In this invigorating episode of Living with FASD, host Patti Kasper welcomes back the insightful and dynamic Mrs. Emily Hargrove from the adult leadership collaboration of the FASD change makers. Emily, a vibrant advocate and mother-to-be, returns to share her latest ventures and the ongoing mission to amplify the voices of adults with Fetal Alcohol Spectrum Disorders (FASD).
Emily updates us on her life as a soon-to-be mom of two, her involvement with the FASD change makers, and the group's efforts to influence research and policy. She emphasizes the importance of holistic perspectives in understanding FASD, not just as a developmental issue but as a condition affecting the entire body.
Listeners will learn about the upcoming FASD conference in Seattle, where Emily and her colleagues will present their groundbreaking work on quality of life for adults with FASD. They'll discuss the urgent need for supports that extend beyond childhood and how the lack thereof contributes to continued adverse experiences.
Furthermore, Emily gives us a sneak peek into her upcoming children's book, "FASD is My Superpower," designed to help kids understand and embrace the strengths of their diagnosis. This interactive book with journal prompts is a beacon of hope and empowerment for young readers and their caregivers.
Delving into her academic pursuits, Emily shares her PhD research project at Walden University, which explores the spiritual experiences and faith formation of adults with FASD. This unique study seeks to understand how abstract reasoning, often a challenge for those with FASD, impacts spiritual expression and connection.
As we gear up for the Seattle conference, Emily also teases a documentary in collaboration with Dr. Christy Petrenko and training footage with the CDC, showcasing the ALC's commitment to making a real social change.
For those interested in participating in Emily's research, volunteering for it while at the conference, or simply seeking resources and support, this episode is packed with information and inspiration. Emily's message is clear: it's time for the FASD community to speak up, challenge stigma, and pursue advocacy with fervor.
To connect with Emily about participating in her research, email her at emily.hargrove@waldonu.edu
To be kept abreast on the exact launch date of her book, FASD is My Superpower, Helping Kids Understand the Strengths of Their Diagnosis, check out her webpage. www.emilyhargrovefasdcounseli... or email Emily at Emily.hargrove.fasd@gmail.com
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Show notes created by headliner.app