5311

    3 жыл бұрын

    Ok

  • @crap698

    @crap698

    3 жыл бұрын

    @@lovedaddy1582 😥

  • @Boki2089
    @Boki20896 жыл бұрын

    I wish him the best of luck with his health, he just deserves better life.

  • @gilsey7910

    @gilsey7910

    6 жыл бұрын

    Boki Bokii he does very much I agree

  • @jomoland

    @jomoland

    6 жыл бұрын

    He seems to be very happy in life and surrounded by loving family and friends.

  • @dianakailini7891

    @dianakailini7891

    6 жыл бұрын

    Boki Bokii 😞👏👏

  • @Boki2089

    @Boki2089

    6 жыл бұрын

    Jorge Silva it would be better sometimes for some people, if they don`t write anything at all. I got only one word for you, >Health< that`s all what he needs, "life without treatments". And don`t get me wrong you`ve got your own opinion, i`ve got mine but sometimes think before you write something. Have a nice day 😉

  • @Boki2089

    @Boki2089

    6 жыл бұрын

    Man you`ve got to be kidding me right!😂 😂 😂 What`s wrong with you? You`ve wrote all this, to make what, yourself more generous and more caring person then me or rest of us..Only point that is valuable, is that we wish him the best of luck with his own health.

  • @The_D0C70R
    @The_D0C70R2 жыл бұрын

    Let’s hope he’s still ok with coronavirus and all. Best of luck to him. What a legend.

  • @TheAfrilazeeq

    @TheAfrilazeeq

    2 жыл бұрын

    He has his own breathing machine, I'd say he have an advantage over us peasants.

  • @francesbale1409

    @francesbale1409

    2 жыл бұрын

    @@123litera4 are you saying that Liam is better off dead? Cause that's a super low comment. He's got a loving family, interests, can go to school etc, seems to have a g good quality of life despite his condition. Please re-consider how you view disability because you have just dehumanised so many people. Thanks :) Have a nice day :)

  • @francesbale1409

    @francesbale1409

    2 жыл бұрын

    @@123litera4 The thing is I do, and I know many others who suffer daily aswell. Im sorry you are going through terrible things. But like the rest of the population how we percieve ourselves and our disability is unique only to us. I would avoid expressing that youd rather die if you had someone else's disability because it is insulting no matter if you personally are disabled or not you can still dehumanise other people.

  • @francesbale1409

    @francesbale1409

    2 жыл бұрын

    @@123litera4 p.s. don't assume other people are abled and just because you have a disability doesn't mean you are entitled to say things like this. Imagine how he or his parents would feel reading what you have said? From what we can see and I know we never know the full story but Liam looks to have a good life and no doubt he suffers but does he seem like he'd rather not live? Think before you speak. Have a nice day I do genuinely hope you can find something good in every day no matter how small. That helps me stay alive when I want to die but I would be so so hurt if someone said they'd rather die than live my life. That says my life not worth living. That is a really terrible thing to say.

  • @francesbale1409

    @francesbale1409

    2 жыл бұрын

    @@123litera4 well done for not judging him for not killing himself and yeah if you want to have horrible thoughts I guess have a great time. Shame really but that's your perogative :)

  • @Tetodash
    @Tetodash2 жыл бұрын

    This is horrifying. I can’t imagine having to worry about this.

  • @equix5242

    @equix5242

    2 жыл бұрын

    You late 🤣

  • @iris8760

    @iris8760

    2 жыл бұрын

    @Friendly Facist have you ever heard of respect?

  • @1vanic

    @1vanic

    2 жыл бұрын

    @Friendly Facist fr?

  • @ADMmachine

    @ADMmachine

    2 жыл бұрын

    @Joe Lane Man's said they have a grandma name while being named Joe

  • @Oliver-b7j

    @Oliver-b7j

    2 жыл бұрын

    @Joe Lane He's still alive but ok

  • @Screwsandrods
    @Screwsandrods7 жыл бұрын

    He is Very lucky to have very caring, supportive parents who love and take good care of him! 🙏

  • @ImmaShadowGirl

    @ImmaShadowGirl

    7 жыл бұрын

    Slowlikehoney Too yeah. mine would've abandoned me for sure. Maybe my mom would've stuck around for a few years but my dad would've thrown me in the trash can around the block the moment he'd have discovered I had a condition

  • @nano3735

    @nano3735

    7 жыл бұрын

    ImmaShadowGirl jeezus a bit too much eh?

  • @ImmaShadowGirl

    @ImmaShadowGirl

    7 жыл бұрын

    LEGENDARYRAIDER can't judge what you don't know :)

  • @saiyinrosegaming4105

    @saiyinrosegaming4105

    6 жыл бұрын

    Slowlikehoney Too I dont

  • @minoriruba1828

    @minoriruba1828

    6 жыл бұрын

    Slowlikehoney Too CARING? Aren't the parents the culprit who had sex and gave birth to him?

  • @xenaa5291
    @xenaa52917 жыл бұрын

    One of the saddest things ever

  • @ihaveadegreeinmemes6377

    @ihaveadegreeinmemes6377

    7 жыл бұрын

    Nah

  • @bellaguillen2688

    @bellaguillen2688

    7 жыл бұрын

    That's sad I love when I sleep :/

  • @anonymousunicorn2678

    @anonymousunicorn2678

    7 жыл бұрын

    Alaya Thomas and then i saw your profile pic...smiling..

  • @xenaa5291

    @xenaa5291

    7 жыл бұрын

    Whats that mean

  • @xenaa5291

    @xenaa5291

    7 жыл бұрын

    I cant have any other profile pic

  • @joethegreat2633
    @joethegreat26335 жыл бұрын

    I love the way he talks, a soft voice that it penetrate the Heart!

  • @alexgsfart

    @alexgsfart

    3 жыл бұрын

    ❤️

  • @viperbot5311

    @viperbot5311

    3 жыл бұрын

    ok

  • @user-so3yw8tr1x

    @user-so3yw8tr1x

    2 жыл бұрын

    Is this even real? You'll die if you don't sleep

  • @idek9970

    @idek9970

    2 жыл бұрын

    @@user-so3yw8tr1x did you even watch the video

  • @user-so3yw8tr1x

    @user-so3yw8tr1x

    2 жыл бұрын

    @@idek9970 a year ago and i can read the title and it says what it says. Why didn't he broke the record for being awake the longest?

  • @_MC529
    @_MC5295 жыл бұрын

    This is why we need great healthcare So people as incredible as Liam get the best possible chance

  • @viperbot5311

    @viperbot5311

    3 жыл бұрын

    ok

  • @Jdksejejxnxndnd

    @Jdksejejxnxndnd

    2 жыл бұрын

    very true!

  • @amjan

    @amjan

    2 жыл бұрын

    Or maybe this is why we don't.

  • @spicynoodles2742

    @spicynoodles2742

    2 жыл бұрын

    @@amjan So you want people to die?

  • @nitsu2947

    @nitsu2947

    2 жыл бұрын

    Its more like healthcare for the desperate or the most needing ones. Because those are paid by taxpayers, you don't want your healthcare money go away to someone who is a repeated offender or iresponsible person. tbh im not one with the big brains or data. That was purely my opinion on it, i wouldn't completely disagree if someone was against it (some peoples just dont want health care because its paid for from tax and they don't want their money to be used by someone else)

  • @zxiahfam6607
    @zxiahfam66077 жыл бұрын

    I wish the best for him🙏💕

  • @trashgtaplayer1128

    @trashgtaplayer1128

    7 жыл бұрын

    BabyZay Channel you're hot af

  • 7 жыл бұрын

    Dizzi Unicorn me too

  • @xd_skins1378

    @xd_skins1378

    7 жыл бұрын

    Nejc Plesko me too

  • @the_2k_goat288

    @the_2k_goat288

    7 жыл бұрын

    Dizzi Unicorn I

  • @zxiahfam6607

    @zxiahfam6607

    7 жыл бұрын

    Undead Military GTA thank you💓

  • @KaciHazaCoolPhone
    @KaciHazaCoolPhone6 жыл бұрын

    100/10 best parents ever! Bless them all!

  • @joaopedrodemoura6492

    @joaopedrodemoura6492

    6 жыл бұрын

    THE VID IS FAKE

  • @KaciHazaCoolPhone

    @KaciHazaCoolPhone

    6 жыл бұрын

    Raphael Miguel Balon You guys know what they say about arguing on the internet, right? Just leave it. Please.

  • @Sarfnic

    @Sarfnic

    6 жыл бұрын

    they don't give up, and keep on that happy face

  • @Sarfnic

    @Sarfnic

    6 жыл бұрын

    I think the guy was joking, I mean he did use full caps

  • @jessejive117

    @jessejive117

    6 жыл бұрын

    Yea they’re great and an inspiration. I love these videos.

  • @Maxxieuguu
    @Maxxieuguu2 жыл бұрын

    I am currently 14 years old I was born with half a heart muscle. So I can certainly relate to making it unexpectedly far in life. And sincerely, I hope this boy is still out there, 22 years after his birth.

  • @baderx29

    @baderx29

    2 жыл бұрын

    I hope you have a positive and happy life 🙏🏻🙏🏻❤️❤️

  • @Maxxieuguu

    @Maxxieuguu

    2 жыл бұрын

    @@baderx29 me too.

  • @msjacksshipsadventures8382

    @msjacksshipsadventures8382

    2 жыл бұрын

    I hope your okay

  • @Maxxieuguu

    @Maxxieuguu

    2 жыл бұрын

    @@msjacksshipsadventures8382 me too

  • @The_Chess_GM

    @The_Chess_GM

    2 жыл бұрын

    U dead yet

  • @MakotoWright
    @MakotoWright5 жыл бұрын

    Such amazing parents, making sure he lives and doesn’t focus on anything else. I feel sad for the boy, having to have equipment just to sleep, instead of a normal sleep.

  • @alexgsfart

    @alexgsfart

    3 жыл бұрын

    😔

  • @realjayseven
    @realjayseven6 жыл бұрын

    Oh man, I just pray that machine doesn't stop working.

  • @georgeu2081

    @georgeu2081

    6 жыл бұрын

    João Vítor yea the same or the power goes out in the middle of the night

  • @Africanfrogs

    @Africanfrogs

    6 жыл бұрын

    True I'm sure they have some alert system or alarm if it does. They would just have to wake him up so he could breathe by himself

  • @KirkkoRS

    @KirkkoRS

    6 жыл бұрын

    I can guess that they have somekind of UPS for that

  • @HM-uu9ug

    @HM-uu9ug

    6 жыл бұрын

    João Vítor im pretty sure they got extra for back up

  • @dxb8086

    @dxb8086

    6 жыл бұрын

    _"I just pray that..."_ You also can cross your fingers. Same result, guaranteed...

  • @user-hm9mj1hc3j
    @user-hm9mj1hc3j7 жыл бұрын

    These are wonderful loving families including the understanding nephews we got here. God bless them

  • @tiredcitizenz1925

    @tiredcitizenz1925

    6 жыл бұрын

    加藤みずっち sad

  • @nizarziadeh8115

    @nizarziadeh8115

    6 жыл бұрын

    加藤みずっち I

  • @mhmyuhh

    @mhmyuhh

    6 жыл бұрын

    Not Ur Business god is what made earth, god made us, god gave us the intelligence to do science... Be glad you’re alive... thank god you’re alive... 😔

  • @nizarziadeh8115

    @nizarziadeh8115

    6 жыл бұрын

    加藤みずっち l

  • @Kaleb_Talks

    @Kaleb_Talks

    6 жыл бұрын

    You don’t need proof you moron

  • @mr.tiggers6378
    @mr.tiggers63782 жыл бұрын

    Why would people dislike this? That’s just sad

  • @kennycarsonlove34

    @kennycarsonlove34

    2 жыл бұрын

    They dislike because they dislike the fact that if he falls asleep he dies

  • @neymarjr_.

    @neymarjr_.

    2 жыл бұрын

    a lot of people don't know the proper KZread etiquette, when they dislike its probably because they feel sad and feels bad but obviously they don't know that dislike is a negative thing, think of it as an happy and sad emoji.

  • @mr.tiggers6378

    @mr.tiggers6378

    2 жыл бұрын

    Ok

  • @SonicGamerGirl2006

    @SonicGamerGirl2006

    Жыл бұрын

    @@neymarjr_. I think I have a more appropriate reason WHY someone dislike this. They just simply don't care. 😬🫠

  • @coasters_bgw

    @coasters_bgw

    Жыл бұрын

    @@Odditiz They don't - look the counter is at 0!

  • @4ll1s0n8
    @4ll1s0n82 жыл бұрын

    His soul is so innocent and pure I just can’t. 🥺

  • @pookster0442
    @pookster04427 жыл бұрын

    May god bless him with a long life and a happy life

  • @YangBalanceYin

    @YangBalanceYin

    7 жыл бұрын

    Parvesh Kumar God already gave this poor kid the middle finger.

  • @Subsandwich981

    @Subsandwich981

    7 жыл бұрын

    God didn't do this. I don't know why people who believe in God, believe that God is the one responsible for shit like this. smh.

  • @garrettzucker100

    @garrettzucker100

    7 жыл бұрын

    You enjoy that Young, the only logical dessication it to be religious or else you don't get into heaven if there is a God. I much rather go to heaven then hell, and if there is no god then its all the same anyways. Though personally I believe in a creator though maybe not exactly what the bible points out since its been corrupted slightly over time with wars and what not.

  • @youngsimbahh3433

    @youngsimbahh3433

    7 жыл бұрын

    If there is a god I will happily march my ass down to hell.

  • @garrettzucker100

    @garrettzucker100

    7 жыл бұрын

    Young I hope you enjoy that

  • @racquelmitra4266
    @racquelmitra42666 жыл бұрын

    I use to hate sleeping but after I watched this I cherished the fact that I could sleep without the thought of well just dying.. don't be ungrateful for what you have just be happy for what you have. Even if you have if you have a life threatening disease

  • @xxfortnite_kingx1459

    @xxfortnite_kingx1459

    6 жыл бұрын

    Racquel Mitra that is right

  • @kevboom2088

    @kevboom2088

    6 жыл бұрын

    Hate sleep? Try US college courses... only kids would say such a thing

  • @cartooninfinity3467

    @cartooninfinity3467

    6 жыл бұрын

    Hate sleep... trust me in thankful for it XD

  • @rsar61

    @rsar61

    6 жыл бұрын

    Racquel Mitra i agree I use take walking and working for granted , I suffered a massive stroke 2years ago, it's by the grace of god that I survived my stroke lasted for 5hours before I was able to medical treatment god spared this sinners life

  • @aleidarivera8733

    @aleidarivera8733

    6 жыл бұрын

    Racquel Mitra true

  • @0mg_abbyyy
    @0mg_abbyyy3 жыл бұрын

    I’m crying.. I feel so bad for this young man, hopefully he survives!

  • @afool8420

    @afool8420

    2 жыл бұрын

    We have the same profile pick XD

  • @0mg_abbyyy

    @0mg_abbyyy

    2 жыл бұрын

    YAY :>

  • @TexasScorpioQueen
    @TexasScorpioQueen5 жыл бұрын

    God bless this young man😭😭😭 stories like this touch my heart 💓

  • @fifi_ophelia6222

    @fifi_ophelia6222

    5 жыл бұрын

    💓

  • @alexgsfart

    @alexgsfart

    3 жыл бұрын

    ❤️🧸

  • @josephjuice2452

    @josephjuice2452

    3 жыл бұрын

    💓💓

  • @AntManR95

    @AntManR95

    2 жыл бұрын

    Chocolate Goddess eh?

  • @andygirl333
    @andygirl3337 жыл бұрын

    I love the unconditional Love the parents have for their son and the love the son has for his parents, that close bond is so incredibly sweet♡

  • @alexandrabassols4410

    @alexandrabassols4410

    6 жыл бұрын

    andygirl333 i

  • @101Volts

    @101Volts

    6 жыл бұрын

    @andygirl333 If I could favorite comments on here, I'd have favorited yours.

  • @RoboEpic

    @RoboEpic

    6 жыл бұрын

    ikr

  • @Olxthrosfr

    @Olxthrosfr

    6 жыл бұрын

    andygirl333 unlike my family

  • @karissam96
    @karissam967 жыл бұрын

    What a handsome, young man! He seems like a sweetheart and wish him all the best! xx

  • @king-yz5ok

    @king-yz5ok

    6 жыл бұрын

    I know right! He's so adorable

  • @unstoppablechicken1699

    @unstoppablechicken1699

    6 жыл бұрын

    karissam96 ya he deserves a cure or something to help him with that case hopefully something can cure it fingers crossed like if u agree

  • @alexgsfart

    @alexgsfart

    3 жыл бұрын

    ❤️❤️❤️❤️❤️❤️❤️

  • @mimiloganson6137

    @mimiloganson6137

    3 жыл бұрын

    @@king-yz5ok no he ain’t. He is handsome though

  • @mimiloganson6137

    @mimiloganson6137

    3 жыл бұрын

    @@alexgsfart shut up with the red hearts

  • @user-nc8re4hh4o
    @user-nc8re4hh4o5 жыл бұрын

    Some of the best Lego builds I've seen! Hope somone finds a cure for ya soon man.

  • @alexgsfart

    @alexgsfart

    3 жыл бұрын

    👍🏿

  • @dominicksansotta7173

    @dominicksansotta7173

    2 жыл бұрын

    I know this is heartbreaking to watch

  • @melbloom184

    @melbloom184

    2 жыл бұрын

    If he’s able to build everything can he build a Titanic ship of Legos and it’s 1000 pieces that maybe more

  • @census3370
    @census33705 жыл бұрын

    What if there’s a power outage is there a backup generator?

  • @CR42069

    @CR42069

    5 жыл бұрын

    He ded

  • @jackstape598

    @jackstape598

    5 жыл бұрын

    Census das tuff for him then

  • @Doors067

    @Doors067

    5 жыл бұрын

    then you wake him up

  • @hhds113

    @hhds113

    5 жыл бұрын

    Those machines are backed up on battery.

  • @heydaddy2471

    @heydaddy2471

    5 жыл бұрын

    In my place power usually go away for weeks, it was one time it went away for 3 weeks, on normal day it usually go away 5-6 hrs in a day, they turn off the power every 3-4 hours, he won't survived a day here, cuz I never saw in my life when electricity didn't go in a whole day not a single day

  • @jonaschan5667
    @jonaschan56675 жыл бұрын

    “The kid who dies if he falls asleep” Thumbnail - the kid sleeping

  • @thatguywhoruinedajoke325

    @thatguywhoruinedajoke325

    5 жыл бұрын

    Jonas Chan he can sleep as long as he has that machine thingy

  • @jonaschan5667

    @jonaschan5667

    5 жыл бұрын

    @@thatguywhoruinedajoke325 that means he can sleep

  • @thatguywhoruinedajoke325

    @thatguywhoruinedajoke325

    5 жыл бұрын

    Jonas Chan yes

  • @thatguywhoruinedajoke325

    @thatguywhoruinedajoke325

    5 жыл бұрын

    Jonas Chan the machine is keeping him alive while sleeping

  • @asdasd-tt2pz

    @asdasd-tt2pz

    5 жыл бұрын

    He Can sleep longer if He doesnt

  • @trippihippie7909
    @trippihippie79096 жыл бұрын

    Liam's story is amazing and inspiring. This is beautiful, and I am glad he is alive even if I don't know him.

  • @trippihippie7909

    @trippihippie7909

    6 жыл бұрын

    Biker Boiy Thats horrible to say.

  • @josephsvlogs6137

    @josephsvlogs6137

    6 жыл бұрын

    Biker Boiy so he had to commit suicide and he was bullied

  • @fortniteisawesome3838

    @fortniteisawesome3838

    6 жыл бұрын

    City girl

  • @fortniteisawesome3838

    @fortniteisawesome3838

    6 жыл бұрын

    I'm sorry I thout I was supposed do my name

  • @prinsesslonbon3659

    @prinsesslonbon3659

    6 жыл бұрын

    Candi Prince you. Are right

  • @thebrummierailenthusiasts5329
    @thebrummierailenthusiasts53292 жыл бұрын

    He is now a young adult now and I’m hoping he’s still continuing to survive

  • @syedmuaaztahir7138
    @syedmuaaztahir71382 жыл бұрын

    This guy is a genius, he builds these brilliant models. He is extremely intelligent

  • @JasonGafar
    @JasonGafar6 жыл бұрын

    I'm so so so so happy he's so fortunate to have these wonderful parents. His parents deeply love and care for him and it melts my heart. I wish him well on his journey.

  • @jimmyturner6615
    @jimmyturner66156 жыл бұрын

    At first i was like: WAIT WHAT !?!?! HE NEVER GOT TO SLEEP SINCE HE´S BORNE ? but then i realiced that he got help. Bless this boy :/

  • @stevensonstevenson5787

    @stevensonstevenson5787

    6 жыл бұрын

    Jimmy Turner

  • @jojorosa9933

    @jojorosa9933

    6 жыл бұрын

    Sorry for your lost

  • @geesauce3850

    @geesauce3850

    6 жыл бұрын

    Bless him but i don't bless your spelling

  • @Shrekfromthehitmovieshrek

    @Shrekfromthehitmovieshrek

    6 жыл бұрын

    Jimmy Turner he has, he has a machine which helps think as if he is sleeping in an iron lung

  • @myemail3148

    @myemail3148

    6 жыл бұрын

    Same

  • @azwentertainment
    @azwentertainment3 жыл бұрын

    Should be titled “the teen who dies without a ventilator while sleep” because sleep he do. Anyway he seem like a normal teen to me, looks great, able to walk, go outside, kick football, build LEGO, play PlayStation, have a caring family, seems a very good life and thankful for that :)

  • @mimiloganson6137

    @mimiloganson6137

    3 жыл бұрын

    He’s not a teen. He’s a adult

  • @juanmanuelmoramontes3883

    @juanmanuelmoramontes3883

    2 жыл бұрын

    Anyway if he couldn't sleep at all the best would be euthanasia, as far as I know no sleep is mental torture.

  • @vaukest5888

    @vaukest5888

    2 жыл бұрын

    @@juanmanuelmoramontes3883 Honestly lack of sleep due to high school makes me WISH I could be euthanized.

  • @NASCAR_Junk
    @NASCAR_Junk2 жыл бұрын

    Me: “Yeah, I pulled an all-nighter” This kid:

  • @TheBasicPersonSorta

    @TheBasicPersonSorta

    2 жыл бұрын

    He Has To Do A All Nighter Or Else He Will Die Without The Ventionr

  • @freddy4584
    @freddy45846 жыл бұрын

    He seems like such a sweet guy, it’s great to see he has such a caring family

  • @Yusuketh443

    @Yusuketh443

    2 жыл бұрын

    ©umring family

  • @puppylover1276
    @puppylover12767 жыл бұрын

    Damn, he's so brave! And I'm here sitting on my bed eating chips, scared like of everything 😂

  • @tiyakarapan734

    @tiyakarapan734

    6 жыл бұрын

    PuppyLover 12 Me too

  • @viengsamphet

    @viengsamphet

    6 жыл бұрын

    PuppyLover 12 me too

  • @Success_FuelYT

    @Success_FuelYT

    6 жыл бұрын

    damn now i want chips...

  • @dianakailini7891

    @dianakailini7891

    6 жыл бұрын

    PuppyLover 12 😂😂😂

  • @wannabewriter5628

    @wannabewriter5628

    6 жыл бұрын

    PuppyLover 12 lol omg me too I feel so bad for him

  • @Rapper-zx7zs
    @Rapper-zx7zs4 жыл бұрын

    I’m so glad he’s still going. I was wondering how we was doing.

  • @alexgsfart

    @alexgsfart

    3 жыл бұрын

    ❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️

  • @alexisalex702

    @alexisalex702

    2 жыл бұрын

    How did you find updates about him? I would like to see good updates about him too :)

  • @highfashionwins
    @highfashionwins Жыл бұрын

    Liam seems like such a sweet, kind soul. It's so unfair :(

  • @Jamieeee-ht7qk
    @Jamieeee-ht7qk6 жыл бұрын

    He's so adorable! 😊

  • @avahall3949

    @avahall3949

    6 жыл бұрын

    I feel bad for him😔😢💔

  • @mango60888

    @mango60888

    6 жыл бұрын

    WatchJovitoTv did they say the disease was adorable? It seems more like a complement tbh. Edit: That comment was even posted a month ago and you now noticed it lol.

  • @mango60888

    @mango60888

    6 жыл бұрын

    Oh.

  • @mango60888

    @mango60888

    6 жыл бұрын

    WatchJovitoTv sorry then, usually my arguements are poop lmao.

  • @Wtahc

    @Wtahc

    5 жыл бұрын

    WatchJovitoTv no?

  • @evesrebornbabies4377
    @evesrebornbabies43777 жыл бұрын

    He is a living miracle

  • @letters_from_paradise

    @letters_from_paradise

    6 жыл бұрын

    Not particularly, just ordinary science.

  • @athens_dio9741

    @athens_dio9741

    6 жыл бұрын

    why he is a miracle?

  • @childabuse9798

    @childabuse9798

    6 жыл бұрын

    Doesn't seem like a miracle for a boy to have a condition like this lol.

  • @Imuetinyanosa

    @Imuetinyanosa

    6 жыл бұрын

    +Jellytopbottem Deadbush The fact that he's alive, especially after the doctors said he would probably live only 6 weeks, is definitely a huge miracle! There is still hope that a cure will be found!

  • @JustinK1613

    @JustinK1613

    6 жыл бұрын

    They said no one knows how long he will live. A real miracle would be something that can't be explained. This is just a condition so rare that the doctors can't give an answer as to how long someone will survive. Survival rates are just based on data, more data means better answers.

  • @shreyakanojiya4744
    @shreyakanojiya4744 Жыл бұрын

    I hope he's still alive and good. Sending all the love and strength to his family and him. Wishing for the best for them and nothing less. Soo proud of all three of them for being soo strong and amazing. Truly an inspiring boy ❤️

  • @williamnield7133
    @williamnield71332 жыл бұрын

    This shows the love parents have for their children

  • @finster1968

    @finster1968

    2 жыл бұрын

    Most parents, anyway. Unfortunately there’s plenty of people who need to be sterilized. I can’t imagine the worst parents (who abuse healthy children) dealing with something like this.

  • @theunicornmagic2357
    @theunicornmagic23576 жыл бұрын

    I wish he gets better and better

  • @joekenorer
    @joekenorer6 жыл бұрын

    This is one of the saddest things I've ever seen. I have an autistic 12 year old, and I've already mentally prepared myself to take care of him for the rest of his life. He's going into his teens soon and I don't know what to expect, I'm so terrified and sad for him that life has to be different. With Liam you add a few more years and Ondine's disease? I cannot imagine. I have to go cry about this and everything, excuse me.

  • @harlequindeer2142

    @harlequindeer2142

    6 жыл бұрын

    joekenorer I have an autistic brother and it is so hard to take care of him sometimes he is just too much for my mom and I. He is now 9 and it seems every year it gets harder and harder

  • @joekenorer

    @joekenorer

    6 жыл бұрын

    My son was very difficult in his younger years, destroying things, eating raw meat out of the fridge at night, pooping in his pants, I worried that would always be how he was. But he changed a lot in the past 4-5 years. He's calmed down, isn't destructive, finally potty trained, but over all much more manageable and personable. He still won't hold a conversation, but he does talk and a lot and well, it's just usually scripting his favorite KZreadrs.

  • @joekenorer

    @joekenorer

    6 жыл бұрын

    Don't lose hope, he will change a lot as he gets older. In what ways will be hard to tell, but he will change.

  • @ashk4512

    @ashk4512

    6 жыл бұрын

    I have autistic members in my family. The severeness ranges from person to person but they all mantain jobs and families of their own. Don't discourage and/or look down on your kid. He'll do great, no matter the struggles. Also, people with autism are extremely intelligent but rarely get the oppertunity to really showcase it. So let your kid explore his space around him and give him the tools so that he may figure out his strengths and weaknesses. A doctor once told me. "Neurotypical see a lot of trees together and think 'oh, that's a forest.' but people with autism look at the ground, they look at the flowers and mushrooms and from that base that it is indeed a forest." "people with autism are in no way less intelligent. they just view the world in a different light, and so, express themselves differently. Just because he is 'different' doesn't at all diminish his quality or life or make him less likely to succeed with his life. take care!

  • @harlequindeer2142

    @harlequindeer2142

    6 жыл бұрын

    joekenorer when did your so start talking ? Cause right now my brother can only manage saying one word and it’s not that audible

  • @johnolivera2369
    @johnolivera23692 жыл бұрын

    "Which one is your favorite, Liam?" "all of them to be fair" haha made me smile

  • @kristoferjakistam832
    @kristoferjakistam8322 жыл бұрын

    HUGE respect for parents. All his son life they are on alert to watch him and react if necessary. Respect from me.

  • @andregamer4life755
    @andregamer4life7556 жыл бұрын

    people that dislike probably they don't want to see him suffer...

  • @christyholt6029

    @christyholt6029

    5 жыл бұрын

    Yeah Yes

  • @CR42069

    @CR42069

    5 жыл бұрын

    Did you like?

  • @SkippyMC

    @SkippyMC

    5 жыл бұрын

    You dislikr a video if you didn't LIKE it.

  • @scotthappy712

    @scotthappy712

    5 жыл бұрын

    Agreed the peeople who diliked have no heart

  • @nnnyel

    @nnnyel

    5 жыл бұрын

    @@SkippyMC the dislike button has many meanings to many people

  • @randomgamer4240
    @randomgamer42406 жыл бұрын

    I’m Just Glad That The Machine Has Worked All This Time

  • @tannernicholson2328

    @tannernicholson2328

    5 жыл бұрын

    Don't Capitalize Every Single Word, Thank You

  • @mrwhoannon300

    @mrwhoannon300

    5 жыл бұрын

    Tanner Nicholson are u lettercapitalizationist? Tut tut tut, what has society come to 😪

  • @ArseniiB

    @ArseniiB

    5 жыл бұрын

    Anyone noticed most people with birth defects and genetic diseases from europe

  • @karahka2

    @karahka2

    5 жыл бұрын

    @THE metrobuskid Random Gamer those machines more likely have some kind of backup battery or something, ppl wont die in hospital if there is no electricity at the moment.

  • @pluto7026

    @pluto7026

    5 жыл бұрын

    ArBuz Entertainment bruh

  • @jasonlucero5808
    @jasonlucero58085 жыл бұрын

    My heart broke as soon as I saw him with the machine. My prayers goes out to him and his family

  • @alexgsfart

    @alexgsfart

    3 жыл бұрын

    Mine too

  • @Yusuketh443

    @Yusuketh443

    2 жыл бұрын

    you broke 😂

  • @haze6450
    @haze64505 жыл бұрын

    Watching these videos truly make me sad, its sucks to see anyone go thought something like this. God Bless you and i hope all good things come your way. You deserve it, your strong adult and i give you all my prayers! Your are a amazing human being!

  • @kageyamaslefthand329
    @kageyamaslefthand3296 жыл бұрын

    God bless all the people with all these conditions and keep them safe every second of each minute and hour

  • @patrickstokes67

    @patrickstokes67

    5 жыл бұрын

    Liv Gillespie amen

  • @cbenn37yt6

    @cbenn37yt6

    5 жыл бұрын

    Why would God allow for him to have this condition in the first place? Lmao

  • @JD-lm2es

    @JD-lm2es

    5 жыл бұрын

    cbenn37 YT i found the guy who knows nothing about religion^

  • @dylanr9131

    @dylanr9131

    5 жыл бұрын

    why does it have to be "god bless"? what if he is an atheist?

  • @ashlynndaniels1191

    @ashlynndaniels1191

    5 жыл бұрын

    Sir Bigdog we’ll just let people believe what they want.

  • @HFXmermaid
    @HFXmermaid7 жыл бұрын

    it must be tricky for him if he accidentally has a nap

  • @tfi4310

    @tfi4310

    7 жыл бұрын

    Raina Mermaid you get medication that prevents you from sleeping.

  • @havanacovington7405

    @havanacovington7405

    7 жыл бұрын

    Raina Mermaid yea

  • @baldheadedassdex5246

    @baldheadedassdex5246

    7 жыл бұрын

    TheFireIndian Give him some aderall everyday. He'll never sleep

  • @akinsalih1235

    @akinsalih1235

    6 жыл бұрын

    I'm pretty sure if he falls asleep his perents would probably notice and slap him up a bit. I'm just kidding 😂😂😂 he can live only for so long without oxygen.

  • @akinsalih1235

    @akinsalih1235

    6 жыл бұрын

    Lisa Lisa I have one solution for ya, DRUGS. solves all ur problems

  • @-LegioPatriaNostra-
    @-LegioPatriaNostra-2 жыл бұрын

    These parents and their strong son are everyday hero's! With love from The Netherlands!

  • @mantidream8179
    @mantidream81792 жыл бұрын

    These videos really put in perspective all the simple things we take for granted. Bless him and his parents.

  • @lil6six774
    @lil6six7747 жыл бұрын

    This is really heart breaking I want to cry I HOPE HE DOES NOT DIE

  • @jesusherrarte5763

    @jesusherrarte5763

    7 жыл бұрын

    ak bangas HE WONT DIE WITHOUT LIVING A FULL HAPPY LIFE GOD WILL HELP HIM DAIKY AND NEVER LEAVE HIS SIDE AND HIS PARENTS ARE HONESTLY G's FOR BEING THERE ALL THE WAY NO MATTWR WHAT THISE DOCTORS SAID. GOD WILL AWLAYS KEEP BLESSING HIM LIKE HE BLESSES AL OF US AND WILL HELP OUT ALL THE WAY AMEN 🙏❤️😇🙏❤️😇🙏❤️😇🙏❤️😇.

  • @doctornobody9501

    @doctornobody9501

    7 жыл бұрын

    Jesus Herrarte he's dead...

  • @imenviously

    @imenviously

    7 жыл бұрын

    Jason Bradley DONT SAY THAT HES NOT DEAD!!!!!!

  • @spongebobfan190

    @spongebobfan190

    6 жыл бұрын

    Jason Bradley Go be an edgelord somewhere else please.

  • @bloobfish9246

    @bloobfish9246

    6 жыл бұрын

    Jason Bradley no he's not

  • @soph7113
    @soph71136 жыл бұрын

    Aww. I pray for him hes so adorable

  • @mayververgara7942

    @mayververgara7942

    6 жыл бұрын

    Sophia amazing um which as a teen or as a baby?

  • @superdave354

    @superdave354

    6 жыл бұрын

    Mayver Vergara probably both

  • @Cruciatum

    @Cruciatum

    6 жыл бұрын

    Have the prayers worked yet?

  • @dean0730

    @dean0730

    6 жыл бұрын

    Thoughts and prayers caused this. The power was too strong and his body rejected it, you never ever seen my hero academia smh

  • @jessejive117

    @jessejive117

    6 жыл бұрын

    Cruciatum You’ve gotta ask him. And she didn’t say she’s prayed for him to be cured. Maybe that he could fine a purpose for what he lives with and peace with it if he hasn’t. Your tiny little mind can’t think of anything else it’s okay ☺️

  • @jesusissogood5572
    @jesusissogood55722 жыл бұрын

    I thank God for sustaining Liam's life through the machines.

  • @jesusissogood5572

    @jesusissogood5572

    2 жыл бұрын

    By the way, God loves you so much that He sent His only son Jesus to die for your wrongs so that you could be forgiven by God (who rose Jesus from the dead after 3 days). Accept Jesus into your life and as your Lord and Savior while you can! I am not forcing you to do so, but I STRONGLY encourage you to.

  • @lussor1

    @lussor1

    Жыл бұрын

    God did nothing

  • @richjustin06
    @richjustin062 жыл бұрын

    Much respect to the parents and this boy who still manages to smile through the pain. Never take your health for granted. Stay strong young man 🙏

  • @MoniQue1995sco
    @MoniQue1995sco7 жыл бұрын

    he seems like such a nice guy! bless him

  • @israelgordocolorado3060
    @israelgordocolorado30606 жыл бұрын

    I wish i could cure his condition ☹

  • @viengsamphet

    @viengsamphet

    6 жыл бұрын

    Marie Itzel Colorado so then try it Don't do nothing

  • @anthonydeluca6966

    @anthonydeluca6966

    6 жыл бұрын

    I wish I could make everybody rich and happy. But that's not gonna happen, now is it?

  • @nadine537

    @nadine537

    6 жыл бұрын

    Marie Itzel Colorado maybe you can in the future...you never know

  • @coolkidmio1129

    @coolkidmio1129

    6 жыл бұрын

    He can wish it, and maybe try! Sam, ur comment was so bad and annoying..

  • @wendydickson3554

    @wendydickson3554

    6 жыл бұрын

    Oh shut up guys you can't do nothing (u r lazy)

  • @boribbora
    @boribbora2 жыл бұрын

    This makes us realise how tech can change our lives. He wouldn't be able to survive without the tech and his parents ❤

  • @youtubecristy4009
    @youtubecristy40093 жыл бұрын

    He would be so glad as he has this really caring parents.🥺 Hope he finds a cure as soon as possible 😔😢

  • @A90sChick
    @A90sChick6 жыл бұрын

    He’s very handsome and strong to get through this, as well as his loving family supporting him so much. This makes me joyous to know there’s still hope in the darkest of times when stuff like this happen to people. Prayers for him and to his family!

  • @alexgsfart

    @alexgsfart

    3 жыл бұрын

    ❤️🧡💛💚💙💜

  • @4hesr6kefb3y-
    @4hesr6kefb3y-5 жыл бұрын

    I wish I was his childhood friend, he’d be great to play with. He seems very sweet, I wish him the best.

  • @alexgsfart

    @alexgsfart

    3 жыл бұрын

    @Sp00ky Ramen XD?!? THIS IS NOTHING TO LAUGH ABOUT!!! Or maybe its the fact that you were friends....... hmmmmmmmmmm.........

  • @alexgsfart

    @alexgsfart

    3 жыл бұрын

    @@user-zi1ft1dd5t ok srry

  • @alexgsfart

    @alexgsfart

    3 жыл бұрын

    😅

  • @rejim.philip9431

    @rejim.philip9431

    3 жыл бұрын

    @@user-zi1ft1dd5t oooo

  • @rejim.philip9431

    @rejim.philip9431

    3 жыл бұрын

    @@user-zi1ft1dd5t lol

  • @manatal4673
    @manatal4673 Жыл бұрын

    Thank you for sharing these special moments and aspects of your journey together. Liam is motivational!!! It helps my understanding and empathy anyone with this lack of cerebral communicatory functions in people with this condition.

  • @mysticmama_3692
    @mysticmama_36923 жыл бұрын

    This family is full of love and understanding. Its quite beautiful to see😍

  • @mackenziegallagher3693
    @mackenziegallagher36936 жыл бұрын

    Poor kid I feel so sorry for him

  • @mackenziegallagher3693

    @mackenziegallagher3693

    6 жыл бұрын

    I love him soo much I cried

  • @judychang6660

    @judychang6660

    6 жыл бұрын

    MacKenzie Gallagher me to

  • @josht5453
    @josht54537 жыл бұрын

    Stupid question, but how did they discover this when he was a new born? I would have thought soon after being born he would have fallen asleep and passed away before anyone knew any better

  • @tfi4310

    @tfi4310

    7 жыл бұрын

    Josh T devolops.

  • @uhohriver

    @uhohriver

    7 жыл бұрын

    Josh T maybe they noticed he wasnt breathing when falling asleep because you dont imieditly die because of not breathing it takr a while from you to die from that (*at least I think I of course am stating what I think would be the case*) so maybe this continued on like maybe they kept an eye on him so then thry relized within time of him not breathing during sleep he would die? I dont truely have an answer of course please understand im saying what I think happened for them to figure out this man's condition. May he live a happy life

  • @average391

    @average391

    7 жыл бұрын

    When a new born is wel born they alway check on him for like a day to do test and he is not dead cuz if he was new born he wil sleep with a air mask man i know this and im 9 maybe my dad is a docter 😑

  • @havanacovington7405

    @havanacovington7405

    7 жыл бұрын

    Josh T true

  • @havanacovington7405

    @havanacovington7405

    7 жыл бұрын

    Smol potato true too

  • @yourmomforceutoplaywitheki2689
    @yourmomforceutoplaywitheki26892 жыл бұрын

    He looks like a nice guy, I hope he get through this

  • @007shinette
    @007shinette5 жыл бұрын

    What a lovely family they are ! It must be so worrying having to live with that ! I was especially impressed with Liams nephew who clearly loves his uncle ! Xx

  • @sl6876
    @sl68767 жыл бұрын

    I dunno why but I really wanna meet him, he seems like he would be my best friend (:

  • @philliphurtitz9246

    @philliphurtitz9246

    6 жыл бұрын

    Because you have no friends.

  • @jackbeames7643

    @jackbeames7643

    6 жыл бұрын

    Sam Leblanc he lives in my town. He’s my friends cousin

  • @Handkeliw

    @Handkeliw

    6 жыл бұрын

    Phillip Hurtitz just stop

  • @Yusuketh443

    @Yusuketh443

    2 жыл бұрын

    you can press emergency meeting to meet him

  • @ima4248
    @ima42486 жыл бұрын

    Imagine if he falls asleep accidentally, while watching a movie.

  • @Crepidarian

    @Crepidarian

    5 жыл бұрын

    I'd die instantly

  • @michaelao9672

    @michaelao9672

    5 жыл бұрын

    This sorta thing is what worries the mum of the boy I look after - when he's older and hanging out with friends, at home its not a problem but outside... So many possibilities

  • @LordRayken

    @LordRayken

    5 жыл бұрын

    He would most likely wake up when he started suffocating.

  • @karahka2

    @karahka2

    5 жыл бұрын

    @@LordRayken thats why he has that machine because he might not

  • @travissmith6001

    @travissmith6001

    5 жыл бұрын

    Or in class

  • @travelbaseball13
    @travelbaseball132 жыл бұрын

    Aww I feel so bad for him I hope he gets better praying for him and his family 🙏

  • @dr.sarcasm7033
    @dr.sarcasm70335 жыл бұрын

    I don’t get why people dislike these kind of videos. If you clicked on the video there’s no reason to give hate because you wanted to watch it .

  • @Starkid1236offical
    @Starkid1236offical6 жыл бұрын

    I will be gladly to give him my Hornby trains boyo. :)

  • @chungdo8622

    @chungdo8622

    6 жыл бұрын

    Starkid 1236 I

  • @mitsuriii208

    @mitsuriii208

    6 жыл бұрын

    Starkid 1236 Good lad

  • @chico373

    @chico373

    6 жыл бұрын

    Starkid 1236 ii

  • @cinnamonwolfy3822

    @cinnamonwolfy3822

    6 жыл бұрын

    Starkid 1236 what?

  • @shirley6067

    @shirley6067

    6 жыл бұрын

    Starkid 1236 oh god, I have a dirty mind, I thought you said that u would give him your horny babies

  • @sisterstina3700
    @sisterstina37007 жыл бұрын

    God bless this boy ❤Only best wishes to him and his family!!

  • @svbretooth
    @svbretooth3 жыл бұрын

    I wish nothing more than the best for him...you've made it this far bud. Keep going. You have the fight in you. ❤

  • @beluga2771
    @beluga27712 жыл бұрын

    He is incredible and phenomenal kid he is very kind and he has a voice of a Angel god bless you I hope you are still alive i didn't have seen a kid like this kindly kid

  • @kamikamila
    @kamikamila6 жыл бұрын

    You Should Never Die.. :( I Hope You Live a Long Healthy Life..

  • @hiatusmode989
    @hiatusmode9896 жыл бұрын

    Aww....He is so strong 😫😫😫.....Makes me cry

  • @nicholc7300
    @nicholc73005 жыл бұрын

    What a clever lovely young man I wish him all the best in the future ❤️❤️

  • @enau7691
    @enau76915 жыл бұрын

    Thanks for sharing to this beautiful family

  • @DevinsDen
    @DevinsDen6 жыл бұрын

    Wow he built those legos? That really is amazing!

  • @jebushwplainview9453

    @jebushwplainview9453

    6 жыл бұрын

    I see what you did there...

  • @MrFinalfantasy7ftw

    @MrFinalfantasy7ftw

    6 жыл бұрын

    Chris Thomas I dont get it 🤔😅

  • @andrewlingo7614

    @andrewlingo7614

    6 жыл бұрын

    The lego set he is playing with in the video

  • @eros4007
    @eros40076 жыл бұрын

    This breaks my heart ):, My prayers goes out to him❤️

  • @alexgsfart

    @alexgsfart

    3 жыл бұрын

    Mine too❤️

  • @tunamc5759
    @tunamc57592 жыл бұрын

    Amazing parents , although I have many many questions and concerns , you guys undoubtedly have a heart of gold and have done amazing

  • @AcesPlace22
    @AcesPlace222 жыл бұрын

    Gosh I love his mum and dad. Bless their family. I'm not someone that often feels for others but I'm changing that. Stay safe everyone. Love is love 🤘

  • @erikandersson1647
    @erikandersson16475 жыл бұрын

    Just keep him away from Southern Texas- can't go a month without a major power outage!

  • @Prod.twenty7

    @Prod.twenty7

    5 жыл бұрын

    Where u from?

  • @lannblade

    @lannblade

    4 жыл бұрын

    hes from the UK , power never goes there.

  • @ipza4968

    @ipza4968

    4 жыл бұрын

    @@lannblade We get power outages about once every few months. Even then, they last about a few minutes.

  • @alexgsfart

    @alexgsfart

    3 жыл бұрын

    :(

  • @israelp4462
    @israelp44626 жыл бұрын

    "His Tv, his playstaion" (SHOWS XBOX)

  • @101Volts

    @101Volts

    6 жыл бұрын

    "I'd like a large hamburger and a medium cola." "We have 5 kinds of cola: Root Beer, Ginger Ale, Coca Cola, Mountain Dew and Sprite; which cola would you like?"

  • @Dani-yd5mb

    @Dani-yd5mb

    6 жыл бұрын

    yes

  • @Ludochris

    @Ludochris

    6 жыл бұрын

    IS THAT A XBOX, points to a wii

  • @violetcatastrophy916

    @violetcatastrophy916

    6 жыл бұрын

    Devil Prodigy 33 *Points at playstation* hey isn't that one of those... Ouyas?

  • @bullterriersmom4423

    @bullterriersmom4423

    6 жыл бұрын

    😂😂😂😂

  • @vyse5189
    @vyse51892 жыл бұрын

    Oh my god,please set an extremely loud alarm if the power goes off to wake him up.

  • @10kbeforeiuploadfirstvideo17
    @10kbeforeiuploadfirstvideo172 жыл бұрын

    These are the best parents I’ve ever seen.

  • @elliskirsch6933
    @elliskirsch69337 жыл бұрын

    I can't watch this video it makes me too sad. 😥

  • @yuno1826

    @yuno1826

    6 жыл бұрын

    Jp love your profile pic 😂😂😂😂

  • @txlentonline3791
    @txlentonline37916 жыл бұрын

    Hes a survivor, Hes a fighter, Hes beautiful ♡

  • @kyle-flora

    @kyle-flora

    6 жыл бұрын

    okay, but he ain't beautiful.

  • @raspberrygacha6924

    @raspberrygacha6924

    6 жыл бұрын

    Jamtraxx his inner beauty

  • @Mars-uj9ye

    @Mars-uj9ye

    6 жыл бұрын

    +Jamtraxx he's kind of charismatic More than you actually. Just watched your face D:

  • @Rondre
    @Rondre2 жыл бұрын

    Damn is he awesome. Living for this long with his condition and even living a pretty normal life is awesome to see. I hope he can live long

  • @nadiafarhana3018
    @nadiafarhana30182 жыл бұрын

    Imagine if that one night the electricity cut off by some mulfunction and liam cannot breathe...that would be a nightmare...

  • @walker4322

    @walker4322

    2 жыл бұрын

    they most likely have a back up generator and i woulsnt be surprised if the machine has a external battery pack installed